I can't "fuss" too much about the care I've received in both the hospital and now the Rehab Hospital. Thank Goodness, it is NOT anything like a nursing home!
Although they have "long term" patients, there are 4 "Halls" of which each serves a different type of patient. So, those that like myself, are trying to "rehab" so they can go home and be able to care for themselves, we are all in one hall.
The others are for Dementia/Alzheimer's patients, and those that are probably here for the rest of their days.
I really have not encountered much that I would say was "wrong".... I usually get my meds when I ask within a reasonable amount of time, even though there are times, they have patients coming to to be admitted, or things get crazy, and I may have to wait a bit, or remind them. Most of the time, the nurses are apologizing to me, because they were not "prompt" in getting me my pain, muscle relaxers and my diazepam in a timely manner.
I've been able to shower by myself the past two times, and I am getting around MUCH better this past 4 or 5 days. Enough so, I am READY TO GO THE HELL HOME, I am SO BORED WITH IT ALL NOW!
But, complications, like a huge hematoma, at the repair site on my hip, has caused a delay in getting the staples out, my liver functions are all high, and my anemia really was a very huge concern. So far, it appears after the 3 units of blood at the hospital were given to me, my red blood cell counts have gotten better, but I look for them to bottom out again, once I am not here and on the supplements, besides I still feel that I have pernicious anemia, which is an autoimmune illness, plus even the liver issues, probably have to do with Lupus and the RA, causing the issues with my red blood cells being so low.... etc....
I realize I face yet another surgery my neck surgery,if I can recover from the hip fractures (or actually WHEN I recover enough to go and have it done...plus my lower back has to be fixed also....my lower back and neck both were already needing surgery, then between trying to take care of Mom, and now the "jolt" from the fall, both are worse than ever.
ALL OF YOU, PLEASE stay with me!!!! I am certainly NOT giving up on my blog, my advocacy, writing and my other things I participate in so I can HELP OTHERS understand they are NOT alone.....
I am trying to find ways to increase my readers here on my blog, but I know I really need to make sure I have interesting and valuable information here for everyone, or all of you will get bored with it.
IF YOU have any ideas of what you may like to read, hear about, or have me talk about, PLEASE let me know. You can always email me at: ravishingrhia@gmail.com
Friday, January 6, 2017
Thursday, January 5, 2017
#WHATTHEHEALTHCARE - Your "pet peeves" or worse with Doctors and the Medical System
#whatthehealthcare
HOW MANY OF us have dealt with wrong diagnosis, doctors with NO bedside manner,having tests we did not need, dealing with labs done but you don't get results until weeks and weeks later, doctors who make you wait 4 or 5 hours or more when you had a scheduled appt, not getting things billed properly to insurance...
... having a doctor make you wait, then the nurse comes in and says there was "an emergency" and you have to reschedule. go to:
http://whatthehealthcare.info/?spMailingID=16126899&spUserID=MTQwOTExNTk2OAS2&spJobID=921335017&spReportId=OTIxMzM1MDE3S0
HOW MANY OF us have dealt with wrong diagnosis, doctors with NO bedside manner,having tests we did not need, dealing with labs done but you don't get results until weeks and weeks later, doctors who make you wait 4 or 5 hours or more when you had a scheduled appt, not getting things billed properly to insurance...
... having a doctor make you wait, then the nurse comes in and says there was "an emergency" and you have to reschedule. go to:
http://whatthehealthcare.info/?spMailingID=16126899&spUserID=MTQwOTExNTk2OAS2&spJobID=921335017&spReportId=OTIxMzM1MDE3S0
WE KNOW HEALTH CARE CAN BE FUNNY AND EVEN FRUSTRATING AT TIMES…
LET’S HASH THROUGH IT!
Wednesday, January 4, 2017
Talking about "enduring" ALL of the "complications" & Nightmares of being in the hospital after breaking my hip, surgery, Rehab and "conflicts" of other illnesses #WhatTheHealthcare
#WhatTheHealthcare
To understand this, I fell and broke my right hip n 2 place the Tuesday before Christmas. I am STILL in the Rehab Hospital and everyday there is some kind of "kink" or some complication, and guess who suffers for it???? ME, the PATIENT!!! Here is the latest example.... besides being Anemic and having 3 UNITS of blood before, during and after surgery.... I've had a ROUGH 24 HOURS AGAIN!
They decided to do that liver sonogram and I didn't know I could not eat, drink or even have meds (which I was told they would come somewhere around 3AM or so do to the scan. Well, 3 passed by, then 5AM passed by, then 6AM and nothing to eat, drink, no medications, and by 6:30AM I was about a basket case... well over time for pain meds, my Valium, my muscle relaxers and so on. So, everyone was checking to find out why the scan was not done sometimes in the early morning.
He FINALLY SHOWS UP about 11:00AM.... now this is like 20 HOURS SINCE I've had anything.... the sonogram did not take long, and I was "buzzing" for ALL OF MY MEDS, and some orange juice as soon as he got through. So, thank goodness I got lunch, and of course my stomach is so "small" that I can't hold a great deal of food or drink at a time.
But, I got my meds, and drank the juice, then ate some of my lunch, and now I am just worn out from lack of sleep, and lack of meds on time.... so it's been a heck of a day and night before.... I gather he did the sonogram of my spleen, liver, kidney's etc...so if anything is causing the blood work to be "off" hopefully they will find out.
Saturday, December 31, 2016
Trying to Move Past the "bad" of 2016 & look ahead to a Hopeful 2017... (Resolutions?, Revelations, Lessons from life's past, reaching within the depths of my soul to make sense, out of a "senseless" world and all that we must endure)
"Trying to Move Past the "bad" of 2016 & look ahead to a Hopeful 2017... (Resolutions?, Revelations, Lessons from life's past, reaching within the depths of my soul to make sense, out of a "senseless" world and all that we must endure) "
Alas the "title of this post" is a great deal longer than usual. I felt in order to bring the message to all of you I needed to try and title this so everyone will know how crucial this post is, and just how I've had to pull every ounce of whatever bit of faith I have to bring you the truest feelings of this past couple of years.
Life deems to bring us many things that we cannot possibly "see" the good out of it, whether it is loss of a loved one, a fur baby, chronic illnesses and pain, watching others suffer, when so often whatever is happening seems useless and a waste of what little time we have here on this Earth. I never said or pretended to understand why so many horrible events happen to those that are good, gracious, loving, nurturing, and are decent people. Yet, others that are horrible, frightening, terrible to their own kind, are not decent, not caring, and often tear others down, rather than build them up.
Most people find themselves trying to put a list of "New Years Resolutions" together at the beginning of each year. Other similar words, "revelations, settle, make a pledge to do something a different way, such a quit smoking, work out more, eat healthier, we pledge to ourselves to do some things in a manner more positive, than hold onto our old ways, that may not have been the best way to do things...
thus rather than resolutions, I try and use a different term, such as "throwing out the old, torn and tattered ways, and beginning a new way with new "material" and a hopeful heart. I also know many of us "keep" some of those "resolutions", and some find themselves settling back into their old ways, which brings a guilt to our heart, thus too many "difficult" changes within a short amount of time, leaves us to NOT be able to keep them all. We get upset, feel so useless, see others making their goals, while maybe we cannot keep our own.
Below are a few synonyms that could be used to mean "Resolutions":
They have became a "tradition" like black eyed peas at midnight for good luck in the coming year, we have many traditions, we keep or try to keep during holidays and so forth, like mistletoe, the Christmas tree, sending cards for holidays, celebrating birthdays, anniversaries, and so forth.
I guess I would say that I shall "pledge" or commit to a few things that I feel I need to change and have a fresh start for the new year.
As always all too often we have "unexpected" roadblocks, happenings, events, whether it be family, illnesses, accidents, jobs, and so on, that change that path of good intentions we set up for ourselves at the 1st of the year.
For me my good intentions tend to get put aside for family, or for the chronic illness and pain I suffer with, that in a moment I can go from feeling great to being in the hospital... having surgery etc. None of us can truly "predict" the exact things that will happen from one moment to the next.
So, as I, along with many of you try to "have the promises" to ourselves duly noted and ready to start anew, remember WE ARE HUMAN! We will have issues come up that causes us not to be able to keep some of the very things we so want to do, change, stop, start and so forth...
As I write this tonight December 31,2016 from my hospital bed, hoping to be out of here and home very soon, again, never did I think 3 weeks ago I would fall, fracture my hip in 2 places, have other complications arise, and spend both Christmas and New Years in a hospital.
Try to keep yours a list of things that are not too complicated, or just write down a few, lie 4 or 5, rather than 10, 20 or more, and be proud of the progress you make even if you don't complete them all. If you get "some" of them done, or just a piece of several that you are working towards a goal on, give yourself a "well done" and push forward, knowing even a baby step, is a definite positive for the New year and YOU!
A piece of me feels as if I am blocking out all that we went through with Mom, then losing her in June so suddenly. Then the ordeal of paperwork, and all that happens even after the funeral is over.
Then I've went from one issue such as both ankles severely twisted, to sinusitis, to pneumonia, to Lupus flares, then to take such a horrible fall. and break my right hip in two places... to wind up being in the Rehab on Christmas, and maybe for awhile after the 1st of the year.
I just know that things have to get better. I am so terribly tired of being ill in one way or the other. I tried so hard to NOT allow this to happen to me. I knew my chances of a fall could lead to a break of a bone or joint. That is one of the very last things I wanted r needed. But, when I hit that hardwood floor two weeks ago the coming Tuesday, I knew it was not good.
I wanted to believe that it was bruised badly, yet when I could not drag it on the floor without screaming out in pain, I knew then it was bad.
I've been in a turmoil over the state our nation is in. Now with the "person" that is to be our new President, totally terrifies the hell out of me. I cannot fathom him having enough tact with out own Congress, much less any other nation.
I am having to almost "hide" my feelings this season. Here I see many families, together, excited about kids, Christmas, and this very special time of the year, yet I feel left in a "dark fog" wondering once again why I feel "punished", why did I have to take a fall as I did, and break a hip. And what are the chances that I wind up having another surgery if this hip does not work without an entire replacement since the osteoporosis could cause issues.
Frankly, this is one of the very 1st times I've been this worried about my own health issues. I watched my Grandmother and my Mom be able especially my Grandmother take care of themselves for YEARS alone. Now, I fear everything, from just getting out of the bed to going home. I've always been so bound and determined to do my stuff myself. Now, between the Lupus, the RA, the Osteoporosis, and now a broken hip, that I will lose some of my independence, which that thought bothers me badly.
Then to have one of my fur kids pass away suddenly night before last in my arms, here in the Rehab, just seemed to put the entire last almost 3 years into a world of such hurt, for myself, and also my kids; I keep trying to "hold onto" what little faith I have to sustain me, and try to over the sinking into sand, peeking upward, and asking for another half ounce of courage, strength and ability to try to "understand" the reasons I may NOT understand, not now, but someday I shall know the why's of this life, and the grief it brings to us within a matter of moments.
Alas the "title of this post" is a great deal longer than usual. I felt in order to bring the message to all of you I needed to try and title this so everyone will know how crucial this post is, and just how I've had to pull every ounce of whatever bit of faith I have to bring you the truest feelings of this past couple of years.
Life deems to bring us many things that we cannot possibly "see" the good out of it, whether it is loss of a loved one, a fur baby, chronic illnesses and pain, watching others suffer, when so often whatever is happening seems useless and a waste of what little time we have here on this Earth. I never said or pretended to understand why so many horrible events happen to those that are good, gracious, loving, nurturing, and are decent people. Yet, others that are horrible, frightening, terrible to their own kind, are not decent, not caring, and often tear others down, rather than build them up.
Most people find themselves trying to put a list of "New Years Resolutions" together at the beginning of each year. Other similar words, "revelations, settle, make a pledge to do something a different way, such a quit smoking, work out more, eat healthier, we pledge to ourselves to do some things in a manner more positive, than hold onto our old ways, that may not have been the best way to do things...
thus rather than resolutions, I try and use a different term, such as "throwing out the old, torn and tattered ways, and beginning a new way with new "material" and a hopeful heart. I also know many of us "keep" some of those "resolutions", and some find themselves settling back into their old ways, which brings a guilt to our heart, thus too many "difficult" changes within a short amount of time, leaves us to NOT be able to keep them all. We get upset, feel so useless, see others making their goals, while maybe we cannot keep our own.
Below are a few synonyms that could be used to mean "Resolutions":
| intention, resolve, decision, intent, aim, plan; |
I guess I would say that I shall "pledge" or commit to a few things that I feel I need to change and have a fresh start for the new year.
As always all too often we have "unexpected" roadblocks, happenings, events, whether it be family, illnesses, accidents, jobs, and so on, that change that path of good intentions we set up for ourselves at the 1st of the year.
For me my good intentions tend to get put aside for family, or for the chronic illness and pain I suffer with, that in a moment I can go from feeling great to being in the hospital... having surgery etc. None of us can truly "predict" the exact things that will happen from one moment to the next.
So, as I, along with many of you try to "have the promises" to ourselves duly noted and ready to start anew, remember WE ARE HUMAN! We will have issues come up that causes us not to be able to keep some of the very things we so want to do, change, stop, start and so forth...
As I write this tonight December 31,2016 from my hospital bed, hoping to be out of here and home very soon, again, never did I think 3 weeks ago I would fall, fracture my hip in 2 places, have other complications arise, and spend both Christmas and New Years in a hospital.
Try to keep yours a list of things that are not too complicated, or just write down a few, lie 4 or 5, rather than 10, 20 or more, and be proud of the progress you make even if you don't complete them all. If you get "some" of them done, or just a piece of several that you are working towards a goal on, give yourself a "well done" and push forward, knowing even a baby step, is a definite positive for the New year and YOU!
A piece of me feels as if I am blocking out all that we went through with Mom, then losing her in June so suddenly. Then the ordeal of paperwork, and all that happens even after the funeral is over.
Then I've went from one issue such as both ankles severely twisted, to sinusitis, to pneumonia, to Lupus flares, then to take such a horrible fall. and break my right hip in two places... to wind up being in the Rehab on Christmas, and maybe for awhile after the 1st of the year.
I just know that things have to get better. I am so terribly tired of being ill in one way or the other. I tried so hard to NOT allow this to happen to me. I knew my chances of a fall could lead to a break of a bone or joint. That is one of the very last things I wanted r needed. But, when I hit that hardwood floor two weeks ago the coming Tuesday, I knew it was not good.
I wanted to believe that it was bruised badly, yet when I could not drag it on the floor without screaming out in pain, I knew then it was bad.
I've been in a turmoil over the state our nation is in. Now with the "person" that is to be our new President, totally terrifies the hell out of me. I cannot fathom him having enough tact with out own Congress, much less any other nation.
I am having to almost "hide" my feelings this season. Here I see many families, together, excited about kids, Christmas, and this very special time of the year, yet I feel left in a "dark fog" wondering once again why I feel "punished", why did I have to take a fall as I did, and break a hip. And what are the chances that I wind up having another surgery if this hip does not work without an entire replacement since the osteoporosis could cause issues.
Frankly, this is one of the very 1st times I've been this worried about my own health issues. I watched my Grandmother and my Mom be able especially my Grandmother take care of themselves for YEARS alone. Now, I fear everything, from just getting out of the bed to going home. I've always been so bound and determined to do my stuff myself. Now, between the Lupus, the RA, the Osteoporosis, and now a broken hip, that I will lose some of my independence, which that thought bothers me badly.
Then to have one of my fur kids pass away suddenly night before last in my arms, here in the Rehab, just seemed to put the entire last almost 3 years into a world of such hurt, for myself, and also my kids; I keep trying to "hold onto" what little faith I have to sustain me, and try to over the sinking into sand, peeking upward, and asking for another half ounce of courage, strength and ability to try to "understand" the reasons I may NOT understand, not now, but someday I shall know the why's of this life, and the grief it brings to us within a matter of moments.
Hoping that 2017 "pushes" out all the grief, sadness and illness and brings peace, wellness and secuirty to myself and everyone!
I have been "quiet" - but I had more terrible stuff going on... Bubba my Chiweenie, got suddenly ill, and passed away in my arms night before last. All of the loss surrounding myself and my family is really taking its toll on all of us. I've had all kinds of complications, from the anemia, to a huge hematoma just where the surgery on my hip was done. I look "deformed" because that hip looks like it is 4 times bigger than it should look, then my liver enzymes and lab work was high and all messed up.
Then I still have this place on my right foot that I swear has to be fractured. I cannot stand to put any weight on it, which hinders my therapy for my hip. I just want things to get back to some kind of normal so I can go home. Even though everyone is extremely nice here, I don't want to stay one moment more than I have to. I had hoped I would be home by January 1st, but looks like that is not happening. My doctor wants to leave the staples in another 5 days or so, due to the large hematoma where the surgery and the staples are...
PT is going fine, other than me having such heck with that right foot. They re-x-rayed it last night, and the woman doing the X-rays showed them to me, and said she was not the doctor but it didn't appear to have a fracture, and she mentioned a bone spur... but I still insist that due to the pain, the "redness" where it hurts and the pain and swelling from it kind of around and down my foot, something is wrong, and they have not found it. Anyway, wishing everyone a Safe and Happy New Year's eve and Day... I hope is 2017 brings more happiness, peace, and security, and wellness for myself and everyone.... Rhia
Then I still have this place on my right foot that I swear has to be fractured. I cannot stand to put any weight on it, which hinders my therapy for my hip. I just want things to get back to some kind of normal so I can go home. Even though everyone is extremely nice here, I don't want to stay one moment more than I have to. I had hoped I would be home by January 1st, but looks like that is not happening. My doctor wants to leave the staples in another 5 days or so, due to the large hematoma where the surgery and the staples are...
PT is going fine, other than me having such heck with that right foot. They re-x-rayed it last night, and the woman doing the X-rays showed them to me, and said she was not the doctor but it didn't appear to have a fracture, and she mentioned a bone spur... but I still insist that due to the pain, the "redness" where it hurts and the pain and swelling from it kind of around and down my foot, something is wrong, and they have not found it. Anyway, wishing everyone a Safe and Happy New Year's eve and Day... I hope is 2017 brings more happiness, peace, and security, and wellness for myself and everyone.... Rhia
Thursday, December 29, 2016
How to Move forward with severa Systemic diseases, Lupus, Sjogren's, RA & knowing when everything feels so out of sorts, even with the New Year Upon me....
A piece of me feels as if I am blocking out all that we went through
with Mom, then losing her in June so suddenly. Then the ordeal of
paperwork, and all that happens even after the funeral is over.
Then I've went from one issue such as both ankles severely twisted, to sinusitis, to pneumonia, to Lupus flares, then to take such a horrible fall. and break my right hip in two places... to wind up being in the Rehab on Christmas, and maybe for awhile after the 1st of the year.
I just know that things have to get better. I am so terribly tired of being ill in one way or the other. I tried so hard to NOT allow this to happen to me. I knew my chances of a fall could lead to a break of a bone or joint. That is one of the very last things I wanted r needed. But, when I hit that hardwood floor two weeks ago the coming Tuesday, I knew it was not good.
I wanted to believe that it was bruised badly, yet when I could not drag it on the floor without screaming out in pain, I knew then it was bad.
I've been in a turmoil over the state our nation is in. Now with the "person" that is to be our new President, totally terrifies the hell out of me. I cannot fathom him having enough tact with out own Congress, much less any other nation.
I am having to almost "hide" my feelings this season. Here I see many families, together, excited about kids, Christmas, and this very special time of the year, yet I feel left in a "dark fog" wondering once again why I feel "punished", why did I have to take a fall as I did, and break a hip. And what are the chances that I wind up having another surgery if this hip does not work without an entire replacement since the osteoporosis could cause issues.
Frankly, this is one of the very 1st times I've been this worried about my own health issues. I watched my Grandmother and my Mom be able especially my Grandmother take care of themselves for YEARS alone. Now, I fear everything, from just getting out of the bed to going home. I've always been so bound and determined to do my stuff myself. Now, between the Lupus, the RA, the Osteoporosis, and now a broken hip, that I will lose some of my independence, which that thought bothers me badly.
The latest is I have a huge hematoma where the surgery was done on my hip. I knew it had been looking like a I had "2nd hip" and was sticking out but I just thought it was swelling. But when the nurse went to put a new dressing on it yesterday she found it was much more than swelling, and they took pics of it, and sent them to my doctor. Sure enough it is probably a huge hematoma, and they are putting ice packs on it 4 times daily, and I won't even get the staples out for another week.
My foot still hurts and I still think I have a hairline fracture in it. I guess I should ask for it to be X-Rayed again. I am just so sick of being poked and prodded on, I hate to say that anything hurts.
I have to wonder if anything in my life will ever become "normal" again?
Then I've went from one issue such as both ankles severely twisted, to sinusitis, to pneumonia, to Lupus flares, then to take such a horrible fall. and break my right hip in two places... to wind up being in the Rehab on Christmas, and maybe for awhile after the 1st of the year.
I just know that things have to get better. I am so terribly tired of being ill in one way or the other. I tried so hard to NOT allow this to happen to me. I knew my chances of a fall could lead to a break of a bone or joint. That is one of the very last things I wanted r needed. But, when I hit that hardwood floor two weeks ago the coming Tuesday, I knew it was not good.
I wanted to believe that it was bruised badly, yet when I could not drag it on the floor without screaming out in pain, I knew then it was bad.
I've been in a turmoil over the state our nation is in. Now with the "person" that is to be our new President, totally terrifies the hell out of me. I cannot fathom him having enough tact with out own Congress, much less any other nation.
I am having to almost "hide" my feelings this season. Here I see many families, together, excited about kids, Christmas, and this very special time of the year, yet I feel left in a "dark fog" wondering once again why I feel "punished", why did I have to take a fall as I did, and break a hip. And what are the chances that I wind up having another surgery if this hip does not work without an entire replacement since the osteoporosis could cause issues.
Frankly, this is one of the very 1st times I've been this worried about my own health issues. I watched my Grandmother and my Mom be able especially my Grandmother take care of themselves for YEARS alone. Now, I fear everything, from just getting out of the bed to going home. I've always been so bound and determined to do my stuff myself. Now, between the Lupus, the RA, the Osteoporosis, and now a broken hip, that I will lose some of my independence, which that thought bothers me badly.
The latest is I have a huge hematoma where the surgery was done on my hip. I knew it had been looking like a I had "2nd hip" and was sticking out but I just thought it was swelling. But when the nurse went to put a new dressing on it yesterday she found it was much more than swelling, and they took pics of it, and sent them to my doctor. Sure enough it is probably a huge hematoma, and they are putting ice packs on it 4 times daily, and I won't even get the staples out for another week.
My foot still hurts and I still think I have a hairline fracture in it. I guess I should ask for it to be X-Rayed again. I am just so sick of being poked and prodded on, I hate to say that anything hurts.
I have to wonder if anything in my life will ever become "normal" again?
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How can our kids feel safe when WE as adults don't???? I fear Wal-Mart or just walking across the parking lot at HEB in my small lo... -
I finally made a trip to Urgent Care with what I feel is a very bad Lupus and RA flare, but there are several "symptoms" strange t...
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I really have SO MUCH to try & catch up here on, so I am going ton"Post"n some of my ongoing chronic health issues, things abo...