At this moment, I am not able to give any details, but I will say for
now that the "nightmare" from March 26th 2014, hopefully is coming to an
end very soon. My hopes are by the end of today, or at least by the end
of the week. It has been a very, very LONG, winding, and life changing
road, to say the very least, and it has taken its toll on not just
myself, but everyone else, and tore the "life" I knew to shreds....
Let's just hope that it all ends, and ends on a "good note" for this
side... People are "fickle"... so I could not "read" the looks on faces
last week, but my hopes are that all of the many tears I have cried
since that fateful day, and that horrid phone call, have not been in
vain... after things are said and done, then I can say more....
By the way, just got home from Mom's Kidney sonogram, and I FINALLY got a call from my PAIN DOC'S office! My pain pump IS APPROVED, thank goodness, AND they were going to do surgery this coming Friday, BUT due of course to the abscesses, I have to wait, and get a "clearance" from my PCP... and I have to call them to let them know I do not think these antibiotics are working.... and then tell them they HAVE to GET ME WELL ASAP so I can get this surgery over with! Wish me luck, and still "no word" on the other item yet....
"Through my heart's work of writing, I share with you my complex journey a top the mountain, sliding down, crawling up, & living through the realms of Autoimmune Arthritic Illnesses. Taming "The Wolf" Thru each Day... One Step at a Time … Together We Are Learning to Survive. Please follow along, to New Beginnings - looking Thru the Window Pane of Pain in life where we shall find our journey leading us to - New Perspectives
Tuesday, November 10, 2015
Monday, November 9, 2015
"ACR15" (American College of Rheumatology) conference 2015 in San Franscisco!
Since I've been away for a couple of days, I didn't get a chance to post about the ACR15 Conference! From the looks of it, they had an incredible turn out. Lots of non-profits like Creaky Joints, the IFAA, the Lupus Foundation and so many more.
Plus The Rheumatology Research Foundation is celebrating their 30th Anniversary this year and launched a brand new website for it! So, there are lots of great things, events, and research, plus more awards and so forth going out for all of the incredible work done by so many, when it comes to the realms of RA, Lupus, and so many, many more diseases.
An Article About the High Cost of Medications for Conditions such as RA, and how frustrating it is for the Doctors also...
http://www.wvgazettemail.com/article/20151017/GZ04/151019600/1455
New Website for their 30th YEAR - American College of Rheumatology!
http://www.rheumatology.org/Advocacy
Plus The Rheumatology Research Foundation is celebrating their 30th Anniversary this year and launched a brand new website for it! So, there are lots of great things, events, and research, plus more awards and so forth going out for all of the incredible work done by so many, when it comes to the realms of RA, Lupus, and so many, many more diseases.
An Article About the High Cost of Medications for Conditions such as RA, and how frustrating it is for the Doctors also...
http://www.wvgazettemail.com/article/20151017/GZ04/151019600/1455
New Website for their 30th YEAR - American College of Rheumatology!
http://www.rheumatology.org/Advocacy
Saturday, November 7, 2015
Abscesses, Catching you Up, and letting you know that I shall be back very soon... please continue to follow me.... the realms of life, autoimmune illnesses, Lupus, Sjogren's, surgeries, pain pumps, & the "trial"...
I
apologize for being "MIA".... LOTS of stuff happening here... for one I
had BOTH abscesses incised on Monday... the "1st" one got infected
again, even though we thought it was okay, then the other lump on the
right thigh got horribly abscessed, so the surgeon opened the both of
them up on Monday... IN HIS OFFICE!! Do NOT even get me started, I am
one tough cookie when it comes to pain, and procedures, but I should
have been taken to outpatient and put under sedation... I have pics of
them on my FB page, and honestly the right one looks worse today than
earlier in the week.... I am on antibiotics, but I do not think they are
helping the right one at all... I have been on Rifampin and Bactrim now
for weeks and weeks... and they have helped the left thigh, but as I
said the right one is swollen "angry red" and HURTS like heck to have to
open them both up at least 2 times a day and go inside them with cotton
swabs and peroxide to clean them out.... and I fear I am running
fever.... and some may know that my "internal pain pump" also went into a
motor stall... well they had information the first time it "re-started"
itself, and my pain doc reset the meds in it, and that lasted about 5
days... then a week ago yesterday, the Medtronic Rep drove from Dallas
down here and met me at the hospital to "turn the flow down to
nothing"... so just in case it starts again, I won't get the meds much
at all, and then they have me on strong oral pain meds for now... so I
face surgery to implant a new one, but no way will they touch me in
surgery until these infections are cleared up... and gosh knows when
that will be... then the "trial" was this week for my soon to be
ex-husbands wreck, in March 2014, when I was in DC with the Arthritis
Foundation. I did not go at all until yesterday mid-day. I testified,
which meant reliving the entire ordeal again... not fun, but then I
drove back home. I did not stay, honestly my doctors would have freaked
had they known with my current physical issues, drove 35 miles plus to
downtown Dallas, went into a "germ filled" courtroom, etc... but I felt I
did need to say my own part of all in this.... in so MANY WAYS this
horrid nightmare of a wreck, totally "wrecked" my life, physically,
mentally and emotionally, and in some ways even more than Jim's... there
is a great deal of the first almost 3 weeks, he does not remember at
all... and he does not remember a moment of the wreck in itself...
anyway, due to all of that, along with my Mom and her sudden new medical
problems, I have either been here just a tiny bit, or not here at
all... usually on the sofa when I can be, or taking her to the doc, or
myself... and then to the court house yesterday for a couple of
hours.... anyway, I wanted to
catch everyone up a bit... I have felt badly about not being able to
"share" posts, and put things up on my blog over this past at least a
week or more... but honestly, I have felt so lousy, and with the trial
and all of that... plus I am trying to get well enough to "adopt" a new
pup... I still miss my Tazzy so much, it just breaks my heart each time I
think about her sweet face.... so hopefully after next week... my hopes
are there is a huge load lifted off of our shoulders... and I can
"hopefully" try and find some way to put my life back together...
anyway, I thought the comment was cute Tiff.... and thanks all... also
hope to be back here, posting, sharing, and getting back to what I love
to do most... my advocacy and activism...
I am extremely concerned about the right thigh and the abscess... it is so totally red, swollen, and it is just a nail biting horrible pain to have to clean it all inside with peroxide and cotton swabs... but it has to be done, and either I do it, OR I do it!
Anyway, to ALL of my followers here, please forgive my brief absence... and I shall be posting more hopefully from now and forward... by the way, the damned pain pump keeps turning on and then stalling... each time it does that, my "side" starts beeping... that was a real "hoot" yesterday at the trial... everyone would look at me... I had to wonder what they thought... they were supposed to have been told about it, but I think that did not get mentioned, thus it was kind of funny to see people staring at me....
I am extremely concerned about the right thigh and the abscess... it is so totally red, swollen, and it is just a nail biting horrible pain to have to clean it all inside with peroxide and cotton swabs... but it has to be done, and either I do it, OR I do it!
Anyway, to ALL of my followers here, please forgive my brief absence... and I shall be posting more hopefully from now and forward... by the way, the damned pain pump keeps turning on and then stalling... each time it does that, my "side" starts beeping... that was a real "hoot" yesterday at the trial... everyone would look at me... I had to wonder what they thought... they were supposed to have been told about it, but I think that did not get mentioned, thus it was kind of funny to see people staring at me....
Tuesday, November 3, 2015
Real Time, Real Life "Gore".... THIS is what I am living with at the moment...
THIS is what happens when your immune system is "Hijacked" by an Autoimmune Disease(s) - both legs with abscesses in them... just as 24 hours from when the surgeon opened these yesterday.... not a "fun" way to even remotely think about the holidays for sure....
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I finally made a trip to Urgent Care with what I feel is a very bad Lupus and RA flare, but there are several "symptoms" strange t...
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I really have SO MUCH to try & catch up here on, so I am going ton"Post"n some of my ongoing chronic health issues, things abo...