Showing posts with label chronically ill. Show all posts
Showing posts with label chronically ill. Show all posts

Tuesday, September 3, 2024

ALL KINDS OF THINGS HAPPENING! From Moving, Clearing out the house, Dealing with Extreme Heat, needing a new Rheumy (mine went into full time research) & more

 I realize I have not updated here in a long while. Between the extreme weather, I bought a RV to move into full time and getting rid of too much to take care of. 


From my lawn the 1/2 acre behind my home, my home needs a COMPLETE RENOVATION FROM ROOF TO GROUND, fighting a LUPUS FLARE and Lupus MIGRAINES, MY RA IS MUCH WORSE AND I AM BASICALLY OFF MY RA MEDS due to my long time (15 years) with my Rheumatologist. I believe he went in to full time teaching and/or research. 


My Osteoporosis, osteoarthritis is worse. My hands are in terrible shape. I went to a NEW PAIN SPECIALIST! He began to be great at first.Then he "got busy" and went on overload. Last month he really peeved me off. The pain meds he put men on caused me to lose down to 97 POUNDS! I had to find out on my own WHY I WAS LOSING WIEGHT SO QUICKLY AND SO MUCH! I researched it and found out severe and quick weight loss is ONE side effect of this medication. He basically CALL ME A LIAR last month in his office! Even my pharmacist and my PCP was on my side and said it was the medication causing it or much of it. 

So, I have had to adjust the way I eat, what I eat, drink 3 or more of the Nutritional drinks (such as "Boost" but I buy the "Equate" brand at Wally World" daily.nIt costs a small fortune but buying it online now at Wally World (free delivery) with the new Wal-Mart + I got 2.00 OFF OF EACH 6 PACK!

This "downsizing" and throwing away, giving away, and selling of so much after 18 years in the house has been and still is a daunting task to say the least. PLUS, I knew very little about RV'S! Inhave had to learn every little thing and plan to move to a nice RV park mid September or so. I am taking my time ckearing out the house, So many have been doing the same as myself; "minimizing" their items. We are either chronically ill, or tired of cleaning around things, having closets full or drawers full of things we do not use do not need or are just plain in the way and no longer necessary.

My PAIN LEVEL IS THROUGH THE ROOF WITH ALL OF THE MOVING THINGS AROUND, PLUS THE WEATHER CHANGING, NOW LOOKING AT THUNDERSTORMS TODAY and TOO MANY "IRONS IN THE FIRE".

I CAN PROUDLY SAY I HAVE DONE ALL OF THIS MYSELF..NO HELP, NO ADVISE... from RESEARCHING RV'S to looking at them, DECIDING TO PURCHASE ONE, CONTRACTS AND SO FORTH, I have done it all ALONE!

PLUS I AM SELLING MY HOME BY OWNER. I have already had 5 or 6 people interested. 

I even gave thought tonbuying a truck, getting a smaller RV (mine is 37 foot long)! Then towing it around Texas at times sonI can get out meet new people, go to Winstar, visit my daughter and family down by Corpus etc. I USED TO LOVE ROAD TRIPS! I HAD A GREAT DEAL OF REMINCING OVER MY TRIPS SNOW SKIING IN PAGOSA SPRINGS CO..AT WOLF CREEK SO MANY YEARS FOR MY BIRTHDAY EVERY FEBRUARY!

I no longer could snow ski, but traveling sounds very appealing. Taking my Doxie Bella on a few road trips; enjoying time away from the same old stuff and HOPEFULLY WRITING YET ANOTHER BOOK TO PUBLISH!    

Which I already have one "PRACTICALLY FINISHED" AND NEAR READY TO PUBLISH. I now see there is a desperate need for everyday people to know it is okay not to have all of the stuff we tend to have! How to be a "novice", someone with health problems, especially a woman and how to go about getting the house downsized, possibly get a "differejt or alternte type of living space). From Rv's to Tiny Houses, Container houses and more; we HVE MANY OPTIONS AVAILABLE!    

Whether remodeling, renovating, moving, getting into a new type of living space, making changes are difficult. When you are akone and chronically ill and in chronic oain it is MORE THAN A JOB FOR SURE!

I HAVE LEARNED A GREAT DEAL FROM WATCHING "STORAGE WARS", RENOVATIONS DONE CHEAPLY, RV'S AND WHAT THEY OFFER, ALTERNATIVE LIVING SPACES, TRAVELING AND SEEING NEW THINGS.. I  HAVE LEARED KOADS OF THINGS TO HELP MAKE A MOVE, A CHANGE, DOWNSIZING SOMETHING FUN AND EXCITING!


WHEN YOU GET TO BE 55 PLUS INTO YOUR 60'S YOU LEARN THE MAJORITY of things YOU CAN DO, WANT TO DO, AND DO NOT NEED MUCH HELP ...


SO, KEEP AN EYE OUT ON MY FACEBOOK PAGE AD HERE FOR MORE UPDATES!














Thursday, May 20, 2021

What Happened to "Do No Harm"? Yet with the Crisis that Chronically Ill Pain Patients are in that is just what is happening

The Crisis Causing Many Chronically Ili Patients Pain much Harm! 


After a visit to my Pain Specialist last week, who has been taking care of me for over 10 years, I GOT an overwhelming feeling things are getting much much worse very quickly. He has always been very honest about ho issues are when it comes to the CDC, etc & Pain meds for Chronic Pa Patients.He was "tight lipped" which was extremely odd, he had suddenly changed the name of his office & the location. He took the word "pain" out of the name of his business & I could tell he was not willing to handle my own chronic pain issues as he has all the years I've been seeing him...WE NEED to GET SERIOUS ON CONGRESS, THE CDC, & ALL ON THIS PEOPLE! I AM READY TAKE A TRIP TO DC & GET THE MESSAGE ACROSS, SIGN PETITIONS, SEND PERSONAL LETTERS, GET HOLD OF OUR LOCAL NEWS CHANNELS! We are in BAD SHAPE if we don't really get on the ball on this issue.



https://www.painnewsnetwork.org/stories/2021/4/21/pain-patients-say-cdc-opioid-guideline-cruel-and-abusive?fbclid=IwAR3ZaQFZzLAcNAeIdE-2NUEd4WJJLjqMjNENigEkk3XQdvGPXcqgY1ALhhs#.YJaQFKF10V8.facebook


Monday, November 9, 2020

Election 2020, Presidential Campaign goes to President Joe Biden & V.P. Kamela Harris Declared the Victors! The PEOPLE SPOKE! Finally, Dump Trump is OUT; BUT I'm Sure Sadly We haven't heard the last of him?!

 
PRESIDENT JOE BIDEN & KAMELA HARRIS WITH 1ST LADY, JILL BIDEN declared the HISTORY Making THEM VICTORS! THE PEOPLE SPOKE DUMP TRUMP IS KICKED OUT, YET SADLY I AM SURE WE'VE NOT HEARD THE LAST FROM HIM!

What a nail biting, frightening at times, yet victory declaring Election 2020! Many things considered 1st time happenings; from the V.P. being the 1st "Woman" to be V.P. & 1st WOMAN OF "COLOR" (as Kamela herself put it).

This election brought out MORE VOTERS than in any other election, more people of other races were also a 1st time happening. If that is not enough to put to memory, PEOPLE CAME OUT ALTHOUGH THE NUMBERS OF COVID-19 ARE WORSE THAN EVER! There were more "mail-in" ballots in just about every state than ever! The New President Elect Joe Biden is the "eldest in history" to take this office.

Now if each of us could take this and much more incredible positive, & relief from Trump on our plate; WE ALL KNOW THAT THIS ISSUE WITH "Trump will never put those big boy pants on" as one of the News People said, and concede as Joe Biden President. We also figure this is NOT the LAST of what we hear from that person, that absolutely has taken our country down, down, down almost to the bottom of all nations. He has spent more of the peoples money on "his own equipment, such as Air Force One, The Helicopter, Secret Service, FBI, and the CIA, that is not including all of the "trips" to his personal golf courses, casinos and lavish hotels.I WILL SAY HE SPENT MORE TIME AT HIS OWN "GOLF COURSES", ON TWITTER (TO which I will never understand how he was allowed o speak one word on there). He has NOT PAID HIS INCOME TAXES FOR 15 YEARS, from what the news has said and only paid $175.00 dollars, yes you read that right, he paid a whole one hundred Seventy Five Dollars and no cents (which he has no sense). How MANY  of us Americans have not paid our income taxes within a few years, that are no found, asked to pay, or at least make arrangements to pay? 

How many Americans have, when they owe only owe $175.00 to the IRS? How did he get by with all of the lies, the junk, the name calling, the temper tantrum taking, and have it put up on HIS TWITTER PAGE THAT HE HIMSELF POSTS? When President Obama could NOT even keep his OWN Personal "Black Berry" for things such as Doctors appts, & family information such as birthdays? 

As I have continued to say, Stump's only solution to ANY ISSUE is to THROW GREENBACKS" at it, and it will go away, or get fired, or get ran threw, or get a "pandemic" started, declare a new person as a Member of the Supreme Court with the Presidential election within 2 or 3 weeks? How was HE allowed to "hire" and "fire" staff by the dozens depending on whether they "agreed" with him or "disagreed" with Him? He gave speeches, talked to the news, to the public and would not allow his staff to assist in making sure "FAQs" were in place? He was almost impeached, and should have been. He played "footies" with Russia, North Korea, China, & others, then talking trash about them after he had told everyone "Oh, they are great people!"

This "list" of the most hair raising, mind blowing events, in history by any other president is slim to none. Before I say more on that "fact" I will look more up. there are so many that he pulled as far as lies and stunts, I need to look the up to do my own "Fact checking". If much of the entire ordeal of the negative stunts he pulled ever comes out, people will be horrified, as to how he could have ever made 4 years as "Commander in Chief". I say he is a narcissistic, habitual liar, with OCD, and several other mental illnesses, that left our nation in ruination.


Shall I say more? I don't have to BUT I WILL be telling much more about this wondrous change in our country, the jackass that left, about COVID-19  (Corona virus). This blog post shall be the 1st portion of my next book, (which I don't have a title for yet").

I have continued to wonder why I have had such a "hole" in my thoughts for writing my next book, that I had been concerned that my book writing days were over. Yet, it was due to these other "events" that need to be marked in history... and I realize there will be MANY books written and published on these subjects. I want to give everyone a "feeling" if just how these types of horrible issues especially those who are disabled, chronically ill with many different severe illnesses and diseases. Those who are "below" poverty level or at the very least struggle week to week, paycheck to paycheck, or search everywhere for a job; all the while terrified of getting COVID-19 and/or bringing home to their families. 






Sunday, February 12, 2017

Finding some kind of "Quiet" in all of the Chaotic Realms of my Own Daily Life, what I want, what I need to do, and why I am NOT doing some of the things I think I "want" to do... as I said "chaotic"

If I sound "off" today, I feel "off".... I've been having so many nightmares, or just plain terrible dreams, I even began waking myself up and writing them down... and my sleep is all off schedule... I get up way earlier than I had been, and by the time 9PM comes around, I am ready to lay down. I try to watch a movie, and sometimes I do, other times I wake up and the movie is over, and the TV is still on... and the weather is really messing with me... although it is warm here, our humidity levels are so high, it appears as if it has rained, and I even Peanut acting a bit "off" ... we did have a full moon, but this has been going on now with me for several weeks. I "think" I am just sick of being in the house so much, and although I have a billion things I can do, for the most part, I just cannot get motivated enough to do them. I've thought it was my diet, so I went back to eating breakfast earlier, like I did while in the hospital...

 so I try to eat by about 8:30AM or so, but then by 2PM, which is too late to eat "lunch" because I eat dinner by about 5:45 for the most part, so I even made some of my own homemade granola... I have to get more stuff to go into it, but it turned out good, and this way I can keep out the nuts and stuff that my dentures just cannot take... I bought some "trail mix" and they have whole almonds in it, and even when I chopped them up more, I still cannot chew or bite on an almond, they are just too hard, and oddly enough, I like the "flavor" of almonds, but I am not crazy about the nuts themselves... I love walnuts, and they are a bit less hard, but I realized while I was looking for granola recipes, you can even put like Cheerios cereal in it, and other things I had not thought about... I used "brown sugar Splenda" in it and a little bit of honey... then put my favorite spices, allspice, cinnamon, cardamon, ginger, and nutmeg... 

and I had a few dried dates, and I took the dried cranberries out of the trail mix, and they had some dried cherries in it... plus I put coconut in it before I put it in the oven... I want to get it a bit "chunkier" though... so probably more honey or brown sugar, so it will "stick together" a bit more... then I need to grab several of my favorite dried fruits to go in it, and those now are easy to find... anyway, I am just having a tough time trying to figure out where to "stick myself"... I came down with a sore throat the last couple of days, and I know everywhere in Ennis I go people are coughing and sneezing, and hoarse, and the flu, and some other viral stuff is going around, plus lots of people are suffering from pneumonia, which I HOPE that new vaccine I took early in the fall helps to keep me away from the pneumonia.. I had it like 2 or 3 years in a row, twice in both lungs, so I don't want any of that if I can stay the heck well. Besides if I come down with something like that it delays my possible new RA medication, and/or my neck surgery... and then this morning, for some odd reason, I was getting up off the sofa, and "hit" the nerve I guess going down my left leg...

 I NEVER usually have issues with that side, but it burned and stung like I was on fire... so I am not sure, if I happened to have "rolled" on it getting up or if my lower back is acting up, but this time on my left side... when I've had kidney stones, my left side usually hurts worse than the right. So, I first thought oh crap, not a kidney stone... but it is more I think all weather related... my hip and right leg have hurt now for about 3 days or so... I even have been getting Peanut on his leash, and the days it is nice outside, we walk 4 or 5 times during the day.... he loves it ... and he got upset with me this morning. I had to go around to the back and get one of the smaller tree limbs that I need to get into the trash, plus I had a whole trash can full of limbs and tomorrow is trash day. I always try and bring the cans up to the side of my house, especially if we have bad weather, so I don't have to go around to the back if it is rainy or cold... so he was upset. I could not hold his leash, and try and bring the limb and the can up to the front... but I had him out for a little while to pick up the newspapers, and it is still damp outside... I figure it will either "cure me" or "kill me: as the saying goes, to get out and walk around for a bit...

 I've got fire ants coming out again, so it is time to get the fire any granules out, but also time to spread the granules out I buy for spring and summer. I have to do it early as of now, since we have basically not "had any real winter weather yet" so the bugs, ants, and every other kind of insect, fleas, will be in the yard if I don't get them under control BEFORE they start.. Anyway, Lots of things I could do, and I need a cabinet, preferably with doors on it. I want to take all of my tools and such I have on two tables in my back bedroom, and get them organized into the cabinet, and off those tables... The room is a damned mess... and although it is my own "controlled chaos" (I KNOW where everything is) still it looks horrible, and I've got to go through some boxes of stuff and throw away some things... but I have so many "hand tools" like pliers, screwdrivers, my cordless drills, and nails and the list of "things" I keep and need the small stuff, just needs to be organized, and put away neatly so I can get that room painted, and get the window repaired that is still broken from hail over 2 YEARS ago,...

 I fear anytime one of these bad winds will come, and it will knock out my "duct taped" window, and I will be up the creek - and mad because I have not fixed it yet... so I have MANY PROJECTS, like my writing, around the house, my advocacy stuff, and my lists go on and on, but my "motivation" is lacking right now.... I just cannot stand to "feel this way"... like I am kind of "lost" in my own sea of "stuff" and can't find which way to get my bearings and "sail" the path that I 1st need to, then go from there... I SWORE TO MYSELF after I got home from the hip fractures, I WOULD WRITE THIS NEXT BOOK... yet I continue to "not be able" to "begin" ... I almost feel like starting at the "back of the book" and work forward, rather than beginning and then coming to an end... the "latest" things to go in there are very fresh in my mind, thus the other stuff is already written down, but i must wade through all of it, and get it in some type of organized chaos, so it will half-assed make sense to whomever reads it...

 I have my drums and keyboard, BUT the right leg, will be the one along with the right foot for the bass... and the type of exercise I would get from "banging" on the drums maybe actually good for my hip and foot... it may help to strengthen those muscles both in my upper leg and in the foot also... My crap with the writing also has to do with my shoulder, and neck... and actually my lower back also, and might as well admit it my hands and wrists... When I sit here for very long, typing etc. my shoulders, neck, wrists, fingers and lower back begin to just burn... from the impinged nerves... and now the RA has gotten to the place my thumbs, wrists, and portions between my fingers are swollen, and stiff and it hurts to type for very long... I THINK IT IS TIME FOR ME TO GET THE HECK OUT OF THE HOUSE OVERNIGHT, THEN GET MY NEW PUPPY... AND try to take all of the chaotic crap, I "feel" I need to do, and sit down to re-organize my priorities again... I've drifted again between those things I "want" to do, and those things I feel I NEED to do... and what lies in between is a bunch of stuff, that keeps me in knots half the time....

Tuesday, April 26, 2016

A Question We Often Avoid - Why do "Chronic Pain Patients Commit Suicide?

This is a subject we often do NOT want to speak about. But, it happens daily in our lives, for all kinds of reasons... this U-Tube Video is a gentleman speaking about a questions asked to him in a group setting about "Why Chronic Pain Patients Kill Themselves?" 

I watched the video and what he says is true... there can be all kinds of reasons, but for anyone who had been "healthy and stable", and suddenly something comes into play that takes away all "hope" then those are people that can suddenly decide they no longer can take another day, due to the pain, there is no "hope" for something better in the future and so forth... so I wanted to share this with all of you today...