Showing posts with label RA. Show all posts
Showing posts with label RA. Show all posts

Thursday, January 20, 2022

So Much to Do, to Say, To want to do, NEED to DO!!! Yet, the battle of it All goes on.. from COVID-& Variants to pseudo-gout, to THIS HOUSE falling Apart! Where are the plumbers, electricians, Handy Men & everyone when you REALLY NEED THEM!HELP!!

 So Much to Do, to Say, To want to do, NEED to DO!!! Yet, the battle of it All goes on.. from COVID-& Variants to pseudo-gout, to THIS HOUSE falling Apart! Where are the plumbers, electricians, Handy Men & everyone when you REALLY NEED THEM! HELP!!


This is a couple of posts from Facebook I have posted & due to all of my own health issues especially with my Hands, Wrists, fingers - the RA Flares, the Pseudo-Gout and as it goes on.. I wanted to play catch up here a bit..


Oh Yes and INSANITY IN TEXAS WITH OUR WEATHER (and as it seems every place else in the Nation)


thy said on the news that ALL 50 TATES HAVE SOME FORM OF COVID - EXCEPT ANARTICA?? AND WE WONDER WHY...


Back to the house needing to be repaired! In am no good at making dumplings. They tend to be like "rubbery balls of mush" LOL! Honestly, after baking a small hen for Christmas rather than turkey or ham. Then having more chicken left over than I thought, all 3 of us I think are "tired of chicken"... I decided yesterday to go to something completely different. I did some fish portions, which were good, some regular fries, and a couple of onion rings. Then I made "Ranch dip/dressing" of my own, had yogurt, small orange jello with the cool whip inn it & Voila' something different... Even the fur-babies Bella and Peanut were thrilled... LOL!!! Well, the holidays are past, which seems crazy. The temps went from 80 degrees night before last to 25 degrees up in the day yesterday.. of course my poor plants on the front porch are beyond "freezer burned"... & that wind and wind chill plus the temps yesterday kept me from barely walking on the porch, it was SO BONE CHILLING COLD! Typical TX - 80 and shorts and in less than 3 hours 330 and headed down to 25. Thank goodness, I DID get bth the inside and outside of my A/C window unit covered up, got the water loose from the outside spickets, got the hummingbird feeder and my new bird feeder cleaned up, washed & put up for the winter. I am still working on the research for which "Tankless Water Heater to buy for the house QUICKLY!!!" Getting research and which "walk in shower" (WITHOUT DOORS JUST A SHOWER CURTAIN) that has to be done. I have got to get at least 1 set of rails for my front porch up. I just cannot carry things up and down even as "not steep" as those steps are in the front, they are danger to me and everyone. I thought at 1st I would do metal BUT, that would be HOT in the summer and freezing in the winter. Plus between rain and humidity that metal would be useless. SO, I thought I would use treated SMOOTH lumber and just stain it. The steps are concrete so those rails can be anchored into the concrete steps. I really only need ONE set. I use only the right hand side coming up and going down, so for now 1 set would be fine. I had forgotten but those ROTTEN WINDOWS IN MY LAST "BEDROOM" in the back have to go! No repair, they just need to be removed & I am going to put a couple of windows like my neighbors. Theirs are a bit wider, but shorter. Plus they are perfect in that area for where plants sit, and they will get the sun they need. I have a total of SIX big of the old windows that were "weighted" like most of the homes that are especially wooden are around here built in the 50's. But. the people that owned the house I bought it from must have not had good renters, the windows just were not propel managed, ... they have breaks in some of them, they tend to stay wet, where that part of the house is more shady and so forth. Plus, my neighbor and I are talking about letting him do the work (which is most of it) he can do. He has been doing all kinds of hand-man things from showers, to light fixtures, doors, and you name it for people here in town. So, he is good, he is very TALL! LOL! Actually most of the time he can stand on the floor and put a ceiling in without needing a ladder. By the way, I am STILL GOING TO SELL THIS HUGE SAUNA/TUB/JACUZZI/WATERFALL, RAINFALL, & YOU CAN EVEN ADD ANSWERING YOURB PHONE, IT HAS A STERO BUILT IN, TWO SHOWER HEADS AND THE RAINWATER FROM THE TOP.It can be taken apart all glass doors, and then set up again wherever someone may want to set it back up. I supposed you could take it and put it into the wall. I left mine on the legs, put tile under it so I could move it if I ever need needed to. A "walk in shower" will be PERFECT" for the pups and me. They can't climb into and out of the tub either. Not with their hips and legs. I am going to buy one of the already ones with all of the surround walls, get the bottom one, which will fit where my drain is, & will have PLENTY of room left for either adding more shelves in the bathroom, or adding more onto one side that goes into the closet of the bedroom, so I have ore walk in & storage space.




Glynda Cooke not yet. The issue with ALL of them s they are still either swamped from the blizzard last year OR some of them with COVID and other went to doing "contractor" type jobs, SO many of them don't do a "residential type job" like mine. I've called all of them that I used before and were very good and just about everyone went to doing contract work. I think with the housing boom they feel thy are making more money doing the larger jobs, like apartments, or a new residential section with more than one or two homes. Of course we have also had lots of new buildings & the downtown stuff, so no one is wanting to take on a job, which mine is NOT small! I intended to do the toilet of course, but i was going to do the walk-in shower, the tankless water heater, and a couple of other things so it is not like it is s tiny job. This COVID issue along with last years horrible blizzard really made a mess of things in this county. I would try someone like Lowe's or Home Depot. I know thy DO have some things they get professionals to come in and install things such as the water heaters, walk in showers etc. I think my best bet is to actually make a trip to those and look at the water heaters, showers etc... and ask questions. Plus find out what thy do, where they have installation that can be done. Calling won't work, not when I really need for them to HE TANKLESS WATER HEATER, AND THE WALK IN SHOWER, AND EVERYTHING THAT GOES WITH THEM. I got to thinking when I bought my kitchen appliances my fridge, stove etc. I went & picked them out and they brought them and took off the old ons and put in new ones... same way with my washer and dryer. They took the old ones away, and brought the new ones to put in, and that included some new piping that had to go in. Also, I have a separate breaker, it is still just a 125 not like the dryer 250, but it is with this huge tub I have now. So, I have a separate breaker the shower can be wired to, along with all of the lights, bath fan etc in the bathroom. I was wondering rather than have the new water heater put back in the old spot, it may be better to put it where the shower will be. I will have lots of room once this HUGE TUB of mine is gone! That reminds me and I will post more pics of it BUT IT IS FOR SALE!!!! And I paid almost 3,000.00 for it. And other than a couple of pieces that need to be ordered to replace where some "flaky" spots are on some of that looks like chrome, it is in perfect shape. But, I am going to ask GREAT GREAT DEAL LESS HONESTLY THAN IT IS WORTH.Now one like mine with everything are way over 4,000.00 almost 5,000.00. It comes apart easily, the glass is heavy but the bottom of the tub with all the jets, jacuzzi etc is also. Yet, we installed it ourselves back then. When it is gone I will have loads of room for the walk in shower and probably either cabinets or another closet.

Disability filing


I REALIZE DUE TO COVID, THE FURTHER ISSUES OF THE PANDEMIC, THEN EVEN WORSE, THE DIFFERENT VARIANTS that are following, I haven't been able to keep up with a couple of my groups that are extremely important! One of them is this one on Medicare, Medicaid & all that goes with these vital parts of our nation and people! years from now our kids, grandkids, and great great great grandkids, will not be able to have a "retirement" because all of the money for these have been wasted.... SO ANY OF YOU THAT HAVE INFORMATION, ARTICLES, HAVE AN OPINIONS, or know things that are coming through crucial to especially Social Security and MEDICARE!!!... Send me a message with the information so I can "vet" it & get the word out to so many... more ad more I continue to see people trying to file and get their total disability and it is taking not months but YEARS LIKE 2, 3 YARS TO GET IT APPROVED! that is after doctors and doctors, medical records sometimes even needing to be 12 r more years old,, hospital records and so forth.. things we may have to even "pay for" (not so much anymore they are in most hospital , clinics etc allowing people one copy of their medical record without having to pay for it. A HUGE PLUS IS NOW MANY OF OUR HOSPiTAL, CLINIC ETC HAVE "PATIENT PORTALS" where all of your information on visits, medications, dates, times. vaccines, are in that portal. f you sign up, you can get your records, see them even print them, make changes to your phone numbers and so forth without having to go through red tape to get it done... I WENT THROUGH 1 FILINF, WAS DENIED, WHICH MOST ARE the 1st TIME, I filed again MYSELF, the 2nd time, and was denied, so that is when I went to the Dept. of Human Services in the state I was living in at that time, and my caseworker there had a list of GOOD "lawyers who specialized" in nothing but "Disability cases"... he took mybcase after I talked wth him on the phone for a bit, and since I already had MOUNDS OD PAPERWORK where I had been filing, I sent all of it to his Assistant. Boy did she ever appreciate seeing how much of the "leg work" I had already done for her... doctors notes, letter, medical records, operative reports, ER records, times, dates, everything I could get my ads on, I had copies of also and sent it all to her. It took months for her to sort through and then she would call me and ask me about certain things that I could answer... and ALL THEY ASKED ME FOR WAS, a $200.00 case file money that went into an escrow acct for me. they used it i they had to pay for further records, phone calls, or anything they may get to help my case. I was to go through the disability judge once all of my paperwork, and my lawyers and paperwork was all ready. I filed myself the 1st time in 2003. Then I filed a 2nd time in late 2004. By the time we heard that my case was ready to goin front of the judge, it was 2005. I went in front of the judge with my lawyers assistant, and 3 other people, a physician who had been in charge of going through my medical records, a "psychologist" whi went through all of the mental evaluations they did on me during all of this & a gentleman who was there to make sure both sides were impartial & all was in order. I did not get an answer that day, which was disappointing.. I thought I would get a determination that day BUT it was about 6 weeks later I got an official letter from the judge telling me I WAS APPROVED!, why he judged my case approved etc. He gave details of what I would get etc, and also how far back my disability started. They began mine back in 2004.

And more about COVID, Illnesses and the list goes on..


Back to the house needing to be repaired! In am no good at making dumplings. They tend to be like "rubbery balls of mush" LOL! Honestly, after baking a small hen for Christmas rather than turkey or ham. Then having more chicken left over than I thought, all 3 of us I think are "tired of chicken"... I decided yesterday to go to something completely different. I did some fish portions, which were good, some regular fries, and a couple of onion rings. Then I made "Ranch dip/dressing" of my own, had yogurt, small orange jello with the cool whip inn it & Voila' something different... Even the fur-babies Bella and Peanut were thrilled... LOL!!! Well, the holidays are past, which seems crazy. The temps went from 80 degrees night before last to 25 degrees up in the day yesterday.. of course my poor plants on the front porch are beyond "freezer burned"... & that wind and wind chill plus the temps yesterday kept me from barely walking on the porch, it was SO BONE CHILLING COLD! Typical TX - 80 and shorts and in less than 3 hours 330 and headed down to 25. Thank goodness, I DID get bth the inside and outside of my A/C window unit covered up, got the water loose from the outside spickets, got the hummingbird feeder and my new bird feeder cleaned up, washed & put up for the winter. I am still working on the research for which "Tankless Water Heater to buy for the house QUICKLY!!!" Getting research and which "walk in shower" (WITHOUT DOORS JUST A SHOWER CURTAIN) that has to be done. I have got to get at least 1 set of rails for my front porch up. I just cannot carry things up and down even as "not steep" as those steps are in the front, they are danger to me and everyone. I thought at 1st I would do metal BUT, that would be HOT in the summer and freezing in the winter. Plus between rain and humidity that metal would be useless. SO, I thought I would use treated SMOOTH lumber and just stain it. The steps are concrete so those rails can be anchored into the concrete steps. I really only need ONE set. I use only the right hand side coming up and going down, so for now 1 set would be fine. I had forgotten but those ROTTEN WINDOWS IN MY LAST "BEDROOM" in the back have to go! No repair, they just need to be removed & I am going to put a couple of windows like my neighbors. Theirs are a bit wider, but shorter. Plus they are perfect in that area for where plants sit, and they will get the sun they need. I have a total of SIX big of the old windows that were "weighted" like most of the homes that are especially wooden are around here built in the 50's. But. the people that owned the house I bought it from must have not had good renters, the windows just were not propel managed, ... they have breaks in some of them, they tend to stay wet, where that part of the house is more shady and so forth. Plus, my neighbor and I are talking about letting him do the work (which is most of it) he can do. He has been doing all kinds of hand-man things from showers, to light fixtures, doors, and you name it for people here in town. So, he is good, he is very TALL! LOL! Actually most of the time he can stand on the floor and put a ceiling in without needing a ladder. By the way, I am STILL GOING TO SELL THIS HUGE SAUNA/TUB/JACUZZI/WATERFALL, RAINFALL, & YOU CAN EVEN ADD ANSWERING YOUR PHONE, IT HAS A STERO BUILT IN, TWO SHOWER HEADS AND THE RAINWATER FROM THE TOP.It can be taken apart all glass doors, and then set up again wherever someone may want to set it back up. I supposed you could take it and put it into the wall. I left mine on the legs, put tile under it so I could move it if I ever need needed to. A "walk in shower" will be PERFECT" for the pups and me. They can't climb into and out of the tub either. Not with their hips and legs. I am going to buy one of the already ones with all of the surround walls, get the bottom one, which will fit where my drain is, & will have PLENTY of room left for either adding more shelves in the bathroom, or adding more onto one side that goes into the closet of the bedroom, so I have ore walk in & storage space.



Glynda Cooke not yet. The issue with ALL of them s they are still either swamped from the blizzard last year OR some of them with COVID and other went to doing "contractor" type jobs, SO many of them don't do a "residential type job" like mine. I've called all of them that I used before and were very good and just about everyone went to doing contract work. I think with the housing boom they feel thy are making more money doing the larger jobs, like apartments, or a new residential section with more than one or two homes. Of course we have also had lots of new buildings & the downtown stuff, so no one is wanting to take on a job, which mine is NOT small! I intended to do the toilet of course, but i was going to do the walk-in shower, the tankless water heater, and a couple of other things so it is not like it is s tiny job. This COVID issue along with last years horrible blizzard really made a mess of things in this county. I would try someone like Lowe's or Home Depot. I know thy DO have some things they get professionals to come in and install things such as the water heaters, walk in showers etc. I think my best bet is to actually make a trip to those and look at the water heaters, showers etc... and ask questions. Plus find out what thy do, where they have installation that can be done. Calling won't work, not when I really need for them to HE TANKLESS WATER HEATER, AND THE WALK IN SHOWER, AND EVERYTHING THAT GOES WITH THEM. I got to thinking when I bought my kitchen appliances mu fridge, stove etc. I went & picked them out and they brought them and took off the old ons and put in new ones... same way with my washer and dryer. They took the old ones away, and brought the new ones to put in, and that included some new piping that had to go in. Also, I have a separate breaker, it is still just a 125 not like the dryer 250, but it is with this huge tub I have now. So, I have a separate breaker the shower can be wired to, along with all of the lights, bath fan etc in the bathroom. I was wondering rather than have the nw water heater put back in the old spot, it may be better to put it where the shower will be. I will have lots of room once this HUGE TUB of mine is gone! That reminds me and I will post more pics of it BUT IT IS FOR SALE!!!! And I paid almost 3,000.00 for it. And other than a couple of pieces that need to be ordered to replace where some "flaky" spots are on some of that looks like chrome, it is in perfect shape. But, I am going to ask GREAT GREAT DEAL LESS HONESTLY THAN IT IS WORTH.Now one like mine with everything are way over 4,000.00 almost 5,000.00. It comes apart easily, the glass is heavy but the bottom of the tub with all the jets, jacuzzi etc is also. Yet, we installed it ourselves back then. When it is gone I will have loads of room for the walk in shower and probably either cabinets or another closet.

Monday, May 17, 2021

A/C Tear, Possible replacement of reverse shoulder replacement from 10 years ago, more & better information on Lumbar/Sacral Surgery. Osteoporotic wonders and more

 Several things I am touching on, since things have been upside down and inside out with me, my Lumbar/Sacral spine needing surgery, 10 years later after my 1st "total Right reverse shoulder replacement and it goes on and on...

I know it has been awhile since I've been able to post here, I plan to begin getting more done especially after the shoulder and hopefully Lumbar/Sacral Spine is fixed... I need to continue on my book. I do have well over 600 PAGES "want written" out since COVID-19 began so those I do not have on the computer yet. But, will be a portion of the "book or books" I shall continue to write...


http://revistadeosteoporosisymetabolismomineral.com/2018/04/12/osteoporosis-and-spinal-surgery-strategies-for-medical-and-surgical-treatment/



Great Article for osteoporotic women and men that must have spinal surgery especially Lumbar and Sacral. It really helped to understand how much they have hanged in 10 years! I could no believe it had been 10 YEARS since I had the "reverse shoulder replacement surgery"! So, "if" the "Bone scan"" (done with the special dye) shows a greater thinning of bone, then I "may" have to have e new replacement put in that is totally different than the one 10 years ago. Much improved for those with "osteoporotic" bones issues. This one talks about the spine, and he told me this information last Friday when I went in to discuss both the shudder and the Lumbar/Sacral spine surgeries. I was told 10 years ago, with the shoulder replacement it would probably "wear out" in about ten years or so... with new types o screws, equipment, and placement they last a great deal longer. Also, it may be that with the new ways they would do my Lumbar surgery, with smaller screws, and cemented hardware, and other new parts, my chances are much better for them to hod up without me having problems with the L-4,3,2,1 etc above the L-5/S1... I am still very nervous about the  Lumbar spine BUT  did finally get more information from my specialist on the surgery and how they have made dramatic changes. As far as the shoulder, I DO NOT really want a "2nd replacement: and hope t s more about the A/C being torn in several placements...those could be fixed without replacing the entire shoulder. I HAVE to get this shoulder fixed either way. It gets worse every day it feels like and I get to where I can do less and less with the arm...plus with the RA effecting m knuckles, fingers, thumbs so badly now, that makes it ever worse.

Monday, March 8, 2021

Shower/jacuzzi,rainfall,waterfall,sauna tub... trading for needing a walk in one seat shower, new wood under my toilet & it seated plus a few other things...

 Here is the tub/jacuzzi/steam/radio/phone/two shower heads, rainfall /waterfall, foot massager that I have now. It is in perfect shape other than a couple of pieces that are more for "looks" and nothing to do with how it works. It works perfectly... a couple of the hand holders need changing out, just because they are looking dingy... and the little rails that are where the shampoo etc hold, also need to be replaced, they also look kind of dingy and the waterfall, has some peeling on it.. but really none of those are expensive...and you can order them online... this tub now goes for almost 4,000.00 but they have it on sale in some places for about 2,800.00. I bought mine and it was shipped from overseas crated up and it was in perfect shape, beautiful glass doors and all. That was about 2007 I believe when I ordered it and took 6 weeks or so for it to arrive.We put it together ourselves - they are relatively easy to put together. We had a separate electric connection for it, and it has it's own electric box and it's a 120 just wanted it to be separate from our other breakers. I think I paid about 2,000.00 for it or so back then. Here is a URL and a photo of it... and the ONLY reason I am going to have to get rid of it is that for 1 - now with me being alone, having both knees replaced, and that hip fracture repaired, i can't really climb over to get into it. It is not hard and it has a step up into it, but with my other chronic health issues, even the pacemaker, I can't use the sauna or the jacuzzi due to the heat and even on my pain pump, I am not supposed to sit in a whirlpool, jacuzzi bath etc. - Now that I have had the cervical neck surgeries (2 of them a couple of years ago) and now I face a Posterior Lumbar Fusion in April at L-5/S-1, that fusion is really going to make it almost impossible for me to be alone climbing into that tub... so I just need a walk in shower, with one set, and a nook for shampoo, shower gel etc... It would also give me a great deal more space in my bathroom, since we enlarged it when we added that tub... if I have just a smaller, walk in shower, be easier to keep clean and clean...& I won't have to worry so much about falling, trying to get over into a tub. If anyone knows about anyone that maybe interested in buying it from me, or maybe even doing some trading... I need my toilet with new lumber and it reseated, plus I need flooring in my bathroom, and my lights and fan are up but they are not hooked up in the electrical box in my attic... I also need a new light fixture (I already bought it) hung at my back steps, and really could use some kind o a rail on one side of my back step to hold onto , and even on the front step, it's only 2 steps but a rail on one side would be great. Plus I had replaced a ceiling fan (did it myself) but something happened to it about a year later. So, I have a brand new one sitting here in a box, to be hung, which I could do "maybe" if I had an 8 foot ladder. Mine is 6 foot and it's not tall enough, plus I really don't need to be putting my arms over my head anymore... or I would have had it and those light up in the back by the back steps... If anyone knows of someone like I said that may want to do some trading along with cash, and since I have most of the parts, mainly is labor... I've got some tree limbs that I began cutting down myself, but I can tell I really don't need to be doing that myself... it's putting a strain on my neck and shoulders arms... It irks me, I have all the tools, and the "knowledge" to do most of it and used to do most would do it myself, until my body decided to "fall apart"... anyone with questions etc jus message me and I will answer...



https://www.ambienthomeus.com/products/mesa-ws-608a-walk-in-steam-shower-with-jacuzzi?currency=USD&utm_medium=cpc&utm_source=google&utm_campaign=Google%20Shopping



Saturday, January 9, 2021

Our Nation Out of Control, So much for a Hope filled and Happy 2021! It's almost a night terror

 It is to the point of being unbearable, and just not even fathomable to believe what is happening in this nation....


Thoughts....


As I Said below "SO MUCH FOR A HAPPY, HOPEFUL & BRIGHT 2021!😔 and if I said what I "think" I would probably have my home burned & be shot! Sorry folks I cannot fathom some of the things I've seen posted in places.... insanity, and now again rather than the focus on "COVUD-19" and the new strain that is already in TX, and all of those who have lost their lives or loved ones & now after that many people so elbow to elbow fighting, bleeding, breathing on one another... what about even worse than the pandemic than we already have! We don't have enough hospitals, beds, nurses, doctors, medications already and it just grows worse by the moment. What about all of us who are trying to "fight to keep well"? We are doing everything we can to avoid getting sick ourselves or making others sick??? We masks use curbside maintain distances, try and stay home, order online, sanitize, & I don't know about others but although I need a couple of things from the market today before the bad weather hits tomorrow, I FEAR going into any store..I am sure many will be in the stores not following guidelines and I am someone who really "should" have a vaccine... due to Lupus, RA. Heart conditions after 2 heart attacks, pseudo-gout plus the medications that cause me to be prone to getting sick & facing possible back surgery, but I have to wait, although even at a surgery center I still fear the virus, I have not started my new RA medication yet and should have 2 months ago, but feared changing it in the midst of all of this might cause me issues.. even my Rheumatologist does not know I have not changed. I am supposed to go to see him next Friday, but under what has happened I am going to ask for another virtual visit. even though he is in one of the doctor's buildings, they still are probably the largest medical facility with many hospitals... then I have to go to Dallas to have my pain pump refilled by the 18th. that one I can't miss, it has to be filled and the doctor has to do it. Then I was already hurting badly enough, and i guess due to this weather change coming, I could barely walk when I got up... I probably am in a Lupus/RA flare... BUT so many do not consider their consequinces of actions to what they can do to others, their families, friends & those out trying to help us daily. It is just almost unbearable and like some night terror in this country.


I am just completely frustrated with LIFE! People (it seems MANY have gone NUTS) I could not believe my eyes last night on the television! I completely turned off the news and watched other things... most channels were showing that horrid, terrible, insane scene in D.C.! To think I WALKED THRU THOSE VERY HALLWAYS in 2014!!!! When I went as an Ambassador with the Arthritis Foundation... and knowing how HUGE ND HOW DIFFICULT IT IS TO GET AROUND IN THERE - HOW THE HECK THAT MANY PEOPLE COULD BREAK INTO CONGRESS IS BEYOND ME!!!! I HAVE ONE QUESTION??? IF "HOMELAND SECURITY" COULD NOT "NOW THIS AHEAD OF TIME" AND KEEP IT ROM HAPPENING HOW CAN WE FEEL SAFE FROM "OTHER TERRORISTS?" WE surely have ENOUGH "home grown ones right here!"

Wednesday, September 16, 2020

We continue to, gripe, fuss, & be peeved over all happening in our nation not think but how much worse bit was & could be...

 OH, how we gripe, fuss, whine, mope, and bitch about how bad things are, yet not really thinking how much worse it could get!


And (IMHO) in my humble opinion, if we do NOT get a tremendous change in our President and the Senate and House with this crucial election upcoming here very soon.. it IT BE MUCH MUCH WORSE THAN WHATEVER YOU COULD NAME SOMETHING LARGER THAN A "PANDEMIC"!


Don't get me wrong, things are HORRIFIC!! Even for those of us over the age of 55 plus, for the most part none of us have seen the likes of COVD-19, now facing a possible new flu strain, where the "old ones" are bad enough, now hurricanes, one after the other worse than any over the Gulf of Mexico especially (yet how many still claim we have no "Global Warming" or Earth that is warming our oceans, as they fill some places with so much plastic and items that will never go away & will continue to ruin many places that used to be reeths where now is nothing but gray and no fish)..


Now wildfires again, so bad they are taking millions of acres of land, forests, homes and even lives over CA, Or & WA state. We also had just enough rain which was desperately needed in places in TX, that now have mosquitos' 'causing the West Nile Virus to rear its ugly head. Not to mention other bugs, mice, snakes, spiders, and all types of bugs that ruin crops, and as the fire ants I had rid my lawn of earlier this spring, now are taking over my lawn like never before. They are far worse than I have ever seen. A small child, animal or even anyone "allergic" to their stings, which they just "attach" themselves to you, and can sting over and over again. I KNOW, I do my own mowing etc. and I am allergic to them. So, when I try and get rid of a bed the size of a huge bowl, that had not been there the evening before, it seems impossible, to see the hundreds of millions that "boil" out of just one bed! One bite for me means swelling, severe stinging, a knot that comes up hard, white and will stay for weeks, if I don't try and get them off my feet. Not to mention the larger number of wasps, yellow jackets, the HUGE hornets, that could put someone in the hospital if they are allergic. I know it sounds as if I am off subject, but not really. Many of the things that come, are from how the severe weather changes, and now the COVID-19 & other illnesses that come along with them put people out of jobs, close businesses, make people so ill they spend over 6 weeks in the hospital, kids that can't go to physical school yet & everything else that follows along with those. Higher grocery and all items. Having to "not go in" stores yourself but go "Curbside" or however your market does it to keep people as far away from one another as they can. Masks MUST be worn by everyone who walks in stores in many tows and cities. That is not including the billions spent on equipment for things such as resperators, more sterile "throw away" gowns, gloves, masks, for all staff at all nursing homes. What ever happened to the "wash in hot water, and wrap, put in an autoclave, rather than throw away all of the instruments, gowns and so forth as we used to? I know people will say it is not as "sanitary" or it is "higher price".


 BUT it cannot be higher to throw away perfectly good tape, scissors, many instruments for surgeries, gowns, & items that are now taken out of a plastic package, maybe 1 or 2 things used, and the rest disguared in the trash! What a waste of money! Especially when we are running out of items doctors, nurses and medical staff could use. I've watched them open a "tray" of items, and throw away much of it just because they needed a "plastic pair: of tweezers, etc to possibly remove stitches. Tape is expensive, but can you imagine how much goes into those disposable tray? I know sometimes since my insurance and I am PAYING FOR what is going in the trash in I would like to grab and taken home with me. think of the amount of those items in just one COVID-19 day that are still sterile & I could certainly use at home for some purpose. It is ridiculous wha amount of dollars are thrown away. They tell us it is "cheaper" than having to wash, sterilize and autoclave instruments I think that is bull. It could help create jobs that went by the wayside, due to plastic items that are pitched in our landfills or thrown in special bins and burned into our air. I get furious when I already know the numbers of items pitched away just in one surgery. It's insane. Then they wonder why insurance it's so expensive &  doctors charging so much.


The catastrophic human life, financial spending, the overspending that goes into our medical fields is crazy! Yet, we can't seem to keep "great" doctors, nurses and medical staff. they are "frightened", Hell scared to death they or their families could become infected with this still much unknown, no vaccine, not supportive care and education of those who do become severely ill for weeks and weeks, basically on "life support" with no family that can go in to help assist the mental stability of their loved ones. I feel we lose MANY people to COVID-19 to more "mental illness", where they are just "heartbroken" from not seeing those they love. They feel they have been left to "die". Then nurses and staff have t be their lifeline of caring & love to help them understand and know they have not been abandoned. It is the illness keeping loved ones from being at their side. 

Then all of those that have lost family, lost homes, all of their livestock, crops and out natural forests due to "fire storms", that  began with one cigarette butt thrown out a car window.

Then, the number of SEVERE HURRICANES that have moved across the Caribbean into the Gulf Coast waters, of Texas, Louisiana, Florida monumental! Never in most of history have these types of massive storms blown and washed away so much land, houses. so many that were never able to be rebuilt rom the last couple of those Hurricanes we considered the worst in history. Our entire "landscape" in some places have totally changed from waters, winds and fire damages, that they will never be the same a+


Our own childrens grandchildren will have something to certainly tell their own grandchildren about and how history was changed by nature itself "fire and water".






































































































































































b by "fire and water"


                                                                                                                                  

Monday, September 14, 2020

How do you DEAL with ALL happening? COVID,FLU on its way,possible West Nile,Lupus,RA,Pseudo-gout,Chronic Pain, & now a "Death" of an Ex-Husband

 How do you DEAL with ALL happening? COVID,FLU on its way,possible West Nile,Lupus,RA,Pseudo-gout,Chronic Pain, & now a "Death" of an Ex-Husband... and the List goes on and on, Severe Anemia...  & WHAT IS NEXT?


and where do I begin? After over 290 "handwritten" pages about COVID-19 & the entire ordeal.. still there are many more typed, put on Facebook, on my Blog, in my blog, my head, & daily they come to me, at night they haunt me... Do I feel "guilt", pain, suffering, shame, am I supposed to be pissed off? Or am I supposed to "feel Sorry...  should I tell the story, or do I stay quiet? Do I try and get hold people & let them know. Or do I just allow it to play out as it is?


After so many years of supposedly him thinking we were the perfect "match" he suddenly "packs" what little he has and was trying to LEAVE BEFORE my Mom and I got home from an overnight trip! To this moment, as well as all others NO ONE KNOWS why he just "left"? 10 years of marriage, 13 years together... none of it made any sense... And I KEPT QUIET for WAY too long on the really horrible things he did and said, to anyone.


Here I was, chronically ill, with Lupus, RA, Sjogren's, osteoporosis, then Pseudogout & other issues turning my fingers "crooked" over one another. I was the bone that took care of it all, Although he "led" others to believe, even his own Mom, that HE DID everything! Bull!!! He barely cooked a meal every once in a while. from laundry, to groceries to cleaning, he did none of that..


So in 2016 when he just ups' and leaves that was bad enough. But, to NEVER come out with the truth... then in 2020 only 10 days or so before his 60th birthday... he disappears... has even the law, out looking for him...b & they find him "deceased" in some stranger's apartment..or as far as his good friends from that area knew, he knew no one where he was found. But, "Meth" & many of you know my own night terror with someone close on Meth... he was a coward, chicken, & has no love for his family, what is left of it, nor his "Step-Mom" whom he had considered his Mom all his life. And the few friends, that some had no clue about one another...  they are trying to get toxicology reports, and I suppose there could be an autopsy done. Since he was found without a bill fold, without his cell phone at 1st, he had no car, he had wrecked it a couple of weeks before... So, the "only" people that were close enough were out of town on vacation.. they did not find out till days after coming home. The law I guess finally found his cell phone to be able to try & find someone who knew for sure who it was.


I shall close this right now & give more as I find out, if I ever do...I feel for the few friends he had.. they will be totally in shock.


UPDATE December 23,2020

I spoke with my "ex-Mother In-Law" (she really will always be my Mother In Law, and a sweet lady, called me yesterday. I found out that although they never really found ALL of the DETAILS SHE WAS TOLD BY THE LAW ENFORCEMENT that Jim was found out in the country (lots of beautiful country side to drive through in WA State and admire) by himself, with on other evidence (I don't think they did an autopsy) that he had a massive Heart Attack. That was the reason I believe they ruled his death. It does not sound "right" to me... not like him to just drive off, and not take his daughter on an afternoon drive and not really tell her anything. Yet, I shall unless something else comes up, leave it at that hid died of a massive "MI". 


Lord knows, I DROVE MYSELF 20 MILES to the hospital in 2001 (I was 40 yrs old) to the hearest hospital, and even walked into the Emergency Room, about the time, I was much worse.. they immediately got a wheelchair, and into the main trauma room there. As they hooked me to machines, gave me an aspirin, and asked me who was with me, and I said "no one". I drove myself from home in Rice TX which is just about 20 miles from the hospital. If I had waited the doctor told me for an ambulance, or to get someone there to take me I would have not made it. That for one in his life he can say even though he would never suggest it, I was right to do what I did in order to live.

They gave me the injection of the "clot buster and it literally stops a heart attack from being worse if given in time. But he was putting me in Cardiac ICU until I was table then sending me to the Main Heart Hospital in Dallas. NEVEr EVER do I WANT TO RIDE IN AN AMBULANCE AGAIN! I believe in all that was my 3rd ride in one and it is a horrible experience, especially if you are very inured or in pain. 

As they say "Its like riding in an iron wheel wagon", it is so rough, bumpy and you are slipping and sliding, and everything back there is. But, I was fortunate to have great EMT's all 3 times that kept me calm on those rides.

So, as it went I did make it to the hospital in "mid-massive MI" BUT just in time for the medication to STOP most of the muscle damage to my heart. Knowing that, and knowing that I wanted to live badly enough, that I took the chance of driving on the Highway with blinkers on, and very slowly just in case I felt like I may pass out. Of course NOT a police officer in site when I really needed one. But.  made it, things were not nearly as bad as they had 1st expected.. and it must be that it was my time to STAY HERE... I still had "work to do here on Earth first"

Knowing that, and knowing he may have known something was wrong, I believe he did not want her to try and save him (his daughter). I feel he "knew" and was almost like going ahead to "leave Earth" because he just could not handle anything else. ad, sad, sad, for everyone, but especially his daughter that he had came in contact with like 30 years after not seeing her. 

So, I just pray she gets the help she needs to get herself back together and live on to know they had some time together.




Tuesday, April 21, 2020

BEFORE anyone with LUPUS, RA & other Illnesses that require Plaquenil Daily!




BEFORE anyone with LUPUS, RA & other Illnesses that require Plaquenil Daily!

Article from Arthritis Foundation






Please read & pass along!!


Hydroxychloroquine (Plaquenil) Shortage Causing Concern

Possible use of arthritis drug for COVID-19 symptoms causes access challenges for people with arthritis.

Sunday, March 29, 2020

Hand X-Rays Show the severe damage of Long Term Inflammation, Pseudo-gout & Chondrocalcinosis & More...,

After weeks of waiting due to mostly the COVID-19 Virus pandemic, I FINALLY got the copies of my Radiology Reports on the X-rays of my Left and Right Hands...


                                      So Here is the "NOT SO GREAT NEWS...


Well after (not very patiently awaiting) my Radiology reports on my hands.. as I figured the news is NOT great on my left hand...much like "gout" and "pseudo-gout" (which the pseudo-gout is one thing wrong".. I have chondrocalcinosis (calcification within cartilage) found which indicate long term inflammation..( I suspected for years I almost constantly had inflammation in the left hand especially between my joints in most of my fingers) from the RA and probably osteoarthritis also. That calcification is caused also by a build up of crystallization from certain minerals in the synovial fluid between the joints and I have a narrowing between most of them but the base of my thumb and my wrist under my thumb is moderate to severe from the X-rays and Exams by my PCP, Rheumy and Orthopedic surgeon. My Right hand also has much of the same, but it is not as bad as the left one is. Same thing the crystals that are causing the cartilage to calcify rather than be "like softer cartilage like your outer ear for example)" as it should be. There is no "treatment" really. I cannot take NSAID's other than aspirin, and Motrin, etc... the prescription doses is what would possibly help is anything. I am on all of the medications they use, unless we change and go over to another biologic.. I am on Enbrel right now.. along with Plaquenil, prednisone small daily dose, the Enbrel, Methotrexate (which if I do not get ill with an infection they can increase my dose on this), the BC Powder, Colcrys (which I found out can be increased also but it's the latest one so I am sure they are making sure I do not have any side effects first).. what concerns me, is that this may be also what is effecting my lower back and hips also. It does tend to go to those as well as the feet.. About the only thing that would possibly be the answer would be hand surgery..especially on the thumb, and where this cartilage is getting hard... This of course is chronic and will not get better, only worse as time goes by.. unless we have a miracle.. Right now the miracle needs to be for the COVID-19 virus. It was honestly a bit better than I expected.. I felt with the way my fingers are bending and trying to twist on my left hand it would show to be worse. Going to and already does.. make very hard for me to don anything with my hands and fingers..type, open anything, zip anything, you name it, it either is impossible for me to do or hurts like hell to do it. Until this Pandemic is cleared where I can see my PCP, Rheumy etc.. I will not have any answers, but at least now I DO know (THANKS TO MY PCP for sending me the reports and explaining them)  HE is my lifeline... so all I can do is read more on this & pray all of this Pandemic clears up and PEOPLE can get well, stay well, and try to get back to some type of "good new normal".. although my stuff is certainly not good, right now at this moment, I am not ill with the other and praying I don't and everyone in our town, county, nation and world gets well.. I have to admit I was quite upset when I read these reports.. even though I knew what they would probably say... but life goes on and so shall I. My prayers to EVERYONE!!! Stay In, Stay Well, & let's keep HOPE ALIVE!!!


Sunday, March 22, 2020

Coronavirus, Climate Change, and the Environment - Harvard C-Change

03/20/2020 | Harvard C-CHANGEA Conversation on COVID-19 with Dr. Aaron Bernstein, Director of Harvard C-CHANGE


https://www.hsph.harvard.edu/c-change/news/coronavirus-climate-change-and-the-environment/

Below are some of the most common questions we have been receiving in relation to the environment and coronavirus 2019 (COVID-19).
"This page will continue to be updated as new information arises. If you would like to talk to someone at our center about coronavirus, please email us at cchange-media@hsph.harvard.edu..."

(Lots of great information in this article.) And for further articles and information see my Daily Newspaper...

An Autoimmune Arthritic Systemic Life    by Rhia Steele

Life Chronic Pain & Autoimmune Systemic Diseases & Dementia®

Sunday, January 26, 2020

Septic Arthritis & Difficulty getting the right diagnosis


Septic Arthritis  &  Difficulty getting the right diagnosis

POSTED ON Sue for septic arthritis malpractice NJ lawyers help









(I "redacted"  bits of this due to so many issues with doctors, the medical field in general & the many malpractice suits whether true or not, there are many)... so I will just put the link to the page I got this from & the story is  also posted in my Today's Newspaper... Link*****Link to my paper  :   https://www.autoimmunearthriticsystemiclife.com/*****Link to article: & I remain "neutral" due o the nature of the subject and because I had "Septic Arthritis) although after seeing 3 doctors they really never "agreed" as far as the real diagnosis - the symptoms can  be signs of several diseases...  it took me about 3 months to really get clear of it - and at least 6 rounds of antibiotics to feel "safe" it was gone...)You trust your doctor to either know how to diagnose and treat your medical condition or at the very least, to understand when to refer you to someone with the expertise to handle your case, especially in the case of infections. Septic arthritis is one such serious infectious condition that, if not diagnosed and treated quickly, can lead to permanently damaged joints and other serious complications. When a doctor or another medical provider fails to appropriately diagnose or manage septic arthritis, the consequences for your health can be severe. If this occurs and you are wondering what options you may have to hold them accountable, the next thing to do is seek knowledgeable legal counsel.What is Septic Arthritis?Septic arthritis, or infectious arthritis, is a joint infection, commonly found in the knees but can also occur in the hips, shoulders and other joints. It is characterized by swollen, intensely painful joints with redness, warmth and stiffness, accompanied by chills and fever. The condition can present in a similar manner to other conditions, for example, rheumatoid arthritis or staph infection. If left untreated, the cartilage and bone within the joint degenerates and can be permanently damaged within mere days. In some cases of septic arthritis, the affected limb must be amputated. With the dangerous nature of this condition, prompt treatment is essential.What Causes Septic Arthritis?Septic arthritis is caused by a bacteria, virus or fungus, typically staphylococcus aureus infection, but also a urinary tract or skin infection. 91% of septic arthritis cases stem from staphylococcus or streptococcus bacteria. Among younger sexually active adults, gonorrhea is the most common disease that passes the infection from one person to another. Germs migrate through the bloodstream from one part of the body to another or go directly into the joints through an injury, injection or open wound caused by a penetrating object, such as an animal bite or surgery.Ordinarily, your joints can protect against infection naturally, but the body’s reaction to infection causes inflammation that increases pressure and reduces blood flow in the joint, causing damage. The increased use of prosthetic joints in recent history has increased the rate of infectious arthritis. Approximately 20,000 people suffer from the condition in the U.S. annually. Tragically, 11% of those afflicted with septic arthritis die. Communicable infections, like staph infections, create conditions favorable to septic arthritis and can be contagious if a person is exposed in a non-sterile environment.Septic arthritis largely affects infants and older people aged 65-plus, as well as those with existing joint problems. Some of the primary risk factors for septic arthritis include:
  • Osteoarthritis
  • Gout
  • Lupus
  • Rheumatoid arthritis
  • Weak immune systems
  • Artificial joints
  • Previous joint surgery or injury
  • Skin conditions such as eczema or psoriasis
  • Open wounds
  • Chronic immune-suppressing conditions like diabetes, kidney, and liver disease
  • Joint trauma
All who are affected by one or more of the above risk factors are far more susceptible to septic arthritis than the general population. Notably, alcoholism, intravenous drug use and low socioeconomic status are also risk factors for the condition. Further, having more than one of these risk factors increases the potential for contracting the condition. People with rheumatoid arthritis and gout are especially vulnerable to septic arthritis because of their commonly prescribed immune-suppressing medications and symptoms that mirror those of septic arthritis. Doctors often misdiagnose or miss the diagnosis in these patients. Patients with hemophilia or HIV or also at risk for septic arthritis due to their low immunity.Diagnosis and Treatment for Septic ArthritisGiven the deadly nature of septic arthritis, a doctor should conduct arthrocentesis, the method used to detect the condition and confirm or rule out septic arthritis. In addition, blood testing and imaging tests may detect septic arthritis, but the surest method is joint aspiration, when synovial fluid in the joints is extracted and tested. Conditions that mimic the condition are abscesses, cellulitis, Lyme disease, malignancy, arthritis, rheumatoid arthritis and osteomyelitis, among others. It is critical for the treating physician to discern these imitative conditions from septic arthritis. Obtaining an accurate patient history can help the provider discover risk factors indicating probable infectious arthritis. Otherwise, there is no gold standard of early detection other than the physician’s expertise at recognizing musculoskeletal diseases and their copycats, or referring the patient to a specialist who is experienced in this area of practice. Once septic arthritis has been diagnosed, treatment may consist of intravenous antibiotics, surgery or aspirations in the affected area. Time is of the essence when a person is affected by septic arthritis, so diagnosing and treating the condition in a timely manner is a must.Septic Arthritis Malpractice Failure to detect septic arthritis results in significantly higher rates of complications, permanent damage and even death. When a doctor fails to diagnose or misdiagnoses this serious condition, they may ultimately be found liable for medical malpractice. Generally, medical malpractice occurs when a physician or other healthcare provider fails to diagnose a condition, misdiagnoses a conditionfails to treat an illness or disease, or improperly treats such an ailment, which leads to some form of injury or death for the patient. Given the training and experience of medical professionals, patients rely on their expertise to address their symptoms, provide appropriate treatment, and ultimately, to keep them from harm.If you believe your doctor mishandled your septic arthritis case in New Jersey, you typically have two years from the date of injury (or the date at which you became aware of said injury) within which to file a malpractice lawsuit. An affidavit of merit is required by law when filing a lawsuit against a medical professional. The affidavit of merit will require a doctor in the same field as the defendant to declare under oath that the care, skill or knowledge shown during the diagnosis and treatment of the patient fell below the medical standard of care under the circumstances. There are strict time limits within which to file specific documents in order to avoid your case being dismissed. Due to the complexity of medical malpractice litigation in New Jersey, it is highly advisable to seek help from an attorney with extensive experience handling claims like yours.Your Septic Arthritis If you or a loved one suffered harm due to a doctor or other medical provider’s negligence involving diagnosis or treatment for septic arthritis, consult a knowledgeable medical Additional & Related Information:

LINK to this article:   https://www.fronzutolaw.com/articles/malpractice-with-septic-arthritis/