Showing posts with label RA.Osteoarthritis. Show all posts
Showing posts with label RA.Osteoarthritis. Show all posts

Saturday, April 8, 2017

"MUCH TO YOUNG TO FEEL THIS DAMNED OLD"! Ra, Lupus, Neck Surgery, Osteoporosis, joints falling apart, knee and elbow issues, and it just goes on and on....


I LOVE my home and I LOVE working on my home and in my yard, BUT it is to the point that the "working" should be more of "enjoyment" rather than feeling like it is making my Lupus and RA WORSE! I've also now "tweaked my right knee and yesterday "bumped" my left elbow that already has screws in it from about a surgery done in 1998 and it was already needing to be worked on again, but I must face the Neck surgery... so I CANCELLED my reservation for TOMORROW AT THE CASINO (as I thought about I HAVE NOT HAD ONE NIGHT AWAY AT ALL OTHER THAN BEING IN THE HOSPITAL IN OVER 16 MONTHS, AND I HAVE NOT HAD A "VACATION" SINCE MY Daughter's wedding and then a trip to Vegas in 2005!) THAT IS WAY TOO LONG TO GO AND NOT HAVE A DAMNED BREAK! I feel like all I do, is work inside the house, work outside the house, buy STUFF TO WORK ON THE HOUSE WHICH IS GETTING TOO EXPENSIVE! 
 
Then after BUYING ALL OF THIS STUFF, EVEN THOUGH ALL Rechargeable battery operated, even the lawn mower, I FEAR EVEN WALKING ACROSS MY HOUSE! IF I go outside, it seems i run the risk of fire ants, wasps, yellow jackets, bees, or having a damned accident, although I am SO CAREFUL. In fact even the BREAK OF MY HIP was inside, me stepping over a small gate i had stepped over a 100 times! 
 
So IT IS NOT LIKE I AM ON A 8 FOOT LADDER PAINTING, but stepped too HARD OFF A SMALL LADDER AND TWEAKED THE KNEE A COUPLE OF WEEKS AGO, ON THE RIGHT SIDE ALSO, THEN YESTERDAY I HAD THE OLD WINDOW PROPPED UP IN MY OFFICE, PUTTING THE SCREEN INTO THE "STORM WINDOW" ON THE OUTSIDE OF IT, and that window (that I even propped UP MORE than the others because it is more loose and can fall, and dammit it came down on my left ARM, RIGHT AT THAT ELBOW AND THANKFULLY JUST SCRAPED DOWN, BUT STILL LEFT A "GOOSE EGG" KNOT that scared the hell out of me... THEY WENT UP ON MY HOUSE INSURANCE OVER 100.00 A YEAR! MY TAXES ARE GOING UP, The new A/C, the new saw, the stuff for ants, for wasps, for other bugs, ALL OF IT COSTS A FORTUNE, and I CANNOT PAY TO HAVE STUFF DONE! NOT THESE "smaller" daily things like hanging a new mini blind, or cutting a few small tree branches, or putting out fire ant killer... why I would be broke in a year or less, and hell I am going broke just BUYING THE CRAP I NEED! I bet I have spent over 2,500.00 AND I AM SURE MORE, ON JUST STUFF TO WORK ON THE HOUSE WITH INSIDE AND OUT, ..... it is just insane... 
 
If I MOVE INTO AN APARTMENT OR DUPLEX, THEN I DON'T HAVE TO WORRY ABOUT BUGS, ANTS, IF AN APPLIANCE OR WATER HEATER GOES OUT, A ROOF, THE LAWN, IF SOMETHING BREAKS THEY FIX IT! I do NOT have to have HIGH HOUSE INSURANCE OR PAY TAXES ANYMORE! I know RENT IS EXPENSIVE... BUT I CAN DO WITH A 1 BEDROOM small place and I COULD SELL THOUSANDS OF DOLLARS OF ALL OF THIS NEW STUFF OUT, AND NOT NEED IT ANYMORE.... I made my reservation for EASTER SUNDAY! I know that may sound BAD, BUT my kids will have plans, I know my daughter and them can't come up then from Corpus, and I may as well GO AND HAVE A RELAXING TIME FOR SUNDAY AND MONDAY BEFORE NECK SURGERY! I am just worn completely out from all of it, and I AM MUCH TO YOUNG TO FEEL THIS DAMNED OLD! AS THE SONG GOES...,

Friday, August 28, 2015

Chest Xrays, Cellulitis, RA, Swollen Joints, Fingers, Hands, Unable to take my RA meds, Lawns, Neighbors, and Dealing with all of the daily stuff of Life

Well once again we face another Friday! This week has been anything BUT GOOD... in about 4 billion ways, I thought I may just lose my mind, or the tiny bit of it I thought I had left.... FINALLY and who knows for sure but Urgent Care called yesterday afternoon and after over 2 WEEKS of back and forth from them to the Rheumy, I think they have the correct Order for the Chest Xray!!!! Sometimes miracles "can happen"... although lately NOT for me! I believe I mentioned I DID FINALLY FIND a Surgeon who is thankfully just over in Waxahachie to probably remove this lump on my left thigh. But, what I have NOT told the doctors at all, is that I have this other one that formed several weeks back on my right thigh, in just about the same spot. But, since I am seeing the surgeon a week From today, I felt I would bring it up then. BUT< once again I ran into another issue... now that lump that never really was "red" or what they call "agitated" on the outside, or really was never sore, now in the past few days, had become more red on the outside of the skin and it is extremely sore... and so it the one on my right thigh... not really red but very sore to the touch. Since I still have a week before i see the surgeon I called my PCP this morning and told them to let him know, and that I felt I needed another round of antibiotics until I can get in to see the surgeon. I fear now that the infection could be growing outward, and that is the very last thing I need right now... so I am waiting on a call back to see what they say. I hope he does not want me to come in... there is really nothing more to do, but get back on the antibiotics, and wait to see the surgeon,... and then I have to run over across town and get that chest Xray I hope done today. PLUS I DO have to take Mom's care to be inspected today, since they have made the changes in how we register and inspect our vehicles in TX, as of March 2015.So, we can't get the registration sticker until I get it inspected.... but not a big ordeal, I just have to go get her car, and take it to be inspected... I DID get the "bug granules" finally yesterday and I broadcasted them from front, back and sides all over my lawn. I HOPE that curbs the fire ants, which I have already put stuff on all of the mounds, but this other stuff also gets rid of other ants, fleas and so forth, which I can tell what I put out in the Spring has stopped working... thus I needed to do it again... ONE GOOD NOTE FINALLY... OR I HOPE SO... MY ECHOCARDIOGRAM CAME BACK THAT MY HEART FUNCTION IS "BETTER" A BIT, THAN WHEN I HAD ONE DONE IN 2011!!!!! NOW THAT DID MAKE ME HAPPY! But, as I told Mom, I "hope" the heck it is "mine" and is accurate!!! Knowing my luck, hell it could be read wrong or someone else's - anything is possible with me and my stuff.... nothing is usually ever that easy..... but if so, that means I should be good to go for the lumbar surgery dammit if I ever get RID of this damned whatever is going on with the lumps on both thighs... there is no way, no how they will do surgery on me until I am all clear of that, along with now I will NOT be able to get back on the Orencia or the Xeljanz UNTIL I am all CLEAR of infection!!! WHICH MY RA IS so MUCH worse! Both of my hands, wrists and fingers, I can barely use... I have hell from opening a jar, a lid, or anything, along with I can't carry stuff as well... my hands are just so swollen, even this morning worse than ever... my ankles, my shoulders, neck everything to do with my "joints" seem to be so much worse that ever... and I am extremely concerned... not only am I so stiff and swollen, the pain is bad again in my hands, fingers and wrists... PLUS I GUESS since my neighbor had chosen to all of a sudden ignore my existence... O am going to have to fix my lawn mower (the rope broke that pulls it to crank) fix that, and mow the lawn myself... I am sick and tired of seeing it like this, and I will be damned if I ask him... he has a "bee" in his bonnet over something, I have NO CLUE what the problem is... but my yard looks like hell and I intend on getting it mowed dammit... well I have to get dressed and get going... or I will never get all of this crap done... more later, and happy Friday to All!

Thursday, May 14, 2015

Please send an email, snail mail, or post to their Social Media Sites about the Arthritis Caucus and how we need their support!!!

Dear Senators, Cruz, Cornyn and Congressman Barton...


I post this because Vets are also extremely critical patients in the Arthritis realm. They all too often come back with all types of arthritic problems after their tours are over. The DOD helps to do research on these issues and I wanted to also let you know this is critical to thousands and thousands of your constituents yearly. So many hours of time are lost on jobs due to these horrendous illnesses, along with people not able to support and care for their families. Medications are much too expensive and without those most of us are unable to have any type of "normal" life. I urge you to help and join and/or sponsor the Arthritis Caucus. WE need your help and support!   I would , be happy to send more information about how the devastating illnesses effect Texans along with the rest of the nation. May is National Arthritis Awareness Month! 1 in every 5 adults, 300,000 children & countless families are affected by arthritis. It accounts of $156 billion annually in lost wages and medical expenses. 

I also sent a tweet about these issues.

This is Arthritis Awareness Month! We need YOU to also ask for support from your own Congressional Leaders.

You can now tweet them, email them, snail mail them, and post to their Facebook pages. Most all of them now are also on Social Media, so that makes it much more simple to get your voice HEARD!!!

So this for ALL that suffer everyday from these horrendous diseases, that absolutely destroy our qualify of life... they have mine and I know MANY others that also feel their life is almost nothing due to these illnesses.... 

You can go to the arthritis.org site or here are some "sample" twitter posts:


THESE ARE ALL SAMPLES OF TWITTER POSTS AND/OR FACEBOOK POSTS BELOW, PLEASE ADD YOUR STORY ALSO AND PERSONALIZE THEM....

  • ~300,000 babies, kids & teens have #arthritis or a rheumatic condition? http://blog.arthritis.org/news/arthritis-awareness-month/ #ArthritisAwarenessMonth

  • .@insertrepnamehere in honor of #ArthritisAwarenessMonth, please support the #arthritis community by joining the Arthritis Caucus! 


    or you can go to their Facebook pages:


    • May is National Arthritis Awareness Month! 1 in every 5 adults, 300,000 children & countless families are affected by arthritis. It accounts of $156 billion annually in lost wages and medical expenses. http://blog.arthritis.org/news/arthritis-awareness-month/ 

      TO LEARN MORE GO TO:

      http://blog.arthritis.org/news/arthritis-awareness-month/

    • THERE ARE ALL KINDS OF WAYS YOU CAN HELP, BY BLOGGING, TO ALL TYPES OF SOCIAL MEDIA AND USING IT TO SPREAD THE WORD!

Monday, March 23, 2015

Arthritis Foundation Annual Summit on the Hill in DC Happening NOW!

Get your fingers in gear and get ready to do some "E-Summit Advocacy" things, if you were not able to attend the Summit. I feel this will be an incredible couple of days that will certainly help to enhance the future treatments, research, physicians, tests and reasons to why these illnesses attack so many of us!



http://www.arthritis.org/advocate/advocacy-summit/virtual-summit/


LOTS of things going on today on Capitol Hill - Check your FB and Tweets!!!!