Nightly News, the CDC and Those that have NO CLUE what "Chronic Pain" and trying to Live is all about!

As I said on my other post, I was so mad at the Nightly News with Lester Holt last night I could have screamed! They only tell a "piece" of the story, NOT the stories of us who would not be able to have a "life" or any quality of life if we were not able to have physicians help us take our pain down to where we can "stand it"... For ONE NO medication "takes all of the pain away".... but it does give us a place where we can "live" with it. It makes it bearable, most days. And for them to sit there and speak like this is something that is just a "surgery" issue etc...without even mentioning how many of us would not be able to take care of our families, work, do anything at our homes, nothing... we would only be able to sit, lay, or try and "live" with severe pain, that is what I call intractable and unbearable! without my great physicians and my medications, and that is not just pain medications, but my RA meds, my heart medications, Lupus medications, and so forth, I would have no life, I would never be able to take care of me, and certainly not be able to somewhat help my Mom... and try and do advocacy work, and write... my life would NOT be life but living hell! I am seriously thinking about writing the Nightly News and telling them how I felt about their "one sided" view of this situation.... and I have to wonder "whom is lining" whose pockets, when it comes to the CDC, Congress and all of these people that have NO CLUE what it is like to have a disease that brings on such an amount of horrid pain daily... they would think differently if it were them or one of their loved ones...

http://www.usnews.com/news/business/articles/2016-03-15/cdc-guidelines-aim-to-curb-painkiller-prescribing

This is what I am speaking of on the Nightly News from Last night March 15th

http://www.nbcnews.com/nightly-news-netcast/video/nightly-news-full-broadcast-march-15th-645344323672

I sent my email to the Nightly News about this story last night. I hope you also take a moment to respond!

ARTHRITIS FOUNDATION SUMMIT ON THE HILL BEGINS TODAY! BE SURE TO DO YOUR VIRTUAL ADVOCACY PART!

Arthritis Summit begins today!!!!

 SHARE Stories, share #hashtags, photo's, your own personal journey!!!!

https://twitter.com/hashtag/AdvocateforArthritis?src=hash

 YOU TOO CAN BE A CHAMPION OF YES!

I remember how thrilled I was in 2014 to be honored to be there! I hope some day to attend again!!! Until then my support is through telling my story, helping others, posting posters in my car, blogging, writing, Facebook twitter, and you name it, I put it there!

#advocateforarthritis

YOU TOO Can be a Virtual Advocate during the AF Summit on the Hill 2016!!!! YOU ARE IMPORTANT!!!!!

Arthritis Foundation Summit Begins Monday in DC! YOU TOO can be a "Virtual Advocate"!!!!

http://www.arthritis.org/about-us/news-and-updates/arthritis-foundations-advocacy-summit-fights-for-awareness-and-cure.php

Advocate 101: Join the Movement

What is an Advocate?

Advocates help improve the lives of people living with arthritis. The key to success in changing government policies and funding is through grassroots advocacy and our advocates are the Arthritis Foundation's chief resource for making positive changes in Washington. Click here to join the movement!

What does an Advocate do?

Advocates make their opinions and personal stories known. By signing up, you'll receive Action Alerts in your inbox when important arthritis-related issues are debated on Capitol Hill.   In 5 minutes or less, you'll be able to write your elected officials and tell them their constituents care about arthritis and how it impacts our communities....(see the URL for more information...   

http://www.arthritis.org/advocate/advocate-101/

Sponors for the 2016 AF Summit!

HELPING A DEAR FRIEND TO FIND A PAIN DOCTOR IN THE SEATTLE, WA - AREA... PLEASE LET US KNOW...

Jim in Washington State is having a very, very DIFFICULT TIME finding a "good and non-quack Pain Specialist.... He is at his wits end, and just cannot find one who will even prescribe his Baclofen, and meds such as that!...much less any of the narcotic meds he needs now after the accident!!!! 

IF ANYONE has ANY IDEAS, suggestions, doctors, someone they may know in the Seattle Area, PLEASE SEND HIM A MESSAGE AND LET HIM KNOW !!!!!! I Know he is about at the end of his rope like many of us, and Seattle USED to be the "better" place for this type of thing not worse... maybe even across the pass over in the towns across and to the East, or down towards Portland... 

he is living in a very small country town out kind of South East a ways from Seattle... so even if it were out in that direction it would be okay, and in fact better!!!!! I told him I would try and think of something myself, or someone else he could see etc... but things are nuts in the realms of pain doctors, as so many of us know!!!! But, please send him a message if you do know of any type of information that may help him....

hugs, Rhia his FB page is James Sheffer so just send him a private message and let him know if you can think of anything....

Dealing with Eldery Parents who have Alzheimer's or Dementia, when you, yourself are dealing with Chronic Pain and Illness...

 posted this on my FB page, and I will put it here also... I will be doing some work on my blog, my book, my new newspaper I have began, as well as some other things around my home, and some thinking about life... and how to deal with some really tough issues.... I maybe "away" from FB for a couple of days. 


There are some things I really need to get to working on as far as this new newspaper I am staring. I can customize is a great deal and it could really help me with my blog, as well as with my books , and my next book...plus lots of my advocacy work...getting information out there that would really benefit many people and help make what I want to happen possible ( I Hope)...I have also had some new ideas for my 3rd book unfold in my mind over this past couple of weeks, and although I jotted some of it down, I would like to start writing on it, in the beginnings of the book itself.... There are also some "personal matters" that honestly came up this morning, mainly to do with all of this mess with my Mother, and at this moment I am totally at my wits end, I have no clue where to go or what to do, other than leave her alone, and allow her to figure out "all is NOT RIGHT in her world".... she really hurt me earlier... calls me well before she is usually even out of bed, wanting to know "why I had not called or been by"...

well for one I was there two days in a row, just yesterday for one, and besides she is usually never even out of bed until after noon time... anyway, she asked me what I was doing, and then she told me I was a "blabber mouth", and I should NOT be telling my own kids what is going on... well I tried to tell her the kids are NOT stupid, and they "hear and see" and then she says they are never here nor never call so how do they know anything? So, I hung up... well I called back about 30 minutes later, and began to tell her to NEVER call me a "blabber mouth" again... that it for one hurt my feelings, and for two was NOT the truth, so then she began to tell me that losing her credit cards, not being able to work her stove, put her car in gear, not pay a bill correctly, not take her meds correctly, not know why the alarm clock blinked etc "meant nothing" and why do I even "care"... it is in the past... 

and when I said MOM jut yesterday I WENT TO GET YOUR MEDS AND GO TO THE STORE BECAUSE YOU DID NOT FEEL LIKE IT... so it not in the PAST it is right now... and she made some snide remark oh well, when we get there or if we do, we will handle it then... well WE ARE THERE! And she cannot continue to live alone, and if I tell the doctors about the car incident and and a couple of other things, they will tell her she cannot drive NOT live alone! As I told her and "building you a room" takes more than a few days.... she began to tell me I was full of crap, and nothing was wrong with her.... so I hung up with Okay, I will not "bother" you again, I am NOT calling, I will NOT come over there, and "if" you need me, then call, otherwise, I refuse to be hurt and used like a doormat and then laughed at when I told her that her calling me a "blabber mouth" hurt my feelings... and she said "she never even called me this morning"..... 

so, I have LOTS of things I want to do and get done, and I honestly right now am so totally sick and tired of this crap.... that she may wind up in a nursing home, if she does not want to listen to me.... I don't know what else to do.... but I need to get some rest myself, and do some thinking about several things... so if you do not see me here much, I am okay, just "out of touch" for a few days....