Saturday, February 25, 2017

Rare Disease Day Upcoming - Share Your Stories or Learn More about how MANY Rare Diseases there are..

National Organization for Rare Disorders (NORD) Rare Disease Day


February 28, 2017


Rare Disease Day® - NORD (National Organization for Rare Disorders): NORD is the official US sponsor of Rare Disease Day. Share your stories and promote awareness with millions of patients and their families around the world.


Did you know?  Rare diseases are not so rare:  there are 7,000 rare diseases & disorders that combined affect 30 million Americans–1 in 10 of us–and more than half are children.
People with rare diseases have tremendous unmet needs, including misdiagnosis, a long time to finally receive a correct diagnosis, and when they do, 95% have no treatment with ZERO CURES.
Rare Disease Day® takes place on the last day of February each year. The main objective is to raise awareness with the general public and decision-makers about rare diseases and their impact on patients’ lives. You can make a difference: sign up to receive news and updates, start planning your event, and share feedback and ideas for next year.


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