Friday, February 19, 2016

The Arthritis Foundation and Arthritis Introspective - Two Creations as One to Give Us Advocates a "Voice" in Our local communities

This is only a tip of the total iceberg from a teleconference I attended last night, but I am totally thrilled about the idea!

The AF has teamed up with Arthritis Introspective to finally create ways "we" as advocates, and Ambassadors and so forth can have our own local community Outreach and Groups available for our towns and counties. I am totally thrilled about this idea and have wanted to do this now for years. So, now seems like the time to get involved in this.


Here is the link to the URL of the non-profit:









They have a Facebook Page also:


I will be posting MUCH MUCH MORE ABOUT THIS OVER THE WEEKEND!

Thursday, February 18, 2016

I'm Kind of Out OF it these past couple of days...



Sorry gals and guys. I have been in kind of a "funky" mood, state of mind, whatever you want to call it this past couple of days. It's not any "one" thing I can put my finger on, just a lot of little things here and there that I have kind of had to "mull over" and have reminders of awesome stuff, like my Tazzy, and then "not so great stuff" that I will not even mention... plus some of my family have been having "stuff" in life go on also, so I am concerned for them, and for Mom, and what the outcome will be on her visit Monday to the doctor. She has not felt "well" again now all week long... and I realize she is 80 years old, BUT, it is "not just age". Up until about 7 or 8 months ago, she had some issues, but nothing like I see now daily... she called me early this morning to ask me if I was "having surgery today"???? I told her Mom you know I just saw my Heart doctor yesterday and we have put off the "neck" surgery till the first part of March, and I do not even have a date yet.... and how she could "think" with no one "taking me", and me not saying a word, even yesterday when I went by... but those are just the things that tell me it is much more than just "age related".... anyway, I just have not even been able to post on my blog, which is unusual for me... I think I am just also worn out... I had been "running" since last week Before we went to the Casino last Thursday and then this week I have had stuff all week long I needed to do, catch up on etc... so I think I am just tired and probably need to take a break... and allow my mind to catch up with my body LOL! Have a good Friday everyone tomorrow... and hopefully by Saturday I will feel more like getting into posting etc... after over $130.00 YESTERDAY between MY CO-PAY AT THE DOCTOR, THEN THE CAR INSPECTION AND THEN I CAME HOME AND REGISTERED THE DAMNED THING ONLINE, AND ALL OF THAT WAS 135.00 JUST YESTERDAY!!!! INSANITY!!! Rhia

Monday, February 15, 2016

Thank You for the "Happy Birthday"!





Since some of you may not be on Facebook, I wanted to tell you "Thank You" for all of the Happy Birthdays!


It is so wonderful to have my "extended" online family here, on FB and so forth! You guys and gals really make me feel great when the days that I feel "not so great" come along!


So, I post a "Happy Birthday" and "Thank You" Graphic for ALL of you!

I hope from this day forward to give you many more very good posts, articles and information on all types of health issues, and especially those related to these autoimmune illnesses that plague so many of us.


Much Love and Thank you to ALL who read and follow!

Rhia





Sunday, February 14, 2016

Happy Valentine's Day to All!

Wishing you and yours a Wonderful and Happy Valentine's Day! Enjoy the love that surrounds you, whether by family, friends, that special someone, or just loving yourself! Hugs to All, Rhia

Saturday, February 13, 2016

Dealing with an Elderly Parent who also appears to have either Demenia or Alzheimer's when YOU are in Chronic Pain and have Chronic Illnesses.....

I took my Mom, (we have not been in almost a year due to both her and I being ill, so this was supposed to be an incredible trip!

Mom has been showing so MANY signs of either Dementia or Alzheimer's now for 2 years or so to me. Yet, the last 6 months have gotten terrible. I could write a book on just what I have been through due to her "diminishing" ability to "think, not be confused, not to almost burn the house down, to not be able to pay her bills, or even read her mail" and the list goes on and on... and remember I AM ALONE NOW, I AM CHRONICALLY ILL WITH SEVERAL AUTOIMMUNE ILLNESSES MYSELF, AND LIVE WITH HORRIBLE CHRONIC PAIN... so to have to also deal with some of these things with her some days is more than I can handle almost...

So, this is a bit about our overnight trip to the Casino at Winstar in OK....

(From Friday evening after getting home)
TOO WORN OUT, TO EXPLAIN all the HELL at the Casino the past two days, but yesterday ALL OF THE MACHINES WERE DOWN MOST OF THE DAY! TODAY MOM LOST ANOTHER credit card! I JUST HAD TO CALL ONE IN LAST WEEK SHE LOST here in town. So, today, she "discovers" she lost another one! Then she misplaced her cane about 10 TIMES at least... other than that, and HORRID nightmare traffic going especially but coming back also ROAD CONSTRUCTION EVERYWHERE!!! But, other that those things all in all, it was a GOOD TWO DAYS!!!! LOL!!! Oh and my kitchen was still standing when I got home. LOL... The pups were in the kitchen with their quilts, food, blankets, toys, water, etc... and actually I still had a house standing.... LOL!!!! More over the weekend, I am totally wiped OUT! But, I came home with only 20.00 LESS THAN what I went with... so I guess that is a good thing .....

(Today Saturday morning I continue)  .......
Those issues, and that we had not really gotten to play much at all on Thursday, (can you imagine how much money the Casino lost?) Their "main server" went down for some weird reason that does everything for all of the slot machines! In fact I sat down and played, and was going to switch machines, and it would not print me a ticket with my money on it... so then I began to notice ALL of the machines were "blinking" and people we saying the same thing I did!!!! So they really had one heck of a mess. And of course the day we decide to go of all times!!!!! I am so totally worn out today thought... Mom "lost" can her cane 5 times. Once I had to go and ask about it. And "lost and found" brought it to me, someone had turned it in... the other times "I" finally found it, once she could try and recall which machines she had been at. It was a nightmare... then when she found out her credit card was GONE... I just went nuts almost. Thank Goodness it was a "credit" card and not a debit card for her checking account. They may have been much worse. I had to get home first, find an old statement of hers, so I could even find where to call to cancel it... and then bring her information home and call them. Then she could not decide to eat at the Casino (we did not eat breakfast at first like usual) and just played thinking we would play an hour or two, then eat and leave. This was like 6:30AM or so... so by about 10AM, even I started getting hungry. The night before she would not even eat down in the Casino like we usually do. She wanted to get something and take it to the room... which was fine with me, but just weird. We went up "early" about 7:00PM to the room, and had gotten some really good fish and fries, much, much more than either of us could eat... we should have ordered just one and split it. So, I turned on the TV and was watching a movie... the next thing I know she is in the bed, with the extra blanket, already asleep by about 8:30PM or so. I could not believe it, and she never woke up at all, and usually she is up and down several times a night.. I finally decided to lay down also, so I changed and got in bed, and I woke up by 5AM on Friday and HOPED the slot machines were okay... But. I was already drinking a cup of coffee, I had made their in the room (which sucks) but I needed something... and was almost dressed by the time she was up moving, ready and packing. Like I said it was just strange everything she did. Heck, when we were going to the Casino, she sat and spent like an hour almost going back and forth through her purse. I thought maybe she lost something... but she was just "confused" I think about everything... then she kept saying we should be there already, and I said YES, if we had not been in stop and go traffic for about 35 or 40 miles or more off and on, we would have been there in about 2 hours... it took almost 3 and a half or more hours to just get there this time! Anyway, I parked and again she began going through her purse, and taking stuff in and out... and I finally asked her Mom have you forgotten something? She just said I cannot get it all organized, and then she had her "Players club card" in her hand, or lap and started saying she "lost it"... I looked down and said Mom it is right there in your lap..... anyway, I knew then it was not going to be a incredibly exciting trip... and one time about 2PM on Thursday, I told her to "SIT" and do NOT move from a certain spot... I was headed to get some tea, and go to the restroom, which was a long ways down, and then I told her I was going to try and check in to the room... so DO NOT MOVE! I get back and she is GONE! So, I thought gosh knows where the hell she is now... so I started looking, and finally spotted her rambling around, and I said WHY DID you MOVE??? She said well you were taking a long time... and I said I TOLD YOU, it is a MILE almost to walk from where we were to the HOTEL to check in! So, yes by the time I got there, got something to drink and went to the restroom it took a while, but why the hell you did not STAY where i said to... and she just looked at me... LOL! Anyway, it was okay and I had a wonderful time JUST BEING AWAY FOR A DAY OR SO AND A NIGHT, from the house, dogs, and just "Life".. BUT, I FEEL Mom will not be going back there again... if we do go to one, we may have to go to one of the smaller ones, who has already grown huge also... but she even said it, I just don't think I can go through this again, OR put YOU through all of it... and I told her Mom, it is fine, I did not mind and We BOTH needed to be away for a day and night... I told her I have my OFF days also... BUT now she really sees what I have been seeing for several years, and really bad the past 6 months... she goes to our PCP on the 22nd, and I am going to have a huge discussion with him... this is not just "old age", this is definitely more than that... I just PRAY it is not Alzheimer's.... Dementia is severe and bad enough, but the other, I watched my Grandfather go through that, and I surely do NOT want anyone to have to deal with Alzheimer's it is a horrid illness for sure..

Tuesday, February 9, 2016

Happy Valentine's Day! to All! I wish everyone a Day of Reflection, of Love of Yourself, and of someone else, if there is another love in your life...

As the "day of Valentine's comes Around, no matter Well, Sick, or Somewhere in the Middle, we either have a Love of Our Life, Or Maybe wishing for that love or find ourselves in a place of not being sure. 

Whether anyone is "separate" from you and you find love there, "ALWAYS REMEMBER TO LOVE YOURSELF FIRST"!


We all too often especially those of us with Chronic Illnesses and Pain think we are "not lovable", but that is just not true. Love can come in so many, many different ways... yet to find you love yourself, shall bring love to your life, whether friends, family, or that special someone, you are truly Special.

I wish each of you a very special Valentine's Day! 

And thank each of you for coming to my blog and "supporting" me by reading my blog, and hopefully learning something at times also....

Rhia