Friday, January 8, 2016

Remember These New Clinical Trials - for Cushings Symdrome, Alzheimer's, Pediatric Asthma, and Severe COPD!


CUSHINGS SYNDROME CLINICAL TRIAL

http://curec.lk/1hKk5XN

 

Description
This trial is testing the safety and effectiveness of a new investigational drug for the treatment of Cushing's Syndrome. Under the supervision of qualified physicians, cortisol levels and symptoms of Cushing’s Syndrome will be closely followed along with any signs of side effects.

 





 

ALZHEIMER'S CLINICAL TRIAL

http://curec.lk/1Pt53Dp 


Description
The purpose of this study is to investigate whether the study medication can help people with mild to moderate Alzheimer's Disease improve their mental abilities such as understanding, reasoning, and judgment. The study medication will be given together with an FDA-approved Alzheimer's medication: Aricept® (donepezil), Exelon® (rivastigmine) or Razadyne® (galantamine)


PEDIATRIC ASTHMA CLINICAL TRIAL



Description
Asthma is a common lung condition among children. Your child may already have the symptoms of asthma like coughing, wheezing and shortness of breath. Current asthma treatments don't work well for every child. Clinical researchers are studying research treatments that may better control asthma in children.





SEVERE TO VERY SEVERE COPD CLINICAL TRIAL


Description
This research study is testing whether a new investigational drug that targets eosinophils (a type of white blood cell) could help patients with COPD (chronic obstructive pulmonary disease) control symptoms and reduce exacerbations (flare-ups) that lead to hospitalizations. The new investigational drug will be compared to oral and inhaled corticosteroids, the current standard of care for COPD. 

 FOR MORE INFORMATION ON ANY OR AL OF THESE CLINICAL TRIALS VISIT THE LINKS BELOW THEM

 

SPONSORED BY "CURE CLICK




Wednesday, January 6, 2016

Healthline Contest Best Blog for the Year!


Above is the URL where to add a blog, and I've added mine... you can go in and "vote" daily on Facebook and Twitter, be sure to use the hashtags:


Be sure to go into the page, and find the "blog" you want to vote for, (I put them in Alphabetical Order to start with, then you can vote once every 24 hours on your choice, on both Facebook and Twitter.... be sure to use @healthline and the hashtag #besthealthblog   !


Here is the link where you can go to vote as above!!!!!


And there are some rules and things to know as far as how to vote and so forth and that page also, if you follow the links!


Good luck to All!


http://www.healthline.com/




EXETREMELY IMPORTANT CDC TO HAVE A CALL TOMORROW NIGHT THE 7TH AN THE PUBLIC CAN LISTEN IN ON THE ISSUES OF OPIOIDS & NARCOTIC PRESCRIPTIONS!!!!

EXTREMELY IMPORTANT YOU GUYS AND GALS!!!!! WE ARE ALLOWED (THE PUBLIC) TO LISTEN IN ON THIS CONFERENCE CALL TOMORROW EVENING!!!!! BE SURE TO READ ABOUT THIS AND PASS ON!

 

PLEASE pass THIS ON TO ANY AND EVERYONE YOU FEEL WILL BE INTERESTED!!!!!!!


http://nationalpainreport.com/cdc-to-host-public-conference-call-on-controversial-guidelines-for-prescribing-opioids-for-chronic-pain-8829092.html


This is from the National Pain Report and is in my latest addition of my newspaper that comes out daily, "All Things Autoimmune".... PLEASE PARTICIPATE or Let others know if you can.... this is such a crucial issue right now... we need every opportunity to get our "words" in about the seriousness of "true pain patients" and how it can destroy their qualify of lives without the proper medications!!!!!


Tuesday, January 5, 2016

January 13, 2016 DEADLINE FOR YOUR COMMENTS ON THE CDC AND PAIN MEDICATIONS AND CONTROLS...

I know I sound like a BROKEN RECORD!


But, it s IMPERATIVE WE get our comments in on this CDC Docket about Crhonic Pain Medications, and how they want to "tell what doctors" can and cannot prescribe and when.... PLEASE GO IN TAKE A MOMENT TO COMMENT, RIGHT NOW THERE ARE ONLY 1803 COMMENTS... WE NEED MORE LIKE 18,000!!!

YOU DO NOT HAVE TO GIVE YOUR NAME IF YOU DO NOT WANT TO and still post your comments.... there are many physicians that are also posting because THEY want to TAKE CARE of Their Patients and not have the CDC breathing down their necks about what they "can" and "Cannot" do as far as patients go...

The DEADLINE IS JANUARY 13, 2016!!! So Time is of the essence.... PLEASE TAKE A MOMENT TO COMMENT!!!! Rhia


The Link is:

http://www.regulations.gov/#!docketBrowser;rpp=25;po=0;dct=PS;D=CDC-2015-0112;refD=CDC-2015-0112-0001

 

 

Sunday, January 3, 2016

A Few New Photo's for the "New Year" - My Wedding Dress (that I deicded to Wash myself 10 years old), pics of the fur-kids, of my Christmas Wreath, & a few other Misc....

A few of my Daughter and Grandkids, My 13 Sleigh Bell Christmas Ornaments, one for every year now since 2004, My Fur-kids, Peanut and Bub's, My Wedding Dress I decided to wash myself (I wore it 10 years ago last April 6th 2005) one of my Mom and more....











Starting 2016 The New Year Off Right! Lupus, Joint problems, Surgeries, Pain Pump Replacments, Cervical Disc Surgeries, & Seeing the "Positive" Side of a New Year.

Morning Everyone! Well, I must say, I know there are MANY, MANY of us that are GLAD to see 2015 come to a close. Gosh, the number of people that I've came in contact with both on Facebook, and here in my hometown, that have either endured so much loss, or have been extremely ill, in the hospitals, had surgeries, have had major issues with Lupus, RA, Heart problems.... Sjogren's and the list just continues.

I know I face, (now the the 1st one the pain pump replacement surgery is done) at least one surgery. I have to have that cervical disc above where my doctor repaired the others (he is kind of wishy, washy but I think it's probably C-2-C-3.. not sure but am going to look it up. He did an X-ray and saw that I have a disc, at least one, that is 80% "collapsed" which is causing all of the severe neck, shoulder blade, and down my shoulders, into my arms, wrists and even thumbs... pain... at times it is almost unbearable... if I drive even to Dallas about 40 miles or so, it hurts so badly... so I know that has to be dealt with.

Also, the lumbar/sacral disc at L-5 (I think) and S-1, anyway, right at the bottom of my lumbar spine where it begins my sacral spine is also a mess... plus I have some issues with the "opposite" of scoliosis, where my spine tilts "inward" rather than outward... and I've had a "sway back" all my life... so that is certainly not helping but I don't think there is anything they can do about that, but he can fix the disc down there.

Once those things are done, and then I can go to my Rheumatologist, and we re-evaluate all of my medication for RA/Lupus etc... and possibly make some changes then I may begin to see some positive changes for me as far as function of what I can do, and lesser pain, hopefully.

So, even though I "make" A New Years "change things" list... some of it is more those types of things, so I can again have some quality of life...

I also know we must "deal" with my Mom, and all that has been going on with her.... she is much better after the injections into her lumbar spine, which is awesome, but the issues about possibly having "dementia", or worse, ALZ, have to be looked in to...

Other than that, I want to be able to do MORE of my advocacy work, and get back to cross my fingers, eyes and toes, of finishing my book... I've been trying for 2, almost 3 years now, and was on a roll, then between the accident with Jim, the lawsuit, trial, illneses, my teeth and losing those, then Mom being sick, it seems I cannot either find the time, or have enough "energy" to stay and type on it. I have some other things that I had not thought about that I am adding to it. When I was telling one of my high school friends I grew up with about my "home life", when I was young... she told me that I really needed to address those in the book. They in themselves caused me to "think" and do, or not do things throughout my entire life. Nothing that Dad did that was "bad... he was a great Dad, BUT his being over controlling, even when I was in my 30's, and him trying to "help" but he was also trying to place things that he went through during the depression, "on and in my life"... and thus things like me marrying much too young etc... all have had a very prominent effect on how I've lived, and the things I've done, and why I didn't do some of the things I so wanted to do....

I inend on giving YOU, my BLOG READERS much more "facts" and information about "All things Autoimmune"... I hope to really ADD some very important issues, from medications, from how the government effects our lives, about the latest things to get help. hopefully get more people involved in GOOD clinical trials (I know people that have been truly amazed in clinical trials) and work with WEGO, The Arthrhtis Foundation, With the Pain Foundations, plus others such as the Lupus, Sjogren's, RA... and more things that can help YOU as patients, caretaker's. family, friends.... to understand the way these illnesses effect each and every part of a life, from physical, mental, emotional, spiritual... and why "we" do or do not do, things.... due to often "invisible" illnesses and pain....


One for instance, I had "major surgery" last Monday. I had my pain pump that "stalled" replaced. I am really not supposed to be doing much of anything, BUT I am by myself for now, so there are things I must take care of... and can't wait... So, I had not been to the market in a week, and needed a few things... NO, I was NOT feeling the best, but I got dressed, "forwent" the makeup, and went to the market. Well, I was not "moaning" in pain, or even acting as if I had "surgery"... the only things I did do, is ask the guy bagging my stuff to keep my "bags" light this time, because I was not supposed to life anything over 5 pounds, and was not supposed to use my arms over my head... well there are MANY things a person needs to get, reach, etc... and it calls for putting your arms over your head..

Of course I got home, and I was "good" I did bring in one bag at a time, rather than grabbing several, as usual... and tried NOT to do anything he told me NOT to do... yet, people around me in the market, unless I "told" them would have never known I had "surgery" or that I was in pain..... we sometimes "hurt" and it shows.. but we also have learned to "suck it up" at times, and try to not let that type of thing effect our lives... I don't want to think someone feel "sorry" for me... etc....


Okay, well I need to get some other things done, but I wanted to "catch up" as to what 2016 shall mean HERE, and what I plan to try and do to HELP MY READERS!

Wishing YOU and YOURS a blessed, healthy, peaceful, calm, faith filled, renewed hope and love for 2016!

Rhia