Weather here SUCKS!!! Thunderstorms, lightening, rain like we need more rain... and it appears it may NEVER quit! I've not been online much or as far as on FB, Social Media etc I've posted in my blog, and update my newspaper and send it out daily.. but I've been stuck with yet again doctor's visits, the weather reeking havoc with my joints... and just feeling lousy... I had an echocardiogram last week. It was supposed to just be "routine" before we made a date to implant the pacemaker. So, I didn't think much of it. Monday, I went in to talk to the surgeon about putting the pacemaker in etc... and he was
RUNNING VERY, VERY LATE! Which is the usual for surgeons especially Monday's... so had waited quite a while. they finally called me back in, and I waited again for a bit to see him. Well, he kind of "burst" into the room, (which he is kind of that way) LOL just a great smiling doctor... but can get serious when need be... and as I started to say something, and he said well your cardiologist (which is his wife) said that you needed a "special" type of pacemaker with two leaders rather than one.
I did not know that the test fro the echocardiogram came back showing my "heart function" was "worse" than two years ago sine I had the last one. So, he proceeded to tell me they were trying to avoid you coming in to see me, because I don't do the 2 leads type but Dr. Rae in Waxahachie does, That is who Dr Meg Sullivan is sending me to, I was so upset first because had not even heard about my test results yet and had no clue, they were "off"..which since 20 years after the 1st heart attack, and even after the 2d one the tests had always remained the same. no better of course but no worse either... So from what information I got hod of online, then her nurse called me ate Monday evening to tell me who they were sending me to see and I had her look on the test results to tell me, "what is going on with my heart function?"
She said it had always remained at a "45" which I believe they are talking about the "trajectory" and how the two chambers of my heart "work" as far as pushing the blood in and out, and sounds like the natural "electrical" part of my heart is not working as well as it should. So, suddenly this went from a "regular" pacemaker, that we hoped with it keeping my heart rate as a normal place it would help several other problems, fo NOW I NEED IT because I have DEVELOPED ANOTHER PROBLEM! So, that was like me hitting a "brick all" since I was not expecting any of that at all. Anyway from what I read n that specific pacemaker, it is attached to I guess the chambers , two of the and it keeps the natural rhythm, but keeps that trajectory on tract also... so I am waiting on a call fro the specialist to go see hi, and in the meantime,
I am getting the CT next week on my lumbar spine and already have a appt made to see my Orthopedic surgeon. My pain doctor who ordered the CT scan had called my Ortho doctor for him to be sure and see me once the CT results are in. If it's not one thing it's the other... so I guess in a way it was good that I did go in about the pacemaker, or she would have not ran the echocardiogram... and this problem may not have been found.... and of course with the weather as it is I hurt ALL OVER!!!!!!!!
https://www.nhsinform.scot/illnesses-and-conditions/heart-and-blood-vessels/about-the-heart/understanding-how-your-heart-functions
"Through my heart's work of writing, I share with you my complex journey a top the mountain, sliding down, crawling up, & living through the realms of Autoimmune Arthritic Illnesses. Taming "The Wolf" Thru each Day... One Step at a Time … Together We Are Learning to Survive. Please follow along, to New Beginnings - looking Thru the Window Pane of Pain in life where we shall find our journey leading us to - New Perspectives
Wednesday, May 8, 2019
Monday, April 29, 2019
FFA approves Medication for our Pediatric Patients which is terrific news for them!
Great News from the FDA for our Younger Lupus Patients (first ever pediatric patients!)!
http://www.worldpharmanews.com/fda/4803-fda-approves-first-treatment-for-pediatric-patients-with-lupus
Often we may let it slip our minds we havee many "very young patients" with Lupus. Up until now it was extremely difficult to help treat them!
Friday, April 26, 2019
EYE Exam when on Plaquenil to check for Macular Degeneration, Weather,Bursitis,Lumbar Spine problems, & Spring Weather bringing the insects
Eye Exam, Spring time Weather brings in the "insects", Hip Bursitis, Lumbar Spine causing pain, & the "catch-up" game on Doctor Visits
WELL, I got the EYE EXAM over with..finally yesterday... and no signs of macular degeneration or anything caused from some of my medications, especially the Plaquenil... although my vision had "gotten worse" so I did need new glasses, which I knew I would. And usually I am not thrilled with glasses, BUT I can't wait to get these in and take a pic n them... they are totally "different" in several ways than my last two pair... as far as looks etc... it will be probably 10 days, (I hope less) but with the "prisms" in the for the double vision, they take longer to make. So, I can "check" that one off the LONG LIST of DOCTORS, follow ups, etc...
I was really past due. I am supposed to have an eye exam for the macular degeneration ANNUALLY! And I know it's been at least 3 years...between Mom passing away, then the hip fractures, and the neck surgeries, and all of the other 100 things in life that goes on for most of us, it took me that long to finally just say "you have to do this" and get it done. So, now I have an Echocardiogram next Tuesday. It's been a couple of years since my last one, and before they put in the pacemaker my Cardiologist wanted it done, which I hate only because you have to lay on one side, and be still at times while the tech takes pics, and so forth.. and it's just not comfortable for e to lay on that side... with my hips especially right now still hurting so badly from the bursitis (and whatever else is going on) I am NOT CONVINCED that "hip bursitis" is the only thing causing so much pain in both hips... MY FEAR honestly is that something has happened again with my lumbar spine... either a compression fracture, due to the osteoporosis, or a disc or two "gone" like in my neck, or something to do with my lower spine causing this much pain for as long as it's gone on now...
I WANT to continue to BLAME IT on the "weather" and I know that it is part of why the pain is so bad, BUT.. it hurts to stand, to sit, to walk.... even just driving to Waxahachie to the eye doctor yesterday, made my hips and upper legs have such a deep ache... and it is only like 15 miles over there. So, I am not driving for that long. But going to Dallas to the doctor's up there does the same thing... yet if I try to stand in one spot, or at times just walk through Wally World or the market etc... it does the same thing... it is so frustrating... and my pain specialist ordered a CT Scan, I have the order, BUT I have had to see all of the other doctors etc... and besides I know the co-pay on a damned CT Scan is HIGH, besides, I still owe a little to the hospital for the Endoscopy from that CO-pay. The I will owe another one when the pacemaker is placed. Each time I see a specialist my co-pay is 35.00. That does not sound bad at all,
I know BUT when you go to about 5 or 6 in less than a month, it adds up!!!! Plus I have not been back for my follow up with my Rheumy but I JUST now got the lab work results he wanted. So I knew there was no reason to make a trip until I knew for sure all of those were in and that they sent them to him. I still face also going to my "other" Orthopedic Specialist... the one that did my complete shoulder replacement and both neck surgeries.. once the CT Scan is done.. again though until I have that scan and the results there is no reason to make a trip to see him. That is why my pain doctor ordered the CT Scan.
He knew that it would be the 1st thing that my Ortho. Doc want of my lumbar spine.
AND so goes, it's going to be so muddy, and now it shows we have a possibility after a beautiful weekend, of then from next Tuesday for at least 10 DAYS of THUNDERSTORMS everyday!!!! So, if I don't get some of this stuff done in the yard over the weekend, I may be having weeds taller than me in places... plus my I am overtaken by ANTS! Several kinds but I have put down everything and they keep "moving" .. these worry me because they are n the outside of at least half my house, I bought some "ant block" that is made to put around the foundation of the house... although I have already put down even the "Bayer" one all over the yard twice and they still are giving me the blues... OLO! they hate coffee grounds though...they are in one of the brick columns on my front porch, and it has enough space on it, I can spread the coffee grounds all around it, and it drives them nuts, they won't cross it so then of course they MOVE and find another way dammit.... but after almost "no winter weather" then ALL of the rains for so long... and an early spring I fear just like weeds and pollen we are going to be covered up in all kinds of "bugs".... here come the fire ants... I've already had a couple of beds of those...
So, if it's not ONE thing, then it's something else... I know I am "griping" but I also realize I AM NOT THE ONLY PERSON with all this mess going on in life... so I feel for all of you also... then the news talks about how "stressed" as a nation we are... well no wonder.....
WELL, I got the EYE EXAM over with..finally yesterday... and no signs of macular degeneration or anything caused from some of my medications, especially the Plaquenil... although my vision had "gotten worse" so I did need new glasses, which I knew I would. And usually I am not thrilled with glasses, BUT I can't wait to get these in and take a pic n them... they are totally "different" in several ways than my last two pair... as far as looks etc... it will be probably 10 days, (I hope less) but with the "prisms" in the for the double vision, they take longer to make. So, I can "check" that one off the LONG LIST of DOCTORS, follow ups, etc...
I was really past due. I am supposed to have an eye exam for the macular degeneration ANNUALLY! And I know it's been at least 3 years...between Mom passing away, then the hip fractures, and the neck surgeries, and all of the other 100 things in life that goes on for most of us, it took me that long to finally just say "you have to do this" and get it done. So, now I have an Echocardiogram next Tuesday. It's been a couple of years since my last one, and before they put in the pacemaker my Cardiologist wanted it done, which I hate only because you have to lay on one side, and be still at times while the tech takes pics, and so forth.. and it's just not comfortable for e to lay on that side... with my hips especially right now still hurting so badly from the bursitis (and whatever else is going on) I am NOT CONVINCED that "hip bursitis" is the only thing causing so much pain in both hips... MY FEAR honestly is that something has happened again with my lumbar spine... either a compression fracture, due to the osteoporosis, or a disc or two "gone" like in my neck, or something to do with my lower spine causing this much pain for as long as it's gone on now...
I WANT to continue to BLAME IT on the "weather" and I know that it is part of why the pain is so bad, BUT.. it hurts to stand, to sit, to walk.... even just driving to Waxahachie to the eye doctor yesterday, made my hips and upper legs have such a deep ache... and it is only like 15 miles over there. So, I am not driving for that long. But going to Dallas to the doctor's up there does the same thing... yet if I try to stand in one spot, or at times just walk through Wally World or the market etc... it does the same thing... it is so frustrating... and my pain specialist ordered a CT Scan, I have the order, BUT I have had to see all of the other doctors etc... and besides I know the co-pay on a damned CT Scan is HIGH, besides, I still owe a little to the hospital for the Endoscopy from that CO-pay. The I will owe another one when the pacemaker is placed. Each time I see a specialist my co-pay is 35.00. That does not sound bad at all,
I know BUT when you go to about 5 or 6 in less than a month, it adds up!!!! Plus I have not been back for my follow up with my Rheumy but I JUST now got the lab work results he wanted. So I knew there was no reason to make a trip until I knew for sure all of those were in and that they sent them to him. I still face also going to my "other" Orthopedic Specialist... the one that did my complete shoulder replacement and both neck surgeries.. once the CT Scan is done.. again though until I have that scan and the results there is no reason to make a trip to see him. That is why my pain doctor ordered the CT Scan.
He knew that it would be the 1st thing that my Ortho. Doc want of my lumbar spine.
AND so goes, it's going to be so muddy, and now it shows we have a possibility after a beautiful weekend, of then from next Tuesday for at least 10 DAYS of THUNDERSTORMS everyday!!!! So, if I don't get some of this stuff done in the yard over the weekend, I may be having weeds taller than me in places... plus my I am overtaken by ANTS! Several kinds but I have put down everything and they keep "moving" .. these worry me because they are n the outside of at least half my house, I bought some "ant block" that is made to put around the foundation of the house... although I have already put down even the "Bayer" one all over the yard twice and they still are giving me the blues... OLO! they hate coffee grounds though...they are in one of the brick columns on my front porch, and it has enough space on it, I can spread the coffee grounds all around it, and it drives them nuts, they won't cross it so then of course they MOVE and find another way dammit.... but after almost "no winter weather" then ALL of the rains for so long... and an early spring I fear just like weeds and pollen we are going to be covered up in all kinds of "bugs".... here come the fire ants... I've already had a couple of beds of those...
So, if it's not ONE thing, then it's something else... I know I am "griping" but I also realize I AM NOT THE ONLY PERSON with all this mess going on in life... so I feel for all of you also... then the news talks about how "stressed" as a nation we are... well no wonder.....
A NEW BLOOD TEST for FIBROMYALGIA! The article says it's 99% ACCURATE!
A NEW BLOOD TEST for FIBROMYALGIA! and it says to be 99% ACCURATE!
I know MANY of you that will be glad to hear this one... they are now saying they have a "blood test" that ia supposed to be 99% ACCURATE in determining whether you have FIBROMYALGIA!!!! NOT that anyone WANTS to hear that they do, BUT for so many years, especially WOMEN have been led to believe it was "all in our heads", or we were too "stressed" or "depressed" or, or ... whatever type of "so called diagnosis"... just to get them "satisfied"...
I went through this years ago.. when I have the Migraines so badly they would send me to the ER - at times 3 or more times a month! I went to every "known specialist", every medication, from antidepressants, that didn't do a thing buy make me tired and worse. I went through injections into my spinal fluid, into my "occipital nerves" at the base my neck, the "Imitrex" that I had severe side effects from, and come to find out, those medications I should have never been given due to my heart... I was even given "Thorazine" and the worst was that is given for "bi-polar" disorder, and it built up "toxins in my blood". One day at work, (when I worked in fact at the hospital in Corsicana in the business office - between 1990 to 1996... and I was with a patient at my desk and suddenly, I began "talking about all kinds of things" and had no clue why? I started talking about "bathing suits", and I "knew" something was very wrong.. I accused myself, and honestly thought I was having a stroke, and went down to the ER only to find the "Lithium" was building up so high in my blood stream,
It was causing me to hallucinate,... then of course therapists, psychologists... even "bio-feedback" and they even put me as an inpatient at the hospital for 3 days to give me some medication like Imitrex that is a vasoconstrictor.. and it was that "dangerous" I had to be in the hospital and wear a heart monitor while they gave me this medication by IV... t was totally insane what I went through between the mid 80's even until 1999 or so. And as I said come to find out several of those medications I should HAVE NEVER been given. I had my 1st heart attack at 40 in 2000.... not all that long after all of those things took place. Yet for DECADES like you hear many especially women say, if they had tested me further for RA, Lupus, and other types of autoimmune illnesses,
I believe they would have found the Lupus, which causes severe Migraines and that only thing that helps a Lupus Migraine for me is an injection of corticosteroids, to bring down the inflammation... although a Lupus Migraine is different than other types, which for years from the time I was 17 I had developed "Migraines"... so now that I am off on that tangent...(this article struck a nerve with me since Fibromyalgia was one of the "junk diagnosis" as some call them that doctors gave us when they could not "find anything else wrong" it was ONE of the many I was given and back then honestly, doctors had no clue what it was, just a at the time "rare mysterious illness" that had popped up at the very 1st I believe in Colorado. I will have to verify that, but a small town there "suddenly" had many of it's long time "well" residents suddenly come down with this list of symptoms" and it put many of them in bed, they had to quit their jobs, and it was really a nightmare... d to be 99% ACCURATE in determining whether you have FIBROMYALGIA!!!! NOT that anyone WANTS to hear that they do, BUT for so many years, especially WOMEN have been led to believe it was "all in our heads", or we were too "stressed" or "depressed" or, or ... whatever type of "so called diagnosis"... just to get them "satisfied"...
I went through this years ago.. when I have the Migraines so badly they would send me to the ER - at times 3 or more times a month! I went to every "known specialist", every medication, from antidepressants, that didn't do a thing buy make me tired and worse. I went through injections into my spinal fluid, into my "occipital nerves" at the base my neck, the "Imitrex" that I had severe side effects from, and come to find out, those medications I should have never been given due to my heart... I was even given "Thorazine" and the worst was that is given for "bi-polar" disorder, and it built up "toxins in my blood". One day at work, (when I worked in fact at the hospital in Corsicana in the business office - between 1990 to 1996... and I was with a patient at my desk and suddenly,
I began "talking about all kinds of things" and had no clue why? I started talking about "bathing suits", and I "knew" something was very wrong.. I accused myself, and honestly thought I was having a stroke, and went down to the ER only to find the "Lithium" was building up so high in my blood stream, t was causing me to hallucinate,... then of course therapists, psychologists... even "bio-feedback" and they even put me as an inpatient at the hospital for 3 days to give me some medication like Imitrex that is a vasoconstrictor.. and it was that "dangerous" I had to be in the hospital and wear a heart monitor while they gave me this medication by IV... It was totally insane what I went through between the mid 80's even until 1999 or so.
And as I said come to find out several of those medications I should HAVE NEVER been given. I had my 1st heart attack at 40 in 2000.... not all that long after all of those things took place. Yet for DECADES like you hear many especially women say, if they had tested me further for RA, Lupus, and other types of autoimmune illnesses, I believe they would have found the Lupus, which causes severe Migraines and that only thing that helps a Lupus Migraine for me is an injection of corticosteroids, to bring down the inflammation... although a Lupus Migraine is different than other types, which for years from the time I was 17 I had developed "Migraines"... so now that I am off on that tangent...(this article struck a nerve with me since Fibromyalgia was one of the "junk diagnosis" as some call them that doctors gave us when they could not "find anything else wrong" it was ONE of the many I was given and back then honestly, doctors had no clue what it was, just a at the time "rare mysterious illness" that had popped up at the very 1st I believe in Colorado.
I will have to verify that, but a small town there "suddenly" had many of it's long time "well" residents suddenly come down with this list of symptoms" and it put many of them in bed, they had to quit their jobs, and it was really a nightmare... NOW they have came a very long way in getting to the bottom of this still kind of mysterious host of symptoms, that can often mimic other types of chronic illnesses.
So here is the URL: https://stayfit247.info/2019/04/24/the-new-fibromialgia-blood-test-is-99-exact/
Thursday, April 25, 2019
"Pet Therapy and "Chronic Pain" - Our Fur Babies often are what keep up moving, when we really want to give up....
Pet Therapy and Chronic Pain...
Pets can be mysteriously loving and accepting companions while we live with chronic pain. Pets can be intuitive, gentle, and comforting on bad pain days.... read more from the link above from "My Chronic Pain Team"...
(Open Letter) signed by over 300 pain specialists, other physicians and those in the medical profession to the CDC & how their "Guidelines" on Opioid Medication could drive Chronic Pain Patients to Suicide...
Are Federal Guidelines for Prescribing Opioids Hurting Patients with Chronic Pain?
(Open Letter) signed by over 300 pain specialists, other physicians and those in the medical profession to the CDC & how their "Guidelines" on Opioid Medication could drive Chronic Pain Patients to Suicide... (letter URL below)
https://docs.google.com/document/d/1RzQDSppUKhjiAsEmhW2WbTXlP5V8vJ4M_vBPQLKhK_8/edit
Information comes from the links here....
www.democracynow.org
https://www.democracynow.org/2019/3/27/are_federal_guidelines_for_prescribing_opioids
For many years my Mom would ask me "How did I stand the severe pain of Migraines at first, then later, Lupus, RA, Joint issues that turned into replacements, and all of the severe chronic pain she watched me have to go through... she told me several times, that there was no way, she could endure what she watched me go through, that she would have possibly committed suicide rather than put up with all I had to go through so many years BEFORE I could get some "real help" after searching for a decade or more for physicians, diagnosis, medications and things to help me not have to live with such horrid pain in my life....
I always tried to reassure her that things would someday "get better"... and yet here we stand worse off than a decade ago when it comes to severe chronic pain...
Wednesday, April 24, 2019
Wednesday’s Addition of My Daily Newspaper “ Autoimmune Arthritic Systemic Life”
Wednesday’s Addition of My Daily Newspaper “ Autoimmune Arthritic Systemic Life”
http://news.autoimmunearthriticsystemiclife.com/#/
Women and Arthritis
Arthritis affects people of all ages. Diagnosis of most forms of arthritis occurs between the ages of 40 and 60 years old. The rates of arthritis are three times higher in women than in men.
The disease is characterized by chronic joint inflammation. Stiff joints with limited mobility and pain are common symptoms of the disease.
Over 100 forms of arthritis are recognized with three of them being the most common: rheumatoid arthritis, osteoarthritis, and psoriatic arthritis... (see URL for rest of article)...
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I really have SO MUCH to try & catch up here on, so I am going ton"Post"n some of my ongoing chronic health issues, things abo...
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I finally made a trip to Urgent Care with what I feel is a very bad Lupus and RA flare, but there are several "symptoms" strange t...
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How can our kids feel safe when WE as adults don't???? I fear Wal-Mart or just walking across the parking lot at HEB in my small lo...