Monday July 8th HEADLINES- Folks this is sad and scary for one day’s worth of headlines??????
1) 42 dead, 322 hurt in clashes near pro-Morsi sit-in
2) Extreme summer weather grips nation
3) Flash flood warnings from Gulf Coast to Ohio Valley
4) 'Surreal' escape: How survivors fled badly damaged Asiana Flight 214
5) Will forests flourish after fires? In a warming world, not always
6) Plane crash in Alaska kills 10
7) Captain of crashed San Francisco plane was 'in training,' had only 43 hours piloting 777s
Syrian opposition head expects advanced weapons
9) Five die, 40 missing after Canadian freight train disaster
10) Singapore Inquest Rules American Killed Himself
11) Bus swerves off the road and crashes in central Spain, killing 9 people and injuring 21 others, Spanish police say -
12) Ohio sinkhole swallows woman's car
13) Officials say gunmen kill 6 people in Iraq ambush
14) Fearing contamination, Chinese pay more for imported infant goods
15) WHO forms emergency committee on new MERS virus
16) Insecticides can weaken and kill honeybees -- that's bad news
if the last one is the "bad news" damned what about the ones ahead of it? Of course No Honeybees means we are doomed anyway!!!
When I came as usual to my computer to check the weather first, then
read the headlines, all I wanted to do is turn off my computer, hide in a
hole, and forget about everything in THIS world! My Lord!!! Where are
all the "good" headlines? Now, one could look at this several ways. One,
our world is a frigged up mess!!!! Each day we are so bombarded with
all of the horrid crap going on in our towns, cities, counties, states,
nations and countries... we almost act "benign" to it all. We have grown
accustomed to seeing the bad that we do not stop to think, GOD! What is
happening??? We take it all with a grain of salt and go on. Or we could
look at all of this and say it is the "news" media. Let's face it!
"GOOD" news does not SELL like "bad" news does!!! People want the hard
core, gory details of everything that is a slaughter house type of news
story, but the "good stuff" many just blow off. Or what I feel is the
first two are true, but that is because that we have gone ape shi&
nuts! We have destroyed our water, land, and air! We are people that are
crazed with MORE, MORE,MORE & ME, ME ,ME!!! Greed runs our nations
and countries, including our governments, and corporations. Those WITH
the MONEY RULE whether we want to believe it or NOT, they rule over all
of us that "think" we are the middle guys or the poor. WE are NOT the
ones with the "good" life! Look around, from fire to floods, from
drought to famine, from hurricanes to tornado's, from changes in our
weather patterns that have reeked such havoc over our country alone,
that we have lost billions of acres of our land to such disasters
man-made and human, that most of us living today will never see
"Humpty-Dumpty" put back together again. In other words, our
temperatures right here in my own home town have soared so high, and we
have had such drought conditions, that many, many of our huge 100 year
old trees, all of our trees, appear that they might just die! We
ourselves have lost two huge trees that have to be over 50 years old.
And we fear losing the three incredibly beautiful blooming ones in our
front yard! They are so in lack of moisture they can't even bloom
properly. We have been here 7 years and I have never seen things so bad,
and that is just our lawn. Drive around our town, and so many lawns,
trees, shrubs, things that were planted years and years ago are
shriveling and dying due to extreme heat and lack of water! And there is
no way to afford to try and water all of these, you could not pay the
bill it would be so high, plus things are in such dire straits, it would
not help anyway. Then we also suffered the tornado damage. It was not
like many, many other towns around our nation, but it was not great
either. We have suffered thousands and thousands of dollars of damage
that some is just irreparable. You cannot put "value" on personal
photos, things the are of value in the heart, not monetarily when
disaster strikes.
We have become so selfish, so inward, rude,
insensitive, and just plain, right down unwilling to open our eyes, and
see that the world is growing near that "time" closer every day. And we
go one doing, being, and not seeing that we should STOP and give some
thought to each day... when you SEE HEADLINES!!! like this day after
day, after day... killings, murders, man made disasters, Mother Nature's
wrath upon how we have mistreated everything we have been given... and
people have "No Time To "waste" and the song title says another word,
but if I put the correct word in there I might have the nations spies
knocking on my door... anyway, no time to be "bothered" to help someone
else. Rudeness prevails. People are so lazy, or so uncaring about
others, that they cannot take one extra minute to put a shopping cart
back in the front door at Wal-Greens!!!! Now tell me why it is so damned
hard to walk an empty basket in the front door of the store and put it
up??? IT just bugs me to no end, and I put EVERY one of them up each
time I see then sitting on the sidewalk outside the store! Wal-Greens
does not have space or a place for baskets to sit outside. They can roll
out in the street, or damage a car... or someone fall over one... why
can you have time to bring it out to your car, but you cannot take that
one more minute to roll it in???? Because we have "no time" to be
bothered with being "nice", or thoughtful. WE push our way into this
world, and then we push, shove, and scratch our way through out the
world the rest of our lives... often putting everything "we" want ahead
of all others and all other things. So, today as YOU read these
headlines, ask yourself...How do THEY make YOU FEEL!??? What you do
think when you read all the "bad" in our news daily? It makes me
literally sick!!!! (by the way, I am not one to "profess" and speak
about "religion" here or online, I speak about FAITH often, and I do not
want to sound like some "doomsday" prophet, but we should be on our
knees everyday praying for things to be better, asking for things in
people's hearts and minds to change. I fear... it is TOO LATE to "fix"
this world....(IMOHP)... not anything, anyone has to agree with me
about....Rhia
This
is the song I was speaking of in this post..."No Time To Kill" by Clint
Black... The lyrics remind me always of just how crazed this world is,
how hurriedly we allow things that should matter to pass us by... and
the things that don't we allow to take over our lives .....
Clint Black
There's no time to kill between the cradle and the grave
Father Time still takes a toll on every minute that you save
Legal tender's never gonna change the number on your days
The highest cost of livin's dyin', that's one everybody pays
So have it spent before you get the bill, there's no time to kill
If we'd known ten years ago today would be ten years from now
Would we spend tomorrow's yesterdays and make it last somehow
Or lead the cheers in someone else's game and never learn to play
And see the rules of thumb are all the same that measure every day
The grass is green on both sides of the hill, there's no time to kill
No time to kill, even I've said it, and probably always will
But I can look ahead and see that time ain't standin' still
No time to kill but time to change the kind of hurry I've been in
And quit this work and worry lookin' back at where I've been
If you don't look ahead nobody will, there's no time to kill
If we had an hour glass to watch each one go by
Or a bell to mark each one to pass, we'd see just how they fly
Would we escalate the value to be worth its weight in gold
Or would we never know the fortunes that we had 'til we grow old
And do we just keep killin' time until there's no time to kill
No time to kill, even I've said it and probably always will
But I can look ahead and see that time ain't standin' still
No time to kill but time to change the kind of hurry I've been in
And quit this work and worry lookin' back at where I've been
If you don't look ahead nobody will, there's no time to kill
No time to kill, even I've said it and probably always will
But I can look ahead and see that time ain't standin' still
No time to kill but time to change the kind of hurry I've been in
And quit this work and worry lookin' back at where I've been
If you don't look ahead nobody will, there's no time to kill
No time to kill
No time to kill
No
time to kill
Clint Black No Time To Kill
Lyrics....
"Through my heart's work of writing, I share with you my complex journey a top the mountain, sliding down, crawling up, & living through the realms of Autoimmune Arthritic Illnesses. Taming "The Wolf" Thru each Day... One Step at a Time … Together We Are Learning to Survive. Please follow along, to New Beginnings - looking Thru the Window Pane of Pain in life where we shall find our journey leading us to - New Perspectives
Monday, July 8, 2013
Thursday, July 4, 2013
Happy 4th of July!!!! And things Keep Me Busy!
Lots going on lately! Of course wishing everyone a Happy and Safe 4th of July! Kind of wished I would have packed up my Mom and went to the Casino for the day. But, I figure between all of the traffic through Dallas, and the crowd at the Casino, Sunday will more than likely be a much better day! Just found out we are having a Class Reunion this Fall! I am so thrilled. I am trying to write "lyrics" or a poem for it. Right now it sounds more like lyrics in my head, but with mine you never know...LOL! I missed the last one. I just did not get the information in time, and missed it by about a week. So, I am going to try and be involved with this one and help out with what I can! We have new baby robins! They are in our tree right in the front yard and we have been observing them and their parents. It has just fascinated me to no end to watch them. The way they do things, protect them, others are building nests now, and I just am amazed. I also saw a hummingbird yesterday finally!!!! After my daughter suggested some flowering bushes, and I picked up a few others and got them planted, then all of a sudden yesterday we saw a couple of them right by our feeders! So, I got up early and cleaned the feeders and refilled them with new food! I am so hoping they stay around for the summer, but I have come to realize they can be quite fickle. Anyway, just lots of stuff going on... do hope to take Mom to either Choctaw or Winstar Sunday... I have been having issues with pain and weakness again in my legs... in the front and back of my calves, plus more pain and stiffness in my feet, ankles, wrists and hands. I see my Rheumatologist I think in August, thank goodness. Rather than his "PA" I get to see him as far as I know. That will be a much better scenario. I just do not care for her at all... she is just one of those that blows you off, and does not give a darned what you want to say, etc... and my Rheumy is SO incredible! So, it will be nice to get to see him... it has been over 6 months since I got to. more to come... I am just doing stuff around the house today, cooked a little, messing with my drums and keyboard... or I may not do a thing but sit on my butt!!! LOL!!!:) Hugs to All, Rhia
Wednesday, July 3, 2013
Lots on My Mind but Nothing Coming To Fruition
I have been "absentee" lately. I mean as of being here to write. Not that I have not written something, at least in my head. I have had a really difficult week or so. Between being upset over Mom and I not going to the Casino on Sunday, which I feel was my own fault, to just my own inner feelings and emotions... add in hot weather, errands, the endless battle of medications, doctors, pharmacies, insurance and people who just cannot or will not do their jobs, & being chronically ill... ah, and of course the importance of everything that is so tragic around our globe, it is hard to NOT be disgusted, disenchanted, and disconnected. I think that might be a great word to describe how I've felt the last couple of weeks... disconnected.
Due to what should have been "stormy weather" (sounds like the name of a song) :) ... that caused me to decide to postpone our girls trip on Sunday, to the point that it did NOT rain, and the sun was shining beautifully all day, I got pissed at myself. I have to wonder if that was just an excuse not to go. If I was trying to get out of going with my Mom to the casino, why did I? I love going! I love that day trip, whether all three of us go, or just "the girls" as I say when my Mom and I go alone, because Jim stays home to work, I always enjoy going. We do NOT spend a great deal of money. It is more about getting out, being together, enjoying a "huge" McDonald's Dollar Menu breakfast along the way, and then just the excitement of watching people, seeing how they play, doing a little playing ourselves, and being out of the house. So, "money" per se, is really not it. Lord knows I am in this house, or may I say at home just about all the time. Other than running errands, the market, or the occasion hated trip to Wally World, I am at this house, either out or in. Am I just getting old? Again I know I am slower than ever. I have tried in every way to figure out a way to get dressed quicker, get my make up and hair done... and be out the door in less that over 3 hours. I was not like that just a few years ago... now I just have to almost get out of the shower, put some gel in my hair, while it air dries, throw clothes and my sandals on, if I am really with it, my watch, earrings and ankle bracelet, and lately not even the usual necklace gets put on. I have this thing now that I question my motivation... or may I day "What motivation?" !!! Now I think to myself "Why the necklace or makeup". I am just going to Wally World, or to pay the water bill. It is not like I will run into the President of the United States while in down town Ennis!!!
I still run flat into my own wall though, no matter which direction I turn. I try and tell myself that I will "feel better" if I do, this, that or the other. If I "dress up" (by dress up I mean put my makeup on, fix my hair up, and so forth) I will feel better. Well, I am here to tell you when chronic pain and illness falls upon you, dressing up does not necessarily mean you will have a better emotional time at that moment. It may, don't get me wrong. Of course I never make a "run to the store" and not at least be showered, looking presentable. I can say that is more than I see in our local markets and our local Wally World. I just saw a "poll" the other day about what you "can't stand" as far as what happens in the market. Out of the top ten things, a woman in her flannel pajamas and a night shirt on. I must say that is almost my number one peeve! BAD customer service of course is the first one, bur right behind that is others that do not have the gumption to at least put on shorts or jeans and a shirt. Good Lord, even at my worst, I think the ONLY time I have been out in public with flannels bottoms on is a the emergency room, or dog sick at my doctors office.
I am not sure exactly what has drawn me into the inner place of really not wanting to do any one thing. Usually I love baking, or of course writing. I love playing the drums, or the keyboard. I absolutely love being out side during the sunny days of summer. Even that with all of our new bushes and flowers does not really thrill me either.
If anyone did not know me well, and came around, they would swear I was depressed. I guess in a way you could call it somewhat depressed. But, I feel I am not that much in a depressive state, as much as I am in a state of trying to not think I am totally disillusioned with everything.
What have a truly accomplished in my life time? Have I or am I on the path I am supposed to follow to get me where I need to be? At 53, I get to thinking about this 35 YEARS!!!! yes 35 YEARS!!! since I graduated from High School! That seems totally impossible. In many ways it feels like was just a few weeks ago. I can still remember walking those stairs in the old High School Building, that did not even have an elevator to my knowledge. There were 3 floors, and then a basement floor. The 2nd floor contained the main office and the library. I always loved the library. It faced the back of the building, but it still had good view. I remember the building where journalism and our school paper was. I remember many of my class rooms, and my teachers.
As we get ready to have our 35th reunion, I have had many things rushing through my mind. How many of us stayed right here, yet there were lots of us that scattered to the 4 winds. From a vet, to several who are Aggies, foot ball coaches, Mom's and Dad's, nurses doctors, some took over their own family business. Some building homes, other artists, bankers, and just every day folks that can also remember well those high school years.
Some I am sure have had the journey of their lives such as mine. I traveled to several places along the way since I left Ennis High in November 1977. From marrying 3 days later, to working at Ennis Business Forms. Then to being a single Mom, and working in Dallas at a bank. Then to a bank here back home, going to college part time, remarried and having my daughter, a 2nd child. After that time seemed to really go by fast. Kids seem to keep you young, and then one day you wake up, the house is quiet and their gone. I made a move to California for awhile, and in fact was their another short time just a few years ago, before moving back to my home town. Oddly enough I made a "full circle" through the journey of my life. Getting to experience Seattle, which was just incredible for 5 years, 2 different places in CA, Lancaster and San Pedro, both were just wonderful. Austin was also a wonderful city. It was beautiful, and big enough, with being too huge. I got to spend only a week in Florida, but wow talk about a week that truly remained one of the high lights of my life. Hollywood Florida, has to be one of the most incredible places in the entire US! It was just magnificent and I would have given my eye teeth to live in the house we looked at. Yet, for reasons we often do not understand, it was not meant for us to be there. So, when Ennis called us back, I returned, and will probably remain here, but that is also okay. My Mom is here and she needs me, and my days of traveling and moving I feel are over. '
When I consider all that I have had the fortunate things to do, and accomplish; although some would think that is not much, I should be elated, not down in the dumps about where my life has been, gone, went, and now is. There are so manyy more times I would have loved to be on the ski slopes, or the dance floor, or had the opportunity to learn to play the drums better, the guitar better, take more art lessons, accomplish a great book that would "sell". I would have loved to flown to Europe, and seen all of the "great" places there. Germany, France, Italy, Spain, Malta, Czechoslovakia, The entire UK, and many more. Spices from all of the exotic places, and see all types of different buildings, museums, and monuments. There are still many states and things in out country I have yet to do and want to do.
So, pieces of me are in a spot of restlessness, of wanton... of the things I have missed out in my life. Yet, just me climbing on a chair to change a light bulb can be a little "iffy" now.
As you celebrate this holiday and you look around at your life, your family, your friends, kids, you can also give a shot at thinking about all that life has brought to you... those things that you may not regret, but wished you still had the chance to do.... remember you still just might... some sky dive at 80, some deep sea dive at 75, their are still lots of great years ahead of you.... so never let the fear of living keep you from doing just that.... living...
Due to what should have been "stormy weather" (sounds like the name of a song) :) ... that caused me to decide to postpone our girls trip on Sunday, to the point that it did NOT rain, and the sun was shining beautifully all day, I got pissed at myself. I have to wonder if that was just an excuse not to go. If I was trying to get out of going with my Mom to the casino, why did I? I love going! I love that day trip, whether all three of us go, or just "the girls" as I say when my Mom and I go alone, because Jim stays home to work, I always enjoy going. We do NOT spend a great deal of money. It is more about getting out, being together, enjoying a "huge" McDonald's Dollar Menu breakfast along the way, and then just the excitement of watching people, seeing how they play, doing a little playing ourselves, and being out of the house. So, "money" per se, is really not it. Lord knows I am in this house, or may I say at home just about all the time. Other than running errands, the market, or the occasion hated trip to Wally World, I am at this house, either out or in. Am I just getting old? Again I know I am slower than ever. I have tried in every way to figure out a way to get dressed quicker, get my make up and hair done... and be out the door in less that over 3 hours. I was not like that just a few years ago... now I just have to almost get out of the shower, put some gel in my hair, while it air dries, throw clothes and my sandals on, if I am really with it, my watch, earrings and ankle bracelet, and lately not even the usual necklace gets put on. I have this thing now that I question my motivation... or may I day "What motivation?" !!! Now I think to myself "Why the necklace or makeup". I am just going to Wally World, or to pay the water bill. It is not like I will run into the President of the United States while in down town Ennis!!!
I still run flat into my own wall though, no matter which direction I turn. I try and tell myself that I will "feel better" if I do, this, that or the other. If I "dress up" (by dress up I mean put my makeup on, fix my hair up, and so forth) I will feel better. Well, I am here to tell you when chronic pain and illness falls upon you, dressing up does not necessarily mean you will have a better emotional time at that moment. It may, don't get me wrong. Of course I never make a "run to the store" and not at least be showered, looking presentable. I can say that is more than I see in our local markets and our local Wally World. I just saw a "poll" the other day about what you "can't stand" as far as what happens in the market. Out of the top ten things, a woman in her flannel pajamas and a night shirt on. I must say that is almost my number one peeve! BAD customer service of course is the first one, bur right behind that is others that do not have the gumption to at least put on shorts or jeans and a shirt. Good Lord, even at my worst, I think the ONLY time I have been out in public with flannels bottoms on is a the emergency room, or dog sick at my doctors office.
I am not sure exactly what has drawn me into the inner place of really not wanting to do any one thing. Usually I love baking, or of course writing. I love playing the drums, or the keyboard. I absolutely love being out side during the sunny days of summer. Even that with all of our new bushes and flowers does not really thrill me either.
If anyone did not know me well, and came around, they would swear I was depressed. I guess in a way you could call it somewhat depressed. But, I feel I am not that much in a depressive state, as much as I am in a state of trying to not think I am totally disillusioned with everything.
What have a truly accomplished in my life time? Have I or am I on the path I am supposed to follow to get me where I need to be? At 53, I get to thinking about this 35 YEARS!!!! yes 35 YEARS!!! since I graduated from High School! That seems totally impossible. In many ways it feels like was just a few weeks ago. I can still remember walking those stairs in the old High School Building, that did not even have an elevator to my knowledge. There were 3 floors, and then a basement floor. The 2nd floor contained the main office and the library. I always loved the library. It faced the back of the building, but it still had good view. I remember the building where journalism and our school paper was. I remember many of my class rooms, and my teachers.
As we get ready to have our 35th reunion, I have had many things rushing through my mind. How many of us stayed right here, yet there were lots of us that scattered to the 4 winds. From a vet, to several who are Aggies, foot ball coaches, Mom's and Dad's, nurses doctors, some took over their own family business. Some building homes, other artists, bankers, and just every day folks that can also remember well those high school years.
Some I am sure have had the journey of their lives such as mine. I traveled to several places along the way since I left Ennis High in November 1977. From marrying 3 days later, to working at Ennis Business Forms. Then to being a single Mom, and working in Dallas at a bank. Then to a bank here back home, going to college part time, remarried and having my daughter, a 2nd child. After that time seemed to really go by fast. Kids seem to keep you young, and then one day you wake up, the house is quiet and their gone. I made a move to California for awhile, and in fact was their another short time just a few years ago, before moving back to my home town. Oddly enough I made a "full circle" through the journey of my life. Getting to experience Seattle, which was just incredible for 5 years, 2 different places in CA, Lancaster and San Pedro, both were just wonderful. Austin was also a wonderful city. It was beautiful, and big enough, with being too huge. I got to spend only a week in Florida, but wow talk about a week that truly remained one of the high lights of my life. Hollywood Florida, has to be one of the most incredible places in the entire US! It was just magnificent and I would have given my eye teeth to live in the house we looked at. Yet, for reasons we often do not understand, it was not meant for us to be there. So, when Ennis called us back, I returned, and will probably remain here, but that is also okay. My Mom is here and she needs me, and my days of traveling and moving I feel are over. '
When I consider all that I have had the fortunate things to do, and accomplish; although some would think that is not much, I should be elated, not down in the dumps about where my life has been, gone, went, and now is. There are so manyy more times I would have loved to be on the ski slopes, or the dance floor, or had the opportunity to learn to play the drums better, the guitar better, take more art lessons, accomplish a great book that would "sell". I would have loved to flown to Europe, and seen all of the "great" places there. Germany, France, Italy, Spain, Malta, Czechoslovakia, The entire UK, and many more. Spices from all of the exotic places, and see all types of different buildings, museums, and monuments. There are still many states and things in out country I have yet to do and want to do.
So, pieces of me are in a spot of restlessness, of wanton... of the things I have missed out in my life. Yet, just me climbing on a chair to change a light bulb can be a little "iffy" now.
As you celebrate this holiday and you look around at your life, your family, your friends, kids, you can also give a shot at thinking about all that life has brought to you... those things that you may not regret, but wished you still had the chance to do.... remember you still just might... some sky dive at 80, some deep sea dive at 75, their are still lots of great years ahead of you.... so never let the fear of living keep you from doing just that.... living...
Wednesday, June 26, 2013
"Mystery" of Fibromylagia Could be Solved!!
http://www.ncbi.nlm.nih.gov/pubmed/23691965
http://www.intidyn.com/Newsroom/article-0009.html
This is just incredible!! IF they now have all of this, there is certainly a way to "cure" it!!! I just had to post this for all of the millions that suffer with this illness that are still all too often told "it is all in your head" NO! It is in your skin!
http://www.intidyn.com/Newsroom/article-0009.html
This is just incredible!! IF they now have all of this, there is certainly a way to "cure" it!!! I just had to post this for all of the millions that suffer with this illness that are still all too often told "it is all in your head" NO! It is in your skin!
Tuesday, June 25, 2013
Truly "Living" between Flares
Life without chronic illness is difficult enough these days. Our times seems to never be our own. When you work outside the home, have children, and try to maintain a home, how you work in "self time" is certainly a challenge.
Yet, when you deal with a chronic illness or illnesses, especially those that bring pain, fatigue and other symptoms that slow you down, it is just as bad as the above. You may not work "outside" the home, and due to illness and pain, you do not have the capability to do all you set out to do in a given day, thus time is even more of a precious commodity. I have been so very fortunate to have most of the long time "flares" seemingly under control. Even though it took many years, even my husband and family notice that my days and weeks of being on the sofa, day after day, not able to do much of anything have become less and less. The past couple of months have just been mind boggling even for me. Sure, I still have daily pain, stiffness, swelling, and the fatigue is always on the back burner simmering. Yet, I have been able to keep them under control, at bay, for a good while now.
The spring and summer always seem to help bring even the worst of chronic illness somewhat to a lesser stance. You still have symptoms, they are like the wolf, always underlying, you know they have not left for good. Yet, medications seem to work better, just having an increase of sun light, and not so much dreary and dark time in our days, the warmth (LET'S SAY Hot as HADES!!) in TX now, the beauty of flowers, green trees, and all of the "renewal" of life, is like breathing fresh life into your own body. Now, I must admit there are some things about the heat and sun that are not good at all for diseases such as Lupus, RA, FM, CFS and the like. As wonderful as sunlight is for all of us, when filtered out from the harmful rays with the proper sunscreen, it can bring an acute flair of Lupus on. You must be extremely cautious about the sun. I know I get a little lax in putting on my sunscreen, or I want to run out in middle of the hot part of the afternoon and put more water on my newer planted plants, and as soon as I step into that hot sun, beading down on me, I can just feel it blistering my skin. I know the Lupus has lots to do with it, but so do some of the medications I take for the Lupus. My skin has become so thin, that a few moments out in full sun, and I am baking not the correct kind. So, please heed the warnings, for all, if you are outside, use the sunscreen to block those harmful rays and do not overheat when doing activities such as yard work. IF you have Lupus, you want to AVOID the full sun as much as possible. Use your sunscreen especially a good one on your face. You have the added benefit of helping to hold back wrinkles and fine lines that those sun worshipers tend to find at a young age.
Thus back to my story. I have been able for weeks now to enjoy being outside. Along with the coming of spring and summer came a renewal of life almost, when I an able to be out in the wonders of the warm weather. I love the plant life, all of the blossoms, the greenness of the trees, the breeze when it is here and not a hot breeze, planting new plants, and all that you can do when the days are longer. Yet I know I take a chance when I get out and "overdo". I know on those days I feel almost normal again, so I want to cherish every moment, by working everything possible in that I have not felt like doing for so long.
Of course, I knew there would soon come a day that the "wolf" would rear his ugly head, and yesterday was the day. I woke feeling like I had partied for days without stopping. I felt like I had a hangover from hell, severe headache, nauseated, pain in my joints, fatigue, and just so lethargic. All of those symptoms you dread, because you know what they mean. Thus I was on the sofa most of the day yesterday. Then you are concerned... you ask yourself "is this just a one day thing", or is this going to turn into a full blown flare? You make it almost worse because you question your own motives. Yet, I tried my best not question whether this is a full blown flair, and try to not feel "personally" responsible it came on. There are times when someone with Lupus may not appear to do anything to "cause" this horrid "Wolf" to surface and yet you still have all of the symptoms. Other times you may be out and about for weeks at a time, even months, staying busy, not even concerned about this chronic illness coming on. And you may run errands, be outside, do yard work, house work, and run around like a "chicken with your head cut off" as my Dad used to say, yet the activities don't effect your outcome of a flare or not. So, as I walked in the very early dawn around my driveway for my usual exercise time, I thought about lyrics to a song that somehow could "signify" all the different things and ways Lupus and the other Chronic Illnesses and Pain act in your life... But, I want to make it more not actually using the Lupus word in the song... but someway I want to get the message over about the heart ache, the devastation, the pain, the fogginess... yet just how much courage you have to have to rise above all of that each morning, face the day... and try to meet the challenge of these illnesses no matter what they decide you should stand for in your life. LOL, brain fog at the moment in fact has set in. I have a certain "word" I want to use to describe what I want the lyrics to be, yet I can't think of the exact word to describe what I am speaking of.
Thus, so as I walked and walked, singing to myself, different ways to put lyrics, in order for whomever hears it will know it is about a heart ache, but not one about love's and the way it can break your heart... I want to word it to where... it is a ........ well damned, an explanation about the disease and its symptoms without using Lupus etc in it exactly... Ah!!!! "Metaphorical Music!" that is the "term" I spent hours looking for to describe the type of music lyrics I am trying to write. See, another day of haze from my brain... yet I won't allow that wolf to get hold of my reigns.... I see him coming, I hear his roar... for I Know the Wolf can come a knocking at my door...
Just a line or so I thought might work... not sure.. but at least I finally found what one word I was trying my damnedest to think of....
Okay, more things to do, like get over the damned "sting" that I got this am while watering plants outside... I received a surprise that I did not want... not sure what it was but I think a ground hornet that decided to use my foot for his stings... I cried and screamed... OMG right between my toes...
Thus I am a bit tired this morning, and kind of worn down...
Yet, when you deal with a chronic illness or illnesses, especially those that bring pain, fatigue and other symptoms that slow you down, it is just as bad as the above. You may not work "outside" the home, and due to illness and pain, you do not have the capability to do all you set out to do in a given day, thus time is even more of a precious commodity. I have been so very fortunate to have most of the long time "flares" seemingly under control. Even though it took many years, even my husband and family notice that my days and weeks of being on the sofa, day after day, not able to do much of anything have become less and less. The past couple of months have just been mind boggling even for me. Sure, I still have daily pain, stiffness, swelling, and the fatigue is always on the back burner simmering. Yet, I have been able to keep them under control, at bay, for a good while now.
The spring and summer always seem to help bring even the worst of chronic illness somewhat to a lesser stance. You still have symptoms, they are like the wolf, always underlying, you know they have not left for good. Yet, medications seem to work better, just having an increase of sun light, and not so much dreary and dark time in our days, the warmth (LET'S SAY Hot as HADES!!) in TX now, the beauty of flowers, green trees, and all of the "renewal" of life, is like breathing fresh life into your own body. Now, I must admit there are some things about the heat and sun that are not good at all for diseases such as Lupus, RA, FM, CFS and the like. As wonderful as sunlight is for all of us, when filtered out from the harmful rays with the proper sunscreen, it can bring an acute flair of Lupus on. You must be extremely cautious about the sun. I know I get a little lax in putting on my sunscreen, or I want to run out in middle of the hot part of the afternoon and put more water on my newer planted plants, and as soon as I step into that hot sun, beading down on me, I can just feel it blistering my skin. I know the Lupus has lots to do with it, but so do some of the medications I take for the Lupus. My skin has become so thin, that a few moments out in full sun, and I am baking not the correct kind. So, please heed the warnings, for all, if you are outside, use the sunscreen to block those harmful rays and do not overheat when doing activities such as yard work. IF you have Lupus, you want to AVOID the full sun as much as possible. Use your sunscreen especially a good one on your face. You have the added benefit of helping to hold back wrinkles and fine lines that those sun worshipers tend to find at a young age.
Thus back to my story. I have been able for weeks now to enjoy being outside. Along with the coming of spring and summer came a renewal of life almost, when I an able to be out in the wonders of the warm weather. I love the plant life, all of the blossoms, the greenness of the trees, the breeze when it is here and not a hot breeze, planting new plants, and all that you can do when the days are longer. Yet I know I take a chance when I get out and "overdo". I know on those days I feel almost normal again, so I want to cherish every moment, by working everything possible in that I have not felt like doing for so long.
Of course, I knew there would soon come a day that the "wolf" would rear his ugly head, and yesterday was the day. I woke feeling like I had partied for days without stopping. I felt like I had a hangover from hell, severe headache, nauseated, pain in my joints, fatigue, and just so lethargic. All of those symptoms you dread, because you know what they mean. Thus I was on the sofa most of the day yesterday. Then you are concerned... you ask yourself "is this just a one day thing", or is this going to turn into a full blown flare? You make it almost worse because you question your own motives. Yet, I tried my best not question whether this is a full blown flair, and try to not feel "personally" responsible it came on. There are times when someone with Lupus may not appear to do anything to "cause" this horrid "Wolf" to surface and yet you still have all of the symptoms. Other times you may be out and about for weeks at a time, even months, staying busy, not even concerned about this chronic illness coming on. And you may run errands, be outside, do yard work, house work, and run around like a "chicken with your head cut off" as my Dad used to say, yet the activities don't effect your outcome of a flare or not. So, as I walked in the very early dawn around my driveway for my usual exercise time, I thought about lyrics to a song that somehow could "signify" all the different things and ways Lupus and the other Chronic Illnesses and Pain act in your life... But, I want to make it more not actually using the Lupus word in the song... but someway I want to get the message over about the heart ache, the devastation, the pain, the fogginess... yet just how much courage you have to have to rise above all of that each morning, face the day... and try to meet the challenge of these illnesses no matter what they decide you should stand for in your life. LOL, brain fog at the moment in fact has set in. I have a certain "word" I want to use to describe what I want the lyrics to be, yet I can't think of the exact word to describe what I am speaking of.
Thus, so as I walked and walked, singing to myself, different ways to put lyrics, in order for whomever hears it will know it is about a heart ache, but not one about love's and the way it can break your heart... I want to word it to where... it is a ........ well damned, an explanation about the disease and its symptoms without using Lupus etc in it exactly... Ah!!!! "Metaphorical Music!" that is the "term" I spent hours looking for to describe the type of music lyrics I am trying to write. See, another day of haze from my brain... yet I won't allow that wolf to get hold of my reigns.... I see him coming, I hear his roar... for I Know the Wolf can come a knocking at my door...
Just a line or so I thought might work... not sure.. but at least I finally found what one word I was trying my damnedest to think of....
Okay, more things to do, like get over the damned "sting" that I got this am while watering plants outside... I received a surprise that I did not want... not sure what it was but I think a ground hornet that decided to use my foot for his stings... I cried and screamed... OMG right between my toes...
Thus I am a bit tired this morning, and kind of worn down...
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