Showing posts with label March 2014 Advocacy Summit capitol hill. Show all posts
Showing posts with label March 2014 Advocacy Summit capitol hill. Show all posts

Saturday, January 9, 2021

Our Nation Out of Control, So much for a Hope filled and Happy 2021! It's almost a night terror

 It is to the point of being unbearable, and just not even fathomable to believe what is happening in this nation....


Thoughts....


As I Said below "SO MUCH FOR A HAPPY, HOPEFUL & BRIGHT 2021!😔 and if I said what I "think" I would probably have my home burned & be shot! Sorry folks I cannot fathom some of the things I've seen posted in places.... insanity, and now again rather than the focus on "COVUD-19" and the new strain that is already in TX, and all of those who have lost their lives or loved ones & now after that many people so elbow to elbow fighting, bleeding, breathing on one another... what about even worse than the pandemic than we already have! We don't have enough hospitals, beds, nurses, doctors, medications already and it just grows worse by the moment. What about all of us who are trying to "fight to keep well"? We are doing everything we can to avoid getting sick ourselves or making others sick??? We masks use curbside maintain distances, try and stay home, order online, sanitize, & I don't know about others but although I need a couple of things from the market today before the bad weather hits tomorrow, I FEAR going into any store..I am sure many will be in the stores not following guidelines and I am someone who really "should" have a vaccine... due to Lupus, RA. Heart conditions after 2 heart attacks, pseudo-gout plus the medications that cause me to be prone to getting sick & facing possible back surgery, but I have to wait, although even at a surgery center I still fear the virus, I have not started my new RA medication yet and should have 2 months ago, but feared changing it in the midst of all of this might cause me issues.. even my Rheumatologist does not know I have not changed. I am supposed to go to see him next Friday, but under what has happened I am going to ask for another virtual visit. even though he is in one of the doctor's buildings, they still are probably the largest medical facility with many hospitals... then I have to go to Dallas to have my pain pump refilled by the 18th. that one I can't miss, it has to be filled and the doctor has to do it. Then I was already hurting badly enough, and i guess due to this weather change coming, I could barely walk when I got up... I probably am in a Lupus/RA flare... BUT so many do not consider their consequinces of actions to what they can do to others, their families, friends & those out trying to help us daily. It is just almost unbearable and like some night terror in this country.


I am just completely frustrated with LIFE! People (it seems MANY have gone NUTS) I could not believe my eyes last night on the television! I completely turned off the news and watched other things... most channels were showing that horrid, terrible, insane scene in D.C.! To think I WALKED THRU THOSE VERY HALLWAYS in 2014!!!! When I went as an Ambassador with the Arthritis Foundation... and knowing how HUGE ND HOW DIFFICULT IT IS TO GET AROUND IN THERE - HOW THE HECK THAT MANY PEOPLE COULD BREAK INTO CONGRESS IS BEYOND ME!!!! I HAVE ONE QUESTION??? IF "HOMELAND SECURITY" COULD NOT "NOW THIS AHEAD OF TIME" AND KEEP IT ROM HAPPENING HOW CAN WE FEEL SAFE FROM "OTHER TERRORISTS?" WE surely have ENOUGH "home grown ones right here!"

Tuesday, April 21, 2020

LIFE CAN FOREVERMORE CHANGE WITH A BREATH'S SPACE....

March 2014 right around this time, I was at my very 1st "Summit on the Hill" With the Arthritis Foundation! I was also in Washing DC for my 1st time. The weather was too cold... in fact sloppy wet snow and cold. about NOON i get a call from my then Mother In Law, who lives right there at DC. Although I had never met her in person, nIb felt after talking to her almost 10 years, ( and her accent is still sob awesome being from Columbia).. my Rheumatologist is also from Columbia, although both of them have not loves there in many. many years... he also still has that very special "accent".. At the same time I was awaiting a plane from DFW to land a bit later in the day... Jim was flying in to be with his bMom and I. He was going to show me DC & get to visit with his Mom for a few days... almost all at once MY CELL PHONE BLOWS UP!!!! NEVER does my cell BLOW UP!!! But, it was loud in the Hotel Lobby, & i was waiting my my Mother in Law, Hilda...I was nervous & she has went to the wrong Hotel by mistake so she was running a bit behind... BUT, the phone coming to pieces, was not about her, but Jim... he had been in an EXTREMELY SERVE CAR WRECK ON I-45, ON THE way to DFW to fly out to DC!!! AS I TRIED TO HANG ON AND LISTEN TO THE ER TRAUMA SPECIALIST I FELL TO MYV KNEES! I had to hand the phone to on of my had been team mates & allow them to take notes etc.... At that moment HILDA walks IN, she Sees me hysterical and SHE THOUGHT I WAS UPSET BEAUSE SHE WAS RUNNING BEHIND TO PIC ME UP!! So, i had to stand there in front of a dear sweet lady, whom I had never met in person and tell her what I knew about the car wreck and her son... NEVER WILL I EVER HOPE TO HAVE TO HAVE AN EXPERIENCE LIKE THAT AGAIN! He was in really bad shape, but after months in the hospital & inpatient rehab, he survived and even after LOTS of HARDWARE to put MUCH of his mid spine back together... HE walks!!!! The gentleman that helped me on the phone with the doctors happened to be flying out on the same plane the AF got me on to head back to TX. They were awesome, had me on a plane within hours, and he stayed with me till Dallas, and he went on to Denver to Another Summit. To top it off, after my son picked me up at the airport, it was late night.. and at the hospital, he was in ICU, and really had no clue about what even happened.. Since I needed to EAT I had not since bI think 2 days before & get some rest, take a shower... so my son and I stayed at a near by hotel.. and i guess I was so shaken, so beside myself and in shock, plus the HOTEL's OUTDOOR LIGHTS TO OUR DOOR TO GO IN TO THE HOTEL WERE OUT! I TRIPPED, FELL FLAT ON MY FACE, busted a tooth partially out, it went through my CHIN, and I looked like I had been in a bar fight... MY REASON for TELLNG THIS, IS FOR ONE being right at the Anniversary" of that in March 2014, plus HEARING THEB NURSES 7 DOCTORS WHO HAVE TO SIT WITH PATIENTS, HOLD THEIR HANDS 7 THE FAMILY CANNOT EVEN GO IN TO THE ROOM TO SAY GOODBY TO A LOVED ONE!!! Those stories shall remain with them the rest of their lives... and they always at times come back, just as if it were "yesterday".... SO TELL YOUR LOVED BONES YOU LOVE THEM, SHOW THEMB SPEND TIME WITH FAMILY & FRIENDS... "In A MOMENT, within a BREATH'S SPACE, LIFE CAN FOREVERMORE CHANGE......



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