Well, here I am again... another weekend that "appears" to look like all hell is going to break loose. Which again is really irking the crap out of me, because I do not want to have to POSTPONE yet another trip to the Casino!!!
I've already been through this a couple of times, last weekend, it was supposed to be "earth shattering" weather and it did NOTHING.
Now here it is Mother's Day, and again the forecast (extended) is showing rain, rain, rain, storms, floods, and more crappy weather.
Actually, I went, got out my brand new white jeans that I've been wanting to wear, and they still have the tags on them. I also have a beautiful top that just looks awesome with them, plus add in my rhinestone studded sandals, a bit of makeup, a necklace and earrings, and I am set to go to Winstar!!!
Well, I call my Mom, and she has not even "given it much thought" of us going. Yada, yada, yada... about how bad the weather is supposed to be Sunday, and thinking we should postpone... well now we are looking at much later in the month, when I had doctors appointments in Dallas - two of them back to back on the 20th and 21t! Neither of which I can miss at all. One is to have my pain pump refilled, the other is my very LONG AWAITED getting to see my Rheumatologist again. It has been months and month, and months since I saw him. In fact due to something, in fact, I believe I had double pneumonia and was supposed to see him. I had to reschedule and the other appointment was like in December of 2014!!! So, it has taken me patiently waiting now for 6 MONTHS just to get into see him. I can see his PA of course much sooner, but seeing him, especially since we are possibly thinking of a medication change... I MUST NOT miss this appt!
I am NOT happy about this "discograph" business. From all I've read it is NOT a "comfortable" type of test. It is also much more invasive than having epidural steroid injections. So, that raises the risk of a spine fluid leak, or infection more than the injections. I see that depending on the scan and how far it needs to go, it can be anywhere from an hour to 2 or 3 hours, depending on what all the doctor orders. I know Medical City Hospital in an Excellent place. So, that in itself does not bother me. But, anytime now when you have a "compromised" immune system, whether autoimmune related, or whatever the case may be, you really are trying to "avoid" anything that could have the potential of causing infection, especially into the spinal fluid, blood and so on.
When you are sick, the hospital is the very place you want to avoid usually. Because the others around you maybe having many more types of illnesses that could potentially cause a worse infection.
I've not really had many issues, as far as surgery goes. I usually do well under anesthetic. As far as a surgery, I have not had any massive complications. Yet, when you combine the AAI, the prednisone, the Orencia, and other meds I must take, then there is the rise in whether an infection could happen, rather than someone who does not have immune issues, or is not on medications that could cause you problems later.
I also know this is going to be one of those types of tests that no matter what I already have had done in the past 6 weeks, which was the CT Scan and then the epidural steroid injections into the Transforminal space around those vertebra, that shows that is the place of issue, this doctor STILL is going to insist that I have this other stupid test done.
Of course yes, I could "find" another surgeon. Well, that could lead to the exact same situation, and also could lead into me not having the "best of the best" as far as my Orthopedic surgeon go. He is the one that truly remedied my shoulder pain and my neck pain. Without him, I honestly don't think I would have made it.
To me, he is the "gold standard" in surgeons for these types of problems. Although once again his bedside manner is about like a jackass, and he is an argumenative, and thinks he knows absolutely everything, and patients as far as he is considered need to "follow his rules" and NOT try and tell him anything you may know.
So, it is trying to decide what is worse to deal with when it comes to having him as an Orthopedic Surgeon.
I've got to go to get dressed and run to "Wally world". I need a belt to go with some white jeans I would like to wear, thus there is about the only place here to look. Then I have to run Jim over to the Clinic in Waxahachie about some of his meds.
More to come.....
Friday, May 8, 2015
Thursday, May 7, 2015
What do you do when you just don't know what to do? Discograph, CT Scan, and just FED UP!
I've just about had my fill of physicians, medications, tests, evaluations, scans, and everything else that falls within and in between the realms of "chronic illness and chronic pain"....
It is like no matter how hard you try to do ALL you can to make things run smoothly, you can bet someone will be either rude, hateful, or other words I guess I won't say here in this post, but it rhymes with "witch"...
I've been on the phone with the different doctors offices this morning, TRYING to make their job a bit easier. Both times, and it was both the doctors main nurses, that decided rather than be "nice" they were going to be jackasses.
The first one, has always been a jerk. I don't even know why she continues to be a "nurse". Her personality along with this particular doctor's as about as kind as a brick. You feel like you are little kid being punished over something you didn't even do. I tried to ask her question, as she began rattling off to me what "the doctor said"... and rather than her give me a moment to ask if he "has all of the records" from my pain doctor that did the injections, and did a follow up, she told me, it matters not, and I don't have "time" to dig through your chart to look! What an ass! Well, if those records are NOT there, then it could be that the doctor does NOT have the whole picture. In the first place, my pain specialist, who has known me now since about 2008-09, I TRUST! When he told me last week a "discogram" was redundant and not really necessary since the injections helped for a few days... that if surgery is needed, then get it done, and don't wait. He is usually "conservative" but his main issue is that he fear with the insurance I have, if I put it off and it gets worse, my insurance may "buck up" and give me hell having it. Thus he said before I have worse problems, worse pain, that he recommended to go ahead and have it. It is just one "level" for now, which should not be nearly as "less likely" to do well, than if I were either older, or something else happens like I get a compression fracture from the osteoporosis. In fact, he said that I could already have one or more but, things could get worse. As usual, each time I've had a joint surgery, when they actually get into the joint to see, it is a freaking mess. I've been told that with EVERY joint replacement I've had. Every time it seems it is much worse than what any scan, MRI. X-ray etc every shows. Last time all of the "damage" was deeper into the joints, thus no scan would have ever shown it. They had to go by symptoms, amount of pain, and kind of figure from everything I could tell them what was going on. And each time I've been right. It is always worse than it was on a scan.
So, to now want to put me through yet another, much more invasive "scan" or discogram, he should be aware of me also... that I am not the "usual" patient. There always has to be something "different" with me... I am always the complicated, never know until you know what is going on.
So, now today (May 7th, 2015, I get a call to "schedule" the discograph, gram - whatever they call it, which is by more than one name... and they tell me I can have it done anytime, just tell them when. Well, this week is totally out of the question. I will again have to see if my son can take me. This will be done at Medical City in Dallas, at one of the "specialty" radiology places there. So, as I look at the calendar, and of course I am hurting today bad enough to scream, but this weekend is Mother's Day and if the WEATHER will act right, Mom and I are going to the Casino... but of course the weather is showing to be not so great Sunday and Monday, so once again, I maybe cancelling the trip. Plus here it is Thursday and I have not even began to get ready. I don't have anything thought out to wear, both my nails and toe nails need to be painted, and I need to decide what to pack and so on, and so forth. The weeks tend to go by much too quickly. It is Monday, and before I blink it's Thursday!!!
So, next week it out. Plus that is really not enough time to give my son a chance to work it into his schedule. So, the followng week I already have 2 doctrs appointments in Dallas. My Rheumatologist on Wednesday and then my pain pump refilled on the Thursday of that week... so they already have me plenty booked for that week. Thus that leaves the last weekend of the month. Which again seems like forever when you are hurting, and after I hung up I said Damned maybe I should have scheduled it for next week... but again I have to have someone to drive me home... so I have to give him time to schedule that in also.
It sucks now, because there is no way, no how, Jim nor Mom can drive... and Mom not at all in Dallas, hell it is already bad enough in Ennis....
So, now I have this thing scheduled for May 27th at 7:00 AM and they will do this at 8:00 AM. I've got to look some things up. No one mentioned insurance and so forth. So my though is she was the "nurse" who schedules everything, and someone else from the business office will be hitting me up for insurance and money.
I hope to Christ it is about what the injections were, which still is NOT cheap.
Yet after the article I read about Spondyliti, now I am wondering if this should be an issue I take up with my Rheumatologist anyway before I start having an invasive test. It could be that there is damage there and the tests don't see it, as usual on me, OR if I do have this, then it maybe 7 to 10 years before the evidence shows on any type of scan... here is the URL to the article:
http://www.rheumatologynetwork.com/acr-2014/long-awaited-spondylitis-guidelines-previewed-acr-meeting
Which if that is the case, then this could be something that a medication change or something may help rather than going on with a test that could lead to very lower lumbar/sacra; (L-5/S-1) surgery. As I say, say and say again I REALLY DO NOT WANT TO FACE LOWER BACK SURGERY!!! It totally frightens the hell out of me. I've heard TOO MANY "failed" back lower surgeries, that either put people in worse pain, in wheelchairs, or lead to other back surgeries to fix the first one.
Of course I did also say that about "cervical neck surgery" also. Yet, when it came to knowing I would have "RELIEF" from the horrid shoulder blade pain I was in, I was ready for anything to take it away... thus as soon as I came out of the surgery, the pain was basically gone... so there are times that any kind of "back surgery" that can give a pretty good rating of helping to reduce pain and give back motion is something to consider, but also consider very seriously about all things involved... so I cannot say NO, I WON'T .... because if that is what it takes to rid me of this pain, where I can move forward with my life, and writing my book, then I may not have any other choice but to go along with it.
I will post some information about the procedure in a bit. Again, I am hurting having to sit and type... so it's time to get up and move around for awhile....
http://www.rheumatologynetwork.com/acr-2014/long-awaited-spondylitis-guidelines-previewed-acr-meeting
It is like no matter how hard you try to do ALL you can to make things run smoothly, you can bet someone will be either rude, hateful, or other words I guess I won't say here in this post, but it rhymes with "witch"...
I've been on the phone with the different doctors offices this morning, TRYING to make their job a bit easier. Both times, and it was both the doctors main nurses, that decided rather than be "nice" they were going to be jackasses.
The first one, has always been a jerk. I don't even know why she continues to be a "nurse". Her personality along with this particular doctor's as about as kind as a brick. You feel like you are little kid being punished over something you didn't even do. I tried to ask her question, as she began rattling off to me what "the doctor said"... and rather than her give me a moment to ask if he "has all of the records" from my pain doctor that did the injections, and did a follow up, she told me, it matters not, and I don't have "time" to dig through your chart to look! What an ass! Well, if those records are NOT there, then it could be that the doctor does NOT have the whole picture. In the first place, my pain specialist, who has known me now since about 2008-09, I TRUST! When he told me last week a "discogram" was redundant and not really necessary since the injections helped for a few days... that if surgery is needed, then get it done, and don't wait. He is usually "conservative" but his main issue is that he fear with the insurance I have, if I put it off and it gets worse, my insurance may "buck up" and give me hell having it. Thus he said before I have worse problems, worse pain, that he recommended to go ahead and have it. It is just one "level" for now, which should not be nearly as "less likely" to do well, than if I were either older, or something else happens like I get a compression fracture from the osteoporosis. In fact, he said that I could already have one or more but, things could get worse. As usual, each time I've had a joint surgery, when they actually get into the joint to see, it is a freaking mess. I've been told that with EVERY joint replacement I've had. Every time it seems it is much worse than what any scan, MRI. X-ray etc every shows. Last time all of the "damage" was deeper into the joints, thus no scan would have ever shown it. They had to go by symptoms, amount of pain, and kind of figure from everything I could tell them what was going on. And each time I've been right. It is always worse than it was on a scan.
So, to now want to put me through yet another, much more invasive "scan" or discogram, he should be aware of me also... that I am not the "usual" patient. There always has to be something "different" with me... I am always the complicated, never know until you know what is going on.
So, now today (May 7th, 2015, I get a call to "schedule" the discograph, gram - whatever they call it, which is by more than one name... and they tell me I can have it done anytime, just tell them when. Well, this week is totally out of the question. I will again have to see if my son can take me. This will be done at Medical City in Dallas, at one of the "specialty" radiology places there. So, as I look at the calendar, and of course I am hurting today bad enough to scream, but this weekend is Mother's Day and if the WEATHER will act right, Mom and I are going to the Casino... but of course the weather is showing to be not so great Sunday and Monday, so once again, I maybe cancelling the trip. Plus here it is Thursday and I have not even began to get ready. I don't have anything thought out to wear, both my nails and toe nails need to be painted, and I need to decide what to pack and so on, and so forth. The weeks tend to go by much too quickly. It is Monday, and before I blink it's Thursday!!!
So, next week it out. Plus that is really not enough time to give my son a chance to work it into his schedule. So, the followng week I already have 2 doctrs appointments in Dallas. My Rheumatologist on Wednesday and then my pain pump refilled on the Thursday of that week... so they already have me plenty booked for that week. Thus that leaves the last weekend of the month. Which again seems like forever when you are hurting, and after I hung up I said Damned maybe I should have scheduled it for next week... but again I have to have someone to drive me home... so I have to give him time to schedule that in also.
It sucks now, because there is no way, no how, Jim nor Mom can drive... and Mom not at all in Dallas, hell it is already bad enough in Ennis....
So, now I have this thing scheduled for May 27th at 7:00 AM and they will do this at 8:00 AM. I've got to look some things up. No one mentioned insurance and so forth. So my though is she was the "nurse" who schedules everything, and someone else from the business office will be hitting me up for insurance and money.
I hope to Christ it is about what the injections were, which still is NOT cheap.
Yet after the article I read about Spondyliti, now I am wondering if this should be an issue I take up with my Rheumatologist anyway before I start having an invasive test. It could be that there is damage there and the tests don't see it, as usual on me, OR if I do have this, then it maybe 7 to 10 years before the evidence shows on any type of scan... here is the URL to the article:
http://www.rheumatologynetwork.com/acr-2014/long-awaited-spondylitis-guidelines-previewed-acr-meeting
Which if that is the case, then this could be something that a medication change or something may help rather than going on with a test that could lead to very lower lumbar/sacra; (L-5/S-1) surgery. As I say, say and say again I REALLY DO NOT WANT TO FACE LOWER BACK SURGERY!!! It totally frightens the hell out of me. I've heard TOO MANY "failed" back lower surgeries, that either put people in worse pain, in wheelchairs, or lead to other back surgeries to fix the first one.
Of course I did also say that about "cervical neck surgery" also. Yet, when it came to knowing I would have "RELIEF" from the horrid shoulder blade pain I was in, I was ready for anything to take it away... thus as soon as I came out of the surgery, the pain was basically gone... so there are times that any kind of "back surgery" that can give a pretty good rating of helping to reduce pain and give back motion is something to consider, but also consider very seriously about all things involved... so I cannot say NO, I WON'T .... because if that is what it takes to rid me of this pain, where I can move forward with my life, and writing my book, then I may not have any other choice but to go along with it.
I will post some information about the procedure in a bit. Again, I am hurting having to sit and type... so it's time to get up and move around for awhile....
http://www.rheumatologynetwork.com/acr-2014/long-awaited-spondylitis-guidelines-previewed-acr-meeting
RA and The Chance of Heart Attack Doubles with the Disease
Study: Rheumatoid arthritis nearly doubles risk of surprise heart attack - Since I've has 2!!!! Already One at 40 and another one at 50- I don't want a repeat for sure. My first one at 40 years old, my doctor told me then my chances of surviving a 2nd on were not good at all. So happened I was in the hospital in Dallas when I actually had the 2nd one. Or I may not be writing this today... my Rheumatologist always reminds me of just how high my chances are since I've had 2 already and now to have RA, Lupus and so on, that makes my risk extremely high... I do all I can to "help" avoid one. But, that was how I was BEFORE the first one! I was only 40 years old, I was in great shape, walked 5 miles daily, along with other types of exercise, I ate as healthy as anyone could, my cholestral was not high at all, my blood pressure was under control with medications... so you would have thought I would have been the "poster" person for NOT having a Myocardial Infarction. Yet, I did. My doctors back then had not discovered my Autoimmune issues. Had they known, they may have blamed it on that. But it was another 8 years before I was diagnosed with RA, Lupus etc. My 2nd one, at 50, I had been extremely ill. In fact, we just talked about that a day or so again. The doctors here and in Methodist hospital in Dallas, never really KNEW What was "wrong" with me. They blamed it partially on a nick in my liver from a gallbladder surgery I had in Ennis. But, then they kept telling us that I had a "collapsed bile duct"... whatever was going on "poisons" from my system were literally pouring into my abdominal cavity all around my internal organs and so forth. I continued to get more ill by the day, and after SEVERAL surgeries, they had hoped I was out of the woods, and improving. I went for over 6 WEEKS that I could not eat one bite or take a drink of anything. They had me on a liquid "nutritional" bag of "white liquid" and that was my "food" for weeks and weeks. About the time I began to be a bit better, and more able to be "coherent" - they were trying to send me home with all of these tubes running out of my side and I was not even able to really eat yet... so I got what they thought so totally "heart broken" over being so ill and feared coming home at the time, it caused a 2nd heart attack. Fortunately, I've avoided any type of surgery and I don't have any stents at the time, so far. Medications continue to control it, but believe me there is not a day that goes by that I don't think about "what if".... so never take any symptom pf an MI lightly. Even if your "young" 30's or younger, it can happen.....
http://www.news-medical.net/news/20150505/Study-Rheumatoid-arthritis-nearly-doubles-risk-of-surprise-heart-attack.aspx
http://www.news-medical.net/news/20150505/Study-Rheumatoid-arthritis-nearly-doubles-risk-of-surprise-heart-attack.aspx
Taking A Moment Away from the Griping and Fussing over illness and pain to say " Happy Mother's Day" to All!
Before I get back to my griping, fussing and being "sick and tired" of feeling "sick and tired" I thought I would stop and take "inventory" of Mother's Day, coming up on Sunday. It used to be a "tradition" of ours, to take my Mom, and the three of us go to one of the casino's. The last several years, we usually go to Oklahoma, to Winstar, because it all has you could ever want or need, plus it is quite a bit closer than going to Louisiana. :)
After my husbands accident last year in March, that kind of put a damper on things. In fact he was still in the hospital at Mother's Day last year, and Mom and I went together, just the two of us, and had a wonderful time. We usually have a blast together, whether it be at a Casino, or just a day away for a "window shopping trip".... so not being able for the 3 of us to go right now, kind of changes the scheme of things. Yet, life is like that. We never know when within a breath's space our entire lives can be changed forevermore.
This year is going to be a real challenge for me. Now I face yet another round of tests on my lumbar/sacral spine. They just called to sit up a "discography" to be done in Dallas at Medical City. I chose to wait until the last part of the month, on the 27th, which now I am wondering why I decided to wait that long. Today, I feel like I've been ran over by a train, and then backed over and ran over once more. My back had been feeling "somewhat" better. And of course between our freaky weather, and all I've been doing, my back hurts like hell right now. But, so does the rest of me. So, I figure I've either came down with a slight "bug", or it is a "flare" trying to come on... fatigue, pain, lethargic, nauseated, my head feels like it could explode and our humidity has to be at 100%!!!!
Anyway, I said no "griping" on this post :) So, again below is what I posted to all of the Mom's on Facebook. Thus, here it is for all of you also.
Enjoy your kids!!! They grow up much to quickly. Just turn around once, blink your eyes, and within a breaths space, they are grown, often married, with family's of their own, jobs, and all that life entails for them. So, everyone with little tot's please enjoy every moment of the funny, silly, and sometimes messy things they do... for it won't be long, they will be out of high school, out of college and out into the world all their own....
And you shall be wondering where the time went....
I wanted to post a "shout out" there to ALL MOMS! Mothers Day is here on Sunday, and before I get too wrapped up in things I want to make sure to let every Mom, Step-Mom, and so on know just how incredible you are. The many nights we've stayed up with them when they were little, or ill, to the days of school, lunches and parties. From the PTA meetings, cupcakes for the class, all of the special birthday parties, holidays and decorations we put out for our kids to enjoy. From the days of worry over them as they grow a bit older, and pray "we've raised them right... those times we think "they didn't come with an instruction manual, and that pain we endured when they were born, and how quickly it melted away as soon as we heard that first cry. They always remain "Our kids" no matter if they are 3 yrs old or 35 years old... kids still are kids to parents... I am so proud of my two "kids"... although both grown, my son 35 soon to be 36 (I think) and my daughter 31soon to be 32 (I think);) and her awesome husband and my 3 great and wonderful grand kids. I so wished we lived closer, we just don't get to see one another as we would like. Yet, life is life, and sometimes things are not exactly as we would like them to be. So, thank goodness for FB, so she can keep me up to date, with pictures of all of their events, and I have got to watch them "grow up" via Facebook! :):) For that I am elated. I wish each and every Mom out there an incredible Mother's Day! Whatever and wherever you get to go, or stay home, visit, rest, and however you celebrate, may you be well, free from pain, if only for that day, and know in your heart, you are a fantastic Mom!!!!
After my husbands accident last year in March, that kind of put a damper on things. In fact he was still in the hospital at Mother's Day last year, and Mom and I went together, just the two of us, and had a wonderful time. We usually have a blast together, whether it be at a Casino, or just a day away for a "window shopping trip".... so not being able for the 3 of us to go right now, kind of changes the scheme of things. Yet, life is like that. We never know when within a breath's space our entire lives can be changed forevermore.
This year is going to be a real challenge for me. Now I face yet another round of tests on my lumbar/sacral spine. They just called to sit up a "discography" to be done in Dallas at Medical City. I chose to wait until the last part of the month, on the 27th, which now I am wondering why I decided to wait that long. Today, I feel like I've been ran over by a train, and then backed over and ran over once more. My back had been feeling "somewhat" better. And of course between our freaky weather, and all I've been doing, my back hurts like hell right now. But, so does the rest of me. So, I figure I've either came down with a slight "bug", or it is a "flare" trying to come on... fatigue, pain, lethargic, nauseated, my head feels like it could explode and our humidity has to be at 100%!!!!
Anyway, I said no "griping" on this post :) So, again below is what I posted to all of the Mom's on Facebook. Thus, here it is for all of you also.
Enjoy your kids!!! They grow up much to quickly. Just turn around once, blink your eyes, and within a breaths space, they are grown, often married, with family's of their own, jobs, and all that life entails for them. So, everyone with little tot's please enjoy every moment of the funny, silly, and sometimes messy things they do... for it won't be long, they will be out of high school, out of college and out into the world all their own....
And you shall be wondering where the time went....
With Love, Honor and Wishing All Mom's out there a very Happy Mother's Day!
I wanted to post a "shout out" there to ALL MOMS! Mothers Day is here on Sunday, and before I get too wrapped up in things I want to make sure to let every Mom, Step-Mom, and so on know just how incredible you are. The many nights we've stayed up with them when they were little, or ill, to the days of school, lunches and parties. From the PTA meetings, cupcakes for the class, all of the special birthday parties, holidays and decorations we put out for our kids to enjoy. From the days of worry over them as they grow a bit older, and pray "we've raised them right... those times we think "they didn't come with an instruction manual, and that pain we endured when they were born, and how quickly it melted away as soon as we heard that first cry. They always remain "Our kids" no matter if they are 3 yrs old or 35 years old... kids still are kids to parents... I am so proud of my two "kids"... although both grown, my son 35 soon to be 36 (I think) and my daughter 31soon to be 32 (I think);) and her awesome husband and my 3 great and wonderful grand kids. I so wished we lived closer, we just don't get to see one another as we would like. Yet, life is life, and sometimes things are not exactly as we would like them to be. So, thank goodness for FB, so she can keep me up to date, with pictures of all of their events, and I have got to watch them "grow up" via Facebook! :):) For that I am elated. I wish each and every Mom out there an incredible Mother's Day! Whatever and wherever you get to go, or stay home, visit, rest, and however you celebrate, may you be well, free from pain, if only for that day, and know in your heart, you are a fantastic Mom!!!!
Sunday, May 3, 2015
"World Autoimmune Arthritis Week" Race Around the Globe! Are your Ready! by the International Foundation for Autoimmune Arthritis
WOW! May 2015 is going to be a very busy month for all advocates!
We have several "awareness" things going on for May and one of them is the "Race Around the Globe" for a week of spreading awareness about Autoimmune Arthritis!
The International Foundation for Autoimmune Arthritis (IFAA) is putting this week on. It begins on Ma15th, and around the Globe many entities will be participating in it.
Here is a link to the official "PR" release:
http://www.prweb.com/releases/2015/WAAD/prweb12684750.htm
For More Information about This Amazing Race Around the Globe - Host by IFAA, where you can also sign up to participate see:
http://www.worldautoimmunearthritisday.org/home.html
We have several "awareness" things going on for May and one of them is the "Race Around the Globe" for a week of spreading awareness about Autoimmune Arthritis!
The International Foundation for Autoimmune Arthritis (IFAA) is putting this week on. It begins on Ma15th, and around the Globe many entities will be participating in it.
Here is a link to the official "PR" release:
http://www.prweb.com/releases/2015/WAAD/prweb12684750.htm
For More Information about This Amazing Race Around the Globe - Host by IFAA, where you can also sign up to participate see:
http://www.worldautoimmunearthritisday.org/home.html
Lupus awareness Month Started May 1st"
Here we are, the time flying by. It seems like just yesterday was the beginning of the new year. Now we are already experiencing "spring" in the air, Fall has faded, Winter has "winterized" and with Spring Comes "Lupus Awareness Month"!
There will be MANY activities this month from walks, to all types of other advocate projects that you can help with.
The most important thing you can do is "Spread the Word" and educate others about Lupus!
I have literally been surprised at how many people, including Medical Professionals, are not familiar with Lupus. Difficult to believe with all of the information out there about treatments, medications, new medications on the horizon, social media, U-Tube, and many, many of us are continually "hooked into" being online in some realm.
So, it is time to tell your story about Lupus. Tell a friend, post it in your local newspaper as an Op-Ed, or send a Letter to the Editor. Post a poster on your Facebook, or blog.
There are many ways you can reach out and let others know about this serious, life altering, life taking illness.
There will be MANY activities this month from walks, to all types of other advocate projects that you can help with.
The most important thing you can do is "Spread the Word" and educate others about Lupus!
I have literally been surprised at how many people, including Medical Professionals, are not familiar with Lupus. Difficult to believe with all of the information out there about treatments, medications, new medications on the horizon, social media, U-Tube, and many, many of us are continually "hooked into" being online in some realm.
So, it is time to tell your story about Lupus. Tell a friend, post it in your local newspaper as an Op-Ed, or send a Letter to the Editor. Post a poster on your Facebook, or blog.
There are many ways you can reach out and let others know about this serious, life altering, life taking illness.
Saturday, May 2, 2015
The "New Addition" the the Royal Family in Britan - New LIttle Girl is here!!!
Kate and William brought out the little bundle of joy for all the world to behold today. This is after delivering yesterday!!! Kate looks amazing, but I bet she is give out tired.... ;) and running on "that after glow and excitement".... I am thrilled it was a girl... I had hoped it would be... it will be awesome to watch how they dress her....
So, Congrats to the Royal Couple, their Little King and their latest Addition of the "Princess"....
So, Congrats to the Royal Couple, their Little King and their latest Addition of the "Princess"....
Subscribe to:
Posts (Atom)
-
I really have SO MUCH to try & catch up here on, so I am going ton"Post"n some of my ongoing chronic health issues, things abo...
-
I finally made a trip to Urgent Care with what I feel is a very bad Lupus and RA flare, but there are several "symptoms" strange t...
-
How can our kids feel safe when WE as adults don't???? I fear Wal-Mart or just walking across the parking lot at HEB in my small lo...