Wednesday, December 20, 2023

Me.. As I Walk through the Realms of the Holidays...

Posted on Facebook, Instagram, and "X"...

I am okay all.... I have not been online the past several days. I have had several doctors appts, and finally got to see my new teeth yesterday. They will be perfect... they should be ready by about Jan 8th...

Honestly, I am a bit forlorn about the whole holidays right now. After losing one our own... such a shock... and thinking about how things have so changed right at the flash of an eye...

One moment we are young, with all of the family having INCREDIBLE and MEMORABLE HOLIDAYS... cousins, Aunts Uncles, Grandparents, Parents... and siblings if you have them... and within a breath's spce the decades have gne by and you find yourself in a space, time, and realm you cannot fathom it went by so quickly and everything has changed... nothing as it was before...

People say "get over it", celebrate for the right reasons, be grateful you are here.... and ALL of the things some people should really "think" before they open their mouths... and it includes me at times...

Memories of all of the good times, the good years... all come FLOODING INTO MY MIND AND HEART LIEK THE RUSH OF A WATERFALLS AND THE HUES OF COLOR IT BRINGS...

I feel like a "waterfall" in the cold weather of somewhere such as "Wolf Creek Pass" where the waterfalls are "frozen in time"...

I feel like I am "frozen in time" and I cannot seem to move ahead or step back.... like a a rare photograph like I am looking through the mirror of my life...

I have had things to do around here..some outside before it has gotten colder and we have had quite a bit of rain off and on...the sun is coming out now and if it is dry enough I have the last of the leaves to shred if it is dry enough...

I have also been FIGHTING WITH A SQUIRREL! He or She have been trying to dig into my roof or in to the laundry room I have been trying to find a way to keep them from trying to get in... ALWAYS SOMETHING....!

I hope to get by the cemetery in the next day or so, to put flowers out on Mom and Dad's..and my Grandparents graves... I have the flowers... so if it is warm enough later I may get out there...

I went and bought another "sample" size pain of the next darker color than what I bought at first. Now I am thinking about doing it like my bedroom and using waded paper to look like it is sponged...but my bedroom is awesome... I put a tad bit of pain glitter in the paint.. and t only shows in certain is incredible...

So, I may either pain a couple of walls one color and the other the lighter or I may wind up doing 2 or 3 colors and sponging it... part off my wall in my living room have two colors of aquamarine paint on them...

The ONE thing and I have NOT broken the tradition but maybe one year I was in the hospital but I ALWAYS WRITE ON ANNUAL CHRISTMAS LETTER! I put one in the Christmas cards I "snail mail"...BUT I do not have but a few cards to send..all the family is nearly gone...and I am having a difficult time just even trying to decide what to say... I may write it but only post it here etc..and on my blog.... I have about 6 Xmas cards to "snail mail" out... and I may leave just what I wrote in the cards and not send a letter this year... AT least I wrote it.... and posting it HERE IS LIKE FAMILY IN MANY WAYS.....

I "hope" to have the energy to get these things done and hopefully come to the "emotionally and mentally" in sync to write the letter and hope to have the "under joyous" feelings I have at the time...

I KNOW the true meaning of this precious holiday is... and presents, trees, decorations, food... all are a part of it...but the real "REASON FOR THE SEASON" HAD NOTHING TO DO WITH PARTIES, FOOD, DECOR, BUT FOR WHOM WAS "BORN IN A "MANGER" long ago... walked this Earth as we do,,and much harsher conditions... to sacrifice His Life in Order that WE have "Eternal Life"... so Baby Jesus... is the true meaning... and all of the rest is in "celebration" of His Birth....BUT think about it...we..with ll of our toys, expensive trying to "one up" the "Jones" .... cars,, houses, technology, designer labels... shoes that cost more than most car or house payments....

We (and I mean myself included) should SEE the TRUE Meaning.. IF WE were in the cold in a manger... would WE be that HAPPY!? We we be that "grateful"? We would travel miles and
miles in the cold on see the Newborn "King"?

JUST "FOOD" for thought.....

Tuesday, December 12, 2023

How RA and Chronic Illness Make Us More Empathetic

                            How RA and Chronic Illness Make Us More Empathetic

Health Union Community Since 2013 is a Health Union community. Health Union reaches millions of people through condition-specific online health communities and a Social Health Network of patient leaders across virtually all health conditions.

Wednesday, November 22, 2023


 Have an incredible Holiday season. Be safe, enjoy family, friends, some football...a Great Deal of food...
                        and LOVE!!!!

Thursday, October 19, 2023


                                                                    GET VACCINATED!!

 HEY YOU! yeah you!? do you have your flu, rsv, and latest COVID-19 vaccine that takes care of more variants!!! I DID! THREE BANDADES LATER AND I AM COVERED.FOR IT ALL. "RSV" EFFECTS YOUNG INFANTS MORE THAN ADULTS but if you have other health issues eith your lungs, Autoimmune system..other things that may keep your body fro fighting RSV get the vaccine!!!

Sunday, October 15, 2023

FINALLY! DEA MAY BE PUT IN THEIR PLACE! "NOTE" "they cannot play God with people's lives."

 FINALLY! DEA MAY BE PUT IN THEIR PLACE! "NOTE" "they cannot play God with people's lives."

Lawsuits Accuse DEA of ‘Incompetence’ in Regulating Drug Supply

Thank Goodness "someone" may have their heads on their shoulders!!! The DEA needs to let go of thinking and playing "God" with people's medications and lives"....

Friday, August 4, 2023

I Have MY OFFICIAL CERTIFICATION from "Health Union" for Patient Leader Certification!!! (Social Health Media/WEGO Health


I’m excited to announce that I’ve completed my @HealthUnion Patient Leader Certification at the @socialhealthnetwork. The program covers the best practices in powerful storytelling, meaningful engagement, and responsible patient
leadership. I’m looking forward to taking the next steps in my Patient Leader journey and making a real impact in the lives of others! #PatientLeaderCertification

Monday, July 31, 2023


This is not the cover...I changed it!



Sunday, July 30, 2023

Lupus and Heart Complications....

Friday, July 28, 2023

New Book coming out soon! My Journey with Autoimmune Diseases ..Lupus , RA and other issues with these conditions

I've been working of this for a while. The 1st edition has been ready, but I made some changes. 

I decided this needed to be a least 2 volumes..

The "Title" stands as it was..
"It's Not me! It's the Disease!...Stupid!

Wednesday, July 26, 2023

World Sjogren's ...July ...and July 23rd was the main day!

This is a horrid disease (AI)! Sjogrens is not just dry eyes or dry mouth. It's much more complex than that. I had my teeth begin breaking off at the gum line. Sjogrens had destroyed my teeth. I had to have the rest extracted and have Dentures.

 A few days late but we wanted to acknowledge World Sjogren's that was celebrated on July 23. To learn more about Sjogren's disease go to: #sjogrenssyndrome #sjogrensdisease #aiarthritis

May be an image of ‎text that says '‎July 23 8 World Sjögren's Day commemorates the birthday of Dr. Henrik Sjögren, the Swedish ophthalmologist who discovered Sjögren's in 1933. خة &AUTHRITTS AiARTHRITIS INTERNATIONAL FOUNDATION FORAUTOIMMUNE‎'‎
All reactions:

Tuesday, July 25, 2023

Our Medical Spaces are "Diseased" by many Doctors, ""Big Pharma", the Government... & so much more

 ******I have not posted this yet...but it seems appropriate now....


Diseased… this entire damned mess...IS Diseased!!!

All too often these days…I see more “ill” people than healthy.
It’s not due to status, married young, old, divorced or wealthy.

It baffles me more each time my heart beats; those whom should take care of us…
They’ve turned their backs on thousands.. & how some act is a total disgust.

We are quickly becoming a “society” that has a great deal of distain on how this nation is ran.
Many of us are so through with the mess with doctor’s, medications, tests…we have as patients & caretakers we've taken care into our hands.

My thoughts are that we are being given so many different things from “Big Pharma”; that we know is definitely tied into our federal government "IF" I can say “our government” with a straight face.
The FDA and DEA are right there to make sure who lines their pockets and tries to win this race.

Our insurance, groceries, gas, and EVERYTHING is so expensive…and we continue to inundate our lands, waters, air with a “fiery end”…
We see it, hear it each & every day…weather patterns are insane. Viruses, more and more illnesses the OFTEN can’t be properly diagnosed…we are overwhelmed to the brim.

A great example is this “bone growth stimulator I’m wearing due to a collarbone fracture (also a shoulder blade and 2 ribs) a YEAR ago July 4th 2023. I noticed it is a “wave length” the same as my mic.
I can’t get my microphone near it when I’m having to wear it right.

If it’s causing that, what is it really doing to my bones and my body? Then when you include a cost of $5,000.00 plus. It was insane. My insurance pays 80%. Which left me at $800.00 out of pocket. When you are “through” with it; it can’t be used again. SO if you have another break, surgery and so forth..this thing is USELESS! Oddly enough, I found out the company online. I called customer service, explained my situation, they waved my portion.

What irked me that that the REP that brought it out here knew that. I told him and he said did you find out? I told flat old him I used “Google” and the company’s website.

He was shocked & after a moment, he said well I was going to mention that to you.. totally smelling like B/S …right???!!😠😡😠

Why would he be upset over whether I have to pay the co-pay or not? Ten to one HE gets a commission from that money he thought I would pay in.

Why else when he saw my situation NOT offer to see if I qualify for assistance? This is the TYPE OF SITUATION... That I feel is "medical gaslighting". Believe me MANY of us are being used by "gaslighting" and we are not even aware of just HOW WRONG it is!

It's happened to me at least a handful of times; without me truly understanding what the term "gaslighting" even meant. I had actually seen it used in a "good manner".

Once I went through the last time I was medically gaslighted, I knew what was happening with my doctors office was absolutely against the OATH and regulations doctors have to do or not do for patients.

Monday, July 24, 2023

Defeated...Am I???

 Defeated… am I?

Trouble is I have so many reasons they don’t..

My perception of this horrid not what I want.

As I’ve sat back….to heal & hang…we’ve became a mere number on a wall…

This world… this nation… is so much more than just a hot mess… we should all be appalled at how we as the PEOPLE

that feel we must beg and crawl.

It’s not just the “disease” of the physical realm.

Lunatics for the most part have taken over the helm.

I’m burned out, I am fed up, I shall NOT stand for all 

that is in this ridiculous, insanity of a world.

I’ve waded, crawled, begged, dropped into a crying heap of nothingness…

NEVER again will anyone…have to live with what I’ve put up with …the distress.

There is way too much pain, too many illnesses, diseases, &

people that suffer daily ….needlessly.

Anyone who tries to tell me or YOU..Life is “easy peasy”…

They must be running in an entirely different time & space…for that’s crazy!

Yes… I write all too often about “love”. I’ve had to crawl out of the pits of hell, abuse, emotional. physical and moreover mental & emotional.

I’ve never said I was some “ranking” of an angel.

But, I do KNOW NO ONE on this planet will fair as an “angelic” figure.

Like I’ve heard…some people are trying to be hurtful.. & their mouths and mind state just pulls the trigger.

By this moment…I thought life would be better..different..well..full of love, laughter…and of course forever after..

What a damned dream fantasy world I was living in…for I feel as if I’m some kind of vermin..a bat…hanging off of a rafter.

Some make us feel ashamed, some bitch, moan, mumble under their breath and then break our hearts….

Have I been so damned naive’ to think SOMEONE REALLY loved ME for ME  from the start?

I’m just someone that has been handed down… and I’ve never 

really felt LOVE!

I see those that “think” they are happy..with greed, lies, just unfathomable ways that shall be judged someday up ABOVE!

Someone said to a friend,”how do you sleep?” because of a statement….and good gosh all I could think of was what a freaking creep!!

We are being demolished…waiting as those who come and want to break us down…

They better take me to the deepest oceans if they think in their horrid ways…make them think I shall ever in their own lies…drowned.

I’m no one with “clout”…I’m not famous, rich or…. have

one damned thing to brag about…

I’ve never & shall never be someone who thinks I’m better…within or without..

I can guarantee not one of us…are “born” without soul…

We may be born with struggles…but look how many become  BOLD!

and from this..all I think is SOMEDAY….MAYBE SOMEDAY…



because the ONE person in THIS LIFE…no matter close or far…is completely out of my reach..

I’m in complete defeat….

I FEEL TORTURED!!!!!!! & do NOT know why!

Rhiannon Steele