Wednesday, October 19, 2016

Lewy Bodies Dementia - Robin Williams Taken by the horrid illness and closer to "home" this took my Mom within 6 month and she passed away June 9th, 2016

http://curec.lk/2e1mP5t



#LewyBodyDementia #LewyBody #Dementia #LewyWho

 

 

On August 11th, 2014, the world lost a wonderful beloved man. Robin Williams was an amazing actor, comedian, and philanthropist, who touched the hearts of millions with his wit and humor. However, Williams suffered from a degenerative disease that, after his death, was identified as Lewy Body Dementia.

Although Lewy Body Dementia is not a rare disease, it is still widely under diagnosed and many doctors and other medical professionals are still not familiar with it. It is often confused with Parkinson’s or Alzheimer’s disease due to the similarities of the symptoms. Doctors thought Robin Williams had Parkinson’s before an autopsy revealed the massive proliferation of Lewy bodies throughout his brain, one of the worst LBD pathologies the medical professionals had seen.

In an effort to raise awareness of Lewy Body Dementia, Susan Schneider, Williams’ wife, wrote a letter addressing all doctors, medical professionals, and patient advocates to share her husband’s story. You can read it here: The Terrorist Inside My Husband's Brain.

There is no cure for Lewy Body Dementia yet but we are hopeful. CureClick has launched a new mission for a clinical trial for Dementia with Lewy Bodies to help find potential treatment for patients suffering from this degenerative disease. Please share this trial with everyone you know and help raise awareness.


This is a direct passage above from "Cure Click"

Saturday, October 15, 2016

#OneLineOneDay - the Lupus Alliance Message so Crucial for ALL of us with Lupus







Today is the day. Join the Lupus Research Alliance and thousands in the lupus community today for One Line, One Day as we spread awareness with a simple message:

Join the Lupus Research Alliance in a unified effort to free the world from lupus through the power of science. #OneLineOneDay

The Lupus Research Alliance believes in the idea of collaboration as the way to find better treatments and ultimately a cure for lupus. Today we ask you to join us in sharing this message. By working together with the entire lupus community, we will accomplish our mission.

One Line One Day is your movement. Share this message with your friends and family through Twitter, Facebook, Instagram, email - any way you would like to encourage people to help us to spread the word. Through this simple action, we will increase lupus awareness today and beyond until we reach our mission of finding a cure.

Friday, October 14, 2016

New Clinical Trial by Cure Click for GERD


Cure Click Brings a Clinical Trial for Urinary Incontinance caused by Spinal Cord Injury, Multple Sclerosis

Approximately 80% of people with Multiple Sclerosis will experience some degree of bladder dysfunction. Symptoms include difficulty holding urine, difficulty starting a urine stream, feeling like the bladder won’t empty completely, having to go to the bathroom at night frequently, and having to urinate frequently. 

 

 

http://curec.lk/2dBya93

 

NEW CLINICAL TRIAL BY CURE CLICK - THIS ONE HITS ME PERSONALLY - LEWY BODIES DEMENTIA!

Again this is so critical to me in such a very personal way. If you and a loved one has been diagnosed, or shows "signs or symptoms" of this extremely rapidly degenerating type of Dementia, you can screen for a Clinical Trial sponsored by Cure Click. I watched it take my Mom within 6 months. She had "some signs" of dementia, forgetfulness, and several others about a year or two before. Yet, none that led to a real diagnosis, then this horrid disease seemed to "take over" suddenly, and I literally watched her "change" day by day, as I've told the story so many times. This is NOT your "typical dementia or even Alzheimer's) not that they are not awful, yet Lewy bodies as a whole different type of dementia, aggressive in nature... and honestly, they still lack a great deal of the "why's" of this particular one.... Please share this with others. I would so appreciate you giving out this to others that may have someone they have seen in this type of rapid declining of mental, physical, and emotional realms so suddenly.


Been told you or a loved one have #LewyBody #Dementia? Participate in a clinical trial! See if you qualify. http://curec.lk/2e1mP5t