Friday, November 16, 2018

"Pain News Network" - Articles "CDC gone WAY TOO far with quick changes of Opioid Changes",

"The American Medical Association has passed resolutions urging insurers, pharmacists, federal regulators and states to stop the "inappropriate use" of the CDC opioid guideline. Although the guideline is voluntary, many of its recommendations are being regarded as mandatory."

"The head of the AMA says the crackdown on prescription opioids has gone too far and is harming pain patients. Dr. Barbara McAneny says one of her own cancer patients tried to commit suicide after a pharmacist refused to fill his prescription for pain medication."

What about no Mention of "Kratom" n the DEA's Annual Assessment to Drug Risks?
"The FDA and DEA have warned for years that the herbal supplement kratom is risky and could lead to addiction or even death. But why is there no mention of kratom in the DEA's annual assessment of drug risks? "

And HERE is some PROMISING NEWS - You Must Read This Article!

"Experimental Gene Therapy made drastic reduction in a Dog's Chronic Pain After Being Hit by a Car" And this is a Pup That was Assisting His Human Companion Who has Seizures..."

Researchers at the University of Colorado say an experimental gene therapy significantly reduced chronic pain in dogs after one injection. Human trials on the promising treatment are now underway.

Wednesday, November 14, 2018

"Thyroid Awareness Month" and Hashimoto's Thyroiditis - Do you know the signs, symptoms, and more...

Thyroid Awareness Month - Did you know that certain types of "Thyroid Problems and Diseases" are actually "Autoimmune Illnesses? And that having "other" Autoimmune Illnesses can put you at further risk of Autoimmune Thyroid Diseases such as Hashimoto's Thyroiditis Disease?

Symptoms of Thyroid Disease (as well as others depending on whether you have a "hypo" or "hyper" type of Thyroid Issue...

Are you experiencing any of these symptoms?

  • Panic attacks
  • Insomnia
  • Anxiety or depression
  • Unexplained weight changes
  • Diarrhea or constipation
  • Inability to tolerate heat or cold
  • Muscle/joint aches and pains
  • Unusual weakness and fatigue
  • Hair loss
  • Swelling of the feet, hands and face
  • A hoarse voice, problems swallowing, or a tight feeling in the throat
  • Irregular periods
  • And more
See much more information at the links provided above...

"Giving Tuesday November 27th 2018" STOMP OUT BULLYING!!!! The "Global Movement"

Giving Tuesday, the Tuesday after Thanksgiving, is a movement to create an international day of giving at the beginning of the Christmas and holiday season. On this day of GIVING, we ask you to think of the youths who we work to keep safe at school every day .. the youths who we work to keep safe online... the youth whose lives we save every day.

World Kindness Week is November 13 - 20th. The purpose of World Kindness Week is to highlight good deeds in the community, focusing on the positive power and the common thread of kindness that binds us. Today and every day, focus on the good and spread kindness wherever you go. One way you can do this is to stand up for people who don't have a strong voice. You can also use inclusion, unity, respect and acceptance to spread kindess to the people around you. YOU can make a huge difference.

At STOMP Out Bullying, we LOVE to share messages and stories of kindness, and to hear yours. What are your plans for this World Kindness Week? Share your thoughts with us on social media and let’s keep the global conversation on kindness going.

Saturday, November 10, 2018

New Clinical Trial for - Primary Biliary Cholangitis (and my story about a nightmare gallbladder surgery gone very wrong)

Primary Biliary Cholangitis brought to you sponsored by Cure Click

About 65 out of every 100,000 women have #PBC in the U.S. Researchers are looking for volunteers who experience itchiness as part of PBC. #primarybiliarycholangitis #sponsored #cureclick 

New Clinical Trial! This none is critical to me... due to me having what they thought was gallstones, or my gallbladder inflamed and possibly infected, I had an emergency surgery to remove it. During that, the surgeon "nicked' a bile duct. Which caused poisons to empty out into my body cavity... almost like blood poisoning/.. 

I was rushed to a hospital in Dallas to a specialist or let's just say MORE than one specialist. One of the main surgeons tried at least 4 times to do surgery and repair the duct. They "called in" my family, on the last two not knowing whether I would survive. She finally was able to repair the nick on the 4th time and stop all of that poison to stop pouring into my body... BUT, I did NOT EAT one bite, or even drink anything for over 6 WEEKS!! I was on so many IV's that I had a special IV "holder" to keep them all separated and in order. They "mixed" special bags of nutrition to hang and give me through IV's that entire time. I had 2 drainage tubes in me, and even came home with them still in for several weeks. They never really "knew" exactly what all was "wrong", more things though than the bile duct issue also. 

It was not enough to go through that, then I began to have (sorry I'll try not to be too graphic) to not be able to get up or call quickly enough to get to that bathroom, so for about 4 or 5 days I would wake up literally covered in incontrollable Diarrhea, and the nurses had to force me to get up, completely shower me and change my bed sheets and all, sometimes several times in just one night. It was the most frightening experience I've ever had. I guess after I was finally home, I figured out all of the antibiotics they gave me, and not eating for weeks, and all of the toxins, it "killed off" the good bacteria in my intestines that caused all of that uncontrollable mess. Then they came in, BEFORE I EVEN HAD TUBES OUT AND WAS STILL REALLY NOT EATING, and tried to get me to "come home"... I literally within hours had a 2nd heart attack (10 years almost to the day of my 1st one)... from the cardiologist said the stress on my body, plus the extreme fright I was in, scared I may die if I went home... fortunately I didn't have a blockage, so once again I was able to get over the heart attack with medications. He said that you "hear" of people dying from a "broken heart" from being so upset for reasons, such as losing a loved one, a terrible break up, divorce etc... that was the type of MI I had... he called it a "broken heart "MI") - I had heard the term used about having a broken heart, but I didn't know it was a real medical emergency and a real type of heart attack that can happen. When I got home, again still with two tubes draining, they stayed in another 10 days...

 I went to the "office" to have then out finally, and I nearly passed out when they took them out... LITERALLY SHE PULLED OUT FEET AND FEET OF DRAINAGE TUBES THAT HAD BEEN IN MY BODY CAVITY!!! I could not FATHOM I HAD THAT MUCH "DRAINAGE TUBE" INSIDE ME THAT ENTIRE TIME... SO, WHEN I SAW THIS Clinical Trial, it brought up all of that mess I went through and just how closely I came to dying a couple of times while in the hospital.. the ORIGINAL SURGEON WHO CAUSED THE NICK IN MY BILE DUCT WAS FIRED IMMEDIATELY! It was an experience I NEVER WANT ANYONE TO HAVE TO DEAL WITH AGAIN.... not that it has to do with "this exact clinical trial BUT anything to do with your bile ducts, liver and gallbladder is nothing to "fool around" with... go immediately to a specialist if you have issues with something such as this and get checked out!

Tuesday, October 30, 2018

From RA, Chronic Pain, Lupus, to "PTH" labs "off" and more new specialists like an Endocrinologist (HAPPY HALLOWEEN)

"Chronic Illness and Pain - NEVER TAKE A HOLIDAY! Yet, I hope your Halloween is filled with "good spooks", wonderful costumes, party with friends, "candy but not too much".... and that your Autoimmune Illnesses will give you a reprieve for an evening...
Alas, then we can say "TRICK OR TREAT"!!!!!

Saturday, October 27, 2018

Colonoscopy and Endoscopy - Just another procedure to put us through....n Life with Chronic Pain, RA, Lupus & chronic illness

Going through the Ordeal to get Ready for an Endoscopy and Colonoscopy!

Also Barrett's which I have and my Anemia is getting worse every 3 months, and my Parathyroid Labs are all "off" also....

So, I started to see the surgeon on Thursday afternoon, to see about scheduling that endoscopy and colonoscopy... and about the time I was leaving the house, I "felt" one of those drenching sweats coming on, plus they were supposed to put the holter monitor on me for 24 hours while I was there... I almost called and cancelled, but decided I would "try" to at least get into the surgeon... 

and wait on the monitor... because the leads will not stick on my skin if I am having one of those horrible drenching cold sweats... so the doctor was running over an hour late! I knew I was getting worse, but fortunately it was not a terribly bad one, but I did put off the monitor and told them I would try next week... and I did get in, so I have the endoscopy and colonoscopy on November the 14th!!! And now the way they "clean out" your digestive tract is almost silly.... 

rather than drink that "lime stuff" like you used to, you get 2 32 ounce bottles of Gatorade or Pedialyte... 2 bottles of "Miralax"... and 5 Ducolax pills... and mix the Miralax in the Gatorade and drink it like a glass every 10 minutes until you are finished with it, this is at noon and you are "fasting" anyway, with jello, etc the whole day before", and then at 6PM you drink the other Gatorade and Miralax and I think in between take those Dulolax pills!!!! 

Good Lord I hope that does not make me sick... that is a lot of Gatorade, and I guess it helps to "hydrate" you, rather than used to, you would be almost dehydrated doing it the old way.... anyway, I just hope they can do it early in the morning on the 14th and get it over with... I've got to get hold of my son, and see if he can get off work to take me... of course they put you to sleep so you have to have someone to drive you home after it's done.... I still have not heard from the Endocrinologist... but I guess I will call myself and try to schedule an appt if I don't hear from them by early next week....

Tuesday, October 23, 2018

My Latest Addition of my Newspaper! For Tuesday!

Tuesdays Addition of my Newspaper containing some great articles and information from the Arthritis Foundation and the College of Rheumatology and the Annual "CARRA" Conference!
College of Rheumatology

Annual Meeting of "CARRA"

Monday, October 22, 2018

Another NEW Parkinson's Clinical Trial by Cure Click!

Another New Clinical Trial for Parkinson's sponsored by Cure Click!

A new #Parkinsons disease clinical study is evaluating an investigational drug to see if it may potentially help slow or reduce disease progression. Learn more! #sponsored #cureclick

Wednesday, September 26, 2018

New Clinical Trial Sponsored by Cure Click For Parkinson's Disease

Many Parkinson’s treatments have challenging side effects. A new study is researching whether an investigational treatment is both as effective and safer than existing options. The study is looking for volunteers who are not currently taking medication for their Parkinson’s symptoms.
You may qualify if you:
  • Are between 35 and 80 years of age
  • Have been diagnosed with Parkinson’s disease
  • Have not been taking Parkinson’s medications for more than 4 weeks
Key benefits to the patients include:
  • Investigational medication
  • Study-related medical care by Parkinson’s disease experts
  • Trial lasts 14-18 weeks and requires 7 site visits
If you’ve been diagnosed with Parkinson’s in the last 3 years and haven’t started medication yet, or started four weeks ago or less, a clinical trial near you may be an option.