If you are planning to shop on Amazon.com for your holiday gift list. Or if like myself, everything comes from Amazon, even my sofa! Please consider using Amazon Smile ! With the click to purchase your shopping needs, Amazon will donate 5% to our Foundation. A simple and painless way to help so many that suffer from Autoimmune Arthritic Illnesses.
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Your help is always so appreciated!
Use the link above and it will take you to Amazon Smile. :)
Through my heart's work of writing, I share with you my complex journey atop the mountain, sliding down, crawling up, & living through the realms of Autoimmune Arthritic Illnesses. Taming & " The Wolf; Thru each Day... One Step at a Time Together We Are Learning to Survive. Please follow along, to New Beginnings - looking through the Window Pane of Pain in life, where we shall find our journey leading us to - New Perspectives.
Tuesday, December 3, 2013
Sunday, December 1, 2013
Just a Couple of Happenings in my World to catch you up on...
YEAH!!!!!! I FINALLY got to finish the project I need to finish!!! My computer crashed out at the very worst moments of my life... I was in the middle of a "graduation project" for becoming an Active Volunteer for IFAA! I was just in the beginnings of working on it, when whatever transformer blew down the street, that took my I-MAC with it! i finally got my new I-MAC in Wednesday, and as I said I think the FEDEX man deliberately waited to bring mine as the very last delivery of the day! He always comes by 3pm. It was like 5pm before he arrived... I thought maybe he crashed his truck or something.. then of course we had to get all of my stuff off of my back up drive and onto my new one. And then settings, mail, you name it, of course, it had to be done. Plus there are SO MANY new features, that I am loving already and more I have to even learn about. So, finally after some Friday, part of yesterday and most of this morning and part of the afternoon, I finished up my research and just emailed it to Tiffany, who was the Founder, and now one of the 4 co-founders of IFAA! I also think I may get to participate in some other activities with another big health advocacy organization! I'll know more this week. PLUS HUGE news!!! I've had a couple of days over the past week almost 500!!!!! people on my blog!!!! I am so thrilled! I am so happy I didn't give up. So, I know it is something that is meant for me to do. I am also going to be a "lead blogger" on another site (one of the Lead bloggers)... there are several... and when that is official I will also post that too.... I finally feel like the work of all the advocacy that I feel it what I am here for is finally coming together! Lots of patience, lots of just waiting until the right moment, the right people, and the right time comes along... I am absolutely exhausted, but I am absolutely thrilled about all of it.
There are some great things happening and I am honored to share them with all of you. You are the ones that make me keep going. Even when I "see" only a couple of "fans" have been here on one day, those over 400 the next makeup for it! I appreciate every one of you, and my hopes are that each of you will give in a bit off yourself, and comment on some of my posts. It doesn't have to be long and drawn out, but a few quick words about your feelings will always be welcome! As this holiday weekend winds down, and we look ahead just a few weeks until the next BIG TWO are coming soon, I hope everyone is safe, happy, and well. We always hear "take care of yourself", or we catch ourselves saying it, but most of the time, WE think we know better; and for the most part we do know ourselves better, just sometimes we don't "listen" very well!
I hope to be back on the right track since the new I-MAC has arrived, and we shall see what the surgeon has to say about these darned hernia's tomorrow morning... I'll keep you posted...
Rhia
There are some great things happening and I am honored to share them with all of you. You are the ones that make me keep going. Even when I "see" only a couple of "fans" have been here on one day, those over 400 the next makeup for it! I appreciate every one of you, and my hopes are that each of you will give in a bit off yourself, and comment on some of my posts. It doesn't have to be long and drawn out, but a few quick words about your feelings will always be welcome! As this holiday weekend winds down, and we look ahead just a few weeks until the next BIG TWO are coming soon, I hope everyone is safe, happy, and well. We always hear "take care of yourself", or we catch ourselves saying it, but most of the time, WE think we know better; and for the most part we do know ourselves better, just sometimes we don't "listen" very well!
I hope to be back on the right track since the new I-MAC has arrived, and we shall see what the surgeon has to say about these darned hernia's tomorrow morning... I'll keep you posted...
Rhia
Saturday, November 30, 2013
Have A "Game" Plan?!! IFAA Does! Rocking Autoimmune Illinesses Right Out of the Stadium!!!!
IFAA ready to kick Autoimmune Arthritic Illnesses right out of the door!
International Foundation For Autoimmune Arthritis - Standing On Your Side of the Field!
This is one of the most incredible non-profits I've ever seen! Although "small" right now, they can just about outdo any of your larger non-profits in the way they gets things going! Another HUGE plus, EVERYONE in the entire non-profit HAS ONE OF THESE AUTOIMMUNE ARTHRITIC ILLNESS OR MORE! So as you ask yourself about things such as earlier detection, earlier doctors, labs, tests, medications and even almost more than that, EARLY EDUCATION AND COMMUNICATION can and will lead to an earlier remission, or even possible a chance of not even having anyone to deal with these illnesses again!!! From their "showing" at the White House, making a huge impact on Congress, to being able to have the ability to find other ways they can change the face of AAI's forever, this group refuses to take "no" for an answer! Please visit the link above and see just how the IFAA has already changed and will continue to change many lives!
Thursday, November 28, 2013
Thankful... Grateful... Blessed... A Holiday for Reflection...
What Will You Reflect Upon this Holiday Season...
Well, as superficial as this is to be a morning to be thankful for so much. Right now I am very thankful my new I MAC came in yesterday afternoon very late may I say. LOL! I sat here on pins and needles all day long, listening for the FEDEX truck. Of course I must have been the very last stop on his delivery schedule. It was almost 4pm before I finally heard that truck from down the street! I had hoped all day long that my computer was not sitting in a broken down truck, or got left in Hutchins accidentally at the hub and so forth. Well, my fears were squelched because it arrived safe and sound. Gosh, thankful?! I am thankful for so many things in my life. My husband, my family, friends, as horrible as my health seems at times, I am still up right walking, and bless people's heart I still can speak, some probably think too much! I am much like most of us. It is purest "human nature" to fuss, gripe, whine, moan and groan. Whether it is about family, spouses, kids, finances, jobs, bills, health and healthcare for sure, and the list is endless of things that tend to grate our nerves. But, today is one day to reflect upon the many, many blessings we have in health, family, homes, kids, and in life. As I said a moment ago in a post, it is a cliche' to say, "It could be so much worse". Well, yes, in our heart's, even though there are days our minds don't quite follow, we know it could be a great deal worse. As we open our newspapers, or look at our favorite news reader; perhaps listen to the "nightly news", all around us is much, much worse. Some of it almost too terrible to even speak of. We have seen it so much, heard it so much, talked about it so much, from politics, to foreign nations, from job loss, to the horror in our nation from human willing to hurt others like themselves, that we truly have become complacent to it. Or, I don't think so much as we've become "complacent", for myself I just almost don't want to "stomach" more of the same. There seems to be very little to no "good news". We don't hear about the puppy saved down the street, or how a town completely rebuilt itself after a flood, fire or some horrific incident. Oh, we hear about the horrific incident all right. In fact to me that is the main problem ALL we HEAR and SEE are the "bad" things happening around the globe. I've questioned that numerous times, whatever happened to "good" news? My husband answers because "good" news doesn't sell. For the most part, people want the "blood, guts, and horror". Take a look at all of our movies, our television shows, the games that our kids and that some of us as grown ups play on our latest video's boxes. Is there much good anymore? What happened to "Pac Man or Woman"? What happened to "Mario"? What happened to "Pretty Woman", or "City of Angels"? Look around and yes there is violence, horror, man kind against their own, floods, droughts, fires, loss... a great sense of loss... and no one knows more about loss that each and every family with military folks. Those people know loss. Even though they may not physically have someone they "lose" as far as that route of eternity. Yet, they suffer "loss" from all sense of direction, when they come home from what they have had to endure, see, hear and do. So, as you spend time today with family, with friends, with just your spouse, or possibly maybe just yourself... let's try to reflect upon all of the true goodness we do have. Even though it "could" go away tomorrow, try in the next days ahead to "hold onto" those good thoughts. The world CAN be a better place. Just look around, and you might just see something good right at your own door step. Happy Thanksgiving, and I am very Happy to have my family, and my "online" family! Be blessed, Be safe, and please ..... Don't get too sick on all of the fantastic food! Rhia
Wednesday, November 27, 2013
Thanks for, A Few Thoughts, & To Your and Yours....
I'm just "stringing" a couple of posts together from FB right now. As you shall see below fingers crossed my new computer is coming today. But, as you know that is an ALL DAY affair setting it up, getting my desk back in order, transferring my files onto it from the external drive and hoping I have not lost anything.... So, I shall post a couple of things I wrote in FB the past two days, and in the morning I hope to be ready to "shine" and "scream"... well my computer to "scream" with speed, LOL, not me!!!!
So here are the posts, and I wish you a wondrous holiday... be safe and hopefully as I said in one of these "flare and as pain-free" as possible... Rhia
I just thought of one thing that I was reminded of with it being Thanksgiving Week! Some of us will be with family, friends, some home with our pets. Some of us will be right here with out online friends and family. I am Thankful for the fact that I am so far NOT lying in the hospital as I was when I was 15. I spend 7 days during Thanksgiving holidays in High School having my right knee completely cut open and the meniscus taken out. I was in traction with my leg in a huge heavy cast that was from my bed as far as it could come up in my leg to my toes. I was in that thing 3 MONTHS! Then spend a very long time getting my muscles back to where they did not look like toothpicks. So, that day, my Dad, bless his soul, came to Dallas, and forgo his turkey dinner with Mom and all the family so I wouldn't be alone while I ate mine from that hospital bed. Right now as that memory floods over me, that was THE BEST Thanksgiving of my life! And right now I miss my Dad more than anyone could ever know. He would be 91 if he were still here with us.... May all of you find that one thing you are so Thankful for.... Be Blessed, Be Safe, and Know you are LOVED!
I've had a couple of really BUMMED days! My computer that was supposed to be here yesterday didn't make it. FEDX had not updated anything on their site until later yesterday evening. So, all day I had no clue even where it was in the delivery. It left Sacramento on Friday, and after that all it said was it was to be delivered on the 26th. I am already SO aggravated with this old laptop. I just can't do much of anything on it. It is SO SLOW, it is worse that "dial up" days I think! So, that had really thrown my schedule off. I wanted to get Thanksgiving "Cards" online out, but I have all of my cards for Xmas to make out. Plus I have NOT even BEGAN my annual Christmas Letter. I have been sending a letter in with out Xmas cards now for years. I made it a tradition a long time ago. I don't believe I've missed very many. But I don't really even have any "software" on this old thing to do it on. We wiped this drive fairly clean and began using this computer for our music. We had Garage Band on it, and did our clips, and all of our recording and so forth on here. Then Jim can bring it in and send it to his computer where he can actually put it all together for a song. So, things like "pages"(which is like Word) and so on have been off of here for a long time. And the music files have made it very slow, but we don't want to lose any of those. Thus, we cleaned everything off we could, and set this one up temporarily for me until mine can get here. FINALLY fairly late in the evening, yesterday, FEDEX, updated their website. My computer is in HUTCHINS!!!! (YEAH!!!) So, that means it is just down the "street" from me well almost, but it has arrived at the local hub and should be out for delivery TODAY!!!! Thank Goodness! I got up yesterday and was just not about to sit at this thing and be able to not do a thing productive! So, I made my "annual" fruitcake, did some cleaning, and watched some Xmas movies last night with my two puppies... Now if the computer gets here today, then that means all day getting it set up, my desk back in order and things have way back to whatever normal is around here. My thoughts and prayers are with ALL of YOU!
Please be safe! I realize many may be traveling or have family traveling and weather is very bad in many places around the nation. Enjoy family and friends, have a very warm, loving and hopefully flare and pain free as much as possible holiday! And Eat a little bit of everything!!!!! We are taking Mom over to Waxahachie tomorrow to a huge buffet over there for dinner (more like brunch). So we don't have far to travel and right now our weather as far as traveling right here is good. May all of you be blessed and overflowing with all of the things we should be thankful of. Later in the day, whenever FEDEX delivers my new computer, (I think I am still in shock) LOL!!! I'll probably be away for a bit while we set it up. But I will be "screaming" with speed when the new one is here and ready!!! WOOOOHOOOO!! I can finally catch up hopefully!
So here are the posts, and I wish you a wondrous holiday... be safe and hopefully as I said in one of these "flare and as pain-free" as possible... Rhia
I just thought of one thing that I was reminded of with it being Thanksgiving Week! Some of us will be with family, friends, some home with our pets. Some of us will be right here with out online friends and family. I am Thankful for the fact that I am so far NOT lying in the hospital as I was when I was 15. I spend 7 days during Thanksgiving holidays in High School having my right knee completely cut open and the meniscus taken out. I was in traction with my leg in a huge heavy cast that was from my bed as far as it could come up in my leg to my toes. I was in that thing 3 MONTHS! Then spend a very long time getting my muscles back to where they did not look like toothpicks. So, that day, my Dad, bless his soul, came to Dallas, and forgo his turkey dinner with Mom and all the family so I wouldn't be alone while I ate mine from that hospital bed. Right now as that memory floods over me, that was THE BEST Thanksgiving of my life! And right now I miss my Dad more than anyone could ever know. He would be 91 if he were still here with us.... May all of you find that one thing you are so Thankful for.... Be Blessed, Be Safe, and Know you are LOVED!
I've had a couple of really BUMMED days! My computer that was supposed to be here yesterday didn't make it. FEDX had not updated anything on their site until later yesterday evening. So, all day I had no clue even where it was in the delivery. It left Sacramento on Friday, and after that all it said was it was to be delivered on the 26th. I am already SO aggravated with this old laptop. I just can't do much of anything on it. It is SO SLOW, it is worse that "dial up" days I think! So, that had really thrown my schedule off. I wanted to get Thanksgiving "Cards" online out, but I have all of my cards for Xmas to make out. Plus I have NOT even BEGAN my annual Christmas Letter. I have been sending a letter in with out Xmas cards now for years. I made it a tradition a long time ago. I don't believe I've missed very many. But I don't really even have any "software" on this old thing to do it on. We wiped this drive fairly clean and began using this computer for our music. We had Garage Band on it, and did our clips, and all of our recording and so forth on here. Then Jim can bring it in and send it to his computer where he can actually put it all together for a song. So, things like "pages"(which is like Word) and so on have been off of here for a long time. And the music files have made it very slow, but we don't want to lose any of those. Thus, we cleaned everything off we could, and set this one up temporarily for me until mine can get here. FINALLY fairly late in the evening, yesterday, FEDEX, updated their website. My computer is in HUTCHINS!!!! (YEAH!!!) So, that means it is just down the "street" from me well almost, but it has arrived at the local hub and should be out for delivery TODAY!!!! Thank Goodness! I got up yesterday and was just not about to sit at this thing and be able to not do a thing productive! So, I made my "annual" fruitcake, did some cleaning, and watched some Xmas movies last night with my two puppies... Now if the computer gets here today, then that means all day getting it set up, my desk back in order and things have way back to whatever normal is around here. My thoughts and prayers are with ALL of YOU!
Please be safe! I realize many may be traveling or have family traveling and weather is very bad in many places around the nation. Enjoy family and friends, have a very warm, loving and hopefully flare and pain free as much as possible holiday! And Eat a little bit of everything!!!!! We are taking Mom over to Waxahachie tomorrow to a huge buffet over there for dinner (more like brunch). So we don't have far to travel and right now our weather as far as traveling right here is good. May all of you be blessed and overflowing with all of the things we should be thankful of. Later in the day, whenever FEDEX delivers my new computer, (I think I am still in shock) LOL!!! I'll probably be away for a bit while we set it up. But I will be "screaming" with speed when the new one is here and ready!!! WOOOOHOOOO!! I can finally catch up hopefully!
Monday, November 25, 2013
"Hectic Home" for the AAI Holidays???!!!
"Hectic Holidays For All of Us in a Foggy Brain Haze!"
ONE HECK OF A TYPICAL MONDAY MORNING! 50 plus things to do and I don't know where to begin first! With this being a holiday weekend, which for us as far as the "day" itself, is not all that much trouble. We are taking Mom and going over to Waxahachie to eat at the buffet there at Ryans'... and more than likely we are headed to Winstar for XMAS!!!! I have a new coupons for 2 nights if we wanted to stay in their NEWEST 500 room HOTEL!! I hear it is fabulous! ;) Of course that is a while away. That will depend on weather how all of us feel etc. If we do we can't go but 1 night. I would not leave my dogs but for one night alone. They already have separation anxiety if just one of us leaves for an hour. So one night with us gone is about all they can handle. Even at that it is gotten to where we have to keep them only in our kitchen. We started having issues about a year ago with them peeing where they are not supposed to. Both of both have been house broken for years and years. But, something went on with them a while ago, that every once in a while for no reason one of them will pee in the floor, like behind our sofa etc. I have tried everything, but they get better. Like now this past few weeks has been so much better. But sometimes they will start it and do that for weeks, and then they seem to stop again. So we just don't just in leaving them if we are both gone for an entire day or so with the run of the house anymore. We did for a very long time, until this issue came along. IN fact they have gotten a bit older and I hate going off even over night without one os us here. But, they are always very safe and my kitchen area is huge! So, they are not just crammed in a tiny spot. They have lots of room in my kitchen. Anyway, enough of my moaning and groaning... then either I am having a flare start, or I am just too stressed. I am just on overwhelm.. and I know all of us are. The holidays are an incredibly stressful time for everyone! Then when you are chronically ill, with Autoimmune Arthritic illnesses such as RA, Lupus, Sjogren's, plus the other hundreds of these diseases & that includes those with chronic pain on top of the entire ordeal, it puts our "stress" into a whole new category!!! Then add on how your entire "schedule" gets all turned upside down. For instance, I have a "set" time everyday that I take my medications and eat something for "breakfast". Well that is after the 1ST ONE with all of the pills, as my husband says. Then I also have a set time or day of the week that I clean, mop, sweep, even water my plants, and so forth. Well, this past couple of weeks from all of the "added and unexpected stuff" as in weather change so dramatically, Mom and a medication issue, my computer crapping out on me, Jim and his shoulder still not well, I am not feeling ll that well myself, and the list of "extra and unexpected" just just hindering the "regular" one. Then I had gotten blown out of the water with the holidays so quickly upon us! I haven't written my annual "Christmas Letter", there is fudge to make; fruitcake that needs to be made early so it takes up all of the flavors. That doesn't include the other one of many things I am just now thinking of, which is we usually make "goodies" that we either put in a basket or a decorative tin. WE take those on Christmas Eve to our close neighbors (about 6 homes) and have made that one of our traditions for Christmas! Then I JUST remembered (another THING forgotten due to my COMPUTER crapping out) is our ANNUAL Sleigh Bell by Wallace we order every year. Since the first Christmas we were together we started buying these sliver and gold sleigh bells made by Wallace Silversmith's. In fact last yesterday we "celebrated" 10 YEARS of them! In fact they added a little note inside the one last year about they saw the we had ordered from them every year. Actually a store in Kent WA that we found the first Xmas called Silver Superstore. That year it was so late and almost Christmas by the time we found them, that we got the very last one they had for that year. So, now they email me about 2 months ahead of time as a reminder. Well, until a moment ago, I had forgotten that I had not ordered it yet. Som I just told Jim while we were standing on the front porch I needed to come in and order it before they rub out. Low and Behold in my inbox, there was a reminder for me so I would not forget to order it!!! Now call that "ESP" or not... anyway I sure as hack just ordered it! :) If we do NOTHING else we made a promise that we would ALWAYS get our Sleigh Bell no matter what. :)
So, as I make out my TO DO LISTS, and the LISTS to "remind" me about my lists... and that list to make sure I don't forget about all of the other lists... I realize that in "reality" I am going to have to take one breath at a time, do ONE thing at a time, and also "step" into these moments to know there is no way I can do it all. Either I need to "cut" some things down smaller, or less, possibly try to NOT do some things, and then NOT feel "guilty" because I could not do it all.
As much as I sure as heck (like EACH of you) want to think I am "super human" especially with all of my "bionic" parts, one would think I was Super Human... I am admit I'm not... no longer can I do it all, be it all, make EVERYONE happy all the time, and be able to go on and not stop to find out I am just worn to nothing and come into a huge flare. Which I fear I am having now. Between sudden cracks in the corners of my mouth, my throat soar, and feeling just out of it... I feel as if I am definitely 'flaring" .
So I remind YOU! PLEASE TAKE CARE OF YOU FIRST!!!! I know, I know, we hear it constantly... but if we don't we honestly not of help to anyone if we make ourselves ill. So, some times as difficult as it is to say NO... that two letter word needs to be a GRAND word in our vocabulary.
I close for now in saying, that we are super at all the things we DO get done! We are NOT a disappointment if we aren't able to do it all.
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I finally made a trip to Urgent Care with what I feel is a very bad Lupus and RA flare, but there are several "symptoms" strange t...
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I really have SO MUCH to try & catch up here on, so I am going ton"Post"n some of my ongoing chronic health issues, things abo...
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How can our kids feel safe when WE as adults don't???? I fear Wal-Mart or just walking across the parking lot at HEB in my small lo...

