Showing posts with label Lupus. Show all posts
Showing posts with label Lupus. Show all posts

Monday, May 17, 2021

A/C Tear, Possible replacement of reverse shoulder replacement from 10 years ago, more & better information on Lumbar/Sacral Surgery. Osteoporotic wonders and more

 Several things I am touching on, since things have been upside down and inside out with me, my Lumbar/Sacral spine needing surgery, 10 years later after my 1st "total Right reverse shoulder replacement and it goes on and on...

I know it has been awhile since I've been able to post here, I plan to begin getting more done especially after the shoulder and hopefully Lumbar/Sacral Spine is fixed... I need to continue on my book. I do have well over 600 PAGES "want written" out since COVID-19 began so those I do not have on the computer yet. But, will be a portion of the "book or books" I shall continue to write...


http://revistadeosteoporosisymetabolismomineral.com/2018/04/12/osteoporosis-and-spinal-surgery-strategies-for-medical-and-surgical-treatment/



Great Article for osteoporotic women and men that must have spinal surgery especially Lumbar and Sacral. It really helped to understand how much they have hanged in 10 years! I could no believe it had been 10 YEARS since I had the "reverse shoulder replacement surgery"! So, "if" the "Bone scan"" (done with the special dye) shows a greater thinning of bone, then I "may" have to have e new replacement put in that is totally different than the one 10 years ago. Much improved for those with "osteoporotic" bones issues. This one talks about the spine, and he told me this information last Friday when I went in to discuss both the shudder and the Lumbar/Sacral spine surgeries. I was told 10 years ago, with the shoulder replacement it would probably "wear out" in about ten years or so... with new types o screws, equipment, and placement they last a great deal longer. Also, it may be that with the new ways they would do my Lumbar surgery, with smaller screws, and cemented hardware, and other new parts, my chances are much better for them to hod up without me having problems with the L-4,3,2,1 etc above the L-5/S1... I am still very nervous about the  Lumbar spine BUT  did finally get more information from my specialist on the surgery and how they have made dramatic changes. As far as the shoulder, I DO NOT really want a "2nd replacement: and hope t s more about the A/C being torn in several placements...those could be fixed without replacing the entire shoulder. I HAVE to get this shoulder fixed either way. It gets worse every day it feels like and I get to where I can do less and less with the arm...plus with the RA effecting m knuckles, fingers, thumbs so badly now, that makes it ever worse.

Monday, March 8, 2021

Shower/jacuzzi,rainfall,waterfall,sauna tub... trading for needing a walk in one seat shower, new wood under my toilet & it seated plus a few other things...

 Here is the tub/jacuzzi/steam/radio/phone/two shower heads, rainfall /waterfall, foot massager that I have now. It is in perfect shape other than a couple of pieces that are more for "looks" and nothing to do with how it works. It works perfectly... a couple of the hand holders need changing out, just because they are looking dingy... and the little rails that are where the shampoo etc hold, also need to be replaced, they also look kind of dingy and the waterfall, has some peeling on it.. but really none of those are expensive...and you can order them online... this tub now goes for almost 4,000.00 but they have it on sale in some places for about 2,800.00. I bought mine and it was shipped from overseas crated up and it was in perfect shape, beautiful glass doors and all. That was about 2007 I believe when I ordered it and took 6 weeks or so for it to arrive.We put it together ourselves - they are relatively easy to put together. We had a separate electric connection for it, and it has it's own electric box and it's a 120 just wanted it to be separate from our other breakers. I think I paid about 2,000.00 for it or so back then. Here is a URL and a photo of it... and the ONLY reason I am going to have to get rid of it is that for 1 - now with me being alone, having both knees replaced, and that hip fracture repaired, i can't really climb over to get into it. It is not hard and it has a step up into it, but with my other chronic health issues, even the pacemaker, I can't use the sauna or the jacuzzi due to the heat and even on my pain pump, I am not supposed to sit in a whirlpool, jacuzzi bath etc. - Now that I have had the cervical neck surgeries (2 of them a couple of years ago) and now I face a Posterior Lumbar Fusion in April at L-5/S-1, that fusion is really going to make it almost impossible for me to be alone climbing into that tub... so I just need a walk in shower, with one set, and a nook for shampoo, shower gel etc... It would also give me a great deal more space in my bathroom, since we enlarged it when we added that tub... if I have just a smaller, walk in shower, be easier to keep clean and clean...& I won't have to worry so much about falling, trying to get over into a tub. If anyone knows about anyone that maybe interested in buying it from me, or maybe even doing some trading... I need my toilet with new lumber and it reseated, plus I need flooring in my bathroom, and my lights and fan are up but they are not hooked up in the electrical box in my attic... I also need a new light fixture (I already bought it) hung at my back steps, and really could use some kind o a rail on one side of my back step to hold onto , and even on the front step, it's only 2 steps but a rail on one side would be great. Plus I had replaced a ceiling fan (did it myself) but something happened to it about a year later. So, I have a brand new one sitting here in a box, to be hung, which I could do "maybe" if I had an 8 foot ladder. Mine is 6 foot and it's not tall enough, plus I really don't need to be putting my arms over my head anymore... or I would have had it and those light up in the back by the back steps... If anyone knows of someone like I said that may want to do some trading along with cash, and since I have most of the parts, mainly is labor... I've got some tree limbs that I began cutting down myself, but I can tell I really don't need to be doing that myself... it's putting a strain on my neck and shoulders arms... It irks me, I have all the tools, and the "knowledge" to do most of it and used to do most would do it myself, until my body decided to "fall apart"... anyone with questions etc jus message me and I will answer...



https://www.ambienthomeus.com/products/mesa-ws-608a-walk-in-steam-shower-with-jacuzzi?currency=USD&utm_medium=cpc&utm_source=google&utm_campaign=Google%20Shopping



Wednesday, March 3, 2021

When it SNOWS IN TEXAS EVERYTHING GOES SNOWED UNDER!

 Due to blizzard weather here in TX. My internet has been down or 10 days off and on so that is why I have not gotten out to everyone.... Also I am still like many BEEN OUT OF RUNNING WATER FOR OVER 14 DAYS DUE TO A BAD PIPE SPLIT BEHIND MY WASHER.  Can't get plumber here due to so many in my town also with the issues.... I hope to get things back up and going SOON! I have already has to postpone my (PLFS) Posterior Lumbar Fusion Surgery 3 tomes due to weather and now no running water.... So it seems when it SNOWS blizzards here in TX it POURS and knocks out!



My today's Newspaper....

http://news.autoimmunearthriticsystemiclife.com/#/





Saturday, January 9, 2021

Our Nation Out of Control, So much for a Hope filled and Happy 2021! It's almost a night terror

 It is to the point of being unbearable, and just not even fathomable to believe what is happening in this nation....


Thoughts....


As I Said below "SO MUCH FOR A HAPPY, HOPEFUL & BRIGHT 2021!😔 and if I said what I "think" I would probably have my home burned & be shot! Sorry folks I cannot fathom some of the things I've seen posted in places.... insanity, and now again rather than the focus on "COVUD-19" and the new strain that is already in TX, and all of those who have lost their lives or loved ones & now after that many people so elbow to elbow fighting, bleeding, breathing on one another... what about even worse than the pandemic than we already have! We don't have enough hospitals, beds, nurses, doctors, medications already and it just grows worse by the moment. What about all of us who are trying to "fight to keep well"? We are doing everything we can to avoid getting sick ourselves or making others sick??? We masks use curbside maintain distances, try and stay home, order online, sanitize, & I don't know about others but although I need a couple of things from the market today before the bad weather hits tomorrow, I FEAR going into any store..I am sure many will be in the stores not following guidelines and I am someone who really "should" have a vaccine... due to Lupus, RA. Heart conditions after 2 heart attacks, pseudo-gout plus the medications that cause me to be prone to getting sick & facing possible back surgery, but I have to wait, although even at a surgery center I still fear the virus, I have not started my new RA medication yet and should have 2 months ago, but feared changing it in the midst of all of this might cause me issues.. even my Rheumatologist does not know I have not changed. I am supposed to go to see him next Friday, but under what has happened I am going to ask for another virtual visit. even though he is in one of the doctor's buildings, they still are probably the largest medical facility with many hospitals... then I have to go to Dallas to have my pain pump refilled by the 18th. that one I can't miss, it has to be filled and the doctor has to do it. Then I was already hurting badly enough, and i guess due to this weather change coming, I could barely walk when I got up... I probably am in a Lupus/RA flare... BUT so many do not consider their consequinces of actions to what they can do to others, their families, friends & those out trying to help us daily. It is just almost unbearable and like some night terror in this country.


I am just completely frustrated with LIFE! People (it seems MANY have gone NUTS) I could not believe my eyes last night on the television! I completely turned off the news and watched other things... most channels were showing that horrid, terrible, insane scene in D.C.! To think I WALKED THRU THOSE VERY HALLWAYS in 2014!!!! When I went as an Ambassador with the Arthritis Foundation... and knowing how HUGE ND HOW DIFFICULT IT IS TO GET AROUND IN THERE - HOW THE HECK THAT MANY PEOPLE COULD BREAK INTO CONGRESS IS BEYOND ME!!!! I HAVE ONE QUESTION??? IF "HOMELAND SECURITY" COULD NOT "NOW THIS AHEAD OF TIME" AND KEEP IT ROM HAPPENING HOW CAN WE FEEL SAFE FROM "OTHER TERRORISTS?" WE surely have ENOUGH "home grown ones right here!"

Friday, May 8, 2020

Lupus Month!



I believe when we FINALLY have done the research, have a "cure or something to lessen the illness when you contract it... that there is a possibility, we will also have Other vaccines and/or quick "healing" medications to get rid them quickly... I believe if there is ANYTHING "GOOD" that comes from this are LESSONS to be more prepared ^ have a few items "extra" stored away in a plastic tight lid container, safe room, to shelter or where ever you can get ti them easily... NOW not to mean to go out and BUY an entire STOCKPILE of items. But, things like alcohol, peroxide, bandages (just in case some were to cause sores or wounds). along with sanitizing.. enough for 8 to 10 weeks depending on your family size. wipes, spray, hand wipes antibacterial, hand soap etc. plus don't put
TRUST everything you hear or see, but more on what the experts like the the CDC, & your huge research hospitals/facilities that KNOW about the "makings" of something such as this. FROM this I truly believe we will see the true vaccines for Lupus & MANY other autoimmune grow by leaps & bounds.. so although we have so many horrid things come and that have came from pandemics before.. WE AS A NATION shall be well prepared to STOP things in their tracks before they take hold. I ALOS THINK OUR GOVERNMENT from "local" to state, national & possibly global is we have trusted allies. Just my thought with "Lupus Awareness month" after this pandemic hit us like a ton of bricks... May you find healing from ALL of the horrible Lupus Flares and all the disease this illness causes...

Sunday, May 3, 2020

LUPUS AWARENESS MONTH MAY 2020!!!






LUPUS AWARENESS MONTH




During this time of health crisis, we invite you to shine a little brighter. Congress has proclaimed May as Lupus Awareness Month. We ask you to consider turning purple on May 15, 2020 in observance of Put on Purple Day — a day when the global lupus community rallies to bring greater attention to this terrible disease.





Tuesday, April 21, 2020

BEFORE anyone with LUPUS, RA & other Illnesses that require Plaquenil Daily!




BEFORE anyone with LUPUS, RA & other Illnesses that require Plaquenil Daily!

Article from Arthritis Foundation






Please read & pass along!!


Hydroxychloroquine (Plaquenil) Shortage Causing Concern

Possible use of arthritis drug for COVID-19 symptoms causes access challenges for people with arthritis.

Sunday, March 22, 2020

Coronavirus, Climate Change, and the Environment - Harvard C-Change

03/20/2020 | Harvard C-CHANGEA Conversation on COVID-19 with Dr. Aaron Bernstein, Director of Harvard C-CHANGE


https://www.hsph.harvard.edu/c-change/news/coronavirus-climate-change-and-the-environment/

Below are some of the most common questions we have been receiving in relation to the environment and coronavirus 2019 (COVID-19).
"This page will continue to be updated as new information arises. If you would like to talk to someone at our center about coronavirus, please email us at cchange-media@hsph.harvard.edu..."

(Lots of great information in this article.) And for further articles and information see my Daily Newspaper...

An Autoimmune Arthritic Systemic Life    by Rhia Steele

Life Chronic Pain & Autoimmune Systemic Diseases & Dementia®

Saturday, February 22, 2020

Insanity with Chronic Pain Dr., MORE Crazy w/Rheumy's NP & TRAFFIC Beyond NUTS in Dallas!!!!



NEVER again will I allowANY of the Dr's I see in Dallas,  talk me into driving LATE afternoon RUSH HOUR in the POURING "Cats and DOGS"RAIN! Not when just about EVERY DRIVER DOES not CARE if they RUN OVER You OR not!!!!

PLUS I have been going to the couple of"specialists" up there for 10 years & they ALL knowI have to make a 40 plus  mile commune one-way and then back!!! Then when  they  "delay"you because they make a mistake, that you have to go BACK into the office, & "question" the doctor, (by the way good thing I did" I was CORRECT! Had I NOT "checked" I would have been in a world of severe pain till at least this coming Monday, and this way LAST Wednesday!  Plus they also knew I was on a Schedule" due to trying to get two doctors visits done on that day. I DID NOT want to have to drive home, then GO BACK again in a few days! The driving on dry pavement is bad enough, but having to be in the car in stop & go rainy, wrecks, & road construction, at 5:00PM in Dallas on I-35 and I-45, just is enough to make you hurt for days.... 

To top it off, my Rheumy's NP is nuts.. she wanted me to walk over to another building (this is at like almost 5PM) to get my hands X-rayed & Labs done, which I have done here in town usually...plus NO WAY was I saying till Lord knows when in the pitch dark, that I don't drive well in due to the headlights anyway... I tried to TELL her but she is too busy "typing" on her computer to even LISTEN to me, sitting 10 feet away in the room! She will NOT speak up, I cannot understand her & I kept asking her to "speak up" and sh jut "mumbles"....

So, then I finally get out of the "pits of hell in Dallas Traffic" have to stop & get myself & the pups some dinner... & by the way I got home (which I did NOT expect" to be gone over 10 hours or so.. I still had to  change clothes, put stuff away & try to settle all 3 of us down, so we could eat...

NOW I still think my doctor (Pain Doctor) is mistaken, but the way I need to explain it will be difficult on the phone, so I HOPE the email address I have for his Business Office & Patient Manager (who is awesome) works... MOST Dr's now days have "portals" & out of all  them he does not.

Thens the NP at my Rheumy's Office wanted me to see a "Dermatologist" cause this is probably Psoriatic Arthritis - the BAD thing is when I showed her the places, she asked me "Do you have Psoriatic Arthritis?" I was like WHAT!!!???That is what I am ASKING YOU?!! I wanted to shake her... that chart of mine and ALL of the updates.. by now SHE should have KNOWN I was asking about a NEW SYMPTOM and ILLNESS!? Not having to tell her what I had.... I asked her since it is a form of Arthritis, why do I have to see a Dermatologist? Of courseI have the plaque's & trouble with my scalp, BUT I did not know that the RHEUMY would not handle it all! Which I'll be darned if I find one in Dallas..like she wanted.. We have one right here I found, that I believe tales my insurance, had his "bio"  etc... he shows to be extremely good.

So here we go again, with a new doctor, like I did not have enough.. and I am NOT going back to Dallas for Labs & X-rays on my hands when they can do that here!



Sunday, January 26, 2020

Septic Arthritis & Difficulty getting the right diagnosis


Septic Arthritis  &  Difficulty getting the right diagnosis

POSTED ON Sue for septic arthritis malpractice NJ lawyers help









(I "redacted"  bits of this due to so many issues with doctors, the medical field in general & the many malpractice suits whether true or not, there are many)... so I will just put the link to the page I got this from & the story is  also posted in my Today's Newspaper... Link*****Link to my paper  :   https://www.autoimmunearthriticsystemiclife.com/*****Link to article: & I remain "neutral" due o the nature of the subject and because I had "Septic Arthritis) although after seeing 3 doctors they really never "agreed" as far as the real diagnosis - the symptoms can  be signs of several diseases...  it took me about 3 months to really get clear of it - and at least 6 rounds of antibiotics to feel "safe" it was gone...)You trust your doctor to either know how to diagnose and treat your medical condition or at the very least, to understand when to refer you to someone with the expertise to handle your case, especially in the case of infections. Septic arthritis is one such serious infectious condition that, if not diagnosed and treated quickly, can lead to permanently damaged joints and other serious complications. When a doctor or another medical provider fails to appropriately diagnose or manage septic arthritis, the consequences for your health can be severe. If this occurs and you are wondering what options you may have to hold them accountable, the next thing to do is seek knowledgeable legal counsel.What is Septic Arthritis?Septic arthritis, or infectious arthritis, is a joint infection, commonly found in the knees but can also occur in the hips, shoulders and other joints. It is characterized by swollen, intensely painful joints with redness, warmth and stiffness, accompanied by chills and fever. The condition can present in a similar manner to other conditions, for example, rheumatoid arthritis or staph infection. If left untreated, the cartilage and bone within the joint degenerates and can be permanently damaged within mere days. In some cases of septic arthritis, the affected limb must be amputated. With the dangerous nature of this condition, prompt treatment is essential.What Causes Septic Arthritis?Septic arthritis is caused by a bacteria, virus or fungus, typically staphylococcus aureus infection, but also a urinary tract or skin infection. 91% of septic arthritis cases stem from staphylococcus or streptococcus bacteria. Among younger sexually active adults, gonorrhea is the most common disease that passes the infection from one person to another. Germs migrate through the bloodstream from one part of the body to another or go directly into the joints through an injury, injection or open wound caused by a penetrating object, such as an animal bite or surgery.Ordinarily, your joints can protect against infection naturally, but the body’s reaction to infection causes inflammation that increases pressure and reduces blood flow in the joint, causing damage. The increased use of prosthetic joints in recent history has increased the rate of infectious arthritis. Approximately 20,000 people suffer from the condition in the U.S. annually. Tragically, 11% of those afflicted with septic arthritis die. Communicable infections, like staph infections, create conditions favorable to septic arthritis and can be contagious if a person is exposed in a non-sterile environment.Septic arthritis largely affects infants and older people aged 65-plus, as well as those with existing joint problems. Some of the primary risk factors for septic arthritis include:
  • Osteoarthritis
  • Gout
  • Lupus
  • Rheumatoid arthritis
  • Weak immune systems
  • Artificial joints
  • Previous joint surgery or injury
  • Skin conditions such as eczema or psoriasis
  • Open wounds
  • Chronic immune-suppressing conditions like diabetes, kidney, and liver disease
  • Joint trauma
All who are affected by one or more of the above risk factors are far more susceptible to septic arthritis than the general population. Notably, alcoholism, intravenous drug use and low socioeconomic status are also risk factors for the condition. Further, having more than one of these risk factors increases the potential for contracting the condition. People with rheumatoid arthritis and gout are especially vulnerable to septic arthritis because of their commonly prescribed immune-suppressing medications and symptoms that mirror those of septic arthritis. Doctors often misdiagnose or miss the diagnosis in these patients. Patients with hemophilia or HIV or also at risk for septic arthritis due to their low immunity.Diagnosis and Treatment for Septic ArthritisGiven the deadly nature of septic arthritis, a doctor should conduct arthrocentesis, the method used to detect the condition and confirm or rule out septic arthritis. In addition, blood testing and imaging tests may detect septic arthritis, but the surest method is joint aspiration, when synovial fluid in the joints is extracted and tested. Conditions that mimic the condition are abscesses, cellulitis, Lyme disease, malignancy, arthritis, rheumatoid arthritis and osteomyelitis, among others. It is critical for the treating physician to discern these imitative conditions from septic arthritis. Obtaining an accurate patient history can help the provider discover risk factors indicating probable infectious arthritis. Otherwise, there is no gold standard of early detection other than the physician’s expertise at recognizing musculoskeletal diseases and their copycats, or referring the patient to a specialist who is experienced in this area of practice. Once septic arthritis has been diagnosed, treatment may consist of intravenous antibiotics, surgery or aspirations in the affected area. Time is of the essence when a person is affected by septic arthritis, so diagnosing and treating the condition in a timely manner is a must.Septic Arthritis Malpractice Failure to detect septic arthritis results in significantly higher rates of complications, permanent damage and even death. When a doctor fails to diagnose or misdiagnoses this serious condition, they may ultimately be found liable for medical malpractice. Generally, medical malpractice occurs when a physician or other healthcare provider fails to diagnose a condition, misdiagnoses a conditionfails to treat an illness or disease, or improperly treats such an ailment, which leads to some form of injury or death for the patient. Given the training and experience of medical professionals, patients rely on their expertise to address their symptoms, provide appropriate treatment, and ultimately, to keep them from harm.If you believe your doctor mishandled your septic arthritis case in New Jersey, you typically have two years from the date of injury (or the date at which you became aware of said injury) within which to file a malpractice lawsuit. An affidavit of merit is required by law when filing a lawsuit against a medical professional. The affidavit of merit will require a doctor in the same field as the defendant to declare under oath that the care, skill or knowledge shown during the diagnosis and treatment of the patient fell below the medical standard of care under the circumstances. There are strict time limits within which to file specific documents in order to avoid your case being dismissed. Due to the complexity of medical malpractice litigation in New Jersey, it is highly advisable to seek help from an attorney with extensive experience handling claims like yours.Your Septic Arthritis If you or a loved one suffered harm due to a doctor or other medical provider’s negligence involving diagnosis or treatment for septic arthritis, consult a knowledgeable medical Additional & Related Information:

LINK to this article:   https://www.fronzutolaw.com/articles/malpractice-with-septic-arthritis/


Thursday, December 5, 2019

New Charity founded by Lady Gaga & her Mom called "Born This Way" Foundation




      New Foundation by Lady Gaga & her Mom the
"The Born this Way" Foundation


She also has Lupus. I believe she found out fairly recently. After seeing how much kindness she shows to especially youth, the younger kids, teens, and early 20's.... she touched my heart.


Thursday, June 27, 2019

Infection in Left Knuckles Infected & on another round of antibiotics Still with me, along with more issues, now the city and my road a mess they have made!

SO! I STILL HAVE AN INFECTED "HAND" joints, whatever! I have been through hell this past 10 days or more. Between this hand, worrying about having to postpone the pacemaker AGAIN! (no way they will do a pacemaker when I have an infection still going), then the city had FRIGED UP MY ROAD! I found out THEY SCREWED UP, HAVE HAD US HALF WAY BLOCKED IN AND WE NEVER KNOW IF WE WILL BE ABLE TO GET IN AND OUT OF OUR DRIVEWAYS -

they did this AND NEVER WARNED ANY OF US! I talked to neighbors yesterday and found out they did NOT get the materials in they needed so now they are "stalling". They keep putting truck loads of gravel type almost a sandy rock mess and if it were not bad enough, rolling that down, and then if it is not wet from rain they come along and wet it. So, either it is WET AND MUDDY! OR it's dry and the dust flies everywhere!!! No one "SEES" that they are driving and kicking up mud, dust, rocks everywhere driving over it. I blame the city for that also, they should have SIGNS UP WARNING THESE IDIOTS NOT TO DRIVE FAST OVER IT.

Then they have "built up" the road so high (my property already has water that runs on it if it rains very much, because they have the other side of the road high enough, so all of the water runs to my side and into our ditches and under my carport, and my back yard looks like a landslide has happened. I know they can't help the rain BUT they dug out "some ditches" but like mine is full of water it needs to be dug out and the culvert is so old, it's bent down and won't allow water to run thru so now it's standing in water, causing mosquito's (but they gripe at us) for letting water stand if we have anything ti can stand in....

and now they are running I guess mice into my laundry room... and (suddenly I had the bars out just disappear 3 times now since this began) and then something (which could be a possum etc or a stray cat we have and so forth) run under my house and die! For the 3rd time in 2 weeks I woke up now to my laundry room with a stench worse than anything else you can imagine! I have every hole blocked, but they can weasel their way under anything if they are desperate! I am in the process of trying to type an email (I can barely type my left hand hurts so bad).. to the guy over this mess of a road they have made, and give him a piece of my mind... who is going to fix this mess, details our cars covered in dust and grime? Who is going to get that water out of those ditches... I hate to sound prejudice but I "live on the wrong side of town"... if I had a 500,000 dollar home, I bet it would be concreted, with a walkway, and they would have the water properly running out and away from the homes.... I am just so fed up. I pay MY TAXES ON TIME! Believe me if I didn't they would FINE ME 10 or 20%!!!! I should tell the city each day this is a mess they owe us on this road back a portion of the taxes we pay! Anyway, so keep me in your prayers... I NEED this hand well, so I can get this pacemaker in and go about my life... why is it that it is ALWAYS SOMETHING WITH ME?????"

I have to wonder if the pain in my hips that I still have after the injections, is not also something to do with this infection. both hips especially the right one still hurt. I was at the market on Monday, and when I was trying to finish up and get checked out, my right hip and side started to hurt. It scared the hell out of me. I came home with a LOAD of groceries, since they had my road so messed up I could NOT get out of my driveway all week last week! So, my groceries were in about 7 bags (the reusable ones) plus 4 gallons of water. I did not think I would ever make it in with it all, and get it put up.... but I managed.

I worry my RA and Lupus could be getting worse, or something else is going on, and they have not found it yet. My labs they did a couple of weeks ago when they found the infection, were really all messed up. My white blood cell count was at 15. But, there were other labs that were also really "off" that usually were not that bad, so I have to wonder.

Saturday, June 15, 2019

Happy Father's Day TO Each if you - Dad's, Grandad's, step-dad's those who raise you like they are your Dad & More!

TO ALL of the INCREDIBLE DAD'S, FATHER'S, SONS WHO WILL SOMEDAY BE DAD'S, GRANDFATHERS, & the list goes on.. no matter how old we are "Our Dad will always be"  Our Dad and "Bestest Fishin' Friend!" Happy FAther's Day! And Dad even after this much time has gone by, I STILL miss you! I seem to "still use some of your sayings" almost everyday of my life! LOL!

Okay, here it is in a "short version"... I was scheduled for the pacemaker this coming Monday morning in Dallas. The week before Memorial Day my left hand around my knuckles "started in my thumb" began to "look odd, kind of swollen, and reddish"..I thought I just over used it doing something. By the next morning, the knuckles next to it did the same, and so on, so forth. I STILL felt it was a Lupus/RA flare BUT I HAD NEVER HAD THIS TYPE OF ISSUE WITH MY LEFT HAND AND KNUCKLES..I researched, asked 2 pharmacists, and decided it maybe "gout arthritis", and I would need a special med called "Colchicine" (it helps to dissolve the uric acid crystals in the fluid around the joints).

So finally I went to Urgent Care, I believe it was about a week ago LAST Wednesday, so almost 2 weeks ago. They felt the same either gout, OR possibly some type of "infection arthritis" in the knuckles. Well, I went into panic mode. I KNEW NO PACEMAKER IF I SHOW ANY TYPE OF INFECTION! I was now on one antibiotic, higher dose of prednisone, & they did lab work to find out if they could see what was causing the problem. I DID NOT GET to even know until Thursday (so over a week or more)








Wednesday, May 8, 2019

Stormy Weather, makes Joints hurt horribly, Echocardiogram shows "heart Function" issues & "special pacemaker" coming...

Weather here SUCKS!!! Thunderstorms, lightening, rain like we need more rain... and it appears it may NEVER quit! I've not been online much or as far as on FB, Social Media etc I've posted in my blog, and update my newspaper and send it out daily.. but I've been stuck with yet again doctor's visits, the weather reeking havoc with my joints... and just feeling lousy... I had an echocardiogram last week. It was supposed to just be "routine" before we made a date to implant the pacemaker. So, I didn't think much of it. Monday, I went in to talk to the surgeon about putting the pacemaker in etc... and he was

RUNNING VERY, VERY LATE! Which is the usual for surgeons especially Monday's... so had waited quite a while. they finally called me back in, and I waited again for a bit to see him. Well, he kind of "burst" into the room, (which he is kind of that way) LOL just a great smiling doctor... but can get serious when need be... and as I started to say something, and he said well your cardiologist (which is his wife) said that you needed a "special" type of pacemaker with two leaders rather than one.

I did not know that the test fro the echocardiogram came back showing my "heart function" was "worse" than two years ago sine I had the last one. So, he proceeded to tell me they were trying to avoid you coming in to see me, because I don't do the 2 leads type but Dr. Rae in Waxahachie does, That is who Dr Meg Sullivan is sending me to, I was so upset first because had not even heard about my test results yet and had no clue, they were "off"..which since 20 years after the 1st heart attack, and even after the 2d one the tests had always remained the same. no better of course but no worse either... So from what information I got hod of online, then her nurse called me ate Monday evening to tell me who they were sending me to see and I had her look on the test results to tell me, "what is going on with my heart function?"

She said it had always remained at a "45" which I believe they are talking about the "trajectory" and how the two chambers of my heart "work" as far as pushing the blood in and out, and sounds like the natural "electrical" part of my heart is not working as well as it should. So, suddenly this went from a "regular" pacemaker, that we hoped with it keeping my heart rate as a normal place it would help several other problems, fo NOW I NEED IT because I have DEVELOPED ANOTHER PROBLEM! So, that was like me hitting a "brick all" since I was not expecting any of that at all. Anyway from what I read n that specific pacemaker, it is attached to I guess the chambers , two of the and it keeps the natural rhythm, but keeps that trajectory on tract also... so I am waiting on a call fro the specialist to go see hi, and in the meantime,

I am getting the CT next week on my lumbar spine and already have a appt made to see my Orthopedic surgeon. My pain doctor who ordered the CT scan had called my Ortho doctor for him to be sure and see me once the CT results are in. If it's not one thing it's the other... so I guess in a way it was good that I did go in about the pacemaker, or she would have not ran the echocardiogram... and this problem may not have been found.... and of course with the weather as it is I hurt ALL OVER!!!!!!!!

https://www.nhsinform.scot/illnesses-and-conditions/heart-and-blood-vessels/about-the-heart/understanding-how-your-heart-functions

Friday, April 26, 2019

A NEW BLOOD TEST for FIBROMYALGIA! The article says it's 99% ACCURATE!



A NEW BLOOD TEST for FIBROMYALGIA! and it says to be 99% ACCURATE!

I know MANY of you that will be glad to hear this one... they are now saying they have a "blood test" that ia supposed to be 99% ACCURATE in determining whether you have FIBROMYALGIA!!!! NOT that anyone WANTS to hear that they do, BUT for so many years, especially WOMEN have been led to believe it was "all in our heads", or we were too "stressed" or "depressed" or, or ... whatever type of "so called diagnosis"... just to get them "satisfied"... 

I went through this years ago.. when I have the Migraines so badly they would send me to the ER - at times 3 or more times a month! I went to every "known specialist", every medication, from antidepressants, that didn't do a thing buy make me tired and worse.  I went through injections into my spinal fluid, into my "occipital nerves" at the base my neck, the "Imitrex" that I had severe side effects from, and come to find out, those medications I should have never been given due to my heart... I was even given "Thorazine" and the worst was that is given for "bi-polar" disorder, and it built up "toxins in my blood". One day at work, (when I worked in fact at the hospital in Corsicana in the business office - between 1990 to 1996... and I was with a patient at my desk and suddenly, I began "talking about all kinds of things" and had no clue why? I started talking about "bathing suits", and I "knew" something was very wrong.. I accused myself, and honestly thought I was having a stroke, and went down to the ER only to find the "Lithium" was building up so high in my blood stream, 

It was causing me to hallucinate,... then of course therapists, psychologists... even "bio-feedback"  and they even put me as an inpatient at the hospital for 3 days to give me some medication like Imitrex that is a vasoconstrictor.. and it was that "dangerous" I had to be in the hospital and wear a heart monitor while they gave me this medication by IV... t was totally insane what I went through between the mid 80's even until 1999 or so. And as I said come to find out several of those medications I should HAVE NEVER been given. I had my 1st heart attack at 40 in 2000.... not all that long after all of those things took place. Yet for DECADES like you hear many especially women say, if they had tested me further for RA, Lupus, and other types of autoimmune illnesses, 

I believe they would have found the Lupus, which causes severe Migraines and that only thing that helps a Lupus Migraine for me is an injection of corticosteroids, to bring down the inflammation... although a Lupus Migraine is different than other types, which for years from the time I was 17 I had developed "Migraines"... so now that I am off on that tangent...(this article struck a nerve with me since Fibromyalgia was one of the "junk diagnosis" as some call them that doctors gave us when they could not "find anything else wrong" it was ONE of the many I was given and back then honestly, doctors had no clue what it was, just a at the time "rare mysterious illness" that had popped up at the very 1st I believe in Colorado. I will have to verify that, but a small town there "suddenly" had many of it's long time "well" residents suddenly come down with this list of symptoms" and it put many of them in bed, they had to quit their jobs, and it was really a nightmare... d to be 99% ACCURATE in determining whether you have FIBROMYALGIA!!!! NOT that anyone WANTS to hear that they do, BUT for so many years, especially WOMEN have been led to believe it was "all in our heads", or we were too "stressed" or "depressed" or, or ... whatever type of "so called diagnosis"... just to get them "satisfied"...

 I went through this years ago.. when I have the Migraines so badly they would send me to the ER - at times 3 or more times a month! I went to every "known specialist", every medication, from antidepressants, that didn't do a thing buy make me tired and worse.  I went through injections into my spinal fluid, into my "occipital nerves" at the base my neck, the "Imitrex" that I had severe side effects from, and come to find out, those medications I should have never been given due to my heart... I was even given "Thorazine" and the worst was that is given for "bi-polar" disorder, and it built up "toxins in my blood". One day at work, (when I worked in fact at the hospital in Corsicana in the business office - between 1990 to 1996... and I was with a patient at my desk and suddenly,

 I began "talking about all kinds of things" and had no clue why? I started talking about "bathing suits", and I "knew" something was very wrong.. I accused myself, and honestly thought I was having a stroke, and went down to the ER only to find the "Lithium" was building up so high in my blood stream, t was causing me to hallucinate,... then of course therapists, psychologists... even "bio-feedback"  and they even put me as an inpatient at the hospital for 3 days to give me some medication like Imitrex that is a vasoconstrictor.. and it was that "dangerous" I had to be in the hospital and wear a heart monitor while they gave me this medication by IV... It was totally insane what I went through between the mid 80's even until 1999 or so.


And as I said come to find out several of those medications I should HAVE NEVER been given. I had my 1st heart attack at 40 in 2000.... not all that long after all of those things took place. Yet for DECADES like you hear many especially women say, if they had tested me further for RA, Lupus, and other types of autoimmune illnesses, I believe they would have found the Lupus, which causes severe Migraines and that only thing that helps a Lupus Migraine for me is an injection of corticosteroids, to bring down the inflammation... although a Lupus Migraine is different than other types, which for years from the time I was 17 I had developed "Migraines"... so now that I am off on that tangent...(this article struck a nerve with me since Fibromyalgia was one of the "junk diagnosis" as some call them that doctors gave us when they could not "find anything else wrong" it was ONE of the many I was given and back then honestly, doctors had no clue what it was, just a at the time "rare mysterious illness" that had popped up at the very 1st I believe in Colorado.

I will have to verify that, but a small town there "suddenly" had many of it's long time "well" residents suddenly come down with this list of symptoms" and it put many of them in bed, they had to quit their jobs, and it was really a nightmare... NOW they have came a very long way in getting to the bottom of this still kind of mysterious host of symptoms, that can often mimic other types of chronic illnesses.

So here is the URL: https://stayfit247.info/2019/04/24/the-new-fibromialgia-blood-test-is-99-exact/




Thursday, April 25, 2019

(Open Letter) signed by over 300 pain specialists, other physicians and those in the medical profession to the CDC & how their "Guidelines" on Opioid Medication could drive Chronic Pain Patients to Suicide...



Are Federal Guidelines for Prescribing Opioids Hurting Patients with Chronic Pain?

(Open Letter) signed by over 300 pain specialists, other physicians and those in the medical profession to the CDC & how their "Guidelines" on Opioid Medication could drive Chronic Pain Patients to Suicide... (letter URL below)


https://docs.google.com/document/d/1RzQDSppUKhjiAsEmhW2WbTXlP5V8vJ4M_vBPQLKhK_8/edit

Information comes from the links here....
www.democracynow.org 
https://www.democracynow.org/2019/3/27/are_federal_guidelines_for_prescribing_opioids


For many years my Mom would ask me "How did I stand the severe pain of Migraines at first, then later, Lupus, RA, Joint issues that turned into replacements, and all of the severe chronic pain she watched me have to go through... she told me several times, that there was no way, she could endure what she watched me go through, that she would have possibly committed suicide rather than put up with all I had to go through so many years BEFORE I could get some "real help" after searching for a decade or more for physicians, diagnosis, medications and things to help me not have to live with such horrid pain in my life.... 

I always tried to reassure her that things would someday "get better"... and yet here we stand worse off than a decade ago when it comes to severe chronic pain... 


Wednesday, April 24, 2019

Wednesday’s Addition of My Daily Newspaper “ Autoimmune Arthritic Systemic Life”

Wednesday’s Addition of My Daily Newspaper “ Autoimmune Arthritic Systemic Life”



http://news.autoimmunearthriticsystemiclife.com/#/





Women and Arthritis  

 

Arthritis affects people of all ages. Diagnosis of most forms of arthritis occurs between the ages of 40 and 60 years old. The rates of arthritis are three times higher in women than in men.
The disease is characterized by chronic joint inflammation. Stiff joints with limited mobility and pain are common symptoms of the disease.
Over 100 forms of arthritis are recognized with three of them being the most common: rheumatoid arthritis, osteoarthritis, and psoriatic arthritis... (see URL for rest of article)...  




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