Saturday, May 18, 2019

2 Lead Pacemakers, Lumbar back is pain & problems are from 1 to the other, horrid Weather coming & does the "tiring issues" of life ever give a break?

Here is my "gripe(s)" for the week! Heck the MONTH, YEAR....Morning TOO EARLY!!! My two fur babies think it's time for me to get up and bake or do something while they go back to bed!!! GGGRRR!!! As much as I love them sometimes I want to kick their butts! I am just so totally upset... I finally went to get the Orthopedic Surgeon for the CT results on my lower back. 

Well, as I figured as always NEVER have I had one test (CT or MRI) come back & say how bad something really is... it's not until I spend sometimes YEARS griping & bitching, and then they finally do surgery, and YES it's all MUCH worse than any of their scans!!!! IT has happened to me on my neck, my knees, my shoulders, my hips and back lumbar spine now.... (I look up what the CT Scan says and ALL OF MY SYMPTOMS ARE RELATED TO EXACTLY WHAT HE FOUND ON THE CT SCAN, EVEN THOUGH MY DOCTOR ACTED AS IF THEY WERE NO BIG DEAL!)


 I am so sick of paying out good money, then having to travel on the other side of Dallas almost to get to the doctor, and then it's like "no big deal"... Well I have the report, and THERE are thing wrong!!!! It's much worse than the one 4 years ago.. Now I am not saying he needs to jump in and do surgery BUT at least acknowledge there are issues and they could be causing the severity of pain I am in, then my left hand at the base of my knuckles on the top side from the middle finger down to my thumb all of a sudden has swollen up huge, is red and appears to almost have "fever" in it... and hurts so much I could barely stand to drive with it or even use it for anything... and I've never had problems with my left hand always my right one and not this bad... so on top of that, I had him look at the right shoulder that HE did a "total reverse replacement" on about 7 years ago... and it's been so bad with pain, and being weak and stiff ever since my last neck surgery in 2017..

 I am not sure what he did when he was doing that neck surgery, but I know it was a mess in there, but they must have positioned that shoulder in some way that really messed it up... when I showed him (as he could not even sit still long enough for me to talk to him) then he looks at my strange and says "this shoulder would I believe need to be replaced" it's "bone on bone" for some reason... so why don't he just say he screwed it up.... that would mean a MAJOR SURGERY... that would take 4 hours or more to totally replace that entire shoulder and then I may not have good use from it, or still have pain and stiffness, and it be more weak than it is now.... PLUS my ankles were so swollen after spending over an hour driving to Dallas yesterday, and then by the time I got home, I had to get on the sofa, and get them up... well, I think it's due to whatever is going on with my "heart function" being worse... I need that "special pacemaker" that has 2 leads to two different places in my heart, but I had been in the middle of this lower back mess when I found out about the heart thing, so I wanted to find out what the hell was going on with the back before going to get another doctor and facing a pacemaker, that started out as just a tiny pacemaker to help up my heart rate, to my cardiologist did that echocardiogram before the pacemaker was put in. Come to find out my heart function is worse than it has been ever...

It had not changed at all since actually that 1st heart attack back when I was 40... even though I had another one at 50, that one was mild enough, it's didn't cause anymore "damage" to the heart muscle... well now I had not had an echo done for 2 years and for some reason now the function in one chamber has gone down, SO had I NOT been the one to "kind of push" for the pacemaker at first for the heart rate being so low, we may have not found out about this heart function thing, until I had some type of problem.. I apologize everyone I hate to always seem to be "griping" every time I even try to post..... and I don't mean it that way, it just seems that I cannot get a break, if it's not one thing it's the other...now we have very severe thunderstorms coming all weekend, even possibly through next week.... and the weather has been so nuts, we are "eat up" with all kinds of ants, bugs, the rain has driven them up on the house, all of a sudden I am fighting them in the house, and I keep my house spotless, so there is nothing they are after it's just the crazy weather.... 

I am exhausted and seem to just have it piling on more and more, the lawn cannot get mowed all the way, because the weather acts up or I have to do something else before I can finish mowing....I again am just so sick and tired, of being sick and tired and of having one problem after the other... I did call and schedule the appt with the heart specialist about the pacemaker with 2 leads - I see him next week, and at least he is closer, just about 15 miles away instead of half way to OK... by the time you drive to see anyone in Dallas the way things are now... here is info on different types of pacemakers.. and this company also makes my pain pump

I KNOW IT SEEMS all I do is fuss, gripe and whine about everything... I would just like to have a bit of peace of mind and everything else for a few months, heck I would settle for days!!!


DIFFERENT TYPES OF PACEMAKERS

Wednesday, May 15, 2019

Lumbar Sacral Extreme Pain for TOO long & hoping CT Scan does finally show something!

Feeling "Crazy" if We don't Find out WHY I am in so much severe pain with my hips down to my knees

This may sound totally insane, BUT in a way I HOPE they DO FIND something on the CT Scan I had yesterday on my lumbar/sacral spine or somewhere there causing this extremely horrible pain. This has been just miserable, and I am so tired of putting up with it. If I stand too long, walk too long, sit too long, driving in a car over an hour is really the worst, and if the weather changes "just a little" I am just in tears. I am NOT saying that I "want to have something wrong with me" (as if sounding morose) I just WANT TO PROVE IN MY OWN MIND AND THE DOCTORS, THAT SOMETHING IS WRONG!!!! NOT THAT I think the doctors don't believe me. I had the right hip injected Monday and the main orthopedic surgeon was so (OVERBOOKED it looked like with NEW patients) although my appt was made 3 weeks ago, he was me briefly then the PA came in and asked if I wanted to "wait on the doctor" to do the injection or if it was okay with me, she could do it, because he was so swamped. I had already been there a couple of hours OVER my appt time.

I had noticed when I walked in about 15 minutes before my appt, there were like 5 or 6 NEW patients (must have been) from what was said they were ALL filling out new patient forms!!!!! Which if I HAD CANCELLED MONDAY on the day of the appt, they would have been peeved at me, but they can put a patient off for hours, and they always have an excuse.. yeah (HE OVERBOOKED TO MANY NEW PATIENTS AT THE SAME TIME ON THE SAME DAY!!!) NEEDLESS TO SAY I had the CT can done yesterday, and I see the Orthopedic surgeon in Dallas on Friday that does my spinal stuff. My Pain doctor ordered the CT for me so he could give me the order and I could have it done here rather than making a trip to Dallas, or going to the Orthopedic surgeon FIRST & he would have wanted the CT anyway, so it would take longer, and I would be out more time, and trips to Dallas.

Anyway, on Monday the PA which I asked her why I had so much pain, with bursitis, and I questioned her about "tendonitis" and other things "that could be inflamed" along with the bursa causing so much pain, for so long... plus more than likely there could be "fluid" in the bursa's (I noticed they started "popping" a few days ago when I walk, and that fluid will make the bursa hurt worse. So, she did give me a better idea what "what maybe going on

I also it dawned on me yesterday, that when I had the last CT Scan which was "special".. I can't recall exactly when it was done, but I had it done at Medical City in Dallas, and it was with dye, but it was a different type of CT Scan... since I can't have an MRI anymore, they did that particular type of CT AND that doctor asked me if I had "back surgery" before. I said well YES, but at the "cervical spine" nowhere near my lumbar spine, and he said it almost looked as if I had a "laminectomy" done on both sides. I am actually "missing" a lamina in the very lowest part of my L-5 part of the spine, where it connects with the S-1..

So, they think I had been born without those. For some reason they never spotted them before, they said it could be now because of aging, and the Lupus/RA and degeneration of the lumbar/sacral spine it is now showing up. So, I have to wonder now since that was I believe about 4 years ago and that report said it was "worse" than the one done about 3 years previously.. so from about 2011, then one in 2015.. now 4 years later 2019... I have to possibly figure that has now gotten bad enough it is causing problems.. All I know is that I don't want to feel "nuts" but find out what the hell is causing so much pain!!!!!!!

Wednesday, May 8, 2019

Stormy Weather, makes Joints hurt horribly, Echocardiogram shows "heart Function" issues & "special pacemaker" coming...

Weather here SUCKS!!! Thunderstorms, lightening, rain like we need more rain... and it appears it may NEVER quit! I've not been online much or as far as on FB, Social Media etc I've posted in my blog, and update my newspaper and send it out daily.. but I've been stuck with yet again doctor's visits, the weather reeking havoc with my joints... and just feeling lousy... I had an echocardiogram last week. It was supposed to just be "routine" before we made a date to implant the pacemaker. So, I didn't think much of it. Monday, I went in to talk to the surgeon about putting the pacemaker in etc... and he was

RUNNING VERY, VERY LATE! Which is the usual for surgeons especially Monday's... so had waited quite a while. they finally called me back in, and I waited again for a bit to see him. Well, he kind of "burst" into the room, (which he is kind of that way) LOL just a great smiling doctor... but can get serious when need be... and as I started to say something, and he said well your cardiologist (which is his wife) said that you needed a "special" type of pacemaker with two leaders rather than one.

I did not know that the test fro the echocardiogram came back showing my "heart function" was "worse" than two years ago sine I had the last one. So, he proceeded to tell me they were trying to avoid you coming in to see me, because I don't do the 2 leads type but Dr. Rae in Waxahachie does, That is who Dr Meg Sullivan is sending me to, I was so upset first because had not even heard about my test results yet and had no clue, they were "off"..which since 20 years after the 1st heart attack, and even after the 2d one the tests had always remained the same. no better of course but no worse either... So from what information I got hod of online, then her nurse called me ate Monday evening to tell me who they were sending me to see and I had her look on the test results to tell me, "what is going on with my heart function?"

She said it had always remained at a "45" which I believe they are talking about the "trajectory" and how the two chambers of my heart "work" as far as pushing the blood in and out, and sounds like the natural "electrical" part of my heart is not working as well as it should. So, suddenly this went from a "regular" pacemaker, that we hoped with it keeping my heart rate as a normal place it would help several other problems, fo NOW I NEED IT because I have DEVELOPED ANOTHER PROBLEM! So, that was like me hitting a "brick all" since I was not expecting any of that at all. Anyway from what I read n that specific pacemaker, it is attached to I guess the chambers , two of the and it keeps the natural rhythm, but keeps that trajectory on tract also... so I am waiting on a call fro the specialist to go see hi, and in the meantime,

I am getting the CT next week on my lumbar spine and already have a appt made to see my Orthopedic surgeon. My pain doctor who ordered the CT scan had called my Ortho doctor for him to be sure and see me once the CT results are in. If it's not one thing it's the other... so I guess in a way it was good that I did go in about the pacemaker, or she would have not ran the echocardiogram... and this problem may not have been found.... and of course with the weather as it is I hurt ALL OVER!!!!!!!!

https://www.nhsinform.scot/illnesses-and-conditions/heart-and-blood-vessels/about-the-heart/understanding-how-your-heart-functions