Showing posts with label trying to live a "normal life". Show all posts
Showing posts with label trying to live a "normal life". Show all posts

Wednesday, March 29, 2017

RA my Enbrel came in, Lupus flare, Neck surgery coming up, 100% flattened disc, bone spurs, and joints giving hell, along with being tired and feeling lousy.

I FINALLY GOT THOSE two mini blinds up in my living room. This time I didn't step "hard" off the step stool. Thank goodness. But, the wood in this house is so HARD it is extremely difficult to put a screw or nail into the wood! It was definitely made from some extremely hard type of wood for sure. Anyway, my neck and entire body knew that storm was coming. I've hurt for several days and day before and yesterday was really bad. I had to make myself get up and do something. 

So, I baked a Lemon Pound Cake, got those blinds hung up finally, walked Peanut for a bit several times, and forgot I was completely out of any fresh fruit, and didn't even have any of the fruit cups or canned fruit I keep usually just in case I run out of fresh and don't feel like running to the market. It was almost 3PM by the time it dawned on me, but I threw some different shoes on, went to HEB & picked up a cantaloupe, a couple of plums, a couple of Gala Apples, and a HUGE Mango! I "hoped:" the Mango and cantaloupe were both good. I was almost too tired to get them prepared, but I finally decided I would get that cantaloupe scooped out, and cut up that Mango and they are both awesome! Sometimes the fruit is very good and sometimes very BAD! I hate when I pay expensive prices for fresh fruit, and it tastes like "cardboard". 

Then I picked up a red bell pepper, some tomatoes, and a cucumber. I've been eating salads again almost every evening for with dinner. So, I decided to add a couple of things that I've not been eating lately. THEN I FORGOT to get a new head of lettuce of all things. But, I still have enough for another salad tonight if I want one, so I am good until tomorrow at least. But, by the time I got to the house, and started to take those two sacks in, I was so tired I could barely pick my feet up off the ground. I don't know if it is just all of the running to Dallas Monday to see the Orthopedic Surgeon, plus last week the drive to see my Rheumatologist up there, and today I see my Cardiologist... but I feel just drained of all of my energy.

 I was on the sofa although awake but watching "True Blood" (I REALLY got into that series) and drinking coffee. I had quit drinking coffee for a very long time. Then after it began getting warmer, then I decide to drink coffee again. Usually one cup in the morning. But, it seems to upset my stomach, and that was one reason why I quit a year or more ago. It just does not set well sometimes with my stomach. My ENBREL CAME IN YESTERDAY! It was here on the porch when I got home from getting those groceries. BUT, I am about "half in fear" of starting it. When I was at my Rheumatologist office, we were talking about me being on a couple of the other RA injectables. It dawned on me, that when I was on the last one the Orencia, that is when I suddenly developed the cellulitis in both of the tops of my thighs. One week the left one began to have the lump in it, and then about 10 days later the other side in almost the same position began to have a lump. Later that turned into going to a surgeon, who had to open that mess up, and finally he messed up so badly (THANK GOODNESS he retired about 6 months ago) that I had to go to the wound care up at Charleton Methodist for 8 weeks I believe. They had to clean those out and put that special stuff in them to get them to get rid of the infection and finally close up, but I was dealing with that for almost 6 months or more. The Orencia, I feel was "contaminated".... I developed those places within a few days after the injection, in the about location I had been injecting them... and I felt it is was much of a coincidence that they came up a few days after the injection, in the same location from where I was doing those injections. 

Now, I do my B-12 injections monthly, and never have had any issues with those. And I am even more cautious that the doctors offices, when I give myself injections. I clean them several times all around on my thighs with the alcohol preps, and make sure everything stays completely sterile, and always cover up that spot with a band-aid for 24 hours. As most of us know we "carry" strep and staph or many of us do on our skin. It is almost impossible in the world we live in not to have some type of things like that on the surface of our skin. So, cleaning it is essential so not to "PUSH" those germs under the skin. Anyway, this one is in an "injectable pen" which is much easier to deal with, but honestly it to me hurts more than using a needle like I do with my B-12. I use the allergy needles for that and I never feel a thing. So, I put it in the fridge, and decided I would go back over all of the instructions today, and I am taking a shower in just a bit, so after my shower then I will take the first dose. I had to do this one once a week. My neck is definitely "worse". 

I believe I said that last night or night before last. LOL,,, I cannot keep up with the days anymore... it is 100 percent collapsed now and 1 of the ones he worked on before "may" be needing a bit of work, plus this time even on X-rays I showed several bone spurs. He said he definitely knew I had to be in pain, plus I can barely turn my head side to side. So, we are looking at probably the "middle" of April depending on how quickly the insurance approves it. Which they had already approved it last year, then due to Mom and then my hip fractures, I could not have the neck surgery. I think I just kind of "pulled" the muscles/ligaments around my neck and below it. It is much better today, except when I step a certain way. But, it is mostly doing okay thank goodness. Hell, now my elbow on the left arm, that was bad and I had surgery to attach the tendons back onto the bones, is beginning to "pop". It needed surgery at least 4 or 5 years ago, and I just took a couple of steroid injections, and decided to put it off. It is not hurting, so that is a good thing, it is just popping when I bend it or straighten it. If it's not one joint it's the other... LOL....

Thursday, July 14, 2016

Always Something With ME Now a KIDNEY INFECTION AND PROBABLY STILL A SEVERE LUPUS FLARE!

I am DOG SICK from "something"... I was fine, then last night about 10PM I began to have one of those "cold sweat" spells... and I even had to change my clothes I was so soaking wet... but I laid down, got still and woke up about 4AM, and I knew I had to be fixing to have fever... every joint and muscle in my body was so severely in pain, I was almost screaming it hurt so bad. I checked my temp and that the time it was okay, but withing a half hour, I knew it was going up...so it went to 99.5, then to 100.5 and then 101.5 and I had already had 4 Tylenol, plus my other meds. 

This Pain" usually feels almost as if I am going to stiff so stiff, and almost like a "seizure", but I've never had one... but I know when I have that type of pain, I will have fairly high fever... I had NO CLUE why... I was fine, painted yesterday and was fine until last night...so I am dammit on the sofa, drinking green tea, and covered up with my blanket... it sucks. I have some antibiotics left from the wasp sting, so I decided to take those to see if I may have some type of infection... 

I have a "small bit" of a cough, and had a tiny bit of cough meds in the fridge, so I took that early and I am not coughing anymore.... this just is pissing me off! I have SO MUCH to do.,. and my floor buffer came in yesterday, so I need to learn how to use it, and I don't even feel like reading anything.... anyway, last time this happened I was sick for a day, and then the next day was fine.... go figure... so if I am still not well tomorrow, or my temp won't stay down, I will do over to Urgent Care to make sure I don't have pneumonia, or something going on.... the SEVERE body pain is what is the worst...

Well even though I DID NOT want to! : I went to Urgent Care this morning. It seems I have a bad kidney infection. rather than pneumonia or something upper lung issues etc... which I think I may have a combination of still a really, really, kicking my butt Lupus Flare... so that explains a great deal.... 

SO here we are AGAIN on ANTIBIOTICS! I HATE to take them, BUT I have no choice if I want to get well and get on with my life.... this sucks

Then to make things ever feel worse  :

 
I needed a shower before I went ANYWHERE! BUT, (and it was all I could do to take a shower) YET AM SO OUT OF IT, after I WALKED IN AND BEGAN TO I realized I FORGOT MY DENTURES!!!!! I NEVER walk OUT OF THIS house to GO ANYWHERE WITHOUT THOSE! I WAS SOOOOOOOOOO EMBARRASSED!!!!I've never pulled that kind of stunt before... I am still embarrassed......