Showing posts with label autoimmune illnesses & complications. Show all posts
Showing posts with label autoimmune illnesses & complications. Show all posts

Thursday, March 16, 2017

Thursday’s Addition of my Newspaper "Life Chronic Pain & Autoimmune Systemic Diseases & Dementia

For those of you who may not be aware of my daily Newspaper I have and put out everyday here is a link to today's latest addition for today's paper! LOTS of great information here on Chronic Pain, Lupus, RA, other Autoimmune Illnesses, Dementia, and more. There are usually pics, along with articles, and video's daily. 

Please stop by and see the daily additions. I usually update it at least once daily in the mornings, and sometimes twice daily if I feel there is more I should let you know. There is also a link that has that information on the side of my blog pages if you can't find it one day. I've been getting quote a good deal of positive feedback, even from Twitter, IN, FB on several of my pages, and more.... 

Come by, visit and give me your feedback!

Saturday, January 7, 2017

As Usual NOTHING is simple when it comes to MYSELF and MANY others with COMPLICATED AUTOIMMUNE ILLNESSES!

                            DO COMPLICATIONS EVER END????

Once again, my autoimmune illnesses play a difficult part when it comes to my health, my life, and after something like a major surgery.

Many of you know I had taken a hard fall on my hardwood floor on December 13th - which led to 2 fractures n my right hip. I had staples in it, due to two incisions, but I had a rod and screws put in and did not have a complete hip replacement, which we hoped meant I would be home sooner. SO MUCH for that thought! I should know better by now to :"assume" anything I have done will be "simple".

The surgery, the rod and screws, which I got to see on an X-ray yesterday January 6th, are healing well. I had a complication with my foot, thinking it was fractured, but I found out I have a torn ligament, which probably began when I twisted my ankle back in June so severely, then the fall, in which also involved my foot being "hung up" and caused the fall, then probably tore that ligament the rest of the way, thus now my right foot is in terrible pain, when I am standing or trying to rehab the hip. I've had to learn to work past the pain in my foot, thus the rehab portion on my hip is going very well.

Even my orthopedic surgeon said yesterday, that in spite of my complicated health problems, I am doing extremely well, and past schedule in a good way, compared to what he thought I might be. He was telling his nurse, that due to my attitude and willingness to work with therapy, I am doing very well. Yet, between the anemia, the liver enzymes being high, and now this "hematoma" that developed on top of the main incision after the hip was repaired, I face another surgery this coming Tuesday.

He has to go in and drain the "grape jelly" as he called it, the blood that has accumulated like a huge blood blister under the skin, and put a drain in it, so we can get rid of the huge "mass" right on my thigh, that makes me look "deformed". He said in his report, it is big as a softball. WOW! I knew it was large but "softball size"? So, rather than GOING HOME EARLY NEXT WEEK, I face yet another SURGERY! So, that delays me getting on home and back to my life, as I wanted to.

It certainly takes the idea of my neck surgery that I need so badly, completely out of the picture, and makes me want to "run" if I could somewhere that not a soul could touch me, and just be totally alone, perhaps with my puppy, Peanut, and the new puppy that awaits me once I get home.

Here are a couple of pics of my new little boy

who awaits me: He is apart of what keeps me on focus to hurry up get well and GO HOME!!!! along of course with Peanut also a Fox terrier....

Friday, January 6, 2017

Fearing...Home...Falling Again...Loss..Bad Blood work...Grieving, and more.... So Many Questions - Looking for Answers

I can't "fuss" too much about the care I've received in both the hospital and now the Rehab Hospital. Thank Goodness, it is NOT anything like a nursing home!

Although they have "long term" patients, there are 4 "Halls" of which each serves a different type of patient. So, those that like myself, are trying to "rehab" so they can go home and be able to care for themselves, we are all in one hall.

The others are for Dementia/Alzheimer's patients, and those that are probably here for the rest of their days.

I really have not encountered much that I would say was "wrong".... I usually get my meds when I ask within a reasonable amount of time, even though there are times, they have patients coming to to be admitted, or things get crazy, and I may have to wait a bit, or remind them. Most of the time, the nurses are apologizing to me, because they were not "prompt" in getting me my pain, muscle relaxers and my diazepam in a timely manner.

I've been able to shower by myself the past two times, and I am getting around MUCH better this past 4 or 5 days. Enough so, I am READY TO GO THE HELL HOME, I am SO BORED WITH IT ALL NOW!

But, complications, like a huge hematoma, at the repair site on my hip, has caused a delay in getting the staples out, my liver functions are all high, and my anemia really was a very huge concern. So far, it appears after the 3 units of blood at the hospital were given to me, my red blood cell counts have gotten better, but I look for them to bottom out again, once I am not here and on the supplements, besides I still feel that I have pernicious anemia, which is an autoimmune illness, plus even the liver issues, probably have to do with Lupus and the RA, causing the issues with my red blood cells being so low.... etc....

I realize I face yet another surgery my neck surgery,if I can recover from the hip fractures (or actually WHEN I recover enough to go and have it my lower back has to be fixed lower back and neck both were already needing surgery, then between trying to take care of Mom, and now the "jolt" from the fall, both are worse than ever.

ALL OF YOU, PLEASE stay with me!!!! I am certainly NOT giving up on my blog, my advocacy, writing and my other things I participate in so I can HELP OTHERS understand they are NOT alone.....

I am trying to find ways to increase my readers here on my blog, but I know I really need to make sure I have interesting and valuable information here for everyone, or all of you will get bored with it.

IF YOU have any ideas of what you may like to read, hear about, or have me talk about, PLEASE let me know. You can always email me at:

Tuesday, November 3, 2015

When you are backed against a Wall - Where do you Turn? Right now I feel "Green" because of these HOLES in both thighs... sick and tired of being sick and tired.. Music, Brooks and Dunn & More...

I almost had to laugh - I come here every day just about and see the same "line" - "What do you want to talk about or what is on your mind today?" What mind? I lost that years ago..... and I am saying "How Long Gone Are You Gonna Be?" - that is my mind... and I won't be as explicit as I feel as this moment, but others have "heard" me say "bat #$@! crazy!" yes, that explains me.... to a tee... speaking of a "tee" - hell I even lost the one person that wanted to teach me to "play golf"... not that I was all that excited, but back then I was excited any time I was asked to do anything... I know some a probably wondering why all of the "lyrics"? - Guess what??? I am ONE Helluva MUSIC Lover! - You name it, from scootin' a boot, to Rap, to Blues, to the 70's, 80's, and "Classic Rock" - as long as it is not some Mozart or such, I have always loved music... most of my life, if I was not on a dance floor, then I was home dancing, as I cleaned house, or did my college work, or bought groceries, and you can take the "girl" out of the country, but you never can take the "Country" out of the girl - Ah, yes Brooks and Dunn... LOTS of reasons for them.... LOTS of awesome memories, plus they are, were and will be always the best, well there is George Strait, Kenney Chesney, & the entire entourage' of great Country musicians.... okay, well honestly, I feel like HELL, and I mean that in every way I could possibly mean, I feel like I want to throw up, die, faint, walk out the door, and never return, ah, but, try to walk even out the front door with TWO HUGE FREAKING INCISIONS in each thigh!!!! After the "lidocaine" wore off last night, not even morphine does much good.... and of course no pain pump, thus that makes it even worse..... right now, I cannot see "past" the tears, the heart break, the "lost opportunities", the times I should have LISTENED to my heart, rather than my "head" or Dad, whichever one came usually first... I have missed OUT on a great deal of "life" - and now as physically messed up as I am, some of those opportunities are never to be... shall I dance again? Well, if I can get my thighs well, yes... will I play the drums again, or the key board... I can... and probably some where down the line I will... right now NOTHING and I mean NOTHING seems "possible"... yes I did say that correctly, I feel as if every "possibility" is "Way Gone"... so, NEVER take a moment of life for granted, NEVER think next week or tomorrow.... never set in a mediocre spot in life, putting off what you SHOULD do... because within a breaths space, it can be "Way Gone"...... Here you go - You want something to truly put things in perspective:

Brooks and Dunn

"When Love Dies"
Love conquers all and someday it'll conquer you
There's nothing finer than falling all in it
When love is true
But once it goes out and breaks your heart
It still ain't history
When love dies it don't rest in peace
You can lock your doors and windows
To keep the pain at bay
Yesterday may be dead and gone
But the past wont go away
Its waiting right around every corner
With a heartache you don't need
When love dies it don't rest in peace
Oh when love dies
You cant bury those memories
Oh when love dies
It disappears but it never leaves
When love dies it don't rest in peace
How does love die then come back
A ghost rattling chains
It keeps on haunting my broken heart
Driving me insane
I hear it whisper my name in the night
Just like it still lives and breathes
When love dies it don't rest in peace
Oh when love dies
You cant bury those memories
Oh when love dies
It disappears but it never leaves
When love dies it don't rest in peace
Brooks and Dunn -

One more - my all time favorite one of their very first huge hits - then I have to muster enough moments on this computer to pay bills - and if I can get that done, then I am headed BACK to the sofa, to "Wish Upon A Star" -
"That Ain't No Way To Go"
Lipstick letters across the mirror this morning
Said, "Goodbye, baby." You left with no warning
Like a thief in the night, you ran away with my heart
I can't believe my eyes, must be a bad dream
You always said we had a good thing
You never once let on we were falling apart

That ain't no way to go. Girl, it just ain't right
Don't you think that I deserve to hear you say goodbye
That ain't no way to go. Was it all a lie
After all this time, that ain't no way to go
Getting nowhere, I'm tired of thinking
Guess I'll do a little wishful dreaming
And make a whiskey wish upon a star
Train whistle blowing down the tracks
Lonesome sound says she ain't coming back
It's such a cold blow from out of the dark
That ain't no way to go. Girl, it just ain't right
Don't you think that I deserve to hear you say goodbye
That ain't no way to go. Was it all a lie
After all this time, that ain't no way to go
Brooks and Dunn....

Saturday, September 19, 2015

Pain Awareness Month and Suicide Prevention Month - Do We think about just how badly chronic pain can be and for some, almost to the place of not being able to live with it....

This is so well put! WE, many of us, with chronic daily pain, the kind that without any treatment would leave you in bed, on the sofa, and without ANY quality of LIFE!!!!! Yet, those FEW who choose to "abuse" medications, cause a ridiculous amount of questioning, hoop jumping, "looks at us like we are "addicts" " and even many that all of a sudden can no longer GET their meds... as she put it... to HAVE A LIFE  ... we do not use meds to "escape" from living... that in itself was one of the best ways I've heard to speak about the people that abuse medications. But those that do cause harm by their own abuse, and making life almost unbearable for those that do everything correctly.... just to as I say, and the article says to have "life"... NO PAIN medication EVER completely takes pain away.... it makes us "able to deal" with the pain better, when it is "less" than unbearable. I have an implanted pain pump that my Pain Doctor implanted in 2010... and we have "tweaked" the medication in it over the years, if need be. But, I still have a script for "back up" pain... maybe I am having more pain than usual from a weather change, or from doing something in my daily life that may exaserbate the pain at times. Yet, nothing takes it away... it helps me deal with what is pain remains... it allows me energy to DO my errands chores, go out for a day to have a bit of "off time" and so on.... if it were NOT for my pain medications, I would almost be to a place that it would be "intractable"... more often than not... and in fact, due to a lower back lumbar/sacral problem, there have been at least two times in the last 3 years that it was like I have NO PAIN medication at all.... In fact I even went through and had a talk with my pain doctor. All I wanted to do it sit in the floor and cry, the pain was so horrid.... I went that way for weeks... and we found the problem... and now due to this abscess I am still not able t0 have surgery... but at times even with what I have, it can be to the point you wonder if you are not just going to go insane from the pain.  So, each time I see or hear about how many "abuse" medications and all they want to do to make it almost impossible for us to get our medications, it just infuriates me... for ONE DAY I would like to "hand over" my pain to some of those that think it is all "bull" and let them walk in my shoes for 24 hours... I wonder how they would feel, when they awake to stiff, swollen, throbbing hands, knuckles, feet, ankles, hips, pain down my leg, severe headache from Lupus... and see how long they could "tackle" the pain without any help from medications... If you gave them a week, I bet 95% or more of them would be begging for relief..... And I have had several people over the years ask me how I "cope"?  How do I get up and around with the pain and chronic illnesses, the fatigue, the swelling in my joints the stiffness, the pain that does not matter if you sit, stand, lay down... it is just there,... and by "faith" and "hope" and taking ALL of my medications as I am instructed, and trying to stay as active as possible... helps me to cope... my writing, my blog, being here on FB, my activism, advocacy, and my Ambassador roles... the AF, WEGO, Lupus Foundation, IFAA.... all of those and more, that give me the will to know I must FIGHT not just for myself, but for others out there just like myself or even worse.... Rhia Steele​



After reading this article I felt compelled to share it. This is one of the MANY complicated emotions when you are dealing with Chronic Daily Unrelenting Pain....