The Virtual March Begins - American Pain Foundation

http://www.painfoundation.org/take-action/action-network/10000-voices.html

Please join me in lending your voice for the September Pain Awareness Month, and the virtual march. The URL above gives you all of the information you need. I thank you in advance for all of your support.

xoxoxo Rhia

A Positive Light for a Change in a rather darkened world right now...

It seems everywhere we turn something bad is going on. Whether it be more bad news about the war, its casualties, the economy, foreclosures, Wall Street, job losses, Mother's Natures Wrath, and a million other terrible catastrophes, from our local news to the internet, the bad stuff is all around. I like watching Brian Williams on the Nightly News, because they always end the program with something or someone "Making a Difference" for the good.

I was in Care 2 this morning and found this site. The gentleman is doing something out of the kindness of his heart for the good. I joined the site and thought you may like to also. The link is below:


http://itstartswith.us/about/index.html


The good things start with us. Once voice, one good deed, and it can snow ball quickly into something terrific.


I was happy when I saw the site, and rather than posting about something lousy again, I decided to share something spectacular!

Rhia

National Pain Awareness Month - September

The American Pain Foundation is sponoring National Pain Awareness Month for September. Along with that they have a pain awareness "virtual march" on Washington DC you can participate in. There are many ways t help out in this critical area of much needed research, funding, awareness, clinical trials, and much more.

If you are a pain patient, a caretaker, friend, neighbor, family member, or someone who just wants to help joint the fight against chronic pain, and be a positive voice please visit the American Pain Foundations Website. I have enclosed their URL.

Chronic Pain is a life altering illness that effect millions of us every year, and that rate continues to grow. There is still so much that is a mystery when it comes to many chronic illnesses and chronic pain. We lose many hours from work, we suffer horribly, we sometimes lose our jobs, families suffer, spouses suffer, and life itself has many limitation due to chronic pain. I hope you will join me in advocacy, awareness, and doing what you can to help solve the mystery of chronic pain.

http://www.painfoundation.org/take-action/action-network/virtual-march-2010.html

Invisible Illness Week Outreach Described on Video By Founder

http://invisibleillnessweek.com/2010/08/10/invisible-illness-week-outreach-described-on-video-by-founder/

This is just an incredible idea! Being a chronic Illness and pain patient, I know how difficult it is when someone that just does not under says things like "but you don't look sick". The majority of us suffering from things like Chronic Pain, Migraines, Chronic Fatigue Syndrome, and so many others may not "appear" to look ill all of the time, not like we do when we have a bad cold, the flu, pneumonia, or other acute types of illness, but that surely does not mean we don't feel it. People with chronic Illnesses learn coping methods, so we may have our hair looking good, nails painted, makeup on, and be dressed when we go to the market, or shopping, but that does not mean we are not in pain, or that we feel great. We just get tired of looking sick and tired, plus for some, getting dressed, doing your pain, putting on makeup, getting your nails done, and so forth makes us feel a little better. I realize that people from afar, strangers, may not get it. And for me, it got to the place, that sometimes I go out, looking like heck, because I don't want to deal with the comments, that I look fine. Thus, you don't put makeup on, etc. Those days are usually when I am feeling like death warmed over, thus I probably look it.

I found out we will have this National Awareness week about Invisible Illnesses. What a wonderful idea, and one we can share with others so they may understand better, what being chronically ill or in pain means for us. It can happen to anyone, anytime. You may have not had a headache, body ache, joint issue, all your life, and one day you wake up to horrible pain, severe fatigue, bad headaches, and many other symptoms. No one is immune from chronic Illness and/or chronic pain. I would not wish Lupus, and my other health issues on anyone. But, I would like to help educate others about just how life altering Chronic Invisible Illness and Pain is to all of the people it encompasses... from those who have it, to family, friends, spouses, and caretakers....

Incredible News about the Lupus Medication Benlysta! FDA makes priority review

Human Genome Sciences, Inc. (Nasdaq: HGSI) and GlaxoSmithKline PLC (GSK) today announced that the U.S. Food and Drug Administration (FDA) has granted a priority review designation to BENLYSTA® (belimumab) as a potential treatment for systemic lupus erythematosus (SLE). A priority review designation is granted to drugs that, if approved, offer major advances in treatment or provide a treatment where no adequate therapy exists. The FDA has assigned belimumab a Prescription Drug User Fee Act (PDUFA) target date of December 9, 2010.


http://www.hgsi.com/latest/human-genome-sciences-and-glaxosmithkline-announce-fda-priority-review-designation-for-benlysta-belimumab-as-a-potential-treatment-for-systemic-lupus-erythema.html


I will be first in line as soon as the FDA gives the thumbs up! I have been awaiting this now for well over 2 years, watching all of the clinical trials, and the positive results. I am so elated.... Rhia

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