I am just so TOTALLY PEEVED at the CDC and ALL that they present when it comes to Pain Medications, especially "opioids" I want to SCREAM! YES, there are those who choose to abuse... but that abuse is FAR NOT what has been in the main stream of the news, and from the CDC! Right now, and I know many that suffer from all types of severe chronic pain daily... if WE including myself, had any OTHER CHOICE, and did NOT have to have these medications in order to have a better quality of life, you can BET WE WOULD CHOOSE SOMETHING ELSE! Many, MANY OF US, have lived through YEARS AND YEARS OF HELL! We have been through the many tests, all of the other medications, we do "exercise", we do try and go on with our lives, we DO ABIDE BY OUR DOCTORS RULES AND REGULATIONS, we DO everything we are supposed to do OR NOT SUPPOSED TO DO, in order to try and not have to take pain medications YET FOR SOME OF US, THEY ARE OUR SAVING GRACE! They are what allows us to get up in the mornings, and go on about our days the best we know how, whether that is work (and even with my medications I had to stop working in 2003, and spent until 2007 getting my disability! Durong that time I SURVIVED barely, with very little medication, BUT I was too ill to work, too ill to really do much of anything, I had lost hope, and was about at the end of my own rope, until I FINALLY FOUND MY pain specialist who tried to put my life back on a tract of being able to "live"... DO THEY TAKE AWAY ALL PAIN? NO! NOTHING, but the day we LEAVE THIS PLACE AND MOVE ONTO WHEREVER WE GO FROM HERE, will ALL OF OUR PAIN BE GONE! BUT, can we "take it", can we "live with it", can we do things with our families, some of us still work, do advocacy work, be useful in our society, in our neighborhoods, churches, with our loved ones, and try to enjoy life as much as possible...
YES! I realize that without all of the other surgeries, PLUS more ahead, my pain would only get worse... so even though due to my heart problems, and other illnesses, I take a chance, I DO have surgery IF my doctors tell me they have a chance to "lessen" "new pain" that comes when you have degeneration of joints, of your spine, when things happen you have NO control over, that can cause further pain, you DO what you CAN to NOT have to take any more medications... after all any of us can only take so much medication, no matter what type it is... and any medication works only as well as your physical, emotional and mental state allows it to...
BUT WITHOUT MY pain medications, I would NOT be able to take care of my aging Mom, who is 81 and now suffering from probably Alzheimer's or some type of Dementia. I could not do my laundry, take care of my house as much as I can, try and cook for myself, take care of bills, and do my very best to go on with my life as I do... I just posted that this WEEK HAS BEEN HELL! Pain due to weather change, time change, and just me having to do more that usual this week brought on more pain....
BUT, I still try and get up, move forward, some day more slowly than others, but try my best to take ALL OF MY MEDICATIONS AND LIVE LIFE! SO, WHEN I read and hear about the CDC, and all of those WHO HAVE NO CLUE WHAT LIFE IS LIKE... AND WHAT IT WOULD NOT BE LIKE, IF I WERE NOT ABLE TO have my medications, IT REALLY MAKES MY BLOOD BOIL! I can GUARANTEE YOU IF ONE OF THEM, OR ONE OF THEIR LOVED ONES, SUFFERED THE SEVERITY OF PAIN that some of us do, or WOULD WITHOUT OUR MEDICATIONS, they WOULD ALSO BE FIGHTING THE GOOD FIGHT TO TELL THEIR STORIES, AND make sure they OR THEIR LOVED ONES WERE ABLE TO GET THE PROPER TREATMENTS AND MEDICATIONS THAT THEY NEEDED IN ORDER TO NOT SUFFER DAILY! My hopes are that ALL OF US THAT UNDERSTAND THIS PASS THIS AROUND, WE TELL OUR STORIES, WE CONTINUE TO FIGHT AGAINST THIS MESS OF OUR STIGMA WE ARE ALL "ADDICTED"... WHICH IS BULL.. I never feel "high", I feel relief, relief enough that I can go on with my day.... and if you see me WITHOUT MY MEDICATIONS, you would see someone who was in so much pain, that walking across my little home would be horrible, AND WHEN I have my medications, I am able to try and move on with my life.....
http://nationalpainreport.com/cdc-opioid-guidelines-released-8829808.html
I hope YOU TOO will stand up and tell your story! WE must stand together on this!
Thursday, March 17, 2016
Wishing You The Luck of the Irish and Happy St. Patrick's Day!
Wishing You the Luck of the Irish! May you have a wonderful St. Patrick's Day, and don't drink to much of the "Green Beer"!
Wednesday, March 16, 2016
Nightly News, the CDC and Those that have NO CLUE what "Chronic Pain" and trying to Live is all about!
As
I said on my other post, I was so mad at the Nightly News with Lester
Holt last night I could have screamed! They only tell a "piece" of the
story, NOT the stories of us who would not be able to have a "life" or
any quality of life if we were not able to have physicians help us take
our pain down to where we can "stand it"... For ONE NO medication "takes
all of the pain away".... but it does give us a place where we can
"live" with it. It makes it bearable, most days. And for
them to sit there and speak like this is something that is just a
"surgery" issue etc...without even mentioning how many of us would not
be able to take care of our families, work, do anything at our homes,
nothing... we would only be able to sit, lay, or try and "live" with
severe pain, that is what I call intractable and unbearable! without my
great physicians and my medications, and that is not just pain
medications, but my RA meds, my heart medications, Lupus medications,
and so forth, I would have no life, I would never be able to take care
of me, and certainly not be able to somewhat help my Mom... and try and
do advocacy work, and write... my life would NOT be life but living
hell! I am seriously thinking about writing the Nightly News and telling
them how I felt about their "one sided" view of this situation.... and I
have to wonder "whom is lining" whose pockets, when it comes to the
CDC, Congress and all of these people that have NO CLUE what it is like
to have a disease that brings on such an amount of horrid pain daily...
they would think differently if it were them or one of their loved
ones...
This is what I am speaking of on the Nightly News from Last night March 15th
I sent my email to the Nightly News about this story last night. I hope you also take a moment to respond!
Monday, March 14, 2016
ARTHRITIS FOUNDATION SUMMIT ON THE HILL BEGINS TODAY! BE SURE TO DO YOUR VIRTUAL ADVOCACY PART!
Arthritis Summit begins today!!!!
SHARE Stories, share #hashtags, photo's, your own personal journey!!!!
YOU TOO CAN BE A CHAMPION OF YES!
I remember how thrilled I was in 2014 to be honored to be there! I hope some day to attend again!!! Until then my support is through telling my story, helping others, posting posters in my car, blogging, writing, Facebook twitter, and you name it, I put it there!
Saturday, March 12, 2016
YOU TOO Can be a Virtual Advocate during the AF Summit on the Hill 2016!!!! YOU ARE IMPORTANT!!!!!
Arthritis Foundation Summit Begins Monday in DC! YOU TOO can be a "Virtual Advocate"!!!!
http://www.arthritis.org/about-us/news-and-updates/arthritis-foundations-advocacy-summit-fights-for-awareness-and-cure.php
Advocate 101: Join the Movement
What is an Advocate?
Advocates help improve the lives of people living with arthritis. The key to success in changing government policies and funding is through grassroots advocacy and our advocates are the Arthritis Foundation's chief resource for making positive changes in Washington. Click here to join the movement!
What does an Advocate do?
Advocates
make their opinions and personal stories known. By signing up, you'll
receive Action Alerts in your inbox when important arthritis-related
issues are debated on Capitol Hill. In 5 minutes or less, you'll be
able to write your elected officials and tell them their constituents
care about arthritis and how it impacts our communities....(see the URL for more information... 
 |
Sponors for the 2016 AF Summit! |
Friday, March 11, 2016
HELPING A DEAR FRIEND TO FIND A PAIN DOCTOR IN THE SEATTLE, WA - AREA... PLEASE LET US KNOW...
Jim in Washington State is having a very, very DIFFICULT TIME finding a "good and non-quack Pain Specialist.... He is at his wits end, and just cannot find one who will even prescribe his Baclofen, and meds such as that!...much less any of the narcotic meds he needs now after the accident!!!!
IF ANYONE has ANY IDEAS, suggestions, doctors, someone they may know in the Seattle Area, PLEASE SEND HIM A MESSAGE AND LET HIM KNOW !!!!!! I Know he is about at the end of his rope like many of us, and Seattle USED to be the "better" place for this type of thing not worse... maybe even across the pass over in the towns across and to the East, or down towards Portland...
he is living in a very small country town out kind of South East a ways from Seattle... so even if it were out in that direction it would be okay, and in fact better!!!!! I told him I would try and think of something myself, or someone else he could see etc... but things are nuts in the realms of pain doctors, as so many of us know!!!! But, please send him a message if you do know of any type of information that may help him....
hugs, Rhia his FB page is James Sheffer so just send him a private message and let him know if you can think of anything....
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I finally made a trip to Urgent Care with what I feel is a very bad Lupus and RA flare, but there are several "symptoms" strange t...
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I really have SO MUCH to try & catch up here on, so I am going ton"Post"n some of my ongoing chronic health issues, things abo...
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How can our kids feel safe when WE as adults don't???? I fear Wal-Mart or just walking across the parking lot at HEB in my small lo...