Thursday, October 9, 2014

More Incredible News on the Homefront of the Fight Against Lupus

http://uthscsa.edu/hscnews/singleformat2.asp?newID=4908





$1.12 million to fine-tune the body’s “Homeland Security”

Posted on Wednesday, October 08, 2014
Contact: Elizabeth Allen, CTRC, 210-450-2020; allenea@uthscsa.edu

Physician searches for better lupus therapy and clues to ovarian cancer treatment at the same time....


Saturday, October 4, 2014

Rheumatoid Arthritis Study - Volunteers Needed - See if you Qualify from this post and the IFAA will get the donation!

Do YOU qualify for this study? If you do, and are willing to give a little time for a phone interview, you can raise $100 for IFAA!

All money raised from this study will be used towards wellness education and patient-centered/patient-led research in 2015.

Do you qualify? Will you help? PLEASE SHARE via social media to find qualified participants.

Additional qualifying criteria is:

You must have been on the Cimzia, Humira or Remicade for less than one year before discontinuing.

You must have moderate or severe RA (as opposed to mild)

You cannot be a nurse, doctor, or research professional.

This will be one confidential and anonymous phone call with one moderator that will be scheduled at your convenience.

Is this you? If so, PLEASE EMAIL DOUG ASAP at dlowell@sampleczar.com!

Thursday, October 2, 2014

WAAD 2014 (World Autoimmune ARthritis Day) October 12th!!!!


MARK YOUR CALENDARS! Be sure to get the word out about World Arthritis Day 2014! We need to get everyone on board when it comes to these horrendous diseases. I have read and told about 4 or 5 "new" ideas on Lupus, RA, Sjogren's, and other autoimmune illnesses (arthritic and regular autoimmune)... and I am delving into a very interesting one that I talked with all of all people, a friend and my doggie's doctor just yesterday. I mentioned it in my post from early this morning. Once I have enough information on the situation, I will certainly post some links, probably on my blog and then I will make sure a link is here also. Some of us maybe "ill" from something our physicians nor us may have ever given thought to.... and the idea that my "vet" may have the answers to so many unanswered questions on my health problems, would be just awesome to me... you never know until you dig around, ask questions, and delve into sometimes what seems like may not make sense... with AI illnesses NOTHING makes sense... Stay tuned!!!!!





Did you know that October 12th is World Arthritis Day? On World Arthritis Day, people with rheumatic and musculoskeletal disorders from around the world join together to make their voices heard. You can be involved! Learn more about World Arthritis Day and its hosts, Eular - European League Against Rheumatism, here: http://www.worldarthritisday.org!

Sunday, September 28, 2014

Talk About News to Make You Shout! You must read this and be sure to go to all of the links!!!!


I was so blown over by this announcement from the Lupus Research Foundation I had to rub my eyes, blink and look again to make sure I saw what I saw Correctly!!! This is such phenomenal news I was just taken aback.

And further not only do we owe the NIH hats off to this incredible research opportunity, but everyone below along with all of the researchers individually, those folks that are on board for activism, Ambassadorship, Volunteers... everyone who tries their very best to stand up and say that what we have now as far as help for these illnesses are simply NOT acceptable, as the Arthritis Foundation puts it. Hats off to all that have been and will go back to the "Hill" in D.C. to open up and tell their stories, or the stories of those loved ones hit by the horrific illnesses. People like myself that try their best to live a "normal" life when there is never any sense of "normal" when you have a chronic illness/pain and especially when it comes to an autoimmune type of illness. I am so thrilled to put this on my blog and share it with my readers!!!! Be sure you go to ALL of the links and see what is being said about this incredible Undertaking... the FIRST EVER of ITS KIND to do something to stomp Lupus and RA, along with many other AI Illnesses into the ground.... Again I am just totally almost speechless.

AMP Rheumatoid Arthritis and Lupus:

The partners

http://www.arthritis.org/
Government

  • NIH
Industry

  • AbbVie
  • Bristol-Myers Squibb
  • Merck
  • Pfizer
  • Sanofi
  • Takeda
Non-Profit Organizations

  • Arthritis Foundation
  • Foundation for the NIH
  • Lupus Foundation of America
  • Lupus Research Institute/Alliance for Lupus Research
  • Rheumatology Research Foundation


http://www.niams.nih.gov/News_and_Events/Press_Releases/2014/9_24.asp

 

 

 

http://www.rheumatology.org/ 

 

 

I will be posting more about this tomorrow and also more "Kudo's" to everyone participating om this historic event for RA and Lupus!!!