Friday, August 4, 2023

I Have MY OFFICIAL CERTIFICATION from "Health Union" for Patient Leader Certification!!! (Social Health Media/WEGO Health

 

I’m excited to announce that I’ve completed my @HealthUnion Patient Leader Certification at the @socialhealthnetwork. The program covers the best practices in powerful storytelling, meaningful engagement, and responsible patient
leadership. I’m looking forward to taking the next steps in my Patient Leader journey and making a real impact in the lives of others! #PatientLeaderCertification

Monday, July 31, 2023

MY NEW BOOK JUST WENT TO BE PUBLISHED!!!

This is not the cover...I changed it!

I'M SO THRILLED MY FIRST EDITION OF MY BOOK...MY OWN JOURNEY THROUGH LUPUS, RA, SJOGREN'S AND SO MUCH MORE!!! 

I'LL POST WHEN IT IS READY!!!

Sunday, July 30, 2023

Lupus and Heart Complications....

 


https://lupus.net/living/heart-complication?utm_confid=2ace9515f1b02bee3772369cdfad53445b38225ccdee5abb2e0c734920995634&utm_term=Article_2_Button&utm_source=Newsletter&utm_medium=email&utm_content=5%20Great%20Date%20Night%20Ideas%20For%20Lupus%20Warriors%20%F0%9F%92%98&utm_campaign=Lupus%20net-newsletter-7%2F26%2F2023

Friday, July 28, 2023

New Book coming out soon! My Journey with Autoimmune Diseases ..Lupus , RA and other issues with these conditions

 
I've been working of this for a while. The 1st edition has been ready, but I made some changes. 

I decided this needed to be a least 2 volumes..

The "Title" stands as it was..
"It's Not me! It's the Disease!...Stupid!

Wednesday, July 26, 2023

World Sjogren's ...July ...and July 23rd was the main day!

This is a horrid disease (AI)! Sjogrens is not just dry eyes or dry mouth. It's much more complex than that. I had my teeth begin breaking off at the gum line. Sjogrens had destroyed my teeth. I had to have the rest extracted and have Dentures.

 A few days late but we wanted to acknowledge World Sjogren's that was celebrated on July 23. To learn more about Sjogren's disease go to: https://www.aiarthritis.org/sjogrens #sjogrenssyndrome #sjogrensdisease #aiarthritis

May be an image of ‎text that says '‎July 23 8 World Sjƶgren's Day commemorates the birthday of Dr. Henrik Sjƶgren, the Swedish ophthalmologist who discovered Sjƶgren's in 1933. Ų®Ų© &AUTHRITTS AiARTHRITIS INTERNATIONAL FOUNDATION FORAUTOIMMUNE‎'‎
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Tuesday, July 25, 2023

Our Medical Spaces are "Diseased" by many Doctors, ""Big Pharma", the Government... & so much more


 ******I have not posted this yet...but it seems appropriate now....

THIS IS EXACTLY WHAT I NEEDED TO SAY!!!
AND IT IS NOT A POEM IT IS THE FLIPPIN' TRUTH!!!!********

Diseased… this entire damned mess...IS Diseased!!!

All too often these days…I see more “ill” people than healthy.
It’s not due to status, married young, old, divorced or wealthy.

It baffles me more each time my heart beats; those whom should take care of us…
They’ve turned their backs on thousands.. & how some act is a total disgust.

We are quickly becoming a “society” that has a great deal of distain on how this nation is ran.
Many of us are so through with the mess with doctor’s, medications, tests…we have as patients & caretakers we've taken care into our hands.

My thoughts are that we are being given so many different things from “Big Pharma”; that we know is definitely tied into our federal government "IF" I can say “our government” with a straight face.
The FDA and DEA are right there to make sure who lines their pockets and tries to win this race.

Our insurance, groceries, gas, and EVERYTHING is so expensive…and we continue to inundate our lands, waters, air with a “fiery end”…
We see it, hear it each & every day…weather patterns are insane. Viruses, more and more illnesses the OFTEN can’t be properly diagnosed…we are overwhelmed to the brim.

A great example is this “bone growth stimulator I’m wearing due to a collarbone fracture (also a shoulder blade and 2 ribs) a YEAR ago July 4th 2023. I noticed it is a “wave length” the same as my mic.
I can’t get my microphone near it when I’m having to wear it right.

If it’s causing that, what is it really doing to my bones and my body? Then when you include a cost of $5,000.00 plus. It was insane. My insurance pays 80%. Which left me at $800.00 out of pocket. When you are “through” with it; it can’t be used again. SO if you have another break, surgery and so forth..this thing is USELESS! Oddly enough, I found out the company online. I called customer service, explained my situation, they waved my portion.

What irked me that that the REP that brought it out here knew that. I told him and he said did you find out? I told flat old him I used “Google” and the company’s website.

He was shocked & after a moment, he said well I was going to mention that to you.. totally smelling like B/S …right???!!šŸ˜ šŸ˜”šŸ˜ 

Why would he be upset over whether I have to pay the co-pay or not? Ten to one HE gets a commission from that money he thought I would pay in.

Why else when he saw my situation NOT offer to see if I qualify for assistance? This is the TYPE OF SITUATION... That I feel is "medical gaslighting". Believe me MANY of us are being used by "gaslighting" and we are not even aware of just HOW WRONG it is!

It's happened to me at least a handful of times; without me truly understanding what the term "gaslighting" even meant. I had actually seen it used in a "good manner".

Once I went through the last time I was medically gaslighted, I knew what was happening with my doctors office was absolutely against the OATH and regulations doctors have to do or not do for patients.