Showing posts with label summer. Show all posts
Showing posts with label summer. Show all posts

Sunday, January 28, 2018

Diatomaceous Earth, "Alkaline Water" "Life Water" and the body, houseplants, our "Fur babies" and more...

Since the subject of "Life Water" or I think it is an "Alkaline Water" if I am correct, I wanted to raise the issue over" how long does a complete detox take with diatomaceous earth?" YOU MUST use "Food Grade" or I would for sure, if you are going to take this for a supplement, or if you are using it in your home on pets for flea control and so forth.

I know I had it out around the house before winter, and up until now our weather is beginning to show some "signs" of spring, like I saw a HUGE HAWK, right here in almost downtown Ennis on Friday afternoon. It flew down into my trees in the front, and I sat and watched it with a "wandering mind" as to "why" I believe after looking it up, it was a "female" she was doing "here" almost in the middle of town. We have LOTS of trees in our neighborhoods and the birds are just like a jungle all through early spring through summer and late fall... I've even already seen a red headed woodpecker in my front tree also, plus I've heard the wrens out some, so when I begin to hear birds again, I know "hopefully" our main very bitter cold weather is coming to a close, or I PRAY it is... don't get me wrong WE NEEDED A BITTER BELOW FREEZING COLD, THIS YEAR! We have basically NOT HAD a "winter" type weather here now for at least 3 years maybe more... of course it's been cold, but not where it was way below freezing, and lasted for a week or more, several times in the winter months. And believe me you can always tell, before spring even gets here every kind of a "bug" comes out, if we have no really COLD winter...

so I PRAY we have had enough at least to kill off some of the damned bugs that are driving me nuts, fire ants have been horrible, fleas I pretty well had hold of, but I was very, very well prepared, and even then sometimes they are bad, but other ants, every kind of a "kissing bug" or what I call a "stink bug" and they were horrible just before it got cold this year... they were everywhere, and they can be very bad if some of the ones that "sting" bite you... it can make a human or a dog or cat sick... they are nothing to be messed with from what I've read, but the gnats, the ants, the spiders, you name it, I actually put out the stuff I use on my lawn very early the past 2 or 3 springs, and usually I "may" have to do it one more time mid-summer, but this past year, I put it out at least 3 times, and actually before it finally got cold, I put it out again... and that usually never happens... anyway, so hopefully we had "enough" to kill out the bad bugs and critters, but we are now hopefully going to "get out of that bitter cold" that has just about put me under with the severity of pain, and how badly it's effected my Lupus, RA, and autoimmune illnesses and chronic pain.. I went well over a month and usually I have a "Lupus flare" but the RA is mainly the "same" all the time, not this past few months, the RA has been totally out of control, and even the huge prednisone doses and the huge injection of corticosteroids really did not rid me of either flare...

I got somewhat "better" but unlike most of the time, I never really got over either one... so that is why I am going on "Zeljanx" that is AFTER WE GET THE INSURANCE TO PAY HOPEFULLY OR I MAY HAVE TO HAVE THEM PAY AND IF MY CO PAY IS TOO HIGH THEN THEIR PHARMA COMPANY WILL HELP ME WITH THE BALANCE... I've already "applied" for their patient program, so I will have that much done, just in case the insurance company decides to give me hell about it.... I really should have gone to Urgent Care this weekend, or yesterday, they are not open here on Sundays right now... I "think" I am dealing with a sinus infection, that is what is causing my nasal passages to be bleeding, and they continue to be almost scabbed over and hurt like hell... I try to leave it alone, but it hurts so much I have to put lotion or cream, or vaseline on a cotton swab. and rub both of them down. They are so "tight" from being dried out also... but I've been messing with it now again for weeks, and keep putting it off... as I said on Friday, I "feel too bad" to even take myself to Urgent Care...

Anyway, now I am suddenly fighting gnats! They have not been in my houseplants all winter, and this past couple of days ago, when I watered, now I am dealing with those again, which means my fresh garlic is "fizzled out" and I think as usual no matter how much I clean my kitchen drain or with what they like to "hatch" down deep in the drains then fly out and get in everything... I've been seeing them even in one of my closets... so I put out some of the "diatomaceous earth" and that will also help to rid my plants of them, and put out some "lemongrass oil" around the tops of the planters, a mixture of that with Tea Tree Oil usually will get rid of them also.... so the one thing I don't "cherish" about spring coming is the damned critters flying around...

diatomaceous earth, alkaline water, "Life Water".... supplements, Lupus flare, RA Flare, spring, summer, critters, ants, gnats, TX and living with Autoimmune Illnesses....

Saturday, May 9, 2015

Second Guessing Your Autoimmune Disease(s), Is there a "real remission" to some of AI's - Sjogren's, Lupus, RA, and more...

As I have waded MANY times through the entire "list" of autoimmune illnesses, diseases, syndromes and disorders, again I go back to the spot where I have to wonder: #1. Is my diagnosis correct? #2. Is there another 1, 2, 3 and so forth of AI's that I have, and if so are they being "managed" by the other medications I am on? #3. Are my entire entourage of physicians correct and have they done the proper testing, given me the right medications to help me gain me "control" over further degeneration, more pain, and one day truly feel like I have possible remission? Is there even anything such as "true remission" on some and/or all of the AI's? Is "this" (whatever stand in time I feel I am "at my best as far as being symptomatic) and I will just go onto endure all that is not alleviated as far as pain, future health issues, more pain, and less of a way to fight these illnesses? Does the medications that I am on now, or the ones I had been on, and other types of treatments, therapy, surgeries, and so forth truly mean my "health future" maybe "brighter"? Or I am, along with my physicians and so on, really making a true difference in how I am effected in the long haul of the future?

I KNOW for myself, and I will say probably the majority of patients, caretakers, spouses, families and friends ALL have these thoughts go through their minds. If like myself, this happens quite frequently; especially if you feel you have not made much progress in getting symptoms, fatigue, inflammation, pain, and others where you feel you have reached a comfortable level of relief. As any pain specialist, or probably any type of physician will tell you, there is ONLY so MUCH that can be done. For some, like those with Multiple Sclerosis (MS), it appears there are many more available treatments, more doctors that are familiar with the disease, and you hear fairly frequently of MS patients going into remission, and some for years.

Yet, as far as RA, Lupus, Sjogren's, Raynauds, Diabetes 1, Pernicious Anemia, Addison's Disease, Still's Disease, and the others, not so much. Usually those of us especially with "multiple" AI's never seem to feel as if the diseases are under control. We may feel that way for a week, or even a month or two, yet for me, each and every morning I put a foot to the floor, the RA pain is there. Now some days are better than others. We also know for a fact, weather, stress, jobs, family, and what we do, all have an effect on just how much "relief" we have from one day to the next. Brain Fog is one of those that rather than feel as if I maybe moving forward, I seem to be regressing further into the fog. Month after month I can tell by the way I do things on a daily basis, that the "fogginess" of Lupus, RA, Sjogren's, and such tends to get worse, not better. I am making many more lists, I must go through and reread paperwork over and over again. At times, even seeing something online, I can't recall it, or I walk into a room, and can't remember why I am there in the first place! I tend to leave things "half done", only later to come back and see, "Oh, I didn't finish making the bed", or I never watered all of my plants... possibly Mom asks me to look something up, and if I do NOT write it down, it's as good as gone by the time I leave her house and drive a whole 6 or so blocks to my home. Of course, there are many more little "things" that either I do, or don't do.. and I realize it is due to the Lupus Fog...

As far as the 2nd guessing, I am quite sure I have probably took my symptoms, as they come up, and now several new ones are popping up, and go all the way back to "square one" to research the entire ordeal. Do I really have Lupus, RA, Sjogrens' Raynauds.... and so forth... OR do I have Myasthenia Gravis, some type of "regional pain disorder, compression fractures in my lower back causing severe pain in my hips and legs. Maybe I have a hip that is totally worn out or getting that way. Much like my knees, I've had one hip give me "the blues" on several occasions. Enough that it sent me to my Orthopedic Surgeon so he could put a huge needle full of corticosteroid in it. Usually, that would work. My knees, shoulders and elbows were much the same way. I would have a huge bout with my shoulder or elbow, or knee and I would go in, get an injection into the joint, and I may do well for a day, week, month or years! OR like my knees and shoulder did, after so many injections over the years, and several arthroscopic surgeries on them, I had to have both knees totally replaced, as well as my right shoulder. My elbow has had surgery and has screws in it, and I know it has torn loose and really needs a "scope". I fear though it would be just like my knees and shoulder, the doctors does a scope, and he sees it is totally worn out, totally degenerated.. so "fixing" it is impossible. So, like my knees and shoulder, I went for years, as long as I could stand it, and the injections helped, then I had them completely replaced. You reach a place that you know there is no way you can put up with the severe pain, the loss of range of motion, the weakness, the inflammation... so you make your choice.

I've never regretted ANY of my joint surgeries. Each and every one, from the scopes, until the total replacements, gave me the relief, more strength, better use, no inflammation, and was a great deal better, than not having them replaced.

But, any type of joint surgery, even with the arthroscopic ones, there is never a guarantee you will be "better".... it could mean it may not help at all, OR you have complications, or possibly it feels worse. Now, once you have a TKR (total knee (joint) replacement) that does provide relief, stability, range of motion etc.

But, with the scopic types of surgery, as incredible as they are... and also as incredible as our CT scans, and MRI's are.... NEVER did ANY of them give my doctors the "real story" in my joints. Once they "opened" the joint up, then is when they discovered my joints were totally gone, in no way able to be repaired or "patched" up. I've had my Orthopedic surgeon tell me that over and over again. As good as our tests are, sometimes they do not give the big picture.

My neck was a prime example. I went for YEARS with severe neck pain. I was not able to turn my head very much, or bend it forward or backward. I constantly had severe pain in my shoulders, especially my right shoulder and shoulder blade. I went through numerous tests, from the MRI's, the CT Scans with the dye, regular X-rays, and even a couple more tests to check for nerve damage... EMG's and so forth. They found some nerve issues, both in my legs, and down my arms, yet I jumped from one specialist to the other, with every test, every scan, all of the tests they done as far my nerves.... yet it took me forever and a day to finally CONVINCE a very astute, very stubborn and head headed, yet the very BEST SPECIALIST in the area of not only joints, joint surgery and replacements, BUT he also knew spinal surgery, better than any other doctor I can remember.

After FINALLY getting him to do the "reverse shoulder replacement" on my right shoulder, the first 8 weeks I was truly amazed......


It was not long after that, my shoulder blade on that side, began to feel as if it were burning. Of course I had the shoulder totally replaced, so the "searing" pain (unless something happened like an infection) should not be giving me problems.

Again, back to the same Orthopedic Surgeon, who just DESPISES "educated patients". He just think HE is the "master" over all things "ortho" and we as "layman" don't know "crap"...

I've told my own story over and over about his horrid "bedside NO manner"... as before when I went in to tell him what was happening, he swore that the pain should not be coming from my neck. Well, I totally knew unless like I said there was an infection in the joint replacement, OR the huge bundle of nerves that run right along in that area, and out to the shoulders, shoulder blades, arms, and so on had something wrong. Which "could be" but was not likely.

Again, we go through a special "scan" of my neck. It comes back with C-3 through C-4, C-5 and C-6 having issues. Exactly how much, well from the pain I was having and looking at the CT scan with contrast, showing "bulging, and a few other issues, the 4 level "replace 2 discs" and fuse the other 2, is what was decided. He was set even with my shoulder, that if he got actually into the "joint" (right shoulder) and he didn't see nearly enough damage then he would "repair" it and not replace. But, all cards on the table, said "reverse replacement". So, the "new shoulder" was waiting for me before the surgery. Sure enough, after being able to "see" the severe damage, there was no question a reserve total shoulder replaced.

Albeit the same with my cervical spine. There was a great deal more damage "inside" that the scan didn't pick up, which meant he (and I) were right on with the "replacement/fusion) discectomy. By the time I came out of the anesthesia, I already knew I was 100% BETTER!  Even though it was the quickest surgeries for me, as far as very little pain, etc after surgery, it was 6-8 weeks before I could do much of anything but walk. Which kind of was "bad". Because it "felt" so much better, I had to be careful and watch myself. It was a miracle.

Later he came in to tell me what he found etc, and that I actually was pretty "right on" with my own "diagnosis"... thus that kind of helped for the both of us as far as NOT feeling like he needed to make me feel crappy just because I do my "homework".

Now of course is a totally different type of problem. Not one that is easy to face, nor easy to diagnose, and also one that many, MANY times said "I WOULD NEVER" have my lower spine operated on. Due to ALL of the bad things, from online, from people you see and know... it was something I never wanted to even have to give thought to. Well, here I am once again wondering what will have to be done in this case.

So, that is why I am questioning EVERY diagnosis, every thing I have read, researched, been told, by both other patients and doctors also... whether remotely that I even want to have the "discograph" or whatever they call it. Yet, even sitting here now, I feel that "pain" that is so very familiar. If I sit for a while, it begins that burning in my lower back, butt, and down my legs. I still feel like my hips are a part of the puzzle, but he insists my hips aren't causing this kind of pain. Of course he takes an X-ray, that basically says the same thing that the CT Scan I had about 6 weeks ago says, thus this stupid invasive "discogram" will probably also show the same... The TESI (Transforminal Epidural Steroid Injections) worked for a few days, thus that "tells them" that are hitting the mark. That is "a part" of this. Yet, I am still convinced my hips are also a part of it also.

So, the "gram" is set up at the end of May around the 27th. Everything else going on left me with no choice but to make it a couple of weeks off. First of all, again I will have to have my son drive me. I can't drive after having it done. And Jim can't drive and no way my Mom could drive in Dallas. She does well to drive to the market and back in Ennis!

So, I am now kind of "fed up" with all of it. My hopes are the pain will cease and desist, so I can go on and enjoy my summer, and not be down with a freaking major surgery.

Plus who the hell is going to take care of me, and the house, etc??? Jim can't do a lot of things as it is, and no way would I have some stranger coming in to help us, while I recover.

So, there are lots and lots of things to consider, before jumping head first into this quagmire of tests and surgery!












 























Saturday, April 18, 2015

What are 3 Things I am so looking forward to doing this Summer! WEGO Writers Challenge - #HAWMC April 18th, 2015

First and foremost, wearing shorts, sandals and cute Short Sleeved Shirts and Blouses! That may sound silly, but after this cold weather, with always jeans, long sleeved shirts, boots, socks, coats, and so on, I am so ready to NOT to have to put all of those on for a while. Plus I have a few new Summer tops I have bought, so I am ready to take those for a "spin"!

The 2nd activity that really seems to help me physically, mentally and emotionally is being able to get out and walk every day. That becomes my main priority and a great warm weather habit for me. So, I've already been out and about doing some of that, but with the hips and back hurting so badly, I've not been able to do as much as I want. Hopefully after the Transforminal Epidural Steroid Injection into my L-5 space vertebra, and then both hips getting injected next week, that will put me back into the physical goodness I need in order to really get out there and pound the pavement, or usually laps around a local park or my own driveway also!

I love having lots of flowers, plants, trees, and I bring almost ALL of my "indoor plants" outside for the Summer. I can usually take them out as soon as we know there will be no more surprise freezes. Then they can bask in the Summer warmth and sunshine, up until sometimes September. It depends on when our cooler weather hits, but they LOVE being outside on my front porch. Now I am talking about 70 plants or MORE that I have in my house in the winter, then they all but a few go outside in the spring and summer!!! I always giggle when I see the little tags that "NASA" puts on houseplants now when you buy them. It tells you how many "plants" per square feet in your home is best for the air. Believe me, my house is tiny, so I have way MORE than enough to "clear" the air in my home. I get bummed because there are many things that I used to love to do outside, that due to the Lupus, RA, joint replacements, Sjogren's and other health problems, my ability to do a great deal of pushing a lawn mower, doing the weed eating, bending too much, even raking, hoeing, and so much I loved to do, now is no longer feasible or advisable by my physicians. But, I can certainly do other things that are not as strenueos to the body as others.

A third thing, that I LOVE to do is put my Hummingbird Feeders out, and we both love to "bird watch" all Summer long! We have SO MANY different types of birds, and we have watched them and know so many of their "habits", why they do things a certain way, and really have an awesome time all spring, summer and into fall watching the birds. Of course the Bluejay? is the Texas "bird". But, we have loads of red birds, wrens of different kinds, finches, woodpeckers, mockingbirds, doves, black birds, and Purple Martins. There are more, but of course I can't name all. We have one pair of very "yellow" birds. They come in every year at the same time. They stay together, and usually only nest in a very thick "cedar" tree across the street. In fact, it is so "sticky" with sap, plus it has such pointed and scratchy leaves, that nothing wants to go into it, but them. I think they use that particular tree because cats, not even other birds will mess them there. We think they are a type of finch, but we find it odd that there seems to be only one pair, that come back each year. So, bird watching, we now look for the nests, and have found several nests that we've watched the little ones hatch, and how the "parents" train them and get them out of the nest within weeks. It is amazing.

I like to be able to "open up" my house and have the fresh smell of green grass just mowed, hear the birds, and just enjoy all of nature that I can soak up this time of year. I am still very much a "people" watcher, so I enjoy just watching people and see what they maybe buying or wearing this time of year. It is very interesting to see the things that others buy, and then "guess" as to watch they maybe doing or where they maybe going. When you see all of the ice chests, chips, charcoal, buns, cokes, beer and so forth, usually a picnic, a visit to one of our lakes in Texas, or on a vacation with their family.

This is also the time of the year, that I want to "rid and shed" my old self, and not just be able to put on summer clothes, but to take an "inventory" over my own home. I like to do away with things that I realize I have not used in a long time, or know for a fact just need to be done away with. As I have gotten a bit older, and as time has gone by with the chronic illnesses, pain, age part that I feel I am no longer able to take care of, like lots of knick-nacks around the house, some old clothes that we feel we just don't want to let go of, but to do an "inventory" of my home, and my life. Then I feel it is time to "spring/summer clean" out my closets, rest of the house; along with some of the "cobwebs in my mind", and from my body! Even though we always have that time of "closure" and "renewal" at the first of every New Year, to me spring and summer are also a time for renewal, to take out what we feel is "weighing" us down, and lighten up the load in our homes, minds and bodies.

I know that as I mentioned above, there are many things I used to love to do inside my home and outside, that I can no longer do, because of my chronic illnesses, joint issues, and so forth. But, I DO have MANY things I CAN still do, to take stock and move forward!

So, there are MANY things I love to do this time of year! I have to "pick and choose" now due to illnesses, and chronic pain. But, I still try my very best not to miss out on what I love the most, as I've written about above!

Happy Summer to ALL!!!









Monday, June 8, 2009

Another Monday, Hot Weather, Friends, Oceana & More

This truly hit home with me this morning. We have so many worries, concerns, and stresses in our lives, too often I know for myself, I forget to really remind myself, just how incredibly blessed I really am. I do have a little home to call my own, I have food and drink, I have a decent vehicle to get around in, I have my husband, my Mom, my two children, and now since the birth of Logan, a week ago today, three grandchildren. I also have my pride and joy, my "fur kid" my pug, Tazz, who is just a joy in my life. I do struggle with health issues that keep me from doing many things, yet I am still able to do other things I enjoy, from reading, writing poetry and short stories, crocheting, sewing, working some in my new garden, and the list goes on. No, I will never snow ski again, but I did have several years of going and so many wonderful memories from skiing and other vacations. I am able to worship where I want, and when I want, without being condemned or harassed... So, when I saw this, I wanted to share with you... because I am also very thankful for my friendship with you.

I wish you many incredible memories and times to come to make more... Pam

WHAT HAPPENS IN HEAVEN ?
(This is one of the nicest e-mails I have seen, and it really puts things into perspective..)

I dreamt that I went to Heaven and an angel was showing me around. We walked side-by-side inside a large workroom filled with angels. My angel guide stopped in front of the first section and said, 'This is the Receiving Section. Here, all petitions to God said in prayer are received.'

I looked around in this area, and it was terribly busy with so many angels sorting out petitions written on voluminous paper sheets and scraps from people all over the world.

Then we moved on down a long corridor until we reached the second section..

The angel then said to me, 'This is the Packaging and Delivery Section. Here, the graces and blessings the
people asked for are processed and delivered to the living persons who asked for them... 'I noticed again how busy it was there. There were many angels working hard at that station, since so many blessings had been requested and were being packaged for delivery to Earth.

Finally at the farthest end of the long corridor we stopped at the door of a very small station. To my great surprise, only one angel was seated there, idly doing nothing. 'This is the Acknowledgment Section,' my angel friend quietly admitted to me. He seemed embarrassed.





'How is it that there is no work going on here?' I asked.

'So sad,' the angel sighed. 'After people receive the blessings that they asked for, very few send back acknowledgments ..'

'How does one acknowledge God's blessings?' I asked.
'Simple,' the angel answered. Just say, 'Thank you, Lord.'




'What blessings should they acknowledge?' I asked.




'If you have food in the refrigerator, clothes on
your back, a roof overhead and a place to sleep you are richer than 75% of this world. If you have money in the bank, in your wallet, and spare change in a dish, you are among the top 8% of the world's wealthy .'

'And if you get this on your own computer, you are part of the 1% in the world who has that opportunity.'

'If you woke up this morning with more health than illness
... you are more blessed than the many who will not even survive this day .'

'If you have never experienced the fear in battle, the loneliness of imprisonment, the agony of torture, or the pangs of starvation .... you are ahead of 700 million people in the world.'

'If you can attend a church without the fear of harassment, arrest, torture or death, you are envied by and more blessed than three billion people in the world. '

'If your parents are still alive and still married ... you are very rare .'

'If you can hold your head up and smile, you are not the norm, you're unique to all those in doubt and despair.'




Ok, what now? How can I start? If you can read this message, you just received a double blessing in that someone was thinking of you as very special and you are more blessed than over two billion people in the world who cannot read at all.

Have a good day, count your blessings, and if you want, pass this along to remind everyone else how blessed we all are.




ATTN:
"Acknowledge Dept.":




'Thank you Lord, for giving me the ability to share this message and for giving me so many wonderful people to share it with.'
I thank God especially for all my family and friends !!




If you have read this far, and are thankful for all that you have been blessed with, how can you not send it on?


If you spent time to read the above, then you will see I am continuing from here. I posted the "What happens in Heaven" just due to how it hit me, that I so often want to gripe and fuss, rather than see all of the blessings I receive daily. We all get caught up in the negative sometimes, and have to be reminded, how much positive light we are given. Of course it is another Monday. Which means work for some, errands, running around, paying bills, or whatever and however your week begins. For myself, it begins with an extremely hot day. The humidity is already high, and we are to reach 90 degrees today, and more like 100 by Friday! I have to admit I am not looking forward to the heat. I guess old age has set in, but I have problems with extreme heat or cold now. My body just does not tolerate either. With the garden going, all of the new houseplants I have added to our home, we need to paint the outside of the house, plus everything else like cutting the grass and so forth, the extreme triple digit temps sure make those things much more difficult to do and enjoy. Thank goodness for the new propane grill. That way, we don't have to heat up the kitchen as much. Plus probably like most we tend to eat cooler and lighter meals, more salads, including tuna salad, chicken salad, taco salads, and things not as heavy as the Winter time meals.

My new grandson Logan, is doing well. Amanda says they are both doing okay. She is still tired and sore from the C-Section, but knowing her she is probably trying to overdo it too quickly. She says he is just such a good baby, that sometimes she has to wake him up to feed him. He is not wild about a bath yet, and she says he likes to be really bundled up tightly... probably like many, it makes them feel safe, since they are now out of the womb where they felt that.

Today is World Oceans Day... Oceana was started actually by the actor Ted Danson. Shortly after he began being in the sit com Cheers, he decided to give back... thus Oceana was born.

Not much to tell, still trying to get my shoulder completed rehabed, trying to stay cool, and just being... for a change...

I hope all is well with you... I wish the best for everyone.... Rhia