Holiday "Lost" Spirit & The Apparent Lack Of Giving of Self To Find Your Light

Taking The "Money" Out of the Holidays to find the true Reasons for This Wondrous Season

I usually have posted my "annual Christmas letter" by now. I decided this year to wait. I was not sure I even wanted to post it here and on my blog. I have first hand watched so many people that are dear to me, both "right here" and those that are my "FB Family", go through so much pain, suffering, fear, shock, and dreadful things especially within their health, that I find it very difficult to try and make this holiday season "Happy" and feel "Blessed". How do you feel "blessed" when it is like the entire universe has fallen in on you, and that black hole that the universe came from, has now swallowed you up in it, and pulled everything in on top of you??? I know, I know... Faith!!! I've lived in the footsteps of "faith", "hope", & trying to just "be". I have tried my best to "take all the bad" and try to see that positive side that is supposed to come from the resonating facts that it seems nothing lately is very good. In fact if anything, there is just too much "bad". I managed to write my Christmas Letter this year and I did put it in the Xmas cards I sent out. But, even as positive as I tried to be, I feel the ones who read it, will think I want them to "feel sorry" for us, or think I am griping and moaning. Or they will think "Wow" what a mess? I am holding on by my "fingertips" to the rope of faith that always in the past, has "sustained" me, no matter how bad things got. In my past life, things at one time or the other probably have been "worse" in many ways. But, as far as health wise, for myself, my family, and so many of you, it cannot get much worse! I hear it, I see it, I read it daily, everywhere you turn, people are hurting. I know in other ways we hurt also, but I am speaking more about the "physical" pain so many of us are dealing with. From all of the drama around autoimmune diseases, which seem to be running rampant in our world, to those I know that are so dear to me battling cancer, several with diabetes that have now had to begin having dialysis due to kidney failure. These are people in the prime of life! Many my age, and like myself, they are seriously ill in one way or the other. Yesterday, I open our tiny daily paper, and TWO guys 19 YEARS old, were in the "Obituary" column! I was just flabbergasted to say the least! I could not believe my eyes. And what makes it worse, it has been that way now for months. It seems like each day, I open our "Daily Paper" there are people who are in there early 50's and some much younger that are passing away! I realize Ellis County is not tiny, but it certainly is not some huge county with many large cities in it! We have no "cities", but more like towns. Even our county seat, Waxahachie, is not a huge city by any means. So, how can so many people, at such a young age, in a smaller community like this, be so very ill?? It seems like insanity! I had a talk with Jim after seeing the "evening news" yesterday, that all we hear on the news or read, is "bad". Nothing "good" is ever broadcasted. As we talked about it, he said it is because "good news" does NOT sell! In other words, our news is full of the "bad" because that is what brings readers and watchers in! How sad is that? As I began to repute his statement, I began to wonder if what he said is really true? Have we become a society so complacent, so weary, so looking for the dramatic and the shocking, that "good news" does not sell? I have to think he is probably quite right. Look around. Even with the "spirit" of what this season is all about... greed, money, more about "how much" you buy and give for gifts, how "pretty" your tree or decor is, how many gifts under the tree, how many parties you attend, with the latest dress and accessories on... along with how many toys the kids get, how much you spend on your kids, getting them the "latest and best" and most wanted toys on the market, not sparing what you spend at all. I've watched my "debit" card purchases lately be so slow in going through the system. I thought about it, and it is because SO MANY people are going DEEP into Debt, for the New Year that is not even here yet! Those credit card limits are moving to the max fast for many, because rather than being about the "pure" meaning of this holiday, the monetary portion has become number one! The part about the birth of Christ, and what His journey on this earth meant, until the day His "mortal" life was taken, so He could stand in the place of us for all of our many transgressions. I know that the "season of giving", pretty lights, and festive decor are a part of the celebration of His birth. But, we have become totally wrapped up in buying, spending, and thinking about the material things, that the spiritual has been thrown out the window, bath water, bucket, baby and all... as the old saying goes... Rather than getting "better", it seems to just get worse every year. I've witnessed it here my hometown for weeks!!! No matter WHEN I go to the market, or any store in town, no matter the time, the day, everyone is packed like sardines in the stores!!! I have to wonder how people are shopping constantly??? In the middle of the week during the early morning, and early afternoons, the stores are full! I told Jim it appears that people just stay in town, and it is vicious circle... they just drive and shop from one store to the other and must never go home! It sounds like a joke, but heck how can people afford to be in stores constantly??? I try MY BEST to STAY away from shopping!!! The longer I can remain at home, out of all the stores, the less money I am throwing out the window. I've found that "stuff" that I used to think was so necessary, I have come to not need nor miss at all. So, when I began to "make do" with what I have at home, I dramatically lowered our "cost of living" each month. Yet, even with all of the coupons, sales, free stuff, stock piling, and shopping as wisely as possible with always a list that I try my best to never swerve off of, we are basically in the hole monetarily like everyone else. Between the two of us, just the medical bills have been ridiculous the past month or two. Jim has no insurance, so when you are a "cash pay" patient, it does not take long for the "cash" to run out! And we have just about "cash paid" ourselves to be considered in the poor house. I am rambling on. I so wanted this to be about the "sunny" and positive light of the season. But, when every day you run into those that have the same horror stories in their own lives, it makes it difficult to find the "light" in that black hole of darkness. I still "stand" on my rock of faith. But, at times it feels like the waters of life have "broken" down that foundation some. I lately, have not felt as strong and sturdy on my faith's foundation as I usually do. Maybe all of us feel this way, but just don't want to admit it... So, call me a scrooge... or think I am crazy, maybe feel like I am giving myself a "pity party", but no this is not about "me" but about the "droves" of us all around, everywhere I look... I DO WISH YOU a Better Day, and beautiful warmth of family, friends, food, peace, understanding, good health & most of all love during this holiday season. I also pray with all my heart, we each find "our" foundation sturdy once again... As I try to cast my burdens off my shoulders, and give them over to my Higher Power, I pray we are all healed, mind, body, heart and soul.... Merry Christmas!!! Rhia

"Resolving Resolutions" for 2014 & Weird Weather, High Humidity in December, & RA/Lupus PAIN!!!

It's Time for A Chance To Touch Others Lives, even through Autoimmune Illnesses, You CAN make A Difference!

As I am deciding as I do each year at this time what I shall decide to try and "change", do more of, less of, try new, stop the old... in other words... what some call my "Resolutions" for 2014, I actually don't like the term "resolutions". Simply said, more often than not, it is a "cliche'" and those things usually don't get accomplished. I'm not saying "we" just make them for lip service, but it has become this tradition to make your New Years Resolutions. Whether it be to eat healthier, quit smoking or other bad habits, visit family more, exercise more, get stress under control, and the list of those things we want to try and do or not do, to make our "New Year" a fresh beginning. As we press forward quickly into the 2014 year, and I do mean QUICKLY; as most of us, I also am reflecting upon 2013. I managed to get my 2nd prose and poetry book published! That was a great achievement! Yet, I am somewhat disappointed as myself because I did not get as far on my "life's battle with AA illnesses" as I wanted to. Last year 2012, I had made a promise to myself to have it ready for the last look overs and edits; then have it ready to publish in February 2014. At that time, the task seemed very possible. I was thrilled to have made myself a goal in date form. So, I put my eyes on the road of writing, yet got wrecked and knocked off that driven path several times over the course of 2013.

As I had begin to say in another blog post, that I still have not "published", I had been writing about our little neighborhood and town in general. Usually right at the first of December, every house on my street has some Christmas lights and decorations, including us. It is like we almost have an unspoken tradition on the block that we all put something up for the holiday, even if it is just lights. We have icicle lights that look amazing on the front of our tiny home. I had decorated my two beautiful planters last year with wrapped "presents", Xmas Flowers in silk, and had lights around those also. I had little sacks that I put the tiny battery operated tea lights in, in every window in the front, and always turned them on all night about the last two weeks before Christmas. A door decoration, our tree with our at that time 10 "sleigh bells" we order each year as a tradition from our very 1st Christmas together, little decorations that I hang up above each doorway in the house, cup towels decorated for the holidays, and my Christmas Bedspread set that is just beautiful with these "golden colored" sheets I use with it. At one time Jim and I even made a new Christmas puzzle together to hang up. It seems we either got bored with those (I have like 40 we put together, put on a backer board, and I have them hung up in the house. I have three "logs" that I had gotten from a huge limb that fell several years ago from one of our trees. I took the saw and cut off a fairly thick section about 14 to 16 inches long or so. Then I take Xmas flowers, ribbon, tiny decorations, cotton for snow etc, and decorate all three of them. One for each room we are in the most. Kitchen, Office and Living Room.

But, as of this morning, one neighbor has his lights up. Not one other home is lit up, including ours. As I began to reflect over the past couple of months in our own little world, there are MANY, MANY of us who just almost "missed" the fact that holidays are here! From the horrible things happening in our nation; destructive storms and weather, to wildfires, droughts, floods, crops destroyed by bugs. People are still hurting from job loss, homes being foreclosed on, trying to just feed a family, money is tight for a huge amount of our nation and around the world. I had a conversation with a close friend of mine. She had told me her husband, who has been with a company for 11 years, had his Christmas bonus cut down to ONLY 10% of what it always was!!!! This company is NOT hurting by any means. It had the financial ability to treat its employees right. Yet, one bad apple in the bunch, with greed as green as a gourd in a "management" position, took away from those who have worked for it, so he made himself look good. Thus his "bonus" is quite "stuffed", and the others that have been loyal employees for years, are facing Christmas, with children, and no idea until the last moment, they are not going to have the bonus they are expecting. GREED! It is all over this world!

As I look around at my sparsely decorated home, and see that we are certainly not alone, it instills in me, that we must open our eyes, and open our hearts to make a difference in this nation in the coming years.

Whether we are advocating for a medical and health causes, government cause, specific health problems, domestic violence, and all of the other 100's of Charitable causes we contribute to, we are giving of ourselves to make a difference in the quality of life for others. To me, giving of yourself, through being a volunteer for an organization you truly believe in, is one of the kindest, compassionate, and self less things you can do.

With "one" person's voice, we can "change" the world! One leads to two, two lead to 10, and from there it grows, shapes, expands and becoming a beautiful thing.

We can all give a bit of cash here they and yonder, but to give of your time, of your heart, and do it freely without an provocation but because you want to make a difference in the lives of those who suffer and who will suffer without OUR voices uniting together!

So, as we reflect on what is truly precious in our holidays activities, or as you think about some of those "New Years Resolutions" give thought to giving of "your time" as a volunteer online to something, someone, any cause that touches your heart and soul! Within those moments that you give of yourself freely, you shall find a peace that does pass beyond all you could ever understand....

Hopeful for a better year in 2014.... Rhia

Introducing WAAD14!!!! Join Us for an International Online Convention of 2014!!!

World Arthritis Day 2014!!!!

World Autoimmune Arthritis Day

November 4 

Are you ready for WAAD14? Are you ready for the largest virtual gathering of nonprofits and autoimmune arthritis resources available under one roof?

Get ready... while WAAD14 is hosted for 47 consecutive hours ONLINE at a separate website/Virtual Convention site starting May 19th at 6am ET/USA, the Countdown to WAAD14 starts in March!

This years' theme, "A Day in the Life of an Autoimmune Arthritis Patient" will kick off in March with dozens of nonprofits from around the world joining forces to play "Amazing Race" type educational awareness games, all created and managed by your WAAD14 creators and Hosts, the International Foundation for Autoimmune Arthritis.

Get excited for WAAD14!

If you are a nonprofit and want to sign up please email Tami@IFAutoimmuneArthritis.org.

My Very Own Way I Can Show "My" Little piece of the World I "Represent" International Foundation for Autoimmune Arthritis

             Representing International Foundation of AutoImmune Arthritis

I did not get to put these photos up yesterday with the doctors visits and so forth. Holidays, RA, Lupus, pain, stiffness, medications, stress, all rolled up into one huge ball when you are right in the middle of any type of Chronic Pain, Disease, and/or Autoimmune Arthritic Diseases.

I have shared the "story" about this bracelet (that by the way I AM WEARING)! "proudly" I may say also. So, proudly, I find myself not wanting to take it off. So, it is a wonderful idea that there is one of the "rubber types" that come with these. That way I can shower, do laundry, housework, or just about anything, and still have "IFAA" right on my hand, and at my side! Tiffany "hand makes" every one of this original "Buckle Me Up" Bracelets just as she did from the very 1st one. Which is how IFAA took its' first baby steps, into a "Movement" and then quickly to a "Non-Profit" Foundation, which is moving ahead for patients by leaps and bounds! These are a bit "blurry". I took them hurriedly yesterday morning. But, I'll get more today that are clearer and much better. But for now I just have to share these!!!

A bit about my own "Active Volunteer" journey. I happened to have met Tiffany Westrich Robertson, who is the "founder" of what now is known as the IFAA. Through a mutual Facebook friend, I found out about an "art" show that would benefit RA, Lupus, Still's Disease, Juvenile RA. Sjogren's, MCTD, UCTD along with the other autoimmune arthritic diseases that I suffer from, but I also am and have been a very strong ADVOCATE for in getting things changed for us as Patients, Caretakers, Friends, Family, and the Medical Profession. I had sent a message to her about my two published books! I thought they may help the "cause". So, I offered to send a copy of both to her for the "art" show that was to benefit this cause! I got to be friends with Tiffany and follow her life a bit through Facebook. I quickly found out her story about RA, and the same "rivers" that flow way to long before we get out of rushing waters of these illnesses was her journey also. I found out from there about her foundation, volunteering, and I knew beyond a shadow of a doubt I needed to be an Active Volunteer! Thus here I am.... I share these with you, and they are a proud reminder of the difference I am watching unfold through IFAA!!!!   Rhia


Here is what the beads and the design mean on the "Buckle Me Up" Bracelet as it was called in its' beginning.

The 3 silver beads & 3 black beads represent all people working together to make a difference. Red is the color of strength & signifies the strength we all achieve in numbers. The final silver bead symbolizes moving forward to find more people to join the movement to raise a global awareness about Autoimmune Arthritis diseases ...

"The International Foundation for Autoimmune Arthritis".

The "IAAM" was the "infant" stage of IFAA. Beginning as a "Movement" - it was named "International Autoimmune Arthritis Movement", then "moved" forth to be the IFAA.

So, the "IAAM" means (on the rubbery bracelet)

I am..

A Leader For Change,

Hopeful,

A Believer in Progress,

And Rebranding Stereotypes.

I Am an Advocate for

Autoimmune Arthritis Awareness.

    http://www.IFAutoimmuneArthritis.org

Introducing the VERY 1ST Patient-Centered RESEARCH Project - IFAA sponsored by Janssen Global

I was so totally thrilled yesterday evening when I got this announcement! Excited for IFAA (International Foundation For Autoimmune Arthritis), for myself as a New Active Volunteer & for ALL PATIENTS out there have suffered too long, waited sometimes years, went through the pits and fires, walked through what seemed like a long black hallway, before finding a real "diagnosis". Sound Familiar? Yes, it describes so MANY of us around the globe!

               Here is the "official announcement" from IFAA of the very

                                 First Patient Centered Research Project!

http://www.ifautoimmunearthritis.org

So, after much hard work by some dedicated volunteers, which story started with one young woman determined to change the Face of How Those with Autoimmune Arthritis would be helped!

As you can see, we have Janssen Pharmaceuticals Inc. to thank for helping with such an extremely important study! Please take a look at their website to see they believe in patients being their inspiration!


This is truly a new step to the Future of Autoimmune Arthritis being diagnosed early, being treated earlier, less damage, and a better quality of life!

~~~~~~~~~ Congrats! To the both of them!!! This is a remarkable and memorable day ~~~~~~~~~