"Through my heart's work of writing, I share with you my complex journey a top the mountain, sliding down, crawling up, & living through the realms of Autoimmune Arthritic Illnesses. Taming "The Wolf" Thru each Day... One Step at a Time … Together We Are Learning to Survive. Please follow along, to New Beginnings - looking Thru the Window Pane of Pain in life where we shall find our journey leading us to - New Perspectives
Had it not been for what we felt was Lewy Bodies Dementia, my Mom would have been 83 years old today! It seems as if just yesterday she and I were planning a night away for her birthday, to the Casino! The last time was around January 2016... and she passed away in June 2016. It took her so quickly, none of us had time to even give "thought" to how ill she was, so quickly, without warning.
Unlike some other Dementia's and/or Alzheimer's, some live for years with them... But, it took Mom so quickly, and I watched what seemed like Hour to Hour her "getting further" and further away...
On August 11th, 2014, the world lost a wonderful beloved man. Robin Williams was an amazing actor, comedian, and philanthropist, who touched the hearts of millions with his wit and humor. However, Williams suffered from a degenerative disease that, after his death, was identified as Lewy Body Dementia.
Although Lewy Body Dementia is not a rare disease, it is still widely under diagnosed and many doctors and other medical professionals are still not familiar with it. It is often confused with Parkinson’s or Alzheimer’s disease due to the similarities of the symptoms. Doctors thought Robin Williams had Parkinson’s before an autopsy revealed the massive proliferation of Lewy bodies throughout his brain, one of the worst LBD pathologies the medical professionals had seen.
In an effort to raise awareness of Lewy Body Dementia, Susan Schneider, Williams’ wife, wrote a letter addressing all doctors, medical professionals, and patient advocates to share her husband’s story. You can read it here: The Terrorist Inside My Husband's Brain.
There is no cure for Lewy Body Dementia yet but we are hopeful. CureClick has launched a new mission for a clinical trial for Dementia with Lewy Bodies to help find potential treatment for patients suffering from this degenerative disease. Please share this trial with everyone you know and help raise awareness.