Showing posts with label chronic pain and suicide. Show all posts
Showing posts with label chronic pain and suicide. Show all posts

Thursday, April 25, 2019

(Open Letter) signed by over 300 pain specialists, other physicians and those in the medical profession to the CDC & how their "Guidelines" on Opioid Medication could drive Chronic Pain Patients to Suicide...



Are Federal Guidelines for Prescribing Opioids Hurting Patients with Chronic Pain?

(Open Letter) signed by over 300 pain specialists, other physicians and those in the medical profession to the CDC & how their "Guidelines" on Opioid Medication could drive Chronic Pain Patients to Suicide... (letter URL below)


https://docs.google.com/document/d/1RzQDSppUKhjiAsEmhW2WbTXlP5V8vJ4M_vBPQLKhK_8/edit

Information comes from the links here....
www.democracynow.org 
https://www.democracynow.org/2019/3/27/are_federal_guidelines_for_prescribing_opioids


For many years my Mom would ask me "How did I stand the severe pain of Migraines at first, then later, Lupus, RA, Joint issues that turned into replacements, and all of the severe chronic pain she watched me have to go through... she told me several times, that there was no way, she could endure what she watched me go through, that she would have possibly committed suicide rather than put up with all I had to go through so many years BEFORE I could get some "real help" after searching for a decade or more for physicians, diagnosis, medications and things to help me not have to live with such horrid pain in my life.... 

I always tried to reassure her that things would someday "get better"... and yet here we stand worse off than a decade ago when it comes to severe chronic pain... 


Wednesday, May 2, 2018

(From the Pain News Network) Recent Death of a "Chronic Pain Patient" partially blamed on the DEA and their horrible outlook as far as pain patients....

This story is both sad and sickening. I've had this very conversation many times with my Mom, before she passed away.
She told me often she didn't see how I could withstand the amount of pain I put up with almost daily at times... And as I told her, it is NOT easy! You try in every way to "put it out of your mind" but there are days it can be overwhelming and here it one example of how a 41 year old Mom and beautiful young woman could no longer deal with the scope of possibly not being able to curb the severity of pain she was going through...



https://www.painnewsnetwork.org/stories/2018/4/30/death-of-pain-patient-blamed-on-dea





Sunday, August 6, 2017

A COMMENTARY, AND THE TRUTH FACE TO FACE WITH PATIENTS SUFFERING LEGITIMATE PAIN, & WHAT MIGHT HAPPEN IF THEY CAN NO LONGER GET THEIR MEDICATIONS...

IF this does not hit the "NAIL ON THE HEAD" ABOUT the truth of chronic pain patients, and those of us, who suffer daily, and what might happen if we no longer were able to have relief with our medications.

 

Most of us would gladly throw away pain medications, if WE WERE NOT IN HORRIBLY, CHRONIC AND OFTEN DAILY SEVERE PAIN!

 

 

 

http://globalnews.ca/news/3571142/commentary-a-deeply-disturbing-email-begins-to-tell-the-opioid-story-for-chronic-pain-patients/


Friday, June 9, 2017

Nightly News and the STORY OF THE FDA DOING SOMETHING TOTALLY INSANE - TAKING A DRUG (PAIN MED) OFF THE SHELVES FOR AN INSANE REASON!

 I was SO MAD and SO UPSET over this story I just watched on "Nightly News" that I HAD to come and post the video along with MY OPINION!!!! THIS IS NOT THE PHARMACEUTICAL COMPANY'S (ENDO) FAULT!!!! IF WE ALLOW the FDA to start doing this then WHEN WILL THEY TAKE TYLENOL AND BABY ASPIRIN OFF THE SHELVES???? Or TELL DOCTORS AND PHARMACISTS what they CAN or CANNOT prescribe for patients!!???? Just because a "group" OF STUPID PEOPLE TAKE A MEDICATION OPANA ER (by the way before I had my ain pump put in I was on this medication and it was the 1st one that contained a chemical that if you altered it by smashing it, cutting it, melting it and so forth IT DOES NOT HAVE THE EFFECT!!! Once a "drug" of ANY KIND comes off the Pharma's shelves, THEY CANNOT CONTROL WHAT A PATIENT DOES OR DOES NOT DO WITH IT!!! Nor can anyone but that patient!!!!! IF THEY can't get "Opana" then they will get SOMETHING ELSE.... NOTHING the FDA does will KEEP THOSE WHO ABUSE IT BADLY ENOUGH TO KEEP FROM FINDING SOMETHING!!! mMANY PEOPLE Use their ANTIDEPRESSANTS to try and commit suicide! IS THE FDA going to REMOVE ANTIDEPRESSANTS FROM THE MARKETS????? This is totally insane!!! IF WE stand for this AS PATIENTS, AS CARETAKERS, AS ADVOCATES FOR CHRONIC PAIN PATIENTS, AS ANYONE WHO DOES NOT WANT THE FDA TO RULE OVER WHAT WE CAN DO.... or NOT DO... They need to send an email, send FACEBOOK POSTS, SEND TWITTERS, ANYTHING TO SAY "HELL NO" I will NOT stand around with my hands down and head in the sand and allow this mess!!!! GGGGGRRRRR! This one really gets me extremely upset.... as a legitimate chronic pain patient that could NOT live without my Pain Control.... I would have already passed away from pain!!!!!! I CHALLENGE EACH ONE THAT DOES not agree to DO SOMETHING!!!!!







http://www.nbcnews.com/nightly-news/video/fda-to-drug-maker-please-pull-this-potent-drug-off-the-market-964253763552


Saturday, September 19, 2015

Pain Awareness Month and Suicide Prevention Month - Do We think about just how badly chronic pain can be and for some, almost to the place of not being able to live with it....

This is so well put! WE, many of us, with chronic daily pain, the kind that without any treatment would leave you in bed, on the sofa, and without ANY quality of LIFE!!!!! Yet, those FEW who choose to "abuse" medications, cause a ridiculous amount of questioning, hoop jumping, "looks at us like we are "addicts" " and even many that all of a sudden can no longer GET their meds... as she put it... to HAVE A LIFE  ... we do not use meds to "escape" from living... that in itself was one of the best ways I've heard to speak about the people that abuse medications. But those that do cause harm by their own abuse, and making life almost unbearable for those that do everything correctly.... just to as I say, and the article says to have "life"... NO PAIN medication EVER completely takes pain away.... it makes us "able to deal" with the pain better, when it is "less" than unbearable. I have an implanted pain pump that my Pain Doctor implanted in 2010... and we have "tweaked" the medication in it over the years, if need be. But, I still have a script for "back up" pain... maybe I am having more pain than usual from a weather change, or from doing something in my daily life that may exaserbate the pain at times. Yet, nothing takes it away... it helps me deal with what is pain remains... it allows me energy to DO my errands chores, go out for a day to have a bit of "off time" and so on.... if it were NOT for my pain medications, I would almost be to a place that it would be "intractable"... more often than not... and in fact, due to a lower back lumbar/sacral problem, there have been at least two times in the last 3 years that it was like I have NO PAIN medication at all.... In fact I even went through and had a talk with my pain doctor. All I wanted to do it sit in the floor and cry, the pain was so horrid.... I went that way for weeks... and we found the problem... and now due to this abscess I am still not able t0 have surgery... but at times even with what I have, it can be to the point you wonder if you are not just going to go insane from the pain.  So, each time I see or hear about how many "abuse" medications and all they want to do to make it almost impossible for us to get our medications, it just infuriates me... for ONE DAY I would like to "hand over" my pain to some of those that think it is all "bull" and let them walk in my shoes for 24 hours... I wonder how they would feel, when they awake to stiff, swollen, throbbing hands, knuckles, feet, ankles, hips, pain down my leg, severe headache from Lupus... and see how long they could "tackle" the pain without any help from medications... If you gave them a week, I bet 95% or more of them would be begging for relief..... And I have had several people over the years ask me how I "cope"?  How do I get up and around with the pain and chronic illnesses, the fatigue, the swelling in my joints the stiffness, the pain that does not matter if you sit, stand, lay down... it is just there,... and by "faith" and "hope" and taking ALL of my medications as I am instructed, and trying to stay as active as possible... helps me to cope... my writing, my blog, being here on FB, my activism, advocacy, and my Ambassador roles... the AF, WEGO, Lupus Foundation, IFAA.... all of those and more, that give me the will to know I must FIGHT not just for myself, but for others out there just like myself or even worse.... Rhia Steele​

http://nationalpainreport.com/pain-awareness-and-suicide-prevention-8827504.html



http://nationalpainreport.com/

 

 

After reading this article I felt compelled to share it. This is one of the MANY complicated emotions when you are dealing with Chronic Daily Unrelenting Pain....

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