Wednesday, July 10, 2013

TIME for US as PATIENTS to STEP UP TO THE WHITE HOUSE STEPS!!!!!

I hope to catch many eyes on this post! What happened to me yesterday, will EFFECT any and all of you potentially that go to hospitals with PAIN, or have medications that are NO LONGER "VIABLE" as income due to Medicare changes! I can say that unless we open our mouths and stand at CONGRESSES doors by January 1st 2014, WE WILL LOSE MANY OF OUR OWN DOCTORS! This is NO JOKE and it came directly from my own ain doctor that I have been seeing for 5 years. He also has an 80 PERCENT MEDICARE PATIENT load that if these things happen with Congress this coming January and nothing gets done to STOP them, he will QUIT TAKING MEDICARE, because he cannot afford to keep his practice open and begin being almost A CASH PAY BASIS FACILITY!!! we have got to do something to stop this one way or the other. The Republicans are going to cause us to lose every physician that is trying to help us, cut all of the pain meds back that do not make them "money", and leave us HOLDING THE PAIN BAG IN OUR HANDS! I went in to take my pain pump refill yesterday. Things "seemed" as usual. But, when my pain physician showed up, his first words other than how are you to me were, "I don't know what we are going to do with you yet? put in a stimulator, change over your medications in the pump, or what?" He was in a stupor almost due to "shock and dismay". The HOSPITAL has decided THEY WILL NO LONGER CARRY the medication I have IN MY PAIN PUMP! Due to it "not making them money" basically, they made the decision to "not carry it in the hospital, thus ALL DOCTORS must use ALTERNATIVE PAIN MEDS that the "hospital" dictates what those will be. Now NOT our doctors, but THE HOSPITAL! Even other medications, such as many ANESTHESIA meds, they are telling that they can "no longer get them". Well what the truth of the matter is, due to all of the MEDICARE CRAP CHANGES, NOW MEDICARE HAS ALL BUT CUT TOTAL PAYMENT to them on certain meds!!!! Thus they will just STOP HAVING THEM in their facility! Not only that, but he personally told me that unless something changes before this huge bull crap change come January 1, 2014, over DRASTIC CUT TO DOCTORS BY 25 PERCENT OR MORE on Medicare patients, HE WILL HAVE TO STOP (along with many others) taking "Medicare patients", plus no longer even see the ones he has, unless they become "cash pay" or have other insurance etc! NOW THERE IS OUR DAMNED GOVERNMENT "FOR THE PEOPLE" AT WORK!!! They are sitting up their on their laurels, the "fat cronies" getting richer and richer EVERYDAY , WHILE WE GET POOR! At our expense they do not give a damned if we hurt, if we are sick, well, they just as soon us die off so they do not have to pay out so much of OUR SOCIAL SECURITY and our Medicare! We need Petitions! We need US, MANY OF US STANDING AT THE STEPS OF THE WHITE HOUSE fighting this!!! I ONLY GOT 25 PERCENT OF MY PAIN MEDICATION IN MY PUMP YESTERDAY!!! I said 25 PERCENT! I received the very LAST VIAL the hospital had. So my pump will RUN OUT IN THREE WEEKS!!!!!
This means my doctor will have to "wait" until the hospital "deems" what they "will carry", and then change MY MEDICATION over to SOMETHING ELSE! That means something that may not WORK AS WELL, that could have MORE SIDE EFFECTS, the means me having to be RE-ADJUSTED to the new meds.... and it is just a massive headache, heart ache, and the very thing I GOT TO HELP THE PAIN... NOW HAS TO BE CHANGED DUE TO MONEY!!!!! That is what it boils down to! The hospital NOT making a PROFIT on that medication, thus THEY WILL GET RID OF IT! To hell with the patients and the doctors that treat them! Now put yourself in my situation, whether pain pump or not. First of all, due to all of the bureaucratic bull red tape my own doctor can't get my medication for me anymore in his office! And even though it is MY medication, they WILL NOT pay a specialty clinic to mix it for me, allow me to have them file my Medicare insurance, and allow ME to take my OWN MEDICATION TO MY DOCTOR for it to be put in MY PUMP! And don't give me the crap about it being "narcotic" etc. For one the stuff has to be mixed ONLY by a specialty clinic. Another unless you have Medicare or insurance to pay for it, it is totally too expensive, and 3rd, they CAN FIND ways to MONITOR IT TO MAKE SURE it does go TO MY DOCTOR, and it IS PUT in my pump! They could deliver it to his office, or seal it some way that only the doctor can open it etc... there are things to do... we are not a stupid bunch of people.. Technology today can do incredible stuff, so getting a medication to a doctor under some type of specialized way it can only be opened and used it totally possible. Other than that even though my pain doctor has a brand new clinic, has met all kinds of ridiculous red tape, including "special" computers that Medicare MADE THEM GET, that cost something like 35,000 OR MORE in order for the government to process Medicare claims! IT could not be some type of much less expensive software etc... it had to be HIGH DOLLAR "SPECIAL" COMPUTERS that the doctors must foot the bill for!!!! Then He can't even have my medication brought to his office for a few hours for me to come there WHERE IT ONLY COSTS ME 40.00 FOR AN OFFICE VISIT, to have it filled, VS. what I PAY NOW TO THE HOSPITAL, WHICH IS A 200.00 CO-PAY to have the pump filled!!!! Believe me you talk about a "racket"!!!! Between the hospitals, the government, the pharmaceutical companies, and some pharmacies included and big CLINICS ETC. , they are making BILLIONS, while our small doctors, with small practices, many of our BEST PHYSICIANS are being reamed over the coals, driven out of business (like my own Rheumatologist earlier this year) due to those crooked, greedy, not giving a damned bunch we call "Congress". The lobbyists for these bigger hospitals etc RULE IT WITH LINING POCKETS! IF you CARE ABOUT YOUR OWN HEALTH (and this is to INCLUDE OTHER MEDICATIONS ALSO, NOT JUST FOR PAIN) THEN YOU AND I MUST stand toe to toe, hand in hand and find way to get this ridiculous mess stopped!!! I certainly am only ONE PERSON but with all our VOICES, WE CAN and have to make A DIFFERENCE!
PLEASE, PLEASE I URGE YOU, I BEG YOU TO DO YOUR HOMEWORK on this. Look up this stuff online, talk to your own physicians, ask them what will happen with them if this Medicare crap goes on at the first of the year, ask around and watch for articles from the Pain foundation, etc... we have to get this fixed and permanently, and quickly, with haste!!!!! Rhia




I have accomplished A great deal more since this post: This is Saturday the 13th. I will try and catch up here and all of the information is also on my FB page along with and FB group I began ONLY for getting who we need to get to so Medicare can be FIXED!!! 

The new FB groups page you can join is:

https://www.facebook.com/groups/435383466560951/?bookmark_t=group

Other links that are helpful are listed thee, but let me see if I can also get them here!

http://www.senate.gov/general/contact_information/senators_cfm.cfm

http://www.house.gov/representatives/find/


Talking about a drug shortage here... no wonder we can't get our medications!!!!
http://www.bioethics.net/2013/04/psst-theres-a-drug-shortage/

http://www.raps.org/focus-online/news/news-article-view/article/3479/reform-bill-takes-aim-at-gray-market-causes-for-drug-shortages.aspx



It is time for all of US to get ALL of Congress, and our entire Governmental body, including Our President back on bard to straighten our the broken system of Medicare and make it FOR those who it is for - US!!!! Petitions, suggestions, and ideas are welcome! I would like to get everyone to participate in any way you want or can to get the word to the Congress and President we want CHANGE, but CHANGE that WE, THE PEOPLE benefit from! NOT drug companies, not hospitals, not lobbyists, not large groups of medical professional or any of the rest that took an oath to SERVE and CARE for us, but THEY PREFER to FORSAKE THAT and allow GREED and CORRUPTION TO take OVER!!!! While we are left in the cold, paying for their mistakes. Let's show them that we mean business. Help me, help you!!!!
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