Friday, August 31, 2018

"Some Gave All"... "Senator John McCain In So Many Ways, and We Continue to Know Each Day is A Gift, Memorial Day, "Invisible Illnesses, and those Visible....

One of those of the VERY BRAVE, who served, who protected, who gave ALL, and then continued to give even more, for so many, many years. I loved what our "Last Vice President, Joe Biden" said, about him "they were like Brothers, and they "fought" at times like brothers, and also came together often as brothers"...

I have really never "stepped" on "either side of party lines"... I've felt that the "person" man or woman who serves our nation best, is the one who should take the roles of serving our nation, in Congress, in the roles of the Senate, of Commander and Chief, those who go into battle, knowing they may "give all", and those families, who know as their loved ones leave on those trips to protect our country, that they may never "see them again" other than lying still, until someday they meet again in the heavens above. It is not just those who fight, who serve, who run our states, run our nation, but also the families that stand beside them, and have to be as brave,

if not more brave knowing there could be a "grave loss" of life, of limb, of body, and often times, come back without the "emotional" ways they had before they went to see the horror things they must see and endure daily on foreign soils... yet even on our own soil, all too often now we see such danger, such damage of life, of sorrow, those who go to school, to college, to work, to a concert, and never know how that day may end.... it is for this we Celebrate Memorial Day... Celebrate Life, and Celebrate those who give their own life, in order that we may carry our own lives forward... May everyone reflect upon the Greatness of Ours that give, in every way... Be safe, be proud, and hold the "freedom" in your heart that we have today... for we never know when that moment may come, that "freedom" may not "ring our as loudly" as it does at this moment.




Tuesday, August 28, 2018

Mom - Lewy Bodies Dementia and Missing her Everyday!

Had it not been for what we felt was Lewy Bodies Dementia, my Mom would have been 83 years old today!

It seems as if just yesterday she and I were planning a night away for her birthday, to the Casino!
The last time was around January 2016... and she passed away in June 2016. It took her so quickly, none of us had time to even give "thought" to how ill she was, so quickly, without warning.

Unlike some other Dementia's and/or Alzheimer's, some live for years with them... But, it took Mom so quickly, and I watched what seemed like Hour to Hour her "getting further" and further away...

Love you and Miss you Mom, each and every day!





Friday, August 24, 2018

New Clinical Trials - Parkinson's and Gastroparesis Awareness Month and UC(Ulcerative Colitis)


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Posting by and written by Pamela Steele©

Wednesday, August 22, 2018

#BLUEUP, Stomp Out BULLYING Official Day October 1,2018!

https://www.stompoutbullying.org/campaigns/world-day-bullying-prevention/

This is SUCH AN IMPORTANT SUBJECT, NOW WITH SCHOOLS BEGINNING ONCE AGAIN, WHETHER ELEMENTARY, JR. HIGH, HIGH SCHOOL, COLLEGE, WHETHER IT'S A "NONPROFIT" OR JUST A REGULAR School sponsored by our states, local governments, and our National Government, BULLIES EXIST! Not only IN SCHOOLS, but in the WORK PLACE!

We see this type of problem everywhere, whether it's a "hate crime" which to me all Bullying types of things are 'HATE CRIMES" of a sort... We know that all too often, kids "see and hear" things at home, or other places, then "bring that type of thing" to school with them"...

whether it's because you "dress different", talk differently, go to a different church or don't go, whether you have one color of skin or the other, whether your "schools" are the "name brand" or "Wally World" brand... whether you "buy your lunch" or get a "free lunch or breakfast"... what "side of the tracks" you live on, whether you are "too thin", or what some consider too "large"... maybe you don't "go to the salon" and have your hair cut, or maybe you can't afford glasses or contacts that cost 100's of dollars... maybe you are from a "one parent home" or maybe your "parents" are the same sex, whatever it "is" you can bet that their some is kind of person or group that wants to Make you feel "less than", that you are "weird", poor, or don't dress well...

or maybe your parents cannot "afford a new car for you to drive to school", so you ride the bus.... as I said, whatever it is, you can bet "someone" is out there just waiting to make someone feel "lousy" about themselves. Often times the "very ones" that are being "bullies" are the ones that could be "getting bullied", or abused at home, or somewhere else. So, it takes even more of an effort on the part of us, that "hate the idea" of someone making fun of a person, or talking down to someone, or calling them names, or talking about how "their home life" is strange... REMEMBER, THAT PERSON HAS FEELINGS, EMOTIONS, AND HURTS JUST LIKE IF IT WERE YOU! So, be the better person and "step up" and tell them that you won't stand up and listen to someone being "bashed" either through words, actions, being treated as if they are not "human"....


My daughter and I just talked about this, just this morning. As her boys begin school this week, "most of the time" "boys" don't care what kind of "jeans" you have one, if your shirt buttons up, or is a T-shirt... etc... but "girls" can be so terribly cruel... boys can also, but girls tend to be those that "put down" someone for the way they dress, talk, look, and act a bit differently. I know that the "internet" is awesome in ways, but in other ways, it's created a way of "hateful" and harmful things to be said and done, and can be "sent out" with 100's or 1,000's of those to see it, within the blink of an eye....

So, as the new school year comes, and as I recall being a bit "overweight" and not being allowed to be in the band, or do some of the things I wanted to do, because my Dad was "too overprotective", he worked nights most of my Jr. High and High School years, and he just "didn't trust" anyone, and I don't think even trusted me... so I was "teased" due to several things over my years in school... but now often times it's a great deal more than just a bit of teasing, and it leads to kids committing suicide or harming someone, due to that "teasing" and abuse..


We have always been an organization for kindness.

The types of problems we tackle may have changed over the past decade,
But our passion has never wavered.
Ours is a higher purpose.
We work so that youth may stand tall and be respected.
With our help, youth are kinder. Schools are more inclusive.
Communities have more equality. Society has more unity.
So that, a culture of cruelty can become a culture of civility.
So we devote ourselves to breaking down barriers, we give voice to the voiceless.
We give belonging to those feeling left out.
We welcome diversity and inclusivity.
We work shoulder to shoulder in unity.
We empower the fearful to be fearless in this pursuit.
And together we will find the answers, to change the culture, for good.ption

Thursday, August 16, 2018

#AtopicDermatitis Clinical Trial Sponsored by Cure Click

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Wednesday, August 8, 2018

Our "fur-babies" & just how critical they are many of us our Live's, chronically ill, unable to get out, or have little or no family nor friends


I realize many people in the nation and around the globe have "fur-babies"... I know there are a great deal of us that think of them, as a family member, & crucial to our daily living.

When you get a puppy, kitten, or any type of animal that you can "bond" with, that bond can be so tight that either "you" or your "Fur-kid" can be severely upset for one or the other to not be around.

I know for me, if I didn't have my two "fur-babies" I don't think I would survive with all of the health problems, loss of two other precious pups, so much pain, & the "difficulty" in life to survive all we go through.

Those with pets, know they love unconditionally, they are loyal to the "inth" degree, and they treasure YOU as much as you treasure THEM!

It even makes me upset just to have to go away for a day and night, and them not be able to go... I worry like it was another "human" family member, they are who keep me smiling when I want to "pitch life" down the drain and say to hell with all of it.

So, I "lost" two of the most precious pups of my entire life... my dearest Tazzy, my Pug that I got for a Christmas present and she was only about 7 weeks old when I could finally pick her up. She was everything to me, no matter how sick, how much pain I had, how things seemed just out of kilter, there Tazz was to make me smile... Then several years later, I decided to add a 2nd fur baby to my home. So, Bubba Gump, (Bub's as I called him) who was part "doxie" and part "chiquawa" but I didn't see much of the 2nd part in him... they called him a "Chi-weenie" but the "Chi" was not there in looks. Anyway, he also came along at about 6 weeks old, so tiny he could sit here on my desk with me. Tazz was about 6 almost 7 years old, when one morning I noticed she was "acting odd". From the time I got her, about 10 times during her entire life she would get a "seizure like" episode, and would shake, shiver, get tired, and we had to hold her, talk to her, and in 15 minutes she would usually calm down, and be fine and ready to play. One morning, she just acted like she didn't have an energy to even walk to the kitchen. I went to look for her, since she was not coming when I called her, and she was laying beside her water bowl, so weak I had to literally help her put her head up enough to get some water. I almost had a heart attack.... I went into almost the worst panic attack I had ever had, and immediately picked her up, wrapped her up and rushed to our Vet, who thank goodness is only about 3 blocks from me... they took blood work, and Tazzy, just was limp and weak... and my heart broke to see her like that... I will never, never forget that feeling I had... so the Vet said she felt like taking her home with me was the best idea and then bring her back the next morning for more tests... Well, I think the Vet and I both knew Tazz would not go to the Vet the next morning....

It's taken me a while to even try to finish and post this. I still feel the pain from such a great loss, of my two fur-babies. Those that don't have pets, may not understand the way they become a family member. When you live alone, or don't have much family, or many friends around, that one or more pet, whether it be a dog, cat, or others, are what keep you going. The days when the pain is severe or any number of symptoms arise, I can look down at Bella and Peanut, and know that I am "needed and loved unconditionally by those two small tiny fur-kids....

I wanted to get this published, but I will close this one now, and do another in a few days.

LOTS! Going on - Yet "Spring" hits with "Winter" Weather, floods, Mudslides, Tornado Season - &?? CHRONIC PAIN!

Most of us have been looking forward to the sun, the warmer days, more light rather than darkness by 5PM, time for kids to be out for the summer soon, college students also, & those of us with chronic pain, hoping the "warmer" days will bring much needed relief.

Although most with different types of joint and muscle pain, such as "arthritic illnesses and diseases", muscle pain, spasms, even some of us that have had a hip repaired, or any type of joint replaced; often the ""cold, dreary, wet" time of winter, can make that pain even worse.

When I first began having migraines at 17 years old, I recall telling my doctors that the "weather" especially storms, or a drastic change between hot and cold, would make my migraines worse. I was told back then that the "weather" had little to do with it. In other words I was "full of bull".... YET... 20 plus YEARS later, and most doctors agree, that changes in the pressures, in the humidity, from cold to hot, or hot to cold, storms, any type of change in our weather, CAN and often DOES effect "pain, swelling, and our general health". 

I even told my Orthopedic Surgeon that operated and replaced both knees, that I had the same "feeling" of "phantom leg pain" at times, as if I had actually had an "amputated leg". Even though my knee was totally repaired, it was a pain as if the knee had not been "replaced" yet. Of course we still have ligaments, tendons, and those types of things that help to hold new "replacement" parts in have "nerve" memory. 

There are day I think back to telling the doctors what I did, and them dismissing me as if I were half nuts! Yet, not that many years later, research proves that it is very true and very possible. 

I've struggled (as many with the flu season as bad as it was and still is bad in some areas) the entire fall and winter, with being disgusted. The weather was so cool, rainy, many of us with "autoimmune issues", the flu being several strains, and many people even people in their 30's passed away from it. So, trying to stay away form the market, from going to Wally World, even from our physicians offices. People were so ill, and it was everywhere. I felt like a "caged animal" at times. It was myself and the fur-babies; we had our own "mini-Thanksgiving", "mini Christmas" and rang in the New Year ourselves at home... alone. 

Now it seems we are being "fooled" at the moment. Like today, it is "beautiful", sunny, not a cloud in the sky, yet the "wind" is either blowing from the North or South, and it's COOL! The mornings are still so cool, going out without a jacket on will be miserable. 

Then by noon, it's warm enough to shed the jacket, and almost warm enough for shorts and short sleeves. Yet, come about 5M, and it begins to cool down. Once again, I am hunting my longer pants and my jacket. 

I spent almost the entire holiday season trying to "nurse" a sinus infection. After weeks and weeks, I tried to "pick" a time when I thought not many would be in Urgent Care, right at the time, that hopefully not all with the flu would be there. The first visit, I got there and no one else was there. By the time, I was leaving, ALL of the staff, and ALL of the patients had masks on! They even gave me one although I was headed out the door, so I would not possibly be able to get contaminated. I would not go into the pharmacy. I drove through for several times, just so I would not get exposed, if I could help it. 

"So far".... I have been able to avoid the flu, BUT NEVER say NEVER... as it goes. For the most part, I feel it has "left the building" but I am still cautious in the market, and in the stores. Washing hands, using the wipes on the baskets, spraying down my reusable bags with Lysol, wiping down my purse, using the hand sanitizer... anything to "knock" down the issue of accidentally being contaminated. 

Yet, I am SO BEHIND! Behind on everything. One of my huge trees, almost has "passed" on me. I have 3 HUGE, HUGE CREPE MYRTLE trees

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