Stevie Nicks - My Idol, My "Name Sake", My Muse.... what an Incredible Woman... and I love all of her songs... yet this one fits right now so well.....

Have You Forgotten....Me.... by Stevie Nicks my Idol, my "namesake"... my Muse....


You've left me now and its seasoned my soul
and with every step you take
I watch another part of you go
I continue to build the wall
You were so strong I fell to my knees
and I don't think I can handle this at all

Well, one more night I'd like to lie and hold you
(yes, and feel...)
to make you smile, I'd like to be there for you
have you forgotten...me

and the days go by
doin' nothin about them
how much time
will i have to spare

my mind won't rest, and I don't sleep
not even in my dreams
if you ever did believe for my sake
if you ever did believe

and the days go by
(by...)
doin' nothin' about them
how much time will I have to spare

and the days go by
(by...)
doin' nothin' about them
how much time will I have to spare

well, one more night I'd like to lie and hold you
(yes, and feel...)
to make you smile, I'd like to be there for you
have you forgotten...me

baby don't leave me
baby don't leave me
baby don't leave me
im down on my knee

Petition and Comments of the Docket from the CDC on Pain Medications - we need your COMMENTS AND SIGNATURES!

This is a Petition in the Government Petition organization and we have over 20,000 letters and signatures on this one....

 

http://www.petition2congress.com/5202/first-do-no-harm-dea-targets-physicians-who-treat-their-patients/view/


As this Petition is titled our doctors have been sworn to "Do No Harm" and if WE as True Pain patients cannot get our medications due to these ridiculous guidelines, then our doctors are going against the "Oath" they took to be physicians!

The DOCKET located here :

http://www.regulations.gov/#!docketBrowser;rpp=25;po=0;dct=PS;D=CDC-2015-0112;refD=CDC-2015-0112-0001 

Has 1,300 COMMENTS but we need 13,000 or 20,000 COMMENTS!!! Please go in and take a few moments to comment and to sign the petition, you can do it anonymously if you wish... we have until January 13th... so be sure to get those in by then... it will close and then will will not be able to comment, and if you can't do it online, there is an address you can mail your comments to directly!

A Happy New year as we Welcome in 2016 - and New Pain pump is now in

WISHING YOU AND YOURS A VERY HAPPY, SAFE, HEALTHY AND PROSPEROUS NEW YEAR! MAY 2016 BRING PEACE, HOPE, FAITH, AND LOVE TO OUR NATION AND TO OUR WORLD!!! MY HOPE IS FOR ALL OF US WHO HAVE SUFFERED THROUGH SO MUCH FROM PAIN AND ILLNESSES, TO LOSS OF LOVED ONES, HOMES, MOTHER'S NATURE'S WRATH AT TIMES, AND MORE... MAY WE FIND A RENEWED PLACE IN OUR LIVES FOR THE COMING YEAR. LET'S PUT 2015 BEHIND AND LOOK FORWARD TO SOMETHING THAT SHALL BE SO MUCH BETTER, FULL AND OVERFLOWING WITH GOODNESS, AND LOVE...

RHIA

p.s. New Pain pump is new... surgery went well... I am hurting like hell today, but I am okay... have a call in to my doctor before he also is out for the holidays to check to see about my medications orally until I see him after the 1st of the year next week, when he will up the meds back closer to what I was used to....

UPDATE - On New Pain Pump Surgery and what is to come....

NEW PAIN PUMP IN AND WILL POST MORE LATER....

A quick post to let everyone know I am home, actually got home by about 11:15AM or so, and how I am doing. I know some friends and family maybe concerned, and I am kind of "out of it" so I wanted to post here so everyone knows I am doing good.... I am so thrilled that a dear friend of mine, who was pregnant with her daughter the same time I was with mine, took me and brought me home. She has has several back surgeries herself, so she knows all too well, about all of this.... I am very thankful that she did that for me.... :)




I am actually home already and all went fine. They had a bit of a mix-up not having the medication there at the outpatient center that he fills the pump with. But, my old pump had quite a bit in it, at least until I see him on the 7th. The did NOT turn up the pain meds in the pump like I thought they would, and that is probably for one due to the correct medications to refill it completely, and then I think he wanted to see how I do for now. I still have more oral med I can take if I need them, and I already knew I came home after a 30 mile ride back, had to take one of them... but they had me in and out so quickly again I am still feeling the anesthesia medications in me... so they are keeping me on the sofa at least today to see how all goes... and to get some rest like I know they wanted me to... so I am not staying on here, just wanted to post quickly to let you know and some of my family and so forth I am home safe and sound... and all seems to have went well...

Pain Pump Replacement in the wee hours of tomorrow morning,..

IN October 2010 I had the original pain pump put in, which should have lasted 7 years or more... and here we are 5 years and its been in "stall" for months.... LOTS of things have happened between 2012 to 2015... some good, some horrible... and some I am so fed up in dealing with... I am SICK OF BEING SICK, I AM SICK OF SURGERIES, DOCTORS, HOSPITALS, TEST, LAB WORK, MEDS AFTER MEDS... Does it EVER END??? or at least get somewhat better... For some reason I am having one of these "diassociative" realms, where I feel I am here but not here... I've had this a couple of times in the past about 4 years, especially when there is just too much to deal with... and I think that is where I am at... I want this surgery, and the other at least one in my cervical spine taken care of... and I want some kind of freaking normal to exist... Sometimes I guess maybe that is too much to ask for... so my friend Carrie is picking me up at 4:30 AM and I have to be at the outpatient surgery center to check in at 5:30AM I HOPE that means I am "first up" and can get in and get out.... and we don't have to spend a whole lot of time up there, but they will intubate me, and put me under completely due to the type of surgery it is... so keep me in your thoughts and prayers, along with my Mom, who is totally worried, and Jim... and my kids... plus Carrie please prayer that she is able to drive and be safe.... she has also back issues badly, having several surgeries herself... so I am sure this will not be pleasant for her either... I shall post when I can... 


Now here I am facing yet another surgery, and two after this one if my neck and lower back don't improve... 

Garland and Rowlett went through horrid weather last night, 11 confirmed dead in these tornado's

http://www.fox4news.com/news/63566813-story

http://www.fox4news.com/news/63566813-story#.Vn_yWudKxXw.facebook

Eight dead in N. TX after Sat. tornado outbreak

Just unbelievable for this time of year, and then to right now have 11 people dead from these storms, no one would have ever suspected this kind of chaos and this much severity of weather for this time of the year! 

 

 Provided by Bass Pro Shops in the Garland Area from last night....

Chronic Pain Medications, Narcotics, the CDC, Public Comments and More information I feel you need to read...

I have to say, that some of this is very true! I do know just from speaking with my pain specialist, that there are many programs all doctors can attend, that are free, and it gives them the knowledge to give patients with chronic pain issues, the proper diagnosis, and then the proper treatments, including medications if needed. 

But WE will NEVER see a CHANGE unless WE as a NATION, as a COMMUNITY, come together as ONE, and demand THINGS CHANGE! I've learned a great deal from my pain doctor about things such as Medicare Advantage Plans, Medicare itself, why many doctors have issues taking some of those policies, or even Medicare... it took my own pain doctor over 2 YEARS and then he had to go in front of a judge JUST TO GET PAIN FOR 2 SURGERIES! Doctors do NOT have time, and they cannot possibly run a practice if they have to wait YEARS to get paid for a procedure... My pain pump surgery alone will be somewhere around 30,000.00 or so... Just the pump in itself, is extremely expensive... 

so if I doctor does a few of those, and then has to wait YEARS to get paid??? They can't possibly stay in business like that. Plus I have heard some doctors admit, one reason they do not give out pain medications is because they feel they are not "trained" enough... our newer physicians ARE now being trained in chronic pain, Lupus, RA, autoimmune illnesses, and that is a good thing. ALL physicians should know about these diseases, and about chronic pain... So, I believe that the CDC has some to do with it, but then I feel "Congress" and the likes also have their fingers in it, along with our "insurance, Medicare" and so forth... and the fact that WE have to stop Hiding our heads in the sand, and STAND UP AND TELL OUR STORIES!!!! It is totally imperative that WE STAND TOGETHER and make our voices heard. 

We have some great organizations out there, the US Pain Foundation​, Power of Pain Foundation just to name two of them, but they also NEED US to HELP them get the word out... that is the ONLY way we as patients, caretakers, family and friends, will get the treatments we need, under the right circumstances, and not have our physicians "frightened" to prescribe the medications their patients need.... many of us cannot AFFORD a "specialist".... And even Finding a "good Pain Doctor" is NOT EASY! 

Can you imagine walking into a "Pain Management Doctor's Office" that ALSO IS A TEACHING UNIVERSITY, to find out THEY do NOT "prescribe" pain medications, but they send a 'RECOMMENDATION" TO THE patients PCP to give them the medications??? now how stupid is that!!! Talk about nuts! Then WHY call themselves a PAIN MANAGEMENT CLINIC???? This just happened last week to a friend of mine, and I know of a doctor here, that is a "pain doctor" but he got "reprimanded" so he can prescribe "some medications" but nothing that would be "narcotic" in nature... so you go in, thinking you will get the help you need... and then find out he can give out other medications, BUT he cannot prescribe any type of narcotic, even though he tells you that is what you need!

Don’t Blame CDC for Poor Pain Care — Pain News Network