Sunday, August 9, 2020

Phi Theta Kappa Life in the past from 1978 to 2020, Chronic Illness, Family, & How we tend to shape" our lives even after all these years.


Even though my life did not go the way I had planned after high school, I did get a 2 tear degree and made Phi Theta Kappa with a 4.0 GPA, passed the Nursing Exam about 1994, & had a full scholarship for it. Alas, with 2 kids in school for several more years, & having at that time to work full time. I made the VERY difficult decision to pass it up. I was the main source of income at the time & couldn't quit my job for 2 years for nursing school. But later in life, I began to understand "why" my life took a different route. Yet, I was & still am very proud of my grown kids. They stayed out of trouble & went onto to their own great roles in life. As my own life progressed & I also then molded myself into a writer & published author; I gained much knowledge from living in 2 different states for good while till moving back "home".

It was now time for me to have a "role" as almost a "parent" to my Mom. After Dad passed away she needed me much more than she would admit. I still am in that "learning" phase of my life, which has helped me cope with some serious chronic illnesses, & onto become a "voice", advocate, and "Patient Leader for several large non-profits & living out both of my "dreams". To have 2 of now 4 books published. Seems the list of "writing them" grows more quickly every moment in life.


Plus I got the opportunity to stand on the steps of Capitol Hill in Washington D C to tell my story in order for my voice to become the voice for many! Certainly two proud moments in my life, along with the others before the before them. I remember walking across the stage at the college to accept the honor of being accepted into the Phi Theta Kappa. So, although my dreams of becoming a nurse, or a doctor, never panned out, they made me continue to "study" in these fields.


With my own chronic illness issues, and being able to help others life me. I also continue to write on the 2 or 3 more books to be published & gain more knowledge every day of just how much & how quickly our world & medical World changes. I found at this year milestone of 60 like many of my graduating class, we can look back & see why or not life took us down the paths it did, And to continue to looking into future & hope to gain more insight into out quickly changing places to behold.

Wednesday, August 5, 2020

Wednesday August 5th 2020 My Newspaper all things Autoimmune, COVID -19 and more











Wednesday August 5th 2020 My Newspaper all things Autoimmune, COVID -19 and more  

                                                                                                            Life Chronic Pain & Autoimmune Systemic 

              Diseases & Dementia









x


Sunday, August 2, 2020

Sunday's Newspaper My Own Autoimmune , Pain, COVID-19 & other issues


Life Chronic Pain & Autoimmune Systemic Diseases & Dementia®



http://news.autoimmunearthriticsystemiclife.com/

My Daily (Sunday Addition of my Own paper) Lot of great information here from the Arthritis Foundation, to other Newspaper articles, CDC information, and many more...   


Friday, July 31, 2020

New Post for Pseudogout, Blood transfusion, Severe Anemia, RA Severe Pain & COVID Virtual Visits & more...

I really have SO MUCH to try & catch up here on, so I am going ton"Post"n some of my ongoing chronic health issues, things about COVID, my 2 unit blood transfusions RA, other meds, so many Lab tests, Virtual Visits and more...

More about my Life Living with RA, Lupus, Pseudo-Gout, Severe Anemia & Making My Home Put Together Alone, through the Pain and all that comes with these illnesses.

As I said day before yesterday I CAN HAVE THE STRANGEST MESS HAPPEN AT MY HOUSE!!! 1ST OF ALL I am so embarrassed to even talk about it..I HAD A "VIRTUAL VISIT SCHEDULED WITH MY RHEUMATOLOGIST AT 2:40PM OR 2:15 PM.. THEY SENT ONE THE 2:40 FROM HIS NURSE AND THE APPT. PART OF THE PORTAL SAID 2:15 OKAY as usual between my dogs up & down and the pain in my back & hips, and hands.. I was UP by 3:30AM yesterday morning...Well, I did several things during the day around the house, did laundry, I have even putting things "more in order" rather than scattered around, for instance al of my hand cleaners & sanitizers.. by the way I DID GET MY 2 CORDLESS NEW BLINDS UPAFTER 3 DAYS OVER THE KITCHEN SINK AND THEY ARE AWESOME!!! ANYWAY, I WENT AHEAD ORDERED 2 MORE FOR THE NORTH SIDE OF MY KITCHEN, SINCE INE OF THOSE WERE FALLING APART & I wanted 2 get them ALL THE SAME! So, those were so much easier than dealing with over the sink and around "rotten light fixture that is another story. I also KNOW I have to put up a new light over the sink, because it is so "rotten" where some of the plastic things are they have cracked, and after 14 years, it is just a mess. I spent some of yesterday trying to find one of those that was NOT $$$ of dollars! I also looked for a few other minor things for the house etc... Also I was HURTING LIKE HECK... THE HUMIDITY WAS HORRIBLE & AFTER UP AND DOWN THAT SNALL LADDER WITH THOSE BLINDS, AND THEN WORKING ON THAT DANGED ROTTEN TREE, THEY WERE AND ARE IN BAD SHAPE...Plus I of course have things around the house I can "work on" .. my HAIR is a mess to say the least and since I had that Virtual APPL. with my RHEUMY yesterday I had tried to do "something with it" Well it was about an hour till the computer visit and more, so I decided to it down with the pups for a few minutes, decide on dinner, then it would be time. NOW the fans are going, the A/C Unit is on and all are LOUD.. I had the TV on.. the dogs were right beside me and of course when I NEED them to BARK they don't.. So suddenly I jumped up & I had DOZED OFF & WASALREADY LATE FOR MY APPT!!!! and of all things it was with DR.Q. HIMSELF, AND I RARELY GET TO SEE HIM! I usually see his PA.. I was headed to the computer & to get the program pulled up and my home phones rings! It is MY DOCTOR!!!!! Plus after the call, I found out he tried 2 TIMES ON MY CELL (BUT IT WAS CHARGING IN THE OFFICE & I COULDN'T HEAR IT & I NEVER HEARD THE HOME PHONE THE 1ST IME HE TRIED EITHER... OMG!!! I WANTED TO CRAWL UNDER THE COMPUTER... I WAS TOTALLY MORTIFIED.. NVER , EVER HAD I DONE THAT.. NOW GET THIS.. HEB AND I WAS TALKING ABOUT MY MEDICAL STUFF ON THE PHONE WHILE I PULLED UP THE VIRTUAL PROGRAM THEY USE AND FINALLY ABOUT THE TIME I CAN EVERYTHING SET UP... MY DOG IS BARKING, BARKING AND MORE... & I KNOW SINCE IT WAS JUST IN THE NEXT ROOM in the living room, at the front door MY DR. COULD HEAR IT!!! Anyway, he did say that the program they use to do the visit had problems yesterday and he thought maybe I was having issues..plus he was working "from home" and not the office yesterday. He isSTILL very DISTRESSED over the ANEMIA... & wants to do some other types of blood tests, and he wants me to see a HEMATOLOGIST FOR A BONE MARROW BIOPSY. Which is what I thought also.. he put me back on the Colcrys for the Pseudo-gout.. and he thought "maybe" the "MTX" the Methotrexate I take and have been taking a long time off and on "maybe" making the anemia worse. We talked about some other meds etc, but 1st he wants that bone marrow biopsy. BUT RIGHT NOW I AM EXTREMELY FEARFUL OF HAVING THAT TYPE OF PROCEDURE DURING THIS PANDEMIC! He told me he would find a very reputable Hematologist but I also have to make sure my insurance TAKES THE DOCTOR. AND USUALLY HE LET'S DR. B.; MY PCP'S OFFICE DO MY BLOOD DRAWS, SEND THEM OFF & SEND THEM PCP AND MYSELF.Well he was at home & was not sure about getting the Lab orders over to my PCP's office, which he could send them to me on the portal & I can take them... I have CLUE where the closest Lab Quest is & I am NOT driving to Dallas for it... Quest picks up with my PCP.. so all I need is Dr. Q to give the orders to his office or over the portal.. anything to save me driving somewhere especially right now in a busy Lab office somewhere in Dallas.THEN to top it off after dinner I went outside like I always do and walked around & everything seemed to be 'Fine".. I went back in for about an hour & had my front door partially shut do to the heat but I walk out and my Bird Bath is completely turned over (it is anchored in the ground" even though it is fairly lite) then I see FEATHERS everywhere! Then I walk to the North side of the house & the cat that hangs around was laying in the neighbor's portion o the drive way but nothing like feathers so I figure the bird got away..Well SOMETHING TOLD ME to check the ground to the SOUTH side and look. Sure enough here is the remains of a large bird probably a dove, one wing one place and turn up another part of the bird further down right beside my house!!! Well by Now I am TOTALLY LOSING IT!!!

Friday, July 17, 2020

Latest in the REALMS of what is even more than Pandemic

            What? Normal? Where did that word come from & wherever did it go???


https://www.dshs.state.tx.us/coronavirus/ 


No Matter where you sit, what you touch, how you put up market items, to the way you do your laundry  IS EFFECTED IN ONE WAY OR THE OTHER!

THE"USUAL" DAILY LIFE WE HAD IS GONE AND I DON'T FEEL SO SEE IT EVER COMING BACK.


Are we, will we, can we ever COPE with what is NOT a "normal lifestyle" ANY of  us ever would have had a fondest dream of.. I know like myself, many have to wonder about how our great-grandkids, our relatives to come shall survive. What will THAT survival look like? Or shall they survive another 100 years? Will this be the very last 100 years this world shall ever see and some live through? Will they be underground, nor in some types of huge containers that keep food and people "safe" from hell on Earth types of viruses,. Or will the treatments be so strong they in turn harm us? SO many questions have to be through our minds. Each daily we tend to see and hear everything growing worse rather than better...


I've "hand written more than 100 pages and have many, many more articles, and so on that I will need to go through, get quotes dates, when things happened.. from bing "quarantined" to fear of your own market. Or fear of having ask, gloves, gown, and all on; plus hand sanitizer, washing hands many, many times a day. Disinfecting everything you can and pray it is enough..


Saturday, July 4, 2020

Remembering what True Freedom Ringing is All About...

Happy Fourth of July to All!


May you find Peace, Joy, Hope, And a renewed Faith even though times are quite rough for everyone. Remember what our nation is all about. Take care of yourself and one another and although you maybe further apart than you like.. you can celebrate and have lots of hugs when COVID is over!!!! When it's safe for everyone, and your friends and family are HEALTHY long with you, rather than not here anymore!




Friday, May 29, 2020

Memorial Day & A Whole New Way to "celebrate" due to COVID-19 Making even Daily Life Difficult

When we think of Memorial Day, and Celebrating the Great Freedoms We are given. Those on our Front Lines, keeping battle lines not crossed so we can feel safe in our neighbors, stores, towns open From the Markets to our Places of Worship & Schools whether Elementary all the way up to College Universities, we almost take for granted that freedom we have.

When a Sudden, Deadly FEARFUL Outbreaking of things such as an unexpected "Pandemic" of the kind COVID-19... and then see what people are DOING and NOT doing that could cause us much grief in a few weeks, when the virus hits again, after the holiday weekend.

As much as I need to go have my hair cut, I just can't see your stylist & you that close even with all precautions, not being able to spread it, if someone were to have it and may not have symptoms yet...

I agree people should be able to go to church and other places out BUT I feel we should have the FACTS & go by what the CDC & WHO .. or what our physicians tell us... not the NEWS in itself but what they tell us that THE EXPERTS are saying.

Plus maybe I am old fashioned but NO WAY if I had kids "summer camp age" would I want my kids going this year! NO way just with a few counselors can they keep  bunch f hyped up kids from touching, staying apart enough, using hand sanitizer, washing their hands enough, using their friends outfits or things such as that...

I see how difficult for adults even in large stores with large isles still have  hard time stay apart, and it is by accident, we can run into one another going around corner, or you have to know some items others may have just touched & put back on the shelf, and you or someone else pick it up.

All of us can only be so cautious, so safe, act so smartly.. and still even our own experts csome in contract it. 


Friday, May 8, 2020

Lupus Month!



I believe when we FINALLY have done the research, have a "cure or something to lessen the illness when you contract it... that there is a possibility, we will also have Other vaccines and/or quick "healing" medications to get rid them quickly... I believe if there is ANYTHING "GOOD" that comes from this are LESSONS to be more prepared ^ have a few items "extra" stored away in a plastic tight lid container, safe room, to shelter or where ever you can get ti them easily... NOW not to mean to go out and BUY an entire STOCKPILE of items. But, things like alcohol, peroxide, bandages (just in case some were to cause sores or wounds). along with sanitizing.. enough for 8 to 10 weeks depending on your family size. wipes, spray, hand wipes antibacterial, hand soap etc. plus don't put
TRUST everything you hear or see, but more on what the experts like the the CDC, & your huge research hospitals/facilities that KNOW about the "makings" of something such as this. FROM this I truly believe we will see the true vaccines for Lupus & MANY other autoimmune grow by leaps & bounds.. so although we have so many horrid things come and that have came from pandemics before.. WE AS A NATION shall be well prepared to STOP things in their tracks before they take hold. I ALOS THINK OUR GOVERNMENT from "local" to state, national & possibly global is we have trusted allies. Just my thought with "Lupus Awareness month" after this pandemic hit us like a ton of bricks... May you find healing from ALL of the horrible Lupus Flares and all the disease this illness causes...

Sunday, May 3, 2020

UPDATE - "LOCAL" for End of April/1st of May on COVID -19 Ellis County Texas

 "LOCAL" for End of April/1st of May (2020) COVID -19 



Many READY TO DECREASE THE RULES & REGULATIONS

YET MANY STILL NOT READY TO ALLOW EVERYONE TO TRY AND GO BACK TO WHATEVER OUT "NEW NORMAL" MAY LOOK LIKE....

I realize SO MANY people are hurting financially, mentally, emotionally, job wise.. 

I also realize that E as a NATION, could be pushing the envelop" open by a week or two. which "may" reek havoc & could cause a"worse pandemic" than what we have already seen.

As we enter a world that up till now is "unknown" to everyone, from doctors, nurses, all other types of medical professionals, patients, pharmacists, the PHARMA companies, medial researchers around the globe..WHO, the CDC, & all else.. we are not even sure if this is like a "flu" that can reoccur on some type of basis, or if it's a one time illness such as measles.

We don't have a "sure fire medication yet to even use to fight the disease once you are ill with it; much less any form of vaccine that can keep us completely inoculated against it or at least like the "flu" vaccine where it at least can lessen a case of the flu or usually unless it's an "new strain" & our "vaccine" from the previous year is not as, or even effective at all.

So, as we enter these uncharted waters, PLEASE Heed the WARNINGS THAT HAVE CAME DAY TO DAY AS THE PROFESSIONALS TRY TO LEARN MORE & RESOLVED THIS HORRENDOUS "WAR- OF A DISEASE" AGAINST HUMANS...


Guidelines ton keep you & your family safe during these trying times...



LUPUS AWARENESS MONTH MAY 2020!!!






LUPUS AWARENESS MONTH




During this time of health crisis, we invite you to shine a little brighter. Congress has proclaimed May as Lupus Awareness Month. We ask you to consider turning purple on May 15, 2020 in observance of Put on Purple Day — a day when the global lupus community rallies to bring greater attention to this terrible disease.





Tuesday, April 21, 2020

LIFE CAN FOREVERMORE CHANGE WITH A BREATH'S SPACE....

March 2014 right around this time, I was at my very 1st "Summit on the Hill" With the Arthritis Foundation! I was also in Washing DC for my 1st time. The weather was too cold... in fact sloppy wet snow and cold. about NOON i get a call from my then Mother In Law, who lives right there at DC. Although I had never met her in person, nIb felt after talking to her almost 10 years, ( and her accent is still sob awesome being from Columbia).. my Rheumatologist is also from Columbia, although both of them have not loves there in many. many years... he also still has that very special "accent".. At the same time I was awaiting a plane from DFW to land a bit later in the day... Jim was flying in to be with his bMom and I. He was going to show me DC & get to visit with his Mom for a few days... almost all at once MY CELL PHONE BLOWS UP!!!! NEVER does my cell BLOW UP!!! But, it was loud in the Hotel Lobby, & i was waiting my my Mother in Law, Hilda...I was nervous & she has went to the wrong Hotel by mistake so she was running a bit behind... BUT, the phone coming to pieces, was not about her, but Jim... he had been in an EXTREMELY SERVE CAR WRECK ON I-45, ON THE way to DFW to fly out to DC!!! AS I TRIED TO HANG ON AND LISTEN TO THE ER TRAUMA SPECIALIST I FELL TO MYV KNEES! I had to hand the phone to on of my had been team mates & allow them to take notes etc.... At that moment HILDA walks IN, she Sees me hysterical and SHE THOUGHT I WAS UPSET BEAUSE SHE WAS RUNNING BEHIND TO PIC ME UP!! So, i had to stand there in front of a dear sweet lady, whom I had never met in person and tell her what I knew about the car wreck and her son... NEVER WILL I EVER HOPE TO HAVE TO HAVE AN EXPERIENCE LIKE THAT AGAIN! He was in really bad shape, but after months in the hospital & inpatient rehab, he survived and even after LOTS of HARDWARE to put MUCH of his mid spine back together... HE walks!!!! The gentleman that helped me on the phone with the doctors happened to be flying out on the same plane the AF got me on to head back to TX. They were awesome, had me on a plane within hours, and he stayed with me till Dallas, and he went on to Denver to Another Summit. To top it off, after my son picked me up at the airport, it was late night.. and at the hospital, he was in ICU, and really had no clue about what even happened.. Since I needed to EAT I had not since bI think 2 days before & get some rest, take a shower... so my son and I stayed at a near by hotel.. and i guess I was so shaken, so beside myself and in shock, plus the HOTEL's OUTDOOR LIGHTS TO OUR DOOR TO GO IN TO THE HOTEL WERE OUT! I TRIPPED, FELL FLAT ON MY FACE, busted a tooth partially out, it went through my CHIN, and I looked like I had been in a bar fight... MY REASON for TELLNG THIS, IS FOR ONE being right at the Anniversary" of that in March 2014, plus HEARING THEB NURSES 7 DOCTORS WHO HAVE TO SIT WITH PATIENTS, HOLD THEIR HANDS 7 THE FAMILY CANNOT EVEN GO IN TO THE ROOM TO SAY GOODBY TO A LOVED ONE!!! Those stories shall remain with them the rest of their lives... and they always at times come back, just as if it were "yesterday".... SO TELL YOUR LOVED BONES YOU LOVE THEM, SHOW THEMB SPEND TIME WITH FAMILY & FRIENDS... "In A MOMENT, within a BREATH'S SPACE, LIFE CAN FOREVERMORE CHANGE......



EARTH DAY APRIL 22,2020

WORLD EARTH DAY APRIL 22,2020





World & National Lupus Day/Month May 2020



World & National Lupus Day & Month May 2020




https://worldlupusday.org/?fbclid=IwAR0MKPbiNiUBFGguZFyIdtHQMuTAPBhg3O9Jbq4KzZ9SuRB8Y4g0R9EXx9w





Some History Lessons & more... THE GREAT DEPRESSION & THE SPANISH FLU

GREAT DEPRESSION




The Spanish Flu












BEFORE anyone with LUPUS, RA & other Illnesses that require Plaquenil Daily!




BEFORE anyone with LUPUS, RA & other Illnesses that require Plaquenil Daily!

Article from Arthritis Foundation






Please read & pass along!!


Hydroxychloroquine (Plaquenil) Shortage Causing Concern

Possible use of arthritis drug for COVID-19 symptoms causes access challenges for people with arthritis.

Thursday, April 16, 2020

Senior Class of 2020 & what graduation will look like & what about years to come??


This is dedicated to the class of 2020. Share and make it go viral for them.The artist is
Kaitlyn Kirian of Ohio



This is just so sad, this will be how they remember their graduation - but we love each of them - my neighbor graduates this year .. I know many of them wonder what "their future" make look like? My heart aches for them....

Monday, April 6, 2020

May Easter Bring Faith, Hope & A Renewed Sense of Love to All....



Blessings and Hope for This Easter Bring Miracles to our lives...


 I realize times are difficult now, for all of us. Even though we keep Hop, Faith, Love.. in our Hearts.. "The Old Rugged "cross" was always one of my favorite songs & "Up from the Grave He Arose".. trying our best to HOLD ONTO the good things, 

May everyone be Blessed & find Love, & the Lord in Your Heart. This is a day I always remember. Even though it changed dates every year "Easter Sunday" is the day Dad Passed away. It always seemed "fitting" for Him, for he always stood on that Rock of Faith" May each of us find that "rock of Faith" to stand Upon...


 Blessings for Easter and the days ahead...


Sunday, March 29, 2020

Hand X-Rays Show the severe damage of Long Term Inflammation, Pseudo-gout & Chondrocalcinosis & More...,

After weeks of waiting due to mostly the COVID-19 Virus pandemic, I FINALLY got the copies of my Radiology Reports on the X-rays of my Left and Right Hands...


                                      So Here is the "NOT SO GREAT NEWS...


Well after (not very patiently awaiting) my Radiology reports on my hands.. as I figured the news is NOT great on my left hand...much like "gout" and "pseudo-gout" (which the pseudo-gout is one thing wrong".. I have chondrocalcinosis (calcification within cartilage) found which indicate long term inflammation..( I suspected for years I almost constantly had inflammation in the left hand especially between my joints in most of my fingers) from the RA and probably osteoarthritis also. That calcification is caused also by a build up of crystallization from certain minerals in the synovial fluid between the joints and I have a narrowing between most of them but the base of my thumb and my wrist under my thumb is moderate to severe from the X-rays and Exams by my PCP, Rheumy and Orthopedic surgeon. My Right hand also has much of the same, but it is not as bad as the left one is. Same thing the crystals that are causing the cartilage to calcify rather than be "like softer cartilage like your outer ear for example)" as it should be. There is no "treatment" really. I cannot take NSAID's other than aspirin, and Motrin, etc... the prescription doses is what would possibly help is anything. I am on all of the medications they use, unless we change and go over to another biologic.. I am on Enbrel right now.. along with Plaquenil, prednisone small daily dose, the Enbrel, Methotrexate (which if I do not get ill with an infection they can increase my dose on this), the BC Powder, Colcrys (which I found out can be increased also but it's the latest one so I am sure they are making sure I do not have any side effects first).. what concerns me, is that this may be also what is effecting my lower back and hips also. It does tend to go to those as well as the feet.. About the only thing that would possibly be the answer would be hand surgery..especially on the thumb, and where this cartilage is getting hard... This of course is chronic and will not get better, only worse as time goes by.. unless we have a miracle.. Right now the miracle needs to be for the COVID-19 virus. It was honestly a bit better than I expected.. I felt with the way my fingers are bending and trying to twist on my left hand it would show to be worse. Going to and already does.. make very hard for me to don anything with my hands and fingers..type, open anything, zip anything, you name it, it either is impossible for me to do or hurts like hell to do it. Until this Pandemic is cleared where I can see my PCP, Rheumy etc.. I will not have any answers, but at least now I DO know (THANKS TO MY PCP for sending me the reports and explaining them)  HE is my lifeline... so all I can do is read more on this & pray all of this Pandemic clears up and PEOPLE can get well, stay well, and try to get back to some type of "good new normal".. although my stuff is certainly not good, right now at this moment, I am not ill with the other and praying I don't and everyone in our town, county, nation and world gets well.. I have to admit I was quite upset when I read these reports.. even though I knew what they would probably say... but life goes on and so shall I. My prayers to EVERYONE!!! Stay In, Stay Well, & let's keep HOPE ALIVE!!!


Friday, March 27, 2020

15 years ago My Dad passed away on that Easter Sunday... here is some of his story...



Today it was about this time from Seattle (I think) I was talking to Dad.. He "heard" me I know... about 10 minutes or so after we hung up, he took his last breath...almost like he was waiting on my phone call... It took me a LONG time to forgive myself for not going town from Seattle, But him going downhill so quickly I may have never made it... It was better now I know for me to go down like I did to be there with Mom and the kids... during the days after and for the funeral.. Dad sang in church often - and his favorite song was (the song below)


Dad passed away March 27th, 2005 on Easter Sunday. I had been on the phone with him (I think he KNEW it was me) waiting for me (I was in Seattle WA living when he suddenly got critically ill from a knee replacement surgery that went very WRONG! The best we know is he probably got an infection that spread to his brain, and/or maybe mini-strokes. He had Diabetes and wasn't great about taking care of what he ate and taking his medication. I still talk about Him often. Right now, with the Pandemic going on it so reminds me of what he lived through, he was born in 1923, but did remember the Great depression, some, even though he was very young. All of how they lived what they went through (one time when he was about 10 years old, he ate some "green pecans".. in the middle of the night woke up severely ill, so bad, that they thought he may die... back then there were no hospitals, and rarely doctors in the country.. but His Dad got up, took the wagon miles and miles to get the only doctor around...he brought him back, and Dad pulled through... but that was just one thing I remember when I see how things are today... they wore shoes till they could no longer patch them, then they got a new pair ordered from the Sears catalog, his Mom made bread or bisquits every morning... they had "lunch pails" that were much like a paint can round with lid on it... he often carried a bisquit and a piece of sausage for his lunch.. BUT back then EVERYONE was in the same shape.... no one thought about it being any different... he GRADUATED in a ONE ROOM school house that ALL AGES were in that same room, I think IT WAS A CLASS OF 12 SENIORS & HE WAS I BELIEVE Valedictorian or Salutatorian.. right now I can't recall which... this was the last time I saw Dad... It was in 2004... I flew back for Amanda's & Jimbo's (my daughter's) wedding.. and I drove 7 hours up from near Corpus to see bHim and my Mom before having to drive back to San Antonio to fly back out. Dad, there is not almost 1 day I don't think about you... things you taught me, and lessons that no school could ever teach, how to respect others, be honest and truthful, work for what you get, be kind, and so many other things that have stuck with me in my years... I Love you and I know you and Mom are Happy to be together....



















"Pearly White City"

Sunday, March 22, 2020

Coronavirus, Climate Change, and the Environment - Harvard C-Change

03/20/2020 | Harvard C-CHANGEA Conversation on COVID-19 with Dr. Aaron Bernstein, Director of Harvard C-CHANGE


https://www.hsph.harvard.edu/c-change/news/coronavirus-climate-change-and-the-environment/

Below are some of the most common questions we have been receiving in relation to the environment and coronavirus 2019 (COVID-19).
"This page will continue to be updated as new information arises. If you would like to talk to someone at our center about coronavirus, please email us at cchange-media@hsph.harvard.edu..."

(Lots of great information in this article.) And for further articles and information see my Daily Newspaper...

An Autoimmune Arthritic Systemic Life    by Rhia Steele

Life Chronic Pain & Autoimmune Systemic Diseases & Dementia®

Monday, March 16, 2020

Sunday, March 15, 2020

Cure Click Clinical Trial Schizophrenia




Schizophrenia is a chronic (long-lasting) condition that changes how a person thinks, acts and feels. It is thought that about 1% of the population lives with this condition. There is no single cause of schizophrenia, but certain things like family history, genetics and chemicals in the brain can all be potential risk factors. This new clinical trial aims to understand if an investigational drug could be safe and potentially effective in impacting attention and memory in people living with cognitive impairment associated with schizophrenia (CIAS).

*This study is for people who:
-- Have been diagnosed with schizophrenia for at least two years
-- Are 18 to 55 years of age
-- Have a dedicated study partner – someone who sees them at least 2 times a week and can accompany them to certain visits
*Other eligibility criteria also apply
Learn more! #sponsored #cureclick







#medicalresearch #ctr #sponsored #ad #promotion #paidpromotion #sp #sponsoredpost #cureclick



Thursday, March 12, 2020

Specialists-A WASTE OF TIME & MONEY ON A SO-CALLED (NP) DERMATOLOGIST WHO KNEW NOTHING!

Going to a "Specialist", Getting NOTHING but MAD, when they do not know a thing about WHY you were sent! When My Rheumatologist (NP) & My PCP BOTH already had agreed I had "probable Psoriatic Arthritis"


I've been "waxing and waning" at least 4 months, maybe more at this "sudden acute break-out" that started on the outside of my right ear, sudden big "flakes" on my scalp (NEVER HAD that before at all", then the top part of my upper chest, and my upper shoulders, a spot over my ears, and one on my nose, then on the side of my face... and a bit on my right wrist... ALL APPEARED.. they are round, at the time very, very "flaky, thick" almost as if it had been a sore that took a long time to heal. But, no itching, looking horrible, and no sign of getting better, just every one of them flaked every day... I tried everything I could think of, yet nothing seemed to be helping.

I did my own "research" and found with my other Autoimmune issues, the RA, Lupus, Sjogren's, Raynaud's etc... and my joints getting worse with stiffness, pain, beginning to "twist and turn" all of my knuckles on both hands swollen, I felt it could be Psoriatic Arthritis". 

I had seen both the PCP & the Rheumatologist (NP) BUT this was after 3 months of them beginning to heal. They could still see it on my scalp, and how it flaked off a few places, BUT OF COURSE they had began to look a bit better. As always, about the time you begin to get well, & go to the doctor so then they cannot get a good idea. 

BUT, everywhere I had one, a round white scar almost with a bit of a sunken spot in it developed. Plus even now I still have a couple in my ear.

So, after waiting weeks, getting into a "Dermatologist" & try to avoid Dallas, I found one closer. I go yesterday, & before I went I called & asked if there were any "precautions" they were taking, other than the normal ones for the Coronavirus. Well, the lady on the phone about half acted as if she didn't even know what I was talking about. Then she said, "we are going by what the authorities are saying. So, still a bit hesitant with all of my other issues (even the pacemaker, it's been there 7 months but it can be like the autoimmune illnesses, a complication, even with the flu etc. I always am very cautious during the flu season. 

So, I go into the building, NO HAND SANITIZER, NO WIPES, NOTHING... not at the door, at the lobby EVEN NONE IN THE RESTROOM! Well, by now I was a bit nervous. Of course I had my own, so I put some on, after washing my hands, and & went to find their office. Again, I go in the office, NO HAND SANITIZER, WIPES AND EVEN NO KLEENEX!!! NOW I was REALLY getting to the point I wondered if they took "any" precautions. There was NONE in the rooms, and other than a very small "posting" you could barely read on the wall in the waiting room, NOTHING about it! They called me in, the nurse NEVER asked about a fever, if I had been exposed possibly, or had been out of the country. Plus again NO HAND SANITIZER, NO TISSUES, NO SIGNS POSTED, NOTHING. SO, that was bad enough, then she was an hour late!! And she "barely" looked at anything I was trying to show her, or listen to what I was saying. And just said, "I don't think it is psoriasis"and I asked what about these white round "scars" left? She had NO answer... for one thing they are ugly & with spring and summer coming it is bad enough with the scars I have due to surgeries. So, she basically, told me the same thing I knew, about lotions, what to use etc.. and said "if I have some that come up she can see "better"then call & come back. 

By this time I was fuming and disgusted, and she even tried to shake my hand! I almost walked out without paying the co-pay I was sob freaking peeved! I left there upset in tears, ruined my day, when I could have been home working on my lawn, a waste of gas and money for a co-pay I should really not have owed. I paid it, hurried out, used my hand sanitizer, then went to the restroom and washed my hand... & the closer I got home, the more upset I got.... I wished I would have taken pics when the places were so bad... so, at the last I asked her "would Enbrel be a medication they MIGHT USE TO HELP THIS?"  SHE SAID "YES"... one of them & there are several others out they use for it. So, I said well I went back on my Enbrel about 4 to 5 weeks ago. So, I told her that, & she said well let's "hope", that will help. (So all of the paperwork I filled out over the previous weekend, along with medications, illnesses, surgeries, whom my doctors were etc... she NEVER even looked to see I was on Enbrel, Prednisone, Plaquenil, & Methotrexate.. because those 3 are the older ones they use... NEVER, NEVER, EVER WILL I GO BACK NOR RECOMMEND THAT OFFICE TO ANYONE! I have had a doctor or two really upset me over the years, but this one really "did not know her rear from a whole in the ground"....




Coronavirus & Some Updates... CDC, WHO etc...

Coronavirus (COVID-19) & some Key Facts for now  of course they update quickly!


I had not posted much on the Virus just due to all of the "stuff" going around. No one wants to have the illness, BUT we do not want to PANIC either.

So, here are a couple of links from "trusted" sources" I Hope! bThe CDC, WHO, NIH, & some of the Pharma Companies trying to get medications out that work!


https://www.biospace.com/article/biopharma-industry-news-update-on-the-novel-coronavirus/


https://www.biospace.com/article/regeneron-and-sanofi-aim-a-rheumatoid-arthritis-drug-at-coronavirus/?TrackID=15&fbclid=IwAR1VaNxLYNv1kO4b3hbUermWDFnHlVrhWEui17_E6Du5ZfHlJMAHz96qjcs







Saturday, February 22, 2020

Insanity with Chronic Pain Dr., MORE Crazy w/Rheumy's NP & TRAFFIC Beyond NUTS in Dallas!!!!



NEVER again will I allowANY of the Dr's I see in Dallas,  talk me into driving LATE afternoon RUSH HOUR in the POURING "Cats and DOGS"RAIN! Not when just about EVERY DRIVER DOES not CARE if they RUN OVER You OR not!!!!

PLUS I have been going to the couple of"specialists" up there for 10 years & they ALL knowI have to make a 40 plus  mile commune one-way and then back!!! Then when  they  "delay"you because they make a mistake, that you have to go BACK into the office, & "question" the doctor, (by the way good thing I did" I was CORRECT! Had I NOT "checked" I would have been in a world of severe pain till at least this coming Monday, and this way LAST Wednesday!  Plus they also knew I was on a Schedule" due to trying to get two doctors visits done on that day. I DID NOT want to have to drive home, then GO BACK again in a few days! The driving on dry pavement is bad enough, but having to be in the car in stop & go rainy, wrecks, & road construction, at 5:00PM in Dallas on I-35 and I-45, just is enough to make you hurt for days.... 

To top it off, my Rheumy's NP is nuts.. she wanted me to walk over to another building (this is at like almost 5PM) to get my hands X-rayed & Labs done, which I have done here in town usually...plus NO WAY was I saying till Lord knows when in the pitch dark, that I don't drive well in due to the headlights anyway... I tried to TELL her but she is too busy "typing" on her computer to even LISTEN to me, sitting 10 feet away in the room! She will NOT speak up, I cannot understand her & I kept asking her to "speak up" and sh jut "mumbles"....

So, then I finally get out of the "pits of hell in Dallas Traffic" have to stop & get myself & the pups some dinner... & by the way I got home (which I did NOT expect" to be gone over 10 hours or so.. I still had to  change clothes, put stuff away & try to settle all 3 of us down, so we could eat...

NOW I still think my doctor (Pain Doctor) is mistaken, but the way I need to explain it will be difficult on the phone, so I HOPE the email address I have for his Business Office & Patient Manager (who is awesome) works... MOST Dr's now days have "portals" & out of all  them he does not.

Thens the NP at my Rheumy's Office wanted me to see a "Dermatologist" cause this is probably Psoriatic Arthritis - the BAD thing is when I showed her the places, she asked me "Do you have Psoriatic Arthritis?" I was like WHAT!!!???That is what I am ASKING YOU?!! I wanted to shake her... that chart of mine and ALL of the updates.. by now SHE should have KNOWN I was asking about a NEW SYMPTOM and ILLNESS!? Not having to tell her what I had.... I asked her since it is a form of Arthritis, why do I have to see a Dermatologist? Of courseI have the plaque's & trouble with my scalp, BUT I did not know that the RHEUMY would not handle it all! Which I'll be darned if I find one in Dallas..like she wanted.. We have one right here I found, that I believe tales my insurance, had his "bio"  etc... he shows to be extremely good.

So here we go again, with a new doctor, like I did not have enough.. and I am NOT going back to Dallas for Labs & X-rays on my hands when they can do that here!



Friday, February 14, 2020

Happy Valentine's Day! Hope pain stays at bay & illness..so you can all enjoy it!



Happy Valentine's Day to all of my friends!



A Very Happy Valentine Day to each of my Dear Friends! I hope joy, laughter, love & LOTS of Cakes, Chocolates, Covered Strawberries, and a beautiful also fort all with sweethearts, may romance fill your days ahead! 


After my Mom making many many "heart shaped red velvet cakes each year for my b'day tomorrow...of course she can't any longer..so yesterday when I went to get groceries, there was these tiny heart shaped cakes for Valentine
day.. When I went to loo at them the did have a"red velvet one" -- so I now after missing a couple of years I have one! LOL!!! not as good as Mom's but is a remembrance of MOM & HER MAKING
IT ESPECIALLY FOR ME.. JUST ONE OF MANY


THIS WEATHER REMINDS ME OF THE DAY I WAS BORN... Dad said he went at lunch time home to check on Mom because I was due at any time.. he said he went in & she was still in bed? He asked her if she isn't feeling well.. and she turned and looked at him, sayingI HURT! Dad was a bit hasty in telling her you have to get up, you are in labor! She said she couldn't& he told her YES YOU CAN, the baby is coming!!! So he got her in the car , they had to stop & pick up my Granny Svehlak ... then Dad saw he needed gas, since he had to go to Corsicana..and back then cars didn't run as fast and the speed limit was MUCH lower... so by the time he finally got to the hospital about 25 miles away, I think I was almost there!...I was born I think around 3 or 4i n the afternoon, and the weather was icy, snowy & very cold! Anyway at the time the waiting room for the Dad's Had a "pink" light on one side & a blue light on the opposite side. Dad did not know, so he was getting nervous & the nurse came out to tell him then"pink" light was on & he had a healthy baby girl!!!! I can recall Dad telling that story so many times and it always was too cute to hear him tell it!





May all of you enjoy a day filled with happiness and joy... and may pain stay at bay.. and illness give you a break!


Thinking of my friends & Wishing everyone Love in your life today and all the days to come!!!!

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Phi Theta Kappa Life in the past from 1978 to 2020, Chronic Illness, Family, & How we tend to shape" our lives even after all these years.

Even though my life did not go the way I had planned after high school, I did get a 2 tear degree and made Phi Theta Kappa with a 4.0 GPA, p...