SEVERE SYMPTOMS many and My Own Delve into Babesia, Chronic Lyme, Co-Infections from Lyme, Cat Scratch Fever, Drenching cold sweats

I have thought about it since I got up once again at 3:30AM, which is better than 2:30 the past couple of days... and while I was watching TV and then went to do a couple of things in the kitchen, (and the weather is extremely WINDY AND COLD, TEMPS ARE AT 25 THIS MORNING AGAIN)...

I given MUCH thought to "all" of these "symptoms" that I've been having. I had even bought one of the "smart bands" that keep up mainly with my "heart rate"... since it is so bad about being "low" if I take my Metoprolol that I take for the "extra beat", they think it reduces my heart rate, and then that is what causes the SEVERE cold, drenching clothes, shivering sweats, of which NOW I've had two of them so BAD, yesterday and both during the day time this time, which is odd, usually they happen at night, that my hair, my clothes, a jacket I wear inside if it's cool and my huge robe was "soaking" wet.

I am totally drenched when I have some of them that get bad.... anyway, it "makes sense" that my body "reacts" with that "type of sweat" to get my heart rate to increase, thus why I am even giving thought to a pacemaker. Which they are so tiny now days, the ONLY thing is once I have one, then it is THERE for the rest of my life. I won't be able to "take it out" someday and not have one. My Cardiologist and I talked about it when I saw her a couple of months ago, and she gave me information, plus Lourdes Villegas Anaya has one so she has talked to me about hers, and I've of course researched them myself. "If" that is a portion of the problem, and then after wearing this band the past 3 days, today will be day 4, I can "see" anytime what my heart rate, steps, if I walk, run, (never will happen that I run -LOL BEFORE I ever had joint problems etc,

I was never a "runner") anyway, you get the message... I've noticed that my heart rate tends to be "erratic" ... just in general. And I am going to look into it more today, because what I am "seeing" could be "normal"... I just thought it was "off" yesterday BUT I was in one of those horrid, nightmare of a cold sweat for hours and hours yesterday...

I was still not so sure, with the way I feel that maybe I do have the flu in some way... anyway, I wanted to do some looking into the "multiple" symptoms I've had especially over the past about 6 weeks, with the EXTREME PAIN, in my joints, muscles, the severe headache, and even though I had the injection and then now I am still on the step down of Prednisone, that I go today to 2 pills for the next 2 days... so I've done 4 for 3 days, 3 for 3 days, now 2 for two days, then 1 for two days, then to a half for 2 days.... yet, the pain was so bad after about the 5th day after the injection, so I had it a week ago today, and over last weekend I felt "better"... then it hit me late Monday evening, and then Tuesday and Wednesday,

I was ready to sit in the floor cry, scream, the pain was just horrendous. It was my legs, into my hips, it was my shoulders, especially the right one, my neck, which worries me because I have to wonder if I don't have a "failed cervical neck surgery" or another disc fractured or something... The problem is there is so many "symptoms" and then there are the "medications" to take into consideration.... ONE of my ideas is that the "Acterma" for the RA

I started about in September is NOT working as well, due to I am not on Methotrexate anymore. They took me off of it, about maybe even a year ago or more, because of the severity of the infections, especially when I developed the "cellulitis" in both top thighs, and it abscessed and i went to wound care for over 6 weeks in DALLAS every week, to have those "debrided" and redone.... I thought they would NEVER get well and I still have almost like a quarter sized scar/a bit of an indention on both thighs where those were.

Here is more information and more thoughts on some of the things I found from a search of symptoms and so forth...

 Well I have to say, even after a "short" research into my "symptoms" and by the way MY PCP HAS THE FLU! I called about a prescription that had not been getting to them from the pharmacy and found out he is sick with the flu... anyway, MY BEST Friend from Grade School and now my "Vet" told me about "symptoms" and all of the issues I had, and I looked up "Bartonella" which is now also associated with another "chronic health issue" that is an off set of "Chronic Lyme Disease" called Babesiosis - Babesia (which as far as I "know" I don't think I've ever been bitten by a tick, and never had any on my pups unless it was way back in the 1990's when I lived in Blooming Grove and the pups may have one on them once or twice, or when Dad hunted deer, he would get a tick on him every great while, but I have been BITTEN BY A CAT, IN FACT MY OWN CAT, in 2005 when I was in San Pedro, and it was a severe bite... he did it not because he "wanted to"... I lived in a 2 floor - 4 apartment type of place there, and they were putting new screens on the windows, this was on the top floor where mine was, and they didn't tell me they had the screens off, I had been out walking, when I came back one of my cats, was falling out the window!D I heard him and went of course to try and catch him and of course he was scared to death - and he bit the literal HELL out of my hand... it "pierced" the skin almost all the way through, and it hurt for DAYS! I went to the ER twice and I had just moved there so I knew nothing about doctors etc there at the time, anyway, I was on antibiotics, got a tetanus shot, and had pain meds for 10 days or more, it was at Thanksgiving and I could not even stand up to do anything, I was in so much pain, and bless the cat's heart, he was "never the same"... I "think" he knew he "hurt" me so he was always kind of almost frightened he would harm me again, or thought I was "mad" at him... even though I was not, but of course it was stupid me that went to help him, a natural reaction for anyone with a cat, dog etc... but the "Bartonella" can come from "cat scratch fever" which of course I knew about... so now I have to wonder, although I had "symptoms" of some degree before this happened, if she has really "hit" the nail on the head.... I think I will pull some information, and take it with me to see my Rheumatologist and my PCP the last week of the month, and see what they have to say... so Venetia Shafer I KNEW you had a great point back when we talked about this before, but with the symptoms so much worse now than ever, I have to wonder if it has something to do with that or one of the 'RELATED" TO ONE OF THESE TYPES OF ILLNESSES...


http://www.lyme-symptoms.com/CoInfectionsBartonellas.html#Bart

Hoping a better 2018! Lupus flare, RA flare, Flu virus, Chronic Pain severity, epidemic, wishing for a better year than since 2014 wanting to get back to writing, blogging and advocacy work

Putting "hopefully" my writing, posting, advocacy and writing areas of my life back in the forefront. The past two years, really more like since late 2014, seem to have been a nightmare. 

I've had good things happen, but losing two of my fur-babies, my Mom getting ill so quickly and passing away in 6 months, losing my Mom's "baby" sister, losing my marriage and not sure why yet, having a pain pump replaced, having a fractured hip and spending Christmas 2016 in the hospital and inpatient rehab, the a very complicated neck surgery in April 2017 that took me months to just get out of a hard collar with, and now my Lupus and RA are really giving me heck... much more but those are a few of the "highlights" that really put my several years previously in a spot where I felt I would NEVER be able to get back to my advocacy, activism, writing, blogging, posting... and the things I want and love to do... And I am still going through stuff health wise, my neck is really hurting again, and has been, but my shoulder as I say below, that has already had a complicated replacement began acting up, right after the last neck surgery. We have changed RA medications trying to get the RA flares under control, and my lower back and legs really beginning to bother me again...

I am not sure if the ridiculous weather we are having is a huge factor, but generally the WEATHER has always had a huge impact on me, when it comes to chronic pain, and migraines.... way before I could ever get a physician to "agree" with me, I KNEW the weather effected my severe migraines when they were so bad for over 20 years of my early life. 

Now all doctors and health professionals agree that the weather, temperature, humidity, erratic weather, cold one day, hot the next, all of those things and the barametric pressure have sometimes severe effects on many illnesses, especially chronic pain...

I ASK that each of you the "follow me" here, on my daily newspaper, through Facebook, Twitter or wherever to keep me in your thoughts and prayers as the year progresses. I REALLY want to get back to those things such as my writing and blogging... more on the advocacy side, but even sitting here at the computer puts me in such pain at times, there are days it hurts to sit, stand, walk, lie, no matter what I do, it is severe on some days, and here lately MORE days than not....

BELOW is a POST from my Facebook page, where I had been commenting to a friend of mine who is going though some frightening issues with her liver, and her Diabetes. So, as I posted this, I wanted to "add" it here also... my numbers honestly here on my blog have fallen so much, and I know the holidays effects that, but also me not able to post as much, put up as much relevant information as I usually do... I desperately need to update the look and feel... I know it's getting outdated, and it is a matter of having the time to do those things, and those are what I really want to be able to work on....

I APPRECIATE those like yourself, that give back the feeling that "I matter"... I try my best to let others know I do appreciate each one of you that take time to even give a "thumbs up" I realize not all of us have time, or feel like Posting, but I always know someone "cares" by just a heart, a thumbs up, or a "face".... you too I realize have been through so much. I have to "say something" about a "comment" I read the other day. Some one made a comment that Facebook is NOT THE PLACE to "post your personal problems"????? WHY would we "want to connect here at all" if we were not looking for others either like ourselves that "need that extra push up" every once in a while, or to "see" we are NOT alone in this come and when I "post" personal issues, which health is very personal I think, 

I am NOT looking for an answer or someone to totally agree with me, or what, it is MY way, like my blogging and writing (partially)... the social media is a way to connect for many reasons, but since I have "no really close family or friends physically that I can "see" ) my son and daughter are about the only "close family" I have left, and my daughter is 8 hours away and we talk probably at least 3 or 4 times a week, but she cannot just "drop her kids, family and husband" to run 8 hours up here, and although my son lives close by, he has his own things also, he has been fighting with "FM" now for a long while, so he is trying to re-educate himself, by some short classes, where he can do certain jobs, that the ones he used to do, due to the FM he no longer can do, lots of very hard physical labor... even though he is 37, age as many of us know with some of these horrid illnesses, syndromes, chronic pain issues and so forth, AGE has nothing to do with it.... so he sends me messages, and if I NEED him, he could be with me quickly, and we keep up with each other, 

BUT he also knows ME, I really 'don't want" the feeling that I have to have someone doing everything for me. I LIKE doing all that I CAN DO myself... and it is hard for me to even ask for help, because all the years I did everything, from hanging ceiling fans, to painting, any kind of home improvement just about, the lawn, and so many things I've loved to do, I KNOW that even since my cervical neck surgery last April, I have "overdone" some stuff. I PRAY my neck is not messed up again, or my right shoulder, that ever since the neck surgery, it is the RIGHT ONE that has already been totally replaced by a "reverse total shoulder replacement" about 6 years ago, I think, but it has given me hell ever since the last neck surgery... of course I realize 'some things" I had been doing I've had to "stop" and either let my son do it, or my neighbors help some, or I just let it go, knowing it can wait, other than an emergency thing at the house, some things that I just could NOT stand to "let go" I've had to and I am STILL learning to "let them go"... but being alone with the pups now, I do as many things as I feel like, or that I can do, if possible.... yet trying to learn to say "no" I can't, or sit down and say I just hurt too badly today, etc... those are very hard things for many of us to do... not in our "genetic makeup" :)