Tuesday, December 11, 2018

Clinical Trial for Parkinson's Disease sponsored by Cure Click

                                         
        https://curec.lk/2CZN7S       
                       

    Hashtags    
#parkinsons #PD #parkinsonsdisease #levodopa #sponsored #cureclick #ad 

Today, researchers are evaluating an investigational drug that focuseson the earliest stages of Parkinson’s disease that may potentially offer a new option for recently diagnosed patients.
If you have been recently diagnosed with Parkinson’s disease, you may want to consider a newly opened study. It is evaluating the safety and potential efficacy of an investigational drug that targets alpha-synuclein (α-syn), a molecule associated with Parkinson’s disease. The investigational drug is being studied to see if it may potentially help to slow or reduce disease progression.
For people who:
-- Have been diagnosed with Parkinson's disease in the last 3 years
-- Are 40 to 80 years of age
-- Have not received levodopa in the last 12 weeks
Learn more! #sponsored #cureclick



Tuesday, November 27, 2018

After All of the "Buying" Now is the Day to "Give" - #GivingTuesday!

Giving Tuesday! Now that we have given Thanks for our loved ones, friends, and had our meals, shopping for days, and all of the "buying" - TODAY is the DAY TO GIVE -  #GIVINGTUESDAY  

Pick One of your Charities or reasons, or places to give to and give in order that we may help to either cure illnesses, bring change to stop illnesses, to raise awareness, to feed the hungry, or whatever you may feel needs to be done or changed... Raise your Hands and Help to Giving Tuesday!






Thursday, November 22, 2018

Happy Thanksgiving to You and Your Family and Friends - "Open Enrollment" falls during the holidays.... Decisions to make...

Global Healthy Living Foundation 


Here is a great URL and information for your Guide to Open Enrollment brought to you by the "Global Healthy Living Foundation".....


https://www.50statenetwork.org/patient-guide-health-insurance/?utm_source=50-State+Network&utm_campaign=6055d3a2da-EMAIL_CAMPAIGN_2016_11_22_COPY_01&utm_medium=email&utm_term=0_7a423dd451-6055d3a2da-232458653



Along with Wishing you all a Peaceful, Family and/or Friends, Laughing, Eating, Making New Memories, and Recalling the ones past... May you have safe travels if you are traveling about, may there be harmony around the nation & world, and may the Thankfulness in your Heart be filled and overflowing... Whether you are in a room full celebrating, or like myself, at home with my two "fur-babies" Bella and Peanut, having our own small "family" Thanksgiving, may you find the blessings wherever the days take you....


Be Safe, Take Care, and Find Something to Feel Proud for, Thankful For, and to feel Gratitude for during the holidays and reaching into the upcoming New Year....

Rhia





Friday, November 16, 2018

"Pain News Network" - Articles "CDC gone WAY TOO far with quick changes of Opioid Changes",



"The American Medical Association has passed resolutions urging insurers, pharmacists, federal regulators and states to stop the "inappropriate use" of the CDC opioid guideline. Although the guideline is voluntary, many of its recommendations are being regarded as mandatory."


"The head of the AMA says the crackdown on prescription opioids has gone too far and is harming pain patients. Dr. Barbara McAneny says one of her own cancer patients tried to commit suicide after a pharmacist refused to fill his prescription for pain medication."


What about no Mention of "Kratom" n the DEA's Annual Assessment to Drug Risks?
"The FDA and DEA have warned for years that the herbal supplement kratom is risky and could lead to addiction or even death. But why is there no mention of kratom in the DEA's annual assessment of drug risks? "


And HERE is some PROMISING NEWS - You Must Read This Article!

"Experimental Gene Therapy made drastic reduction in a Dog's Chronic Pain After Being Hit by a Car" And this is a Pup That was Assisting His Human Companion Who has Seizures..."

Researchers at the University of Colorado say an experimental gene therapy significantly reduced chronic pain in dogs after one injection. Human trials on the promising treatment are now underway.

Wednesday, November 14, 2018

"Thyroid Awareness Month" and Hashimoto's Thyroiditis - Do you know the signs, symptoms, and more...

Thyroid Awareness Month - Did you know that certain types of "Thyroid Problems and Diseases" are actually "Autoimmune Illnesses? And that having "other" Autoimmune Illnesses can put you at further risk of Autoimmune Thyroid Diseases such as Hashimoto's Thyroiditis Disease?






https://www.holtorfmed.com/thyroid-awareness-month/



https://www.holtorfmed.com/hashimotos-disease/



Symptoms of Thyroid Disease (as well as others depending on whether you have a "hypo" or "hyper" type of Thyroid Issue...

Are you experiencing any of these symptoms?

  • Panic attacks
  • Insomnia
  • Anxiety or depression
  • Unexplained weight changes
  • Diarrhea or constipation
  • Inability to tolerate heat or cold
  • Muscle/joint aches and pains
  • Unusual weakness and fatigue
  • Hair loss
  • Swelling of the feet, hands and face
  • A hoarse voice, problems swallowing, or a tight feeling in the throat
  • Irregular periods
  • And more
See much more information at the links provided above...


"Giving Tuesday November 27th 2018" STOMP OUT BULLYING!!!! The "Global Movement"

Giving Tuesday, the Tuesday after Thanksgiving, is a movement to create an international day of giving at the beginning of the Christmas and holiday season. On this day of GIVING, we ask you to think of the youths who we work to keep safe at school every day .. the youths who we work to keep safe online... the youth whose lives we save every day.





World Kindness Week is November 13 - 20th. The purpose of World Kindness Week is to highlight good deeds in the community, focusing on the positive power and the common thread of kindness that binds us. Today and every day, focus on the good and spread kindness wherever you go. One way you can do this is to stand up for people who don't have a strong voice. You can also use inclusion, unity, respect and acceptance to spread kindess to the people around you. YOU can make a huge difference.

At STOMP Out Bullying, we LOVE to share messages and stories of kindness, and to hear yours. What are your plans for this World Kindness Week? Share your thoughts with us on social media and let’s keep the global conversation on kindness going.

Saturday, November 10, 2018

New Clinical Trial for - Primary Biliary Cholangitis (and my story about a nightmare gallbladder surgery gone very wrong)


Primary Biliary Cholangitis brought to you sponsored by Cure Click




About 65 out of every 100,000 women have #PBC in the U.S. Researchers are looking for volunteers who experience itchiness as part of PBC. #primarybiliarycholangitis #sponsored #cureclick 


New Clinical Trial! This none is critical to me... due to me having what they thought was gallstones, or my gallbladder inflamed and possibly infected, I had an emergency surgery to remove it. During that, the surgeon "nicked' a bile duct. Which caused poisons to empty out into my body cavity... almost like blood poisoning/.. 

I was rushed to a hospital in Dallas to a specialist or let's just say MORE than one specialist. One of the main surgeons tried at least 4 times to do surgery and repair the duct. They "called in" my family, on the last two not knowing whether I would survive. She finally was able to repair the nick on the 4th time and stop all of that poison to stop pouring into my body... BUT, I did NOT EAT one bite, or even drink anything for over 6 WEEKS!! I was on so many IV's that I had a special IV "holder" to keep them all separated and in order. They "mixed" special bags of nutrition to hang and give me through IV's that entire time. I had 2 drainage tubes in me, and even came home with them still in for several weeks. They never really "knew" exactly what all was "wrong", more things though than the bile duct issue also. 

It was not enough to go through that, then I began to have (sorry I'll try not to be too graphic) to not be able to get up or call quickly enough to get to that bathroom, so for about 4 or 5 days I would wake up literally covered in incontrollable Diarrhea, and the nurses had to force me to get up, completely shower me and change my bed sheets and all, sometimes several times in just one night. It was the most frightening experience I've ever had. I guess after I was finally home, I figured out all of the antibiotics they gave me, and not eating for weeks, and all of the toxins, it "killed off" the good bacteria in my intestines that caused all of that uncontrollable mess. Then they came in, BEFORE I EVEN HAD TUBES OUT AND WAS STILL REALLY NOT EATING, and tried to get me to "come home"... I literally within hours had a 2nd heart attack (10 years almost to the day of my 1st one)... from the cardiologist said the stress on my body, plus the extreme fright I was in, scared I may die if I went home... fortunately I didn't have a blockage, so once again I was able to get over the heart attack with medications. He said that you "hear" of people dying from a "broken heart" from being so upset for reasons, such as losing a loved one, a terrible break up, divorce etc... that was the type of MI I had... he called it a "broken heart "MI") - I had heard the term used about having a broken heart, but I didn't know it was a real medical emergency and a real type of heart attack that can happen. When I got home, again still with two tubes draining, they stayed in another 10 days...

 I went to the "office" to have then out finally, and I nearly passed out when they took them out... LITERALLY SHE PULLED OUT FEET AND FEET OF DRAINAGE TUBES THAT HAD BEEN IN MY BODY CAVITY!!! I could not FATHOM I HAD THAT MUCH "DRAINAGE TUBE" INSIDE ME THAT ENTIRE TIME... SO, WHEN I SAW THIS Clinical Trial, it brought up all of that mess I went through and just how closely I came to dying a couple of times while in the hospital.. the ORIGINAL SURGEON WHO CAUSED THE NICK IN MY BILE DUCT WAS FIRED IMMEDIATELY! It was an experience I NEVER WANT ANYONE TO HAVE TO DEAL WITH AGAIN.... not that it has to do with "this exact clinical trial BUT anything to do with your bile ducts, liver and gallbladder is nothing to "fool around" with... go immediately to a specialist if you have issues with something such as this and get checked out!



Tuesday, October 30, 2018

From RA, Chronic Pain, Lupus, to "PTH" labs "off" and more new specialists like an Endocrinologist (HAPPY HALLOWEEN)



"Chronic Illness and Pain - NEVER TAKE A HOLIDAY! Yet, I hope your Halloween is filled with "good spooks", wonderful costumes, party with friends, "candy but not too much".... and that your Autoimmune Illnesses will give you a reprieve for an evening...
Alas, then we can say "TRICK OR TREAT"!!!!!

Saturday, October 27, 2018

Colonoscopy and Endoscopy - Just another procedure to put us through....n Life with Chronic Pain, RA, Lupus & chronic illness

Going through the Ordeal to get Ready for an Endoscopy and Colonoscopy!


Also Barrett's which I have and my Anemia is getting worse every 3 months, and my Parathyroid Labs are all "off" also....


So, I started to see the surgeon on Thursday afternoon, to see about scheduling that endoscopy and colonoscopy... and about the time I was leaving the house, I "felt" one of those drenching sweats coming on, plus they were supposed to put the holter monitor on me for 24 hours while I was there... I almost called and cancelled, but decided I would "try" to at least get into the surgeon... 

and wait on the monitor... because the leads will not stick on my skin if I am having one of those horrible drenching cold sweats... so the doctor was running over an hour late! I knew I was getting worse, but fortunately it was not a terribly bad one, but I did put off the monitor and told them I would try next week... and I did get in, so I have the endoscopy and colonoscopy on November the 14th!!! And now the way they "clean out" your digestive tract is almost silly.... 

rather than drink that "lime stuff" like you used to, you get 2 32 ounce bottles of Gatorade or Pedialyte... 2 bottles of "Miralax"... and 5 Ducolax pills... and mix the Miralax in the Gatorade and drink it like a glass every 10 minutes until you are finished with it, this is at noon and you are "fasting" anyway, with jello, etc the whole day before", and then at 6PM you drink the other Gatorade and Miralax and I think in between take those Dulolax pills!!!! 

Good Lord I hope that does not make me sick... that is a lot of Gatorade, and I guess it helps to "hydrate" you, rather than used to, you would be almost dehydrated doing it the old way.... anyway, I just hope they can do it early in the morning on the 14th and get it over with... I've got to get hold of my son, and see if he can get off work to take me... of course they put you to sleep so you have to have someone to drive you home after it's done.... I still have not heard from the Endocrinologist... but I guess I will call myself and try to schedule an appt if I don't hear from them by early next week....


Tuesday, October 23, 2018

My Latest Addition of my Newspaper! For Tuesday!

Tuesdays Addition of my Newspaper containing some great articles and information from the Arthritis Foundation and the College of Rheumatology and the Annual "CARRA" Conference!




http://news.autoimmunearthriticsystemiclife.com/#/
College of Rheumatology



Annual Meeting of "CARRA"

http://blog.arthritis.org/news/american-college-rheumatology-2018/

Monday, October 22, 2018

Another NEW Parkinson's Clinical Trial by Cure Click!



Another New Clinical Trial for Parkinson's sponsored by Cure Click!




A new #Parkinsons disease clinical study is evaluating an investigational drug to see if it may potentially help slow or reduce disease progression. Learn more! #sponsored #cureclick https://curec.lk/2CZN7SF

























Wednesday, September 26, 2018

New Clinical Trial Sponsored by Cure Click For Parkinson's Disease

Many Parkinson’s treatments have challenging side effects. A new study is researching whether an investigational treatment is both as effective and safer than existing options. The study is looking for volunteers who are not currently taking medication for their Parkinson’s symptoms.
You may qualify if you:
  • Are between 35 and 80 years of age
  • Have been diagnosed with Parkinson’s disease
  • Have not been taking Parkinson’s medications for more than 4 weeks
Key benefits to the patients include:
  • Investigational medication
  • Study-related medical care by Parkinson’s disease experts
  • Trial lasts 14-18 weeks and requires 7 site visits
If you’ve been diagnosed with Parkinson’s in the last 3 years and haven’t started medication yet, or started four weeks ago or less, a clinical trial near you may be an option.

Wednesday, September 12, 2018

Animal Pain Awareness Month! Our Pets have Pain too!

 Our Animals and their Pain is REAL ALSO!


We even as pet owners, don't "think" that one of our fur-babies" might be in pain. In fact my little terrier Peanut, "suddenly" started holding a back foot up, and he can't stand to put it to the ground. I was in the shower, and before I got in he was fine. But, when I came out int the living room, I noticed he was having a hard time getting up.... 


I went to him and asked him if his foot or leg hurt, but I believe it's a nail he probably hung while I was in the shower, and him and Bella were playing and he probably pulled a nail to the quick... They will NOT behave for me, if I try myself to cut them, and Bella keeps her front ones "groomed herself.. but taking them to the Vet is also a pain, they are just nuts in the car, and they are like two bulls in a china closet to get them out, in the car, out at the Vet, inside, and then to the car again, and home... But. when I saw this article in my newspaper today, it dawned on me, pets show :pain" in different ways"....


 I can tell which one of mine maybe hurting or not feeling well, but the other acts completely different. Anyway, a reminder to keep an eye out for a limp, or licking a paw, or Bells "whines" and mopes .... He is better today... I am glad. I thought I may have to take him to the doctor, and I FINALLY JUST GOT TO GET THE LAB WORK DONE YESTERDAY!!! Just 2 or 3 weeks LATE! I have felt like heck, this weather is really effecting my joints etc badly









Saturday, September 1, 2018

Chronic Eczema New Clinical Trial Sponsored by Cure Click







Chronic Eczema affects millions of Americans. Are you one of them? Research studies now enrolling. Payment varies by study up to $1,750. #eczema #sponsored #cureclick Volunteer today! https://curec.lk/2NeRo9DChronic Eczema affects millions of Americans. Are you one of them? Research studies now enrolling. Payment varies by study up to $1,750. #eczema #sponsored #cureclick Volunteer today! 


       
            https://curec.lk/2NeRo9D

Friday, August 31, 2018

"Some Gave All"... "Senator John McCain In So Many Ways, and We Continue to Know Each Day is A Gift, Memorial Day, "Invisible Illnesses, and those Visible....

One of those of the VERY BRAVE, who served, who protected, who gave ALL, and then continued to give even more, for so many, many years. I loved what our "Last Vice President, Joe Biden" said, about him "they were like Brothers, and they "fought" at times like brothers, and also came together often as brothers"...

I have really never "stepped" on "either side of party lines"... I've felt that the "person" man or woman who serves our nation best, is the one who should take the roles of serving our nation, in Congress, in the roles of the Senate, of Commander and Chief, those who go into battle, knowing they may "give all", and those families, who know as their loved ones leave on those trips to protect our country, that they may never "see them again" other than lying still, until someday they meet again in the heavens above. It is not just those who fight, who serve, who run our states, run our nation, but also the families that stand beside them, and have to be as brave,

if not more brave knowing there could be a "grave loss" of life, of limb, of body, and often times, come back without the "emotional" ways they had before they went to see the horror things they must see and endure daily on foreign soils... yet even on our own soil, all too often now we see such danger, such damage of life, of sorrow, those who go to school, to college, to work, to a concert, and never know how that day may end.... it is for this we Celebrate Memorial Day... Celebrate Life, and Celebrate those who give their own life, in order that we may carry our own lives forward... May everyone reflect upon the Greatness of Ours that give, in every way... Be safe, be proud, and hold the "freedom" in your heart that we have today... for we never know when that moment may come, that "freedom" may not "ring our as loudly" as it does at this moment.




Tuesday, August 28, 2018

Mom - Lewy Bodies Dementia and Missing her Everyday!

Had it not been for what we felt was Lewy Bodies Dementia, my Mom would have been 83 years old today!

It seems as if just yesterday she and I were planning a night away for her birthday, to the Casino!
The last time was around January 2016... and she passed away in June 2016. It took her so quickly, none of us had time to even give "thought" to how ill she was, so quickly, without warning.

Unlike some other Dementia's and/or Alzheimer's, some live for years with them... But, it took Mom so quickly, and I watched what seemed like Hour to Hour her "getting further" and further away...

Love you and Miss you Mom, each and every day!





Friday, August 24, 2018

New Clinical Trials - Parkinson's and Gastroparesis Awareness Month and UC(Ulcerative Colitis)


Answer a few questions to see if you may qualify for a new clinical trial looking for people with early #Parkinsons. #parkinsonsdisease #sponsored #cureclick pic.twitter.com/LG9B4GlfXW Act now! https://curec.lk/2wpFzmj



Join IFFGD and G-PACT on August 24th at 12 PM EST for a special Gastroparesis Awareness Month Twitter chat. #GPChat #GastroparesisAwareness #cureclick https://curec.lk/2Pu8nTz


Struggle with Ulcerative Colitis? Join research studies offering study-related care at no cost for the length of the study. #ulcerativecolitis #sponsored #cureclick Don't delay. https://curec.lk/2JAnyai





Posting by and written by Pamela Steele©

Wednesday, August 22, 2018

#BLUEUP, Stomp Out BULLYING Official Day October 1,2018!

https://www.stompoutbullying.org/campaigns/world-day-bullying-prevention/

This is SUCH AN IMPORTANT SUBJECT, NOW WITH SCHOOLS BEGINNING ONCE AGAIN, WHETHER ELEMENTARY, JR. HIGH, HIGH SCHOOL, COLLEGE, WHETHER IT'S A "NONPROFIT" OR JUST A REGULAR School sponsored by our states, local governments, and our National Government, BULLIES EXIST! Not only IN SCHOOLS, but in the WORK PLACE!

We see this type of problem everywhere, whether it's a "hate crime" which to me all Bullying types of things are 'HATE CRIMES" of a sort... We know that all too often, kids "see and hear" things at home, or other places, then "bring that type of thing" to school with them"...

whether it's because you "dress different", talk differently, go to a different church or don't go, whether you have one color of skin or the other, whether your "schools" are the "name brand" or "Wally World" brand... whether you "buy your lunch" or get a "free lunch or breakfast"... what "side of the tracks" you live on, whether you are "too thin", or what some consider too "large"... maybe you don't "go to the salon" and have your hair cut, or maybe you can't afford glasses or contacts that cost 100's of dollars... maybe you are from a "one parent home" or maybe your "parents" are the same sex, whatever it "is" you can bet that their some is kind of person or group that wants to Make you feel "less than", that you are "weird", poor, or don't dress well...

or maybe your parents cannot "afford a new car for you to drive to school", so you ride the bus.... as I said, whatever it is, you can bet "someone" is out there just waiting to make someone feel "lousy" about themselves. Often times the "very ones" that are being "bullies" are the ones that could be "getting bullied", or abused at home, or somewhere else. So, it takes even more of an effort on the part of us, that "hate the idea" of someone making fun of a person, or talking down to someone, or calling them names, or talking about how "their home life" is strange... REMEMBER, THAT PERSON HAS FEELINGS, EMOTIONS, AND HURTS JUST LIKE IF IT WERE YOU! So, be the better person and "step up" and tell them that you won't stand up and listen to someone being "bashed" either through words, actions, being treated as if they are not "human"....


My daughter and I just talked about this, just this morning. As her boys begin school this week, "most of the time" "boys" don't care what kind of "jeans" you have one, if your shirt buttons up, or is a T-shirt... etc... but "girls" can be so terribly cruel... boys can also, but girls tend to be those that "put down" someone for the way they dress, talk, look, and act a bit differently. I know that the "internet" is awesome in ways, but in other ways, it's created a way of "hateful" and harmful things to be said and done, and can be "sent out" with 100's or 1,000's of those to see it, within the blink of an eye....

So, as the new school year comes, and as I recall being a bit "overweight" and not being allowed to be in the band, or do some of the things I wanted to do, because my Dad was "too overprotective", he worked nights most of my Jr. High and High School years, and he just "didn't trust" anyone, and I don't think even trusted me... so I was "teased" due to several things over my years in school... but now often times it's a great deal more than just a bit of teasing, and it leads to kids committing suicide or harming someone, due to that "teasing" and abuse..


We have always been an organization for kindness.

The types of problems we tackle may have changed over the past decade,
But our passion has never wavered.
Ours is a higher purpose.
We work so that youth may stand tall and be respected.
With our help, youth are kinder. Schools are more inclusive.
Communities have more equality. Society has more unity.
So that, a culture of cruelty can become a culture of civility.
So we devote ourselves to breaking down barriers, we give voice to the voiceless.
We give belonging to those feeling left out.
We welcome diversity and inclusivity.
We work shoulder to shoulder in unity.
We empower the fearful to be fearless in this pursuit.
And together we will find the answers, to change the culture, for good.ption

Thursday, August 16, 2018

#AtopicDermatitis Clinical Trial Sponsored by Cure Click

Diagnosed with moderate to severe #AtopicDermatitis? A remote medical study is now open and is seeking volunteers. Earn up to $300 for participation with no in-person office visits! #sponsored #cureclick Learn more! 


https://curec.lk/2ylvniY


Cure Click Sponored Clinical Trial for Uterine Fibroids





Consider joining a #UterineFibroids OR #Endometriosis research study! Payment up to $500. Varies by study. #sponsored #cureclick Learn More! http://curec.lk/2ATu8oS