Tuesday, April 21, 2020
March 2014 right around this time, I was at my very 1st "Summit on the Hill" With the Arthritis Foundation! I was also in Washing DC for my 1st time. The weather was too cold... in fact sloppy wet snow and cold. about NOON i get a call from my then Mother In Law, who lives right there at DC. Although I had never met her in person, nIb felt after talking to her almost 10 years, ( and her accent is still sob awesome being from Columbia).. my Rheumatologist is also from Columbia, although both of them have not loves there in many. many years... he also still has that very special "accent".. At the same time I was awaiting a plane from DFW to land a bit later in the day... Jim was flying in to be with his bMom and I. He was going to show me DC & get to visit with his Mom for a few days... almost all at once MY CELL PHONE BLOWS UP!!!! NEVER does my cell BLOW UP!!! But, it was loud in the Hotel Lobby, & i was waiting my my Mother in Law, Hilda...I was nervous & she has went to the wrong Hotel by mistake so she was running a bit behind... BUT, the phone coming to pieces, was not about her, but Jim... he had been in an EXTREMELY SERVE CAR WRECK ON I-45, ON THE way to DFW to fly out to DC!!! AS I TRIED TO HANG ON AND LISTEN TO THE ER TRAUMA SPECIALIST I FELL TO MYV KNEES! I had to hand the phone to on of my had been team mates & allow them to take notes etc.... At that moment HILDA walks IN, she Sees me hysterical and SHE THOUGHT I WAS UPSET BEAUSE SHE WAS RUNNING BEHIND TO PIC ME UP!! So, i had to stand there in front of a dear sweet lady, whom I had never met in person and tell her what I knew about the car wreck and her son... NEVER WILL I EVER HOPE TO HAVE TO HAVE AN EXPERIENCE LIKE THAT AGAIN! He was in really bad shape, but after months in the hospital & inpatient rehab, he survived and even after LOTS of HARDWARE to put MUCH of his mid spine back together... HE walks!!!! The gentleman that helped me on the phone with the doctors happened to be flying out on the same plane the AF got me on to head back to TX. They were awesome, had me on a plane within hours, and he stayed with me till Dallas, and he went on to Denver to Another Summit. To top it off, after my son picked me up at the airport, it was late night.. and at the hospital, he was in ICU, and really had no clue about what even happened.. Since I needed to EAT I had not since bI think 2 days before & get some rest, take a shower... so my son and I stayed at a near by hotel.. and i guess I was so shaken, so beside myself and in shock, plus the HOTEL's OUTDOOR LIGHTS TO OUR DOOR TO GO IN TO THE HOTEL WERE OUT! I TRIPPED, FELL FLAT ON MY FACE, busted a tooth partially out, it went through my CHIN, and I looked like I had been in a bar fight... MY REASON for TELLNG THIS, IS FOR ONE being right at the Anniversary" of that in March 2014, plus HEARING THEB NURSES 7 DOCTORS WHO HAVE TO SIT WITH PATIENTS, HOLD THEIR HANDS 7 THE FAMILY CANNOT EVEN GO IN TO THE ROOM TO SAY GOODBY TO A LOVED ONE!!! Those stories shall remain with them the rest of their lives... and they always at times come back, just as if it were "yesterday".... SO TELL YOUR LOVED BONES YOU LOVE THEM, SHOW THEMB SPEND TIME WITH FAMILY & FRIENDS... "In A MOMENT, within a BREATH'S SPACE, LIFE CAN FOREVERMORE CHANGE......
WORLD EARTH DAY APRIL 22,2020
World & National Lupus Day & Month May 2020
The Spanish Flu
BEFORE anyone with LUPUS, RA & other Illnesses that require Plaquenil Daily!
Article from Arthritis Foundation
Please read & pass along!!
Hydroxychloroquine (Plaquenil) Shortage Causing Concern
Possible use of arthritis drug for COVID-19 symptoms causes access challenges for people with arthritis.
Thursday, April 16, 2020
This is dedicated to the class of 2020. Share and make it go viral for them.The artist is
Kaitlyn Kirian of Ohio
This is just so sad, this will be how they remember their graduation - but we love each of them - my neighbor graduates this year .. I know many of them wonder what "their future" make look like? My heart aches for them....
Monday, April 6, 2020
Blessings and Hope for This Easter Bring Miracles to our lives...
I realize times are difficult now, for all of us. Even though we keep Hop, Faith, Love.. in our Hearts.. "The Old Rugged "cross" was always one of my favorite songs & "Up from the Grave He Arose".. trying our best to HOLD ONTO the good things,
May everyone be Blessed & find Love, & the Lord in Your Heart. This is a day I always remember. Even though it changed dates every year "Easter Sunday" is the day Dad Passed away. It always seemed "fitting" for Him, for he always stood on that Rock of Faith" May each of us find that "rock of Faith" to stand Upon...
Blessings for Easter and the days ahead...
I believe when we FINALLY have done the research, have a "cure or something to lessen the illness when you contract it... that ther...
How can our kids feel safe when WE as adults don't???? I fear Wal-Mart or just walking across the parking lot at HEB in my small lo...
After "many" strange" symptoms, DO I ADD yet "another diagnosis" to me endless list of crap wrong with me??? "CPRS"????I finally made a trip to Urgent Care with what I feel is a very bad Lupus and RA flare, but there are several "symptoms" strange t...
AAI(Autoimmune Arthritic Illnesses & Our sense of smell (Odd or Phantom Smells), Sight, Hearing, Tasting, & Feeling?I've noticed that often my sense of smell is either "off", strange, or my home, along with the outside around my home smells p...