Wednesday, October 21, 2020

Come in Today, Join WEGO HEALTH to Advocate as a patient Advocate Leader & Help Hundreds and yourself!


            

                                            Come and Join in being...

A Patient Leader with WEGO Health! Truly an amazing way to help others, yourself, car

etakers, or anyone who would like to take some time with advocacy! Let your voice, and your word truy be heard and shall bring assistance, infomration and so muh more that coud use your Patient Leader

skills to change lives forever!



                        https://www.wegohealth.com/register/invite/Rhia



WEGO HEALTH PATIENT LEADERS do everything for many, many types fo illnesses... N Matter whether yu blog, write, do social media, give U-Tube virtual information, love a challenge especially when it comes to the healthcare field, JOIN WEGO HEALTH




            

                                            Come and Join in being...

A Patient Leader with WEGO Health! Truly an amazing way to help others, yourself, car

etakers, or anyone who would like to take some time with advocacy! Let your voice, and your word truy be heard and shall bring assistance, infomration and so muh more that coud use your Patient Leader

skills to change lives forever!

                        https://www.wegohealth.com/register/invite/Rhia



WEGO HEALTH PATIENT LEADERS do everything for many, many types fo illnesses... No Matter whether you blog, write, do social media, give U-Tube virtual information, love a challenge especially when it comes to the healthcare field, JOIN WEGO HEALTH!!!




Monday, October 19, 2020

FINALLY BRAVED THE STYLST AND SHE DID GREAT! NOW IF I CAN GET IT TO DO THIS!!!!


 It is awesome and looked so great when she cut it!! she can perform miracles!!! Now if any of us can perform getting rid of covid, the flu, pseudogout,ra lupus,psa and so forth, it would be awesome!

great styles from pinterest and 

http://favehairstyles.com/2016/02/26/50-short-haircuts-fine-hair-womens/

Saturday, September 26, 2020

NEW Clinical Trial Sponsored by Cure Click!

 A Clinical Trial for COVID-19 is Looking for Volunteers in Your Area. Contribute to a solution that could help to solve the global health crisis. See if you are eligible. #covid19 #sponsored #cureclick



https://curec.lk/2S3KV1X

Moderna has selected nearly 100 clinical research sites and is partnering closely with those sites to ensure that volunteers at increased risk for COVID-19 disease are enrolled in the study. These research sites are working within their local communities to reach a diverse population, in order to achieve a shared goal that the participants in the COVE Study are representative of the communities at highest risk for COVID- 19 and of our diverse society. Help Advance COVID-19 Vaccine Research! Thank you for joining us in our fight against COVID-19.


#covid19 #sponsored #cureclick

More "SPAM" calls than ever, "waiver temporarily of registration in TX on title renewals, fed up with my doctor (rheumy) & as the "World of Rhia" turns

           DOES IT EVER END????


From COVID, to sudden doctors acting "odd" (my Rheumatologist), to so much pain, weather changes, MORE "new normal or temporary changes due to this Pandemic... and as the "World of rhia and COVD turns....

(BY THE WAY I HAVE PICKED NAME(S) FOR MY BOOK(S) I AM WRITING ON THE PANDEMIC!

Talk ABOUT A WASTE OF MY TIME & MONEY! HE WAS MORE "WORRIED" OVER THE THING THAT HAPPENED ON LABOR DAY WITH THE PERSON IN VA.. than he was with me... 


... All of a sudden he seemed to act as if "he was not sure" about my diagnosis!!! AFTER 10 YEARS NOW OF SEEING ME AND THE CRAP I HAVE AND AM STILL GOING THROUGH WITH ALL OF THE JOINTS, SWELLING PAIN, LOSING USE OF MY HANDS FINGERS BAND SO ON... I got "no answers" other than "more lab work" well hell we just ran THOSE EXACT SAME TESTS ON 9/8/20 THE 1 THING I USED TO LIKE ABOUT HIM HE DID NOT PLACE "EVERYTHING" ON LABS.. LIKE SOME DOCTORS.. NOT ALL Lab work can "tell the story" same way I've been through more CT Scans that "look" one way,, then they do surgery to find out that joint WAS MUCH MUCH WORSE THAN SOME CT SCAN WAS SHOWING!!!

 I am FED UP!!! with ALL doctors!!!!! NOT ONE TIME have they done a CT, X-ray or when I could have other tests the may not show how bad it was... until I was in such pain I was just going nuts.. they surgery and find iust things are much worse than some a lady just talked about going through 7 doctors or so, and many tests and they kept telling her"nothing" was wrong..she..finally she went to the cancer hospital either in Houston or up in OK, and they found out she did have cancer and those oncologists DID find it & CURED HER! I am just fed up further than I can even talk about!

It is time for US to STAND UP FOR ALL WE BELIEVE IN & NOT allow the "bad guys" to win! We never KNOW from 1 MOMENT to the NEXT how many "moments" we have left, thus loving, giving of self, voicing your opinion in the right and honorable way, do your part by voting, support family, friends, and those who have been through fires, hurricanes, COVID-19 more than ever, now the upcoming FLU,

 I HOPE MY KIDS and FAMILY do KNOW I LOVE them WITH ALL MY HEART AND SOUL! I WOULD TO ANYTHING TO CARE FOR THEM AND MAKE SURE THEY ARE WELL, SAFE, & OUT OF HARM'S WAY TO THE EXTENT I CAN... AND THAT INCLUDES SEVERAL CLOSE FRIENDS OTHERS IN LIFE THAT HAVE BEEN THERE FOR ME WHEN NO ONE ELSE WAS OR COULD BE. WE HAVE TO FIND A WAY TO GET ALONG ALL OF US, NO MATTER YOUR OCCUPATION, YOUR NATIONALITY, WHERE YOU LIVE, HOW YOU DRESS, HOW MANY CARS YOU HAVE, OR OW LARGE YOUR HOME IS THE FIGHTING AND ACTS OF violence ARE DOING NOTHING BUT TEACHING OUR OWN KIDS IT'S "OKAY" TO HARM SOMEONE, DUE TO THEIR CLOTHES OR THE WAY THEY SPEAK... 

TEASING SOMEONE ABOUT THEIR HOME, OR WHAT THEY EAT FOR LUNCH HARMS THAT PERSON & YOURSELF.. AND WHAT "PARTY" YOU "BELONG" TO DOES NOT DO A THING FOR OUR NATION.. IT IS THE PERSON IN THOSE POSITIONS OF OUR GOVERNMENT THAT MAKE THE DIFFERENCE. I just saw an email where kids are TEASING kids with "Acne"... how horrible is that? Rather than "demean" them find a way to help instead. It could be you!

Has anyone gotten their renewal for their car? It is rather confusing... usually ( and the regular form is in there) we have about a month ahead to take car of it getting inspected, and then can finish u the registration in person, online or in btheb mail which are all "usual" ways. This time mine hada note in it about COVID and giving us like an "extra" month or actually "temporarily suspended"nto do this. But, they also now are offering all different licence plates & get a different plate for a "50.00 off rebate" (go figure) I am just confused as to what to do and how... I guess the beat thing is to see if they have UPDATED THINGS ONLINE BEFORE "JUMPING IN".... online@www.texas.gov

Wednesday, September 16, 2020

We continue to, gripe, fuss, & be peeved over all happening in our nation not think but how much worse bit was & could be...

 OH, how we gripe, fuss, whine, mope, and bitch about how bad things are, yet not really thinking how much worse it could get!


And (IMHO) in my humble opinion, if we do NOT get a tremendous change in our President and the Senate and House with this crucial election upcoming here very soon.. it IT BE MUCH MUCH WORSE THAN WHATEVER YOU COULD NAME SOMETHING LARGER THAN A "PANDEMIC"!


Don't get me wrong, things are HORRIFIC!! Even for those of us over the age of 55 plus, for the most part none of us have seen the likes of COVD-19, now facing a possible new flu strain, where the "old ones" are bad enough, now hurricanes, one after the other worse than any over the Gulf of Mexico especially (yet how many still claim we have no "Global Warming" or Earth that is warming our oceans, as they fill some places with so much plastic and items that will never go away & will continue to ruin many places that used to be reeths where now is nothing but gray and no fish)..


Now wildfires again, so bad they are taking millions of acres of land, forests, homes and even lives over CA, Or & WA state. We also had just enough rain which was desperately needed in places in TX, that now have mosquitos' 'causing the West Nile Virus to rear its ugly head. Not to mention other bugs, mice, snakes, spiders, and all types of bugs that ruin crops, and as the fire ants I had rid my lawn of earlier this spring, now are taking over my lawn like never before. They are far worse than I have ever seen. A small child, animal or even anyone "allergic" to their stings, which they just "attach" themselves to you, and can sting over and over again. I KNOW, I do my own mowing etc. and I am allergic to them. So, when I try and get rid of a bed the size of a huge bowl, that had not been there the evening before, it seems impossible, to see the hundreds of millions that "boil" out of just one bed! One bite for me means swelling, severe stinging, a knot that comes up hard, white and will stay for weeks, if I don't try and get them off my feet. Not to mention the larger number of wasps, yellow jackets, the HUGE hornets, that could put someone in the hospital if they are allergic. I know it sounds as if I am off subject, but not really. Many of the things that come, are from how the severe weather changes, and now the COVID-19 & other illnesses that come along with them put people out of jobs, close businesses, make people so ill they spend over 6 weeks in the hospital, kids that can't go to physical school yet & everything else that follows along with those. Higher grocery and all items. Having to "not go in" stores yourself but go "Curbside" or however your market does it to keep people as far away from one another as they can. Masks MUST be worn by everyone who walks in stores in many tows and cities. That is not including the billions spent on equipment for things such as resperators, more sterile "throw away" gowns, gloves, masks, for all staff at all nursing homes. What ever happened to the "wash in hot water, and wrap, put in an autoclave, rather than throw away all of the instruments, gowns and so forth as we used to? I know people will say it is not as "sanitary" or it is "higher price".


 BUT it cannot be higher to throw away perfectly good tape, scissors, many instruments for surgeries, gowns, & items that are now taken out of a plastic package, maybe 1 or 2 things used, and the rest disguared in the trash! What a waste of money! Especially when we are running out of items doctors, nurses and medical staff could use. I've watched them open a "tray" of items, and throw away much of it just because they needed a "plastic pair: of tweezers, etc to possibly remove stitches. Tape is expensive, but can you imagine how much goes into those disposable tray? I know sometimes since my insurance and I am PAYING FOR what is going in the trash in I would like to grab and taken home with me. think of the amount of those items in just one COVID-19 day that are still sterile & I could certainly use at home for some purpose. It is ridiculous wha amount of dollars are thrown away. They tell us it is "cheaper" than having to wash, sterilize and autoclave instruments I think that is bull. It could help create jobs that went by the wayside, due to plastic items that are pitched in our landfills or thrown in special bins and burned into our air. I get furious when I already know the numbers of items pitched away just in one surgery. It's insane. Then they wonder why insurance it's so expensive &  doctors charging so much.


The catastrophic human life, financial spending, the overspending that goes into our medical fields is crazy! Yet, we can't seem to keep "great" doctors, nurses and medical staff. they are "frightened", Hell scared to death they or their families could become infected with this still much unknown, no vaccine, not supportive care and education of those who do become severely ill for weeks and weeks, basically on "life support" with no family that can go in to help assist the mental stability of their loved ones. I feel we lose MANY people to COVID-19 to more "mental illness", where they are just "heartbroken" from not seeing those they love. They feel they have been left to "die". Then nurses and staff have t be their lifeline of caring & love to help them understand and know they have not been abandoned. It is the illness keeping loved ones from being at their side. 

Then all of those that have lost family, lost homes, all of their livestock, crops and out natural forests due to "fire storms", that  began with one cigarette butt thrown out a car window.

Then, the number of SEVERE HURRICANES that have moved across the Caribbean into the Gulf Coast waters, of Texas, Louisiana, Florida monumental! Never in most of history have these types of massive storms blown and washed away so much land, houses. so many that were never able to be rebuilt rom the last couple of those Hurricanes we considered the worst in history. Our entire "landscape" in some places have totally changed from waters, winds and fire damages, that they will never be the same a+


Our own childrens grandchildren will have something to certainly tell their own grandchildren about and how history was changed by nature itself "fire and water".






































































































































































b by "fire and water"


                                                                                                                                  

Monday, September 14, 2020

How do you DEAL with ALL happening? COVID,FLU on its way,possible West Nile,Lupus,RA,Pseudo-gout,Chronic Pain, & now a "Death" of an Ex-Husband

 How do you DEAL with ALL happening? COVID,FLU on its way,possible West Nile,Lupus,RA,Pseudo-gout,Chronic Pain, & now a "Death" of an Ex-Husband... and the List goes on and on, Severe Anemia...  & WHAT IS NEXT?


and where do I begin? After over 290 "handwritten" pages about COVID-19 & the entire ordeal.. still there are many more typed, put on Facebook, on my Blog, in my blog, my head, & daily they come to me, at night they haunt me... Do I feel "guilt", pain, suffering, shame, am I supposed to be pissed off? Or am I supposed to "feel Sorry...  should I tell the story, or do I stay quiet? Do I try and get hold people & let them know. Or do I just allow it to play out as it is?


After so many years of supposedly him thinking we were the perfect "match" he suddenly "packs" what little he has and was trying to LEAVE BEFORE my Mom and I got home from an overnight trip! To this moment, as well as all others NO ONE KNOWS why he just "left"? 10 years of marriage, 13 years together... none of it made any sense... And I KEPT QUIET for WAY too long on the really horrible things he did and said, to anyone.


Here I was, chronically ill, with Kupus, RA, Sjogren's, osteoporosis, then Pseudogout & other issues turning my fingers "crooked" over one another. I was the bone that took care of it all, Although he "led" others to believe, even his own Mom, that HE DID everything! Bull!!! He barely cooked a meal every once in a while. from laundry, to groceries to cleaning, he did none of that..


So in 2016 when he just ups' and leaves that was bad enough. But, to NEVER come out with the truth... then in 202 only 10 days or so before his 60th birthday... he disappears... has even the law, out looking for him...b & they find him "deceased" in some stranger's apartment..or as far as his good friends from that area knew, he knew no one where he was found. But, "Meth" & many of you know my own night terror with someone close on Meth... he was a coward, chicken, & has no love for his family, what is left of it, nor his "Step-Mom" whom he had considered his Mom all his life. And the few friends, that some had no clue about one another...  they are trying to get toxicology reports, and I suppose there could be an autopsy done. Since he was found without a bill fold, without his cell phone at 1st, he had no car, he had wrecked it a couple of weeks before... So, the "only" people that were close enough were out of town on vacation.. they did not find out till days after coming home. The law I guess finally found his cell phone to be able to try & find someone who knew for sure who it was.


I shall close this right now & give more as I find out, if I ever do...I feel for the few friends he had.. they will be totally in shock.


Saturday, September 5, 2020

 Clinical trials researching potential new treatments for Autoimmune Hepatitis (AIH) need volunteers to take part. #sponsored #cureclick See if the trial is right for you! 



https://curec.lk/2XYfAy1




Wednesday, September 2, 2020

Chronic Eczema Clinical Trial here

 Chronic Eczema affects millions of Americans. Are you one of them? Research studies now enrolling. Payment varies by study up to $1,750. 


https://curec.lk/2NeRo9D


Volunteer today! 




Tuesday, August 18, 2020

COVID-19, Upcoming 2020 Flu Upon Us, West Nile Virus & Adult Vaccines





As many of us know FLU season is almost upon us. Now we face a possible "new strain", PLUS as no other Flu season in History we are fighting the fight of our lives against (COVID-19) and the West Nil Virus has popped up also in some places as of the past 6 weeks or so. FLU??? GET VACCINATED!!! AS SOON AS YOU SEE THE SIGNS UP at your Pharmacies, Doctors offices, in the paper, and everywhere head over to get your vaccine! Of course with this being a "new "abnormal" for the flu make sure you ASK your doctor's office if you are okay to get the vaccine. Some like myself, get the "shot" that is NOT the "live" virus due to other chronic Illnesses. But, there are also those who can take the live vaccine, even though a nasal spray etc. Many of the "symptoms" of Flu and COVID-19 happen to be much the same. WE HAVE a medication to help lessen the flu symptoms, and get you protected from a much worse base, but you must start it quickly after being diagnosed with the flu. It will be one for the records when combing "several" illnesses at the same time. Also, those of you who are over 60 to 65 many can get a shingles vaccination, a pneumonia vaccination which protects against MANY different types of pneumonia, so be sure t ask your doctors and pharmacists about those. There are Hepatitis vaccines out also, and even especially for college kids that stay in Dorms, a Meningitis vaccine, since it can be extremely contagious especially in closed quarters like dorms. Here is a list of "recommended" vaccines by the CDC, showing who needs to get which ones and when, why etc. https://www.cdc.gov/vaccines/adults/vpd.html Some may be surprised at the types of vaccines available now for adults to STOP and prevent many what used to be very contagious illnesses.

 With the upcoming Flu Season upon us and having heard we may have a new strain(s); plus this is an all time difference with COVID-19 still very much active, and finding West Nile Virus in some places, I felt it was a great time to REMIND everyone the Vaccines available, who may need them & to see if you should speak to your doctors, pharmacists etc. about whether you should receive some of these vaccines...

Sunday, August 9, 2020

Phi Theta Kappa Life in the past from 1978 to 2020, Chronic Illness, Family, & How we tend to shape" our lives even after all these years.


Even though my life did not go the way I had planned after high school, I did get a 2 tear degree and made Phi Theta Kappa with a 4.0 GPA, passed the Nursing Exam about 1994, & had a full scholarship for it. Alas, with 2 kids in school for several more years, & having at that time to work full time. I made the VERY difficult decision to pass it up. I was the main source of income at the time & couldn't quit my job for 2 years for nursing school. But later in life, I began to understand "why" my life took a different route. Yet, I was & still am very proud of my grown kids. They stayed out of trouble & went onto to their own great roles in life. As my own life progressed & I also then molded myself into a writer & published author; I gained much knowledge from living in 2 different states for good while till moving back "home".

It was now time for me to have a "role" as almost a "parent" to my Mom. After Dad passed away she needed me much more than she would admit. I still am in that "learning" phase of my life, which has helped me cope with some serious chronic illnesses, & onto become a "voice", advocate, and "Patient Leader for several large non-profits & living out both of my "dreams". To have 2 of now 4 books published. Seems the list of "writing them" grows more quickly every moment in life.


Plus I got the opportunity to stand on the steps of Capitol Hill in Washington D C to tell my story in order for my voice to become the voice for many! Certainly two proud moments in my life, along with the others before the before them. I remember walking across the stage at the college to accept the honor of being accepted into the Phi Theta Kappa. So, although my dreams of becoming a nurse, or a doctor, never panned out, they made me continue to "study" in these fields.


With my own chronic illness issues, and being able to help others life me. I also continue to write on the 2 or 3 more books to be published & gain more knowledge every day of just how much & how quickly our world & medical World changes. I found at this year milestone of 60 like many of my graduating class, we can look back & see why or not life took us down the paths it did, And to continue to looking into future & hope to gain more insight into out quickly changing places to behold.

Wednesday, August 5, 2020

Wednesday August 5th 2020 My Newspaper all things Autoimmune, COVID -19 and more











Wednesday August 5th 2020 My Newspaper all things Autoimmune, COVID -19 and more  

                                                                                                            Life Chronic Pain & Autoimmune Systemic 

              Diseases & Dementia









x


Sunday, August 2, 2020

Sunday's Newspaper My Own Autoimmune , Pain, COVID-19 & other issues


Life Chronic Pain & Autoimmune Systemic Diseases & Dementia®



http://news.autoimmunearthriticsystemiclife.com/

My Daily (Sunday Addition of my Own paper) Lot of great information here from the Arthritis Foundation, to other Newspaper articles, CDC information, and many more...   


Friday, July 31, 2020

New Post for Pseudogout, Blood transfusion, Severe Anemia, RA Severe Pain & COVID Virtual Visits & more...

I really have SO MUCH to try & catch up here on, so I am going ton"Post"n some of my ongoing chronic health issues, things about COVID, my 2 unit blood transfusions RA, other meds, so many Lab tests, Virtual Visits and more...

More about my Life Living with RA, Lupus, Pseudo-Gout, Severe Anemia & Making My Home Put Together Alone, through the Pain and all that comes with these illnesses.

As I said day before yesterday I CAN HAVE THE STRANGEST MESS HAPPEN AT MY HOUSE!!! 1ST OF ALL I am so embarrassed to even talk about it..I HAD A "VIRTUAL VISIT SCHEDULED WITH MY RHEUMATOLOGIST AT 2:40PM OR 2:15 PM.. THEY SENT ONE THE 2:40 FROM HIS NURSE AND THE APPT. PART OF THE PORTAL SAID 2:15 OKAY as usual between my dogs up & down and the pain in my back & hips, and hands.. I was UP by 3:30AM yesterday morning...Well, I did several things during the day around the house, did laundry, I have even putting things "more in order" rather than scattered around, for instance al of my hand cleaners & sanitizers.. by the way I DID GET MY 2 CORDLESS NEW BLINDS UPAFTER 3 DAYS OVER THE KITCHEN SINK AND THEY ARE AWESOME!!! ANYWAY, I WENT AHEAD ORDERED 2 MORE FOR THE NORTH SIDE OF MY KITCHEN, SINCE INE OF THOSE WERE FALLING APART & I wanted 2 get them ALL THE SAME! So, those were so much easier than dealing with over the sink and around "rotten light fixture that is another story. I also KNOW I have to put up a new light over the sink, because it is so "rotten" where some of the plastic things are they have cracked, and after 14 years, it is just a mess. I spent some of yesterday trying to find one of those that was NOT $$$ of dollars! I also looked for a few other minor things for the house etc... Also I was HURTING LIKE HECK... THE HUMIDITY WAS HORRIBLE & AFTER UP AND DOWN THAT SNALL LADDER WITH THOSE BLINDS, AND THEN WORKING ON THAT DANGED ROTTEN TREE, THEY WERE AND ARE IN BAD SHAPE...Plus I of course have things around the house I can "work on" .. my HAIR is a mess to say the least and since I had that Virtual APPL. with my RHEUMY yesterday I had tried to do "something with it" Well it was about an hour till the computer visit and more, so I decided to it down with the pups for a few minutes, decide on dinner, then it would be time. NOW the fans are going, the A/C Unit is on and all are LOUD.. I had the TV on.. the dogs were right beside me and of course when I NEED them to BARK they don't.. So suddenly I jumped up & I had DOZED OFF & WASALREADY LATE FOR MY APPT!!!! and of all things it was with DR.Q. HIMSELF, AND I RARELY GET TO SEE HIM! I usually see his PA.. I was headed to the computer & to get the program pulled up and my home phones rings! It is MY DOCTOR!!!!! Plus after the call, I found out he tried 2 TIMES ON MY CELL (BUT IT WAS CHARGING IN THE OFFICE & I COULDN'T HEAR IT & I NEVER HEARD THE HOME PHONE THE 1ST IME HE TRIED EITHER... OMG!!! I WANTED TO CRAWL UNDER THE COMPUTER... I WAS TOTALLY MORTIFIED.. NVER , EVER HAD I DONE THAT.. NOW GET THIS.. HEB AND I WAS TALKING ABOUT MY MEDICAL STUFF ON THE PHONE WHILE I PULLED UP THE VIRTUAL PROGRAM THEY USE AND FINALLY ABOUT THE TIME I CAN EVERYTHING SET UP... MY DOG IS BARKING, BARKING AND MORE... & I KNOW SINCE IT WAS JUST IN THE NEXT ROOM in the living room, at the front door MY DR. COULD HEAR IT!!! Anyway, he did say that the program they use to do the visit had problems yesterday and he thought maybe I was having issues..plus he was working "from home" and not the office yesterday. He isSTILL very DISTRESSED over the ANEMIA... & wants to do some other types of blood tests, and he wants me to see a HEMATOLOGIST FOR A BONE MARROW BIOPSY. Which is what I thought also.. he put me back on the Colcrys for the Pseudo-gout.. and he thought "maybe" the "MTX" the Methotrexate I take and have been taking a long time off and on "maybe" making the anemia worse. We talked about some other meds etc, but 1st he wants that bone marrow biopsy. BUT RIGHT NOW I AM EXTREMELY FEARFUL OF HAVING THAT TYPE OF PROCEDURE DURING THIS PANDEMIC! He told me he would find a very reputable Hematologist but I also have to make sure my insurance TAKES THE DOCTOR. AND USUALLY HE LET'S DR. B.; MY PCP'S OFFICE DO MY BLOOD DRAWS, SEND THEM OFF & SEND THEM PCP AND MYSELF.Well he was at home & was not sure about getting the Lab orders over to my PCP's office, which he could send them to me on the portal & I can take them... I have CLUE where the closest Lab Quest is & I am NOT driving to Dallas for it... Quest picks up with my PCP.. so all I need is Dr. Q to give the orders to his office or over the portal.. anything to save me driving somewhere especially right now in a busy Lab office somewhere in Dallas.THEN to top it off after dinner I went outside like I always do and walked around & everything seemed to be 'Fine".. I went back in for about an hour & had my front door partially shut do to the heat but I walk out and my Bird Bath is completely turned over (it is anchored in the ground" even though it is fairly lite) then I see FEATHERS everywhere! Then I walk to the North side of the house & the cat that hangs around was laying in the neighbor's portion o the drive way but nothing like feathers so I figure the bird got away..Well SOMETHING TOLD ME to check the ground to the SOUTH side and look. Sure enough here is the remains of a large bird probably a dove, one wing one place and turn up another part of the bird further down right beside my house!!! Well by Now I am TOTALLY LOSING IT!!!

Friday, July 17, 2020

Latest in the REALMS of what is even more than Pandemic

            What? Normal? Where did that word come from & wherever did it go???


https://www.dshs.state.tx.us/coronavirus/ 


No Matter where you sit, what you touch, how you put up market items, to the way you do your laundry  IS EFFECTED IN ONE WAY OR THE OTHER!

THE"USUAL" DAILY LIFE WE HAD IS GONE AND I DON'T FEEL SO SEE IT EVER COMING BACK.


Are we, will we, can we ever COPE with what is NOT a "normal lifestyle" ANY of  us ever would have had a fondest dream of.. I know like myself, many have to wonder about how our great-grandkids, our relatives to come shall survive. What will THAT survival look like? Or shall they survive another 100 years? Will this be the very last 100 years this world shall ever see and some live through? Will they be underground, nor in some types of huge containers that keep food and people "safe" from hell on Earth types of viruses,. Or will the treatments be so strong they in turn harm us? SO many questions have to be through our minds. Each daily we tend to see and hear everything growing worse rather than better...


I've "hand written more than 100 pages and have many, many more articles, and so on that I will need to go through, get quotes dates, when things happened.. from bing "quarantined" to fear of your own market. Or fear of having ask, gloves, gown, and all on; plus hand sanitizer, washing hands many, many times a day. Disinfecting everything you can and pray it is enough..


Saturday, July 4, 2020

Remembering what True Freedom Ringing is All About...

Happy Fourth of July to All!


May you find Peace, Joy, Hope, And a renewed Faith even though times are quite rough for everyone. Remember what our nation is all about. Take care of yourself and one another and although you maybe further apart than you like.. you can celebrate and have lots of hugs when COVID is over!!!! When it's safe for everyone, and your friends and family are HEALTHY long with you, rather than not here anymore!




Friday, May 29, 2020

Memorial Day & A Whole New Way to "celebrate" due to COVID-19 Making even Daily Life Difficult

When we think of Memorial Day, and Celebrating the Great Freedoms We are given. Those on our Front Lines, keeping battle lines not crossed so we can feel safe in our neighbors, stores, towns open From the Markets to our Places of Worship & Schools whether Elementary all the way up to College Universities, we almost take for granted that freedom we have.

When a Sudden, Deadly FEARFUL Outbreaking of things such as an unexpected "Pandemic" of the kind COVID-19... and then see what people are DOING and NOT doing that could cause us much grief in a few weeks, when the virus hits again, after the holiday weekend.

As much as I need to go have my hair cut, I just can't see your stylist & you that close even with all precautions, not being able to spread it, if someone were to have it and may not have symptoms yet...

I agree people should be able to go to church and other places out BUT I feel we should have the FACTS & go by what the CDC & WHO .. or what our physicians tell us... not the NEWS in itself but what they tell us that THE EXPERTS are saying.

Plus maybe I am old fashioned but NO WAY if I had kids "summer camp age" would I want my kids going this year! NO way just with a few counselors can they keep  bunch f hyped up kids from touching, staying apart enough, using hand sanitizer, washing their hands enough, using their friends outfits or things such as that...

I see how difficult for adults even in large stores with large isles still have  hard time stay apart, and it is by accident, we can run into one another going around corner, or you have to know some items others may have just touched & put back on the shelf, and you or someone else pick it up.

All of us can only be so cautious, so safe, act so smartly.. and still even our own experts csome in contract it. 


Friday, May 8, 2020

Lupus Month!



I believe when we FINALLY have done the research, have a "cure or something to lessen the illness when you contract it... that there is a possibility, we will also have Other vaccines and/or quick "healing" medications to get rid them quickly... I believe if there is ANYTHING "GOOD" that comes from this are LESSONS to be more prepared ^ have a few items "extra" stored away in a plastic tight lid container, safe room, to shelter or where ever you can get ti them easily... NOW not to mean to go out and BUY an entire STOCKPILE of items. But, things like alcohol, peroxide, bandages (just in case some were to cause sores or wounds). along with sanitizing.. enough for 8 to 10 weeks depending on your family size. wipes, spray, hand wipes antibacterial, hand soap etc. plus don't put
TRUST everything you hear or see, but more on what the experts like the the CDC, & your huge research hospitals/facilities that KNOW about the "makings" of something such as this. FROM this I truly believe we will see the true vaccines for Lupus & MANY other autoimmune grow by leaps & bounds.. so although we have so many horrid things come and that have came from pandemics before.. WE AS A NATION shall be well prepared to STOP things in their tracks before they take hold. I ALOS THINK OUR GOVERNMENT from "local" to state, national & possibly global is we have trusted allies. Just my thought with "Lupus Awareness month" after this pandemic hit us like a ton of bricks... May you find healing from ALL of the horrible Lupus Flares and all the disease this illness causes...

Sunday, May 3, 2020

UPDATE - "LOCAL" for End of April/1st of May on COVID -19 Ellis County Texas

 "LOCAL" for End of April/1st of May (2020) COVID -19 



Many READY TO DECREASE THE RULES & REGULATIONS

YET MANY STILL NOT READY TO ALLOW EVERYONE TO TRY AND GO BACK TO WHATEVER OUT "NEW NORMAL" MAY LOOK LIKE....

I realize SO MANY people are hurting financially, mentally, emotionally, job wise.. 

I also realize that E as a NATION, could be pushing the envelop" open by a week or two. which "may" reek havoc & could cause a"worse pandemic" than what we have already seen.

As we enter a world that up till now is "unknown" to everyone, from doctors, nurses, all other types of medical professionals, patients, pharmacists, the PHARMA companies, medial researchers around the globe..WHO, the CDC, & all else.. we are not even sure if this is like a "flu" that can reoccur on some type of basis, or if it's a one time illness such as measles.

We don't have a "sure fire medication yet to even use to fight the disease once you are ill with it; much less any form of vaccine that can keep us completely inoculated against it or at least like the "flu" vaccine where it at least can lessen a case of the flu or usually unless it's an "new strain" & our "vaccine" from the previous year is not as, or even effective at all.

So, as we enter these uncharted waters, PLEASE Heed the WARNINGS THAT HAVE CAME DAY TO DAY AS THE PROFESSIONALS TRY TO LEARN MORE & RESOLVED THIS HORRENDOUS "WAR- OF A DISEASE" AGAINST HUMANS...


Guidelines ton keep you & your family safe during these trying times...



LUPUS AWARENESS MONTH MAY 2020!!!






LUPUS AWARENESS MONTH




During this time of health crisis, we invite you to shine a little brighter. Congress has proclaimed May as Lupus Awareness Month. We ask you to consider turning purple on May 15, 2020 in observance of Put on Purple Day — a day when the global lupus community rallies to bring greater attention to this terrible disease.





Tuesday, April 21, 2020

LIFE CAN FOREVERMORE CHANGE WITH A BREATH'S SPACE....

March 2014 right around this time, I was at my very 1st "Summit on the Hill" With the Arthritis Foundation! I was also in Washing DC for my 1st time. The weather was too cold... in fact sloppy wet snow and cold. about NOON i get a call from my then Mother In Law, who lives right there at DC. Although I had never met her in person, nIb felt after talking to her almost 10 years, ( and her accent is still sob awesome being from Columbia).. my Rheumatologist is also from Columbia, although both of them have not loves there in many. many years... he also still has that very special "accent".. At the same time I was awaiting a plane from DFW to land a bit later in the day... Jim was flying in to be with his bMom and I. He was going to show me DC & get to visit with his Mom for a few days... almost all at once MY CELL PHONE BLOWS UP!!!! NEVER does my cell BLOW UP!!! But, it was loud in the Hotel Lobby, & i was waiting my my Mother in Law, Hilda...I was nervous & she has went to the wrong Hotel by mistake so she was running a bit behind... BUT, the phone coming to pieces, was not about her, but Jim... he had been in an EXTREMELY SERVE CAR WRECK ON I-45, ON THE way to DFW to fly out to DC!!! AS I TRIED TO HANG ON AND LISTEN TO THE ER TRAUMA SPECIALIST I FELL TO MYV KNEES! I had to hand the phone to on of my had been team mates & allow them to take notes etc.... At that moment HILDA walks IN, she Sees me hysterical and SHE THOUGHT I WAS UPSET BEAUSE SHE WAS RUNNING BEHIND TO PIC ME UP!! So, i had to stand there in front of a dear sweet lady, whom I had never met in person and tell her what I knew about the car wreck and her son... NEVER WILL I EVER HOPE TO HAVE TO HAVE AN EXPERIENCE LIKE THAT AGAIN! He was in really bad shape, but after months in the hospital & inpatient rehab, he survived and even after LOTS of HARDWARE to put MUCH of his mid spine back together... HE walks!!!! The gentleman that helped me on the phone with the doctors happened to be flying out on the same plane the AF got me on to head back to TX. They were awesome, had me on a plane within hours, and he stayed with me till Dallas, and he went on to Denver to Another Summit. To top it off, after my son picked me up at the airport, it was late night.. and at the hospital, he was in ICU, and really had no clue about what even happened.. Since I needed to EAT I had not since bI think 2 days before & get some rest, take a shower... so my son and I stayed at a near by hotel.. and i guess I was so shaken, so beside myself and in shock, plus the HOTEL's OUTDOOR LIGHTS TO OUR DOOR TO GO IN TO THE HOTEL WERE OUT! I TRIPPED, FELL FLAT ON MY FACE, busted a tooth partially out, it went through my CHIN, and I looked like I had been in a bar fight... MY REASON for TELLNG THIS, IS FOR ONE being right at the Anniversary" of that in March 2014, plus HEARING THEB NURSES 7 DOCTORS WHO HAVE TO SIT WITH PATIENTS, HOLD THEIR HANDS 7 THE FAMILY CANNOT EVEN GO IN TO THE ROOM TO SAY GOODBY TO A LOVED ONE!!! Those stories shall remain with them the rest of their lives... and they always at times come back, just as if it were "yesterday".... SO TELL YOUR LOVED BONES YOU LOVE THEM, SHOW THEMB SPEND TIME WITH FAMILY & FRIENDS... "In A MOMENT, within a BREATH'S SPACE, LIFE CAN FOREVERMORE CHANGE......



EARTH DAY APRIL 22,2020

WORLD EARTH DAY APRIL 22,2020





World & National Lupus Day/Month May 2020



World & National Lupus Day & Month May 2020




https://worldlupusday.org/?fbclid=IwAR0MKPbiNiUBFGguZFyIdtHQMuTAPBhg3O9Jbq4KzZ9SuRB8Y4g0R9EXx9w





Some History Lessons & more... THE GREAT DEPRESSION & THE SPANISH FLU

GREAT DEPRESSION




The Spanish Flu












BEFORE anyone with LUPUS, RA & other Illnesses that require Plaquenil Daily!




BEFORE anyone with LUPUS, RA & other Illnesses that require Plaquenil Daily!

Article from Arthritis Foundation






Please read & pass along!!


Hydroxychloroquine (Plaquenil) Shortage Causing Concern

Possible use of arthritis drug for COVID-19 symptoms causes access challenges for people with arthritis.

Wanna Get Posts via Email: