Monday, August 8, 2016

A Petition to sign for Chronic Pain and such, along with information on Your Congressional Members and Town Hall Meetings!

https://petitions.whitehouse.gov/petition/direct-dhhs-fund-and-implement-national-pain-strategy-reduce-public-health-burden-chronic-pain-0


Above is a link to Congress a Petition to sign about Chronic Pain and its effects on our soldiers and Armed Force and everyone else....

Also anyone who attends town Hall Meetings in your area, congress is out for the next month and most are doing them. So, be sure to find your s and see the schedule. Here where I am mine is Joe Barton, so here is his schedule for those around in the counties he serves.... 6th District in TX.....


https://joebarton.house.gov/press-releasescolumns/rep-barton-releases-town-hall-schedule/


Town Hall Meetings with Representative Joe Barton, while Congress is out for this month... be sure to check on yours if you want to go and give your reasons for anything... from chronic pain and such, to the focus on how horrid our governmental situation is now...


I KNOW SPEAKING UP WORKS!!! It has helped myself as well as many others, so SPEAKING OUT TO YOUR ELECTED OFFICIALS IS IMPORTANT!!!



Sunday, August 7, 2016

Sunday's A.M Addition to my Newspaper All things Autoimmune, Chronic Pain and Dementia! And Suggestions?????

My Brand News Newspaper for Sunda AM is OUT and Here is the link:


http://news.autoimmunearthriticsystemiclife.com/#!headlines


This is MINE to Add, change, or whatever I feel my audience" wants to read, see, hear more about and so forth (as far as health issues go) PLEASE FEEL FREE TO MAKE SUGGESTIONS...if yu have another health issue, or would like to see more about something in health, let me know and I can go in and get more article and information about those topics as well as the ones I am giving you!

I am DOING THIS FOR YOU!!! "My "Audience) So, post, email ,speak up even post on the paper itself and give me your personal thoughts and issues!



Saturday, August 6, 2016

A bit of catching up, been once again "ill" with "something" a Flare possiblly, but fever, severe body hurting all over, severe headache and NO energy!!!!!

Dropping in quickly to say I am still here! Been sick for two and a half days at least with yet again, fever, severe body pain all over, severe headache, and neck hurting, and my lower sides...plus NO energy...it was as if someone took a needle stuck it in e, and drained EVER BIT OF WHAT LITTLE BIT OF STAMINA I HAVE AND TOOK IT ALL AWAY! I could barely go from one room to the other at my house...so needless to say, I am BEHIND on painting, and everything. this house needs to be cleaned, including dogs bathed, and so forth... and I am way behind on getting the painting done... and I had been on a roll... not sure if it is just the heat that ha s zapped me, even though I have tried not to be in it a lot, or possibly just a continuing LUPUS and RA flare...


PLUS my ankles are "better" but that right one continues to swell if I get up and stand, walk on it a great deal, like painting, standing on the short ladder, or cleaning house... and I am sure the heat does not help it either... I felt as if someone had taken a ball bat to me and beat the hell out of me... honestly...So, I am headed to go and paint... and hope I can continue to "feel well enough" to get somewhat caught up o that, then tomorrow spend the day bathing the dogs, cleaning and and showering me! Anyway, keep my in your thoughts, and keep my kids in your thoughts and prayers...I know they have a an awesome trip to the river, for a week, but will be driving home I think tomorrow with their huge travel trailer in tow...so I wish them safety in getting home... 


This damned Lupus, RA, Sjogrnen's and the like all added up can really put a kink in your life, and you never know when it will hit you like a ton of bricks...

Wednesday, August 3, 2016

FIRST YOU AND DIRECT SUN! My Week has been NUTS!!!! Between bill pay day, the heat, errands, and trying to get the #2 house painted... I thought I would say hello...and tell you a couple of things.

Our "fortunate" temps BELOW that 3 digit mark are about over... the next 15 days or more show 100 plus degrees... so since it is just the 3rd of August, I can say I feel lucky, it could have been a month ago, BUT I HATE this kind of heat! My skin feels like hot burning coals are on it, just having my arm in this type of weather. Between the Lupus, and then the Prednisone, and other meds that effect my skin, I cannot take over a moment or two in direct sunlight.... again though we are fortunate :)




http://www.msn.com/en-us/weather/today/Ennis,TX,United-States/we-city-32.329,-96.624?iso=US


And SPEAKING OF SKIN, AND HOT SUNNY WEATHER - You Guys and gals out there with ANY OF THESE SKIN ISSUES, ILLNESSES, MEDICATIONS (Lots of meds can make you very vunerable to a burn within moments - many of your "tetracycline antibiotics", many of our blood pressure meds, and if you read your labels and look your meds up, they will give you a huge warning about sun!!!!!


So, be safe! I know I "try" to do anything outside, either before the sun arises, or after it is down below my tree lines, BUT today, I went over to house#2 and had to water some of the plants I've put out... and I could not avoid the sun TOTALLY... and it honestly felt as if my skin was on fire, just letting my arms be in and out within seconds!!! So, sunblock!!! and/or all ways you can protect yourself... my years of going out to the lake and tanning when my kids were little, or mowing my lawn in my bathing suit top and shorts, are long gone.....

 

Here is a partial list of the many medications and lots of information about medications, sun, and what you should do and NOT do!

http://www.medicinenet.com/sun-sensitive_drugs_photosensitivity_to_drugs/page3.htm

Friday, July 29, 2016

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Wednesday, July 27, 2016

National Pain Week in Australia - Seeing that others in other Nations' suffer the same issues as us....






We often lose sight of the fact that our Nation is NOT the only Nation who has Chronic Pain Suffers and they often go through the same "hoops" we do when it comes to pain control, doctors, and people that ask "But, YOU "Look" so good?" I thought I would post this article about Aussie and their National Pain Week....




This got me to thinking about just how many people in so many "Third World Countries" must have millions, or perhaps more than that, who suffer from Daily Chronic Pain, and in so many different types of conditions... primitive in nature... where they don't have physicians offices to go to, or even a doctor anywhere near that could comprehend the scope of Chronic Pain, from all types of ailments, injuries, and more.... We are trying to hard to get alliance with our own CDC and Congress to make them "get it" when it comes to our daily chronic pain... and yes we hear it all the time" But, you look good"?"

 I have to say as of late, I don't "hear" that statement as much anymore... I may hear WOW you are so tiny, or any number of things about my "small" I've gotten, but as of late, between all I went through with my own illnesses and stuff, to taking care of Mom and now dealing with all of those things, I "DON'T" always go out "looking so good"....

 I don't have the time to put on makeup, or if I am going to paint or work in the houses, or take care of the yards etc... I maybe in my huge overall shorts with holes in them, no makeup, and my hair just "laying around" with that bedhead look (lucky for me that is still the style) LOL.... but the older I get, and the "slower I am" at everything, often times, I don't have that extra hour to "dress nicely", do my hair and put on makeup... besides that fact that I am just going to sweat it all off, or I certainly don't want my "good clothes" covered in multi-colors of paint - I have to forego that and just go out, and do what I need to.... So, I cannot fathom what those that are not near a "physician" or a local pharmacy to get anything for "pain relief" cope. I am sure, like earlier times here in the 20's, 30's and so forth, long before "doctors" had offices, and staff and hospitals were in every town, people "made their own concoctions" of "pain relievers".... they deal with herbs, plants, and so forth, they have learned in their lives rid them of pain... or doctors still are off in jungles, and in remote places where most may have never really seen a real "medical doctor".... so when I thought about "us" here, and then seeing Pain Week in Aussie, it got me to thinking about how many suffer, and they have no "real place medically" to get help.