Friday, December 24, 2021

Have a SAFE, HEALTHY, HAPPY, JOY-FILLED Christmas &may the New Year Bring Us all many Positive Outcomes

Merry Merry Christmas!

May The Spirit of the Season Bring A Warmth to Your Heart, Safeness surrounding you, Hope. Joy, & Whether a Huge Meal or a turkey Sandwich May it be fulfilling in many, many ways... Prayers for Our Coming Year to be blessed and Overflowing with Hope, Peace, Wellness, & Most of All LOVE!

Tuesday, November 30, 2021

#GivingTuesday- This is one day (or you can have many more) to give back to whatever or Whomever you feel needs your help...

After all the Food has been eaten, and all of the Black Friday & Cyber Monday Shopping is done - Time to think about to Whom or to What community, charity, or even Neighborhood you want to give back to!

Thursday, November 25, 2021

May Your ThanksGiving Weekend be Safe, full of Joy, Wellness, Friends & family - if you drive be extra cautious, if you fly take extra time at the airports


May Peace, the Warmth of Family and Friends, Faith, Hope, Joy & Much Happiness fill your Holidays & your Hearts! With Warmest Thanksgiving Treasured Reasons...May you be safe and well... If you journey out for the holidays may the roads be safe, may everyone stay well & May Joyous laughter fill the air all around... Prayers and thoughts are with you...

Tuesday, November 16, 2021

Why is it no one can get plumbers, carpenters, electricians etc to come to do things at their homes anymore?

 It just seems impossible we can't find plumbers, carpenters, electricians etc. I would even go ahead & have the walk in shower put in, have someone finish the lights in my bathroom and the fan..they are already in the ceiling & wire ran up, they just need to be hooked into the main electrical wiring. I would have flooring put in and as I said, if someone would like to take this huge sauna/tub/tub/shower/jacuzzi I would be willing to possibly let them take it. ALL of these things are not huge they just need to be completed. If I could still climb around in the attic & do some of this stuff I would do it myself.There is nothing wrong with it, BUT after all of my surgeries, joint replacement etc I no longer can climb over into it without fear of falling. I paid LOTS of money to get it shipped here, and then we pu it together ourselves. It is NOT make into the wall, but stands on i's own, s it is not hard to take apart. It really just needs to be cleaned where I have had the caulking around it & then new one put on as it is put back together again. I have heard of these places that can do these walk in showers and wkl take the tub out etc... but I fear trusting them. Has anyone trie to have anything like this done as fr as remodeling etc by Lowe's or Home Depot? It is really ashamed, because I have MOST of the things like the lights, mirror, a new light fixture for th outside of the house that comes off and on, and have all kinds of cordless tools, from drills, to a BRAND NEW CORDLESS LAWNMOWER HAVE NOT BEEN ABLE TO USE YET, that brand new troy-bilt tiller with all of the oil etc and different parts, a almost brand new cordless chain saw plus all the other tools I needed over the years.. but as it came along I had to be more cautious about climbing, putting tree limbs down, and so forth, it is a nightmare for me to see all of this sit here & me not use it. My laundry room is terrible. It needs new walls inside and out, and a new floor laid in. Like I said i have the things and the "knowledge" but not the physical part to get me through these projects.

Tuesday, November 2, 2021

PAIN NEWS NETWORK - DEA Planning More Cuts in Supply of Rx Opioids


Pain news network article on tea proposals to cut back again on opioid pain medications! It’s a nightmare!

WE have got to stand up against this! I already am "suffering" at the hands of this terrible proposal, along with even some cancer patients, any chronically ill patients with chronic pain to boot. Even my own pain specialist who has been a medical doctor for most of his life. He was in the Navy & went on to "retire" and goo into pain management. I have myself been seeing him for over 12 years. He has always been straight forward. He "sees" through to real "severe ad chronically ill pain patients". I never had an issue, we communicated very well. He is extremely intelligent, and keeps up with how the government effects "negatively and sometimes positively" on pain patients. Especially those who are on Medicare, on Disability, and tried to make sure patients were treated with the correct meds, doses, and NOT given "over" or "under" the amounts of medication they need. He also does "internal pain pumps" which he did mine. He does the spinal injections, and if you need a neurologist, orthopedic specialist. he referred me to the Orthopedic surgeon" who has done my reverse total replacement on my r. shoulder (now I face having it redone due to it "wearing out" Which I knew there was a chance now it has been about 11 years  since the shoulder was replaced, that I would need a "new one". Fortunately, the ones now are much lighter in weight, last a great deal longer (I probably will not have to have another new one put in now after the new one is in). Had it not been for m pain doctor knowing whom to send me to, I would have had a very difficult time finding a surgeon to do that surgery back then. Even in the greater Dallas/Ft. Worth area had MANY Orthopedic Surgeons BUT NONE trained to do a "Reverse complete Shoulder Replacement". I searched, called my insurance, did everything and one day I was telling my pain doctor I needed a very specialized type of Orthopedic surgeon who KNOWS and has been not only trained but already done surgeries of this type. He suggested mine I have now, and not only can he do just about ANY type of joint, muscle and so forth treatment and/or surgery, he is superior on "spinal surgeries" I would NEVER ALLOW ANY OTHER PHYSICIAN TO DO SURGERY ON MY BACK, NECK SPINE ETC. He is a genius although HE HAS NO BEDSIDE MANNER! LOL!!! But when a surgeon is going to operate on any part of you... especially your spine, bedside manner although very important that surgeon knowing exactly how to fix the problem(s). Yet, over the past 2 years I have witnessed my pain doctor, being almost "fearful". He is extremely concerned. In fact, (and he is quite a bit older than he looks for sure)... he has cut back his days to only a couple in the office.. as if he is partially retired, which sucks! Yet, all of this mess with "illegally gotten opioid medications" (either gained by people who deal them, they steal them, they order them from some fake pharmacy, they go to the few "bad eggs for pain doctors", when you really listen, read and see HOW these meds get into the hands of the wrong people fr the most part it is NOT OUR PAIN SPECIALISTS WHO TRULY "DO NO HARM" & THEY ARE NOT PILL FACTORIES" but are REAL physicians with no record of being in the eye of doing something wrong. So, although yes, this is a HUGE, ISSUE, MANY YOUNGER KIDS GET HLD OF THIS ILLEGAL STUFF Or they get them from parents whom may have some left over after a surgery etc. (I KEEP MINE LOCKED UP) although I am the ONLY person in this hose, I have NO people but me here I have always locked up most of my meds. There are those pushers that prey on the kids, and it is not just prescription meds, but cocaine, heroin, and the illegal items as well. SO WE NEED TO STAND UP FOR OUR RIGHTS AS CHRONIC PAIN PATIENTS IN ORDER TO KEEP FROM HAVING ALL OF OUR MEDS AND/OR DOCTORS SUDDENLY TAKEN AWAY WITHOUT WARNING!!!!

Sunday, October 31, 2021

Thursday, October 28, 2021

Tell Congress to disseminate the key findings of the Pain Management Task Force Report and demand #PainCareNOW

I just poured my heart and soul out, then sent this too my Senators & Representatives... please take a moment to stand up for yourself & all of us who suffer needlessly now due to some that do NOT get our severity of chronic pain...

Saturday, October 23, 2021




I apologize for the delay in sending a warm and proud for all & congrats! to the WINNERS of this years Annual WEGO Health Leader Awards!

I was thinking of all of you, but with 8 weeks or more of a severe "bacterial intestinal infection, that I still am having to be "leery" & watch. So, I was not online very much for over 8 weeks!

My "Daily Paper" still now online but just got rid of the " Paid version"... articles and such still available daily and here is the link...

Life Chronic Pain & Autoimmune Systemic Diseases & Dementia®

Friday, September 3, 2021

It Seems that "wrong" keeps going on and on and on"

 It seems I just can't get a break anywhere. I had the Cataract surgeries. I got the impression I would ONLY need reading glasses. So, I go in for a two week visit to my optometrist & he gives me the impressions I still need some fixation in them even far off. Well, the cataract surgery was supposed to get rid of the astigmatism & it should have only correction some for reading. So, after I saw him I went over to order the glasses & of course I don't think they took the "prisms" in mind when they began getting ready for the surgeries.

Which I thought they would be corrected so the "double vision" would also be corrected also. In fact the eye surgeon told me I should not even need anything for distance, should be able to drive without glasses & after the surgery they would write me a letter stating the surgeries had corrected my driving night vision & issues with "halo's at night etc") and they should take the "needing lasses to drive off my license)". Well, in the first place they still put the prisms in the glasses, which meant some of the double vision was not corrected, & seemed these lasses were not "just readers" but I would need them abut as much as I needed \ before. After all the many weeks and UCH $$$ I went through to get rid of cataracts, & yet things are not a that different. I realize sooner or later I would need cataract surgery but my guess is I may have been able to wait at least another 2 years, got new glasses & by then get the cataract surgery. So, they order my glasses, which when I trie the new frames on I like the "sample ones". They seemed to be as good as my last frames. Which honestly I have 2 sets of frames from my last two pairs of glasses that are like band new. I take care of them so well, I never "usually" have any issues with frames. So, they send me a Text message on Wednesday the new ones were ready. I go to pick them up & I have not yet worn makeup simply due to allowing my eyes to have time to be completely healed & not get an infection from makeup. And the frames are a bit different than my last 2 pair. They are a tiny bit bigger as far as the shape of them and the color is kind of a rose pink. When I tried them on in the store as I picked them out I liked the color on me. she hands them to me (and these frames are exactly the same price as my last two pair) & s soon as I went to put them on they felt, "off". Like they were "loose" on the front pieces.My other ones never felt like that. I told her & she took them in the back & ent to fix them. She was gone quite a while, came back & said, yes they were "loose" at the front screws, so she went through & made sure they were all tight. Well, I put them back on & something still felt "off" but I decided it was just because they are brand new, made a bit different & I just needed to get used to them. After I got hoe, I took out my past pair, 7 noticed just how much "better quality" my last were were. In fact these new ones, are "crooked" when I lay them down on the desk. One ear piece is up in the air & the other laying kind of like it is bent to the inside rather than them being both nice and straight, as my older pair are. Plus I ordered them with the tint when in the sun & they were not getting darker like my old ones. I went on to Ennis, but I am so disappointed in the glasses, still also in the surgery ... plus I used to always get a copy of my "prescription" which I was not given. I like to keep a copy of them so I always know how much they have changed from one script to another. I sent a message & asked for a copy of my script. I decided rather than make a fuss too quickly I would wear them over the weekend (they had been also slipping down my nose) The nose pieces are far larger than my others. Then I AM going make make them either put these lens in another pair of frames like these. I think they ""twisted the frames or did something to them as they made the glasses. When you lay them down they just look crooked. So, there is yet another $$$ & they are NOT Nearly like I had THOUGHT THEY WOULD BE.

Friday, August 20, 2021

What has Happened to Our Society & the Control Over Pain Management with INTERFERENCE FROM CONTROL from Govermental Entities!?

 It's not often that I REALLY GET FROM FRUSTRATED TO PLAIN MAD AS HECK with any of my doctor's! But;. as MANY of us that are "chronic Pain patients" know, there is a "rotten egg" in the basket between pain specialists, the FDA, the CDC... and so forth, also the Senate and House.... This has been going on for years, the old thing about "we are all "addicts", and really don't ned the pain meds... and the old story continues. I have heard so many horribly SAD stories abut how p atients have had their meds suddenly without cause jerked away from them, doctors up and moving, and so forth BUT!!! there is definitely ANOTHER SIDE TO THE STORY! That is the "home made meth, the "so-called "Fentaynal patches" that are NOT real from a Pharma co, people mixing cold meds, or all kinds of concoctions, and selling them to people, AND because MANY IF OUR SPECIALISTS THAT ARE LEGITIMATE (MY DOCTOR HAS BEEN IN THE NAVY AS A DOCTOR FOR MNY YEARS, THEN SPENT ANOTHER 22 PLUS YEARS IN SPECIALIZING IN PAI MANAGEMENT! I've beenseeing him for over 12 years and inf act really the ONLY "pain doctor" I have ever seen. I "trusted" him and He "trusted" me... so we had a great "patient/doctor relationship that I NEVER QUESTIONED... We went througha couple of things when i 1st got my pain pump which the 1st one was over 10 YEARS ago, that one went haywire after about 5 years to the date, so he had to replace it, & that WAS ALMOST 6 YEARS AGO, THIS COMNG OCTOBER OR SO. I als always had a very small amount of "oral meds" I kept from him, so in case the pump went out or something happened that I quickly needed more meds for some reason, I had a few pills to carry me through, like when the 1st pump went out. Itwas on a Friday NIGHT of all times and a "holiday weekend" s the pump was "beeping" every 10 minutes, and I could not turn it off... I could decrease the sound some thank goodness but I could not completely all the way. So, it was like from Friday night till the following Tuesday before I could even speak to his office. What irks me though, is the pump was "gone and I had to have out completely replaced. So, that week i had to have an outpatient surgery to take it out & put a new one in. But it was a day procedure & I went home that afternoon... THEY WERE (THE COMPANY) WAS SUPPOSED TO TELL ME "WHY IT WENT OUT" LIKE IT DID WHICH WAS VERY UNUSUAL, BUT I REALLY NEVER GOT A STRAIGHT ANSWER... THE point is I "caught" something very "odd" about 6 months ago about my doctor, and his office... things were strange, they no longer got the medication filled & sent to me from a pharmacy in Dallas, which they had done for years. So, I had to call them, they had to physically send me a script, I had to take here to my local pharmacy... so it took longer, with al of the cal, the send to me which the mail is so slow now, then the pharamacy may or may NOT have the meds ... and then suddenly my doctor MOVES FROM AN OFFICE HE JUST A COUPLE OF YEARS AGO BOUGHT AND REMODELED! It was like he didn't tell us anything, just moves, sends out a post card with a "strange new address on it"... which was horrible to find! Then suddenly all of the employees almost were different. After years some of them suddenly were gone ... and the ONE HEAD WOMAN I COULD CALL & leave a message and she would call me I ALWAYS LEFT A MESSAGE FOR AND and she always returned my calls, just stopped calling me back. t was just nuts. Then all of a sudden my doctor for no reason, just in a "chicken" move "halved" my medication! BUT rather than explain it, he kind of just mumbled a few words that was not like him and more or less, made the "assistant" take the heat for the sudden change. So, I go in yesterday after driving in pouring rain, water over the road, to get my refill for my pump... and now he is ONLY IN THE OFFICE on Wednesdays! So, if my pump n a fill on a Friday, I either have it refilled days EARLY or I take a chance and wait an extra 5 or 6 days & hope it does not get too low that it beeps again... so I go in make a darned horrible weather trip & find out (due to their own equipment that is flawed and I hłd know it & told them many times) I had enough medication in the pump to last me at least another 7 days. So I go in and he pulls out enough (as always) that I could have waited another 5 to 7 days and not have to come in earlier than necessary. But. he "jumps" me and says "You are not using the meds you have" & I said wait a minute this had been a "flaw" from day one. It happens every time we fill it. It "says to come in on like the 15th of a month" BUT when he pulls i out it is NT my fault. If they had equipment correct it should have told me to wait and use up more of what was in there. I HATED THAT TRIP YESTERDAY!! HAD I KNOWN I could have waited till Next "week" in better weather before making that dreadful trip u there! As He is waking out & that was another thing 'HE ALWAYS CLOSES A DOOR WHEN HE COMES IN TO SEE A PATIENT! YESTERDAY HE WALKED IN LEFT THE DOOR STANDING WIDE OPEN WHERE EVERYONE COULD HEAR & SEE ALL GOING ON IN MY ROOM! The nurse got up and had to come shut to door... he was just going to leave it wide open! Then he said several things that sounded "off".... and when he began to leave the room, I asked him about my refill for my meds and he said "I a

m no longer giving that to you" you don't need them"... AFTER 10 YEARS & NOW SUDDENLY I DON'T NEED THEM???!!! I HAD TO LITERALLY GET UP AND LEAVE THAT OFFICE BEFORE I TOTALLY SOUNDED OFF WITH THE DOOR OPEN!!! THEN I LEAVE, PULL INTO A PARKING LOT DOWN THE ATREET TO DOUBLE CHECK MY PUMP REFILL & HE HAD CHANGED IT WITHOUT EVEN TELLING ME, WITHOUT DISCUSSING Anything..... NEVER, NEVER EVER HAVE I HAD THAT MAN ACT LIKE THAT! Had the weather not been so bad still and I saw there was another wreck , then water over the road... I would have turned around & went back to ask him what his issues are! BUT, when I left the waiting room was FULL, packed!!! Late, weather bad, I-30 had water over it in places, so I just wanted to get SAFELY back HOME. I DID LEAVE A MESSAGE WHILE I WAS STOPPED THAT TOLD HIM I WOULD BE WAAB ANSWER, MY PUMP ADJUSTED TO BE FILLED CORRECTLY & I HAD BETTER HAVE a CALL for an appt NEXT WED! because if they don not call me I AM coming anyway & will just in the waiting room until he fixes his Mistake! NOW I MORE UNDERSTAND WHY CHRONIC PAI PEOPLE, ,EVEN CANCER PATIENTS ARE TERRIFIED THEY WILL NOT GET ANY MEDICATION FOR PAIN RELEF! I am also going to send an email to our HOUSE and SENATE from our state to let them know just how horrified people are that are in chronic pain. They fear having to live a life to This should NOT be a "issue involving political gains etc"... it should be about physicians & their personal patients severe pain while the government tells our DOCTORS HOW TO TREAT PATIENTS!! I want to say "don't get ,e started BUT after what I went through this week already has me way than just started. I am to the boiling point not for just myself but FOR SO MANY severely ill patients that causes intractable & unrelenting pain. Nw they can no longer depend on their own physicians because f "governmental interference".... I've said for years, you give some of these up in the "world of government" a week of severe and intractable pain & they would be rushing to ER screaming in pain, begging for anything to help rid them of the NIGHTMARE THEY WERE IN.