Thursday, March 17, 2016
Wednesday, March 16, 2016
Nightly News, the CDC and Those that have NO CLUE what "Chronic Pain" and trying to Live is all about!
As
I said on my other post, I was so mad at the Nightly News with Lester
Holt last night I could have screamed! They only tell a "piece" of the
story, NOT the stories of us who would not be able to have a "life" or
any quality of life if we were not able to have physicians help us take
our pain down to where we can "stand it"... For ONE NO medication "takes
all of the pain away".... but it does give us a place where we can
"live" with it. It makes it bearable, most days. And for
them to sit there and speak like this is something that is just a
"surgery" issue etc...without even mentioning how many of us would not
be able to take care of our families, work, do anything at our homes,
nothing... we would only be able to sit, lay, or try and "live" with
severe pain, that is what I call intractable and unbearable! without my
great physicians and my medications, and that is not just pain
medications, but my RA meds, my heart medications, Lupus medications,
and so forth, I would have no life, I would never be able to take care
of me, and certainly not be able to somewhat help my Mom... and try and
do advocacy work, and write... my life would NOT be life but living
hell! I am seriously thinking about writing the Nightly News and telling
them how I felt about their "one sided" view of this situation.... and I
have to wonder "whom is lining" whose pockets, when it comes to the
CDC, Congress and all of these people that have NO CLUE what it is like
to have a disease that brings on such an amount of horrid pain daily...
they would think differently if it were them or one of their loved
ones...
This is what I am speaking of on the Nightly News from Last night March 15th
I sent my email to the Nightly News about this story last night. I hope you also take a moment to respond!
Monday, March 14, 2016
ARTHRITIS FOUNDATION SUMMIT ON THE HILL BEGINS TODAY! BE SURE TO DO YOUR VIRTUAL ADVOCACY PART!
Arthritis Summit begins today!!!!
SHARE Stories, share #hashtags, photo's, your own personal journey!!!!
YOU TOO CAN BE A CHAMPION OF YES!
I remember how thrilled I was in 2014 to be honored to be there! I hope some day to attend again!!! Until then my support is through telling my story, helping others, posting posters in my car, blogging, writing, Facebook twitter, and you name it, I put it there!
Saturday, March 12, 2016
YOU TOO Can be a Virtual Advocate during the AF Summit on the Hill 2016!!!! YOU ARE IMPORTANT!!!!!
Arthritis Foundation Summit Begins Monday in DC! YOU TOO can be a "Virtual Advocate"!!!!
http://www.arthritis.org/about-us/news-and-updates/arthritis-foundations-advocacy-summit-fights-for-awareness-and-cure.php
Advocate 101: Join the Movement
What is an Advocate?
Advocates help improve the lives of people living with arthritis. The key to success in changing government policies and funding is through grassroots advocacy and our advocates are the Arthritis Foundation's chief resource for making positive changes in Washington. Click here to join the movement!
What does an Advocate do?
Advocates
make their opinions and personal stories known. By signing up, you'll
receive Action Alerts in your inbox when important arthritis-related
issues are debated on Capitol Hill. In 5 minutes or less, you'll be
able to write your elected officials and tell them their constituents
care about arthritis and how it impacts our communities....(see the URL for more information... 
 |
Sponors for the 2016 AF Summit! |
Friday, March 11, 2016
HELPING A DEAR FRIEND TO FIND A PAIN DOCTOR IN THE SEATTLE, WA - AREA... PLEASE LET US KNOW...
Jim in Washington State is having a very, very DIFFICULT TIME finding a "good and non-quack Pain Specialist.... He is at his wits end, and just cannot find one who will even prescribe his Baclofen, and meds such as that!...much less any of the narcotic meds he needs now after the accident!!!!
IF ANYONE has ANY IDEAS, suggestions, doctors, someone they may know in the Seattle Area, PLEASE SEND HIM A MESSAGE AND LET HIM KNOW !!!!!! I Know he is about at the end of his rope like many of us, and Seattle USED to be the "better" place for this type of thing not worse... maybe even across the pass over in the towns across and to the East, or down towards Portland...
he is living in a very small country town out kind of South East a ways from Seattle... so even if it were out in that direction it would be okay, and in fact better!!!!! I told him I would try and think of something myself, or someone else he could see etc... but things are nuts in the realms of pain doctors, as so many of us know!!!! But, please send him a message if you do know of any type of information that may help him....
hugs, Rhia his FB page is James Sheffer so just send him a private message and let him know if you can think of anything....
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How can our kids feel safe when WE as adults don't???? I fear Wal-Mart or just walking across the parking lot at HEB in my small lo... -
I finally made a trip to Urgent Care with what I feel is a very bad Lupus and RA flare, but there are several "symptoms" strange t...
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I really have SO MUCH to try & catch up here on, so I am going ton"Post"n some of my ongoing chronic health issues, things abo...