"Through my heart's work of writing, I share with you my complex journey a top the mountain, sliding down, crawling up, & living through the realms of Autoimmune Arthritic Illnesses. Taming "The Wolf" Thru each Day... One Step at a Time … Together We Are Learning to Survive. Please follow along, to New Beginnings - looking Thru the Window Pane of Pain in life where we shall find our journey leading us to - New Perspectives
Wednesday, December 12, 2012
Memories Gone By and Don't Remember? Too many Holiday "Have to Do's" and Chronic Illnesses/Pain
Well, a little early, but here is a post from a group I belong to that I wrote in response to the "Do-Allers" for the holidays, and how it is almost impossible for some of us to "pace" much less "breathe"... Here is my post from my FB about pacing, breathing and not feeling guilty for us that are your "Do-Allers" for the holidays:
It seems it is difficult NOT to go, go go, and then try to NOT feel the guilt behind it all. I am usually baking all kinds of candy, quick breads, cookies etc. to take to 4 of our neighbors around us. Then by now my tree has been up for at least 2 weeks, every decoration (and I make all of them) in place, flowers of graves of my Grandparents and my Dad, my "outfit" ready for Christmas Day, baked my special annual fruitcake, sent out all of the Xmas cards, written my annual Xmas letter to put in the cards, I also send cards "for the troops" for that group to get out and I do at least 25 or more cards, have the house clean from washing curtains to shampooing carpets, have my Xmas comforter, bed ruffle and pillows all out, have ordered our "annual" Wallace Sleigh Bell Ornament (we have 10 this year, so we have been together now for 10 Christmases), decided on exact plans for Xmas Day, and the list goes on.So, how do you "cut back" on things that you love to do? Like My Christmas letter, I almost "forgot" and had to rush to have it ready (this is usually at least a 3 page letter), cut out the neighbors??, now I feel they "look forward" to their treats, not clean??? Wow that would be almost impossible for me, LOL, even when NO ONE is really coming to our home, I still feel I "must" have the house spotless from top to bottom. I used to do all of this, plan for a party or two in between, work, raise two kids, go to college at night, and do all of my shopping NOT on line, but up in Dallas usually on a trip or two up there for Xmas Presents, and gosh the list yet goes on and on. IT is like Kristy said, that is my type of personality, and until a flare hits me like a brick wall and knocks me on my butt, it is so hard to "pace" or half the time "breathe". Then I worry about every bite of food I put in my mouth, because I am such a fanatic about my weight (and I can't seem to really get control of that lately, another "sore" subject for me right now), plus keep up with people online, sending emails, e cards, writing here, writing on my blog, still working on my book "Ramblings of a Seasoned Soul" to get it out and known to the public, plus working on two others.... my personality and Chronic Illnesses and Pain do not MIX!!! As I said, for me I think it is the overwhelming "guilt" that if I leave someone off, or stop doing something, or say NO, I will disappoint others and myself also, so it is extremely hard. I try to start "EARLY" but that is also difficult. The year gets away from you and is over with Xmas here before you can blink an eye. Funny, as kind of sad story from this weekend. My husband and I put up the tree together each year. Our last decor on is the Sleigh Bells Ornaments (10) this year, that we have, one for each year we are together at Xmas. Well, this year I wanted to make it fun...so I decided that each of us had to "tell" something about the year that was on the ornament. That began in 2003 with our first one. Well, for about the first 3 years, both of us could think of all kinds of good stuff we did and that happened, met, engaged, married, moved a couple of times and so forth, but starting about the 4th or 5th one, things got "blurred". We could not remember if this, that or the other happened in one year or the other...the closer we got to this year, the more difficult it got to "remember" what happened, and much of it was not the "good" stuff, but surgeries, doctors, illnesses, disability... I tried to laugh it off and say that it seems kind of a "good thing" if we do not remember. That means NO DRAMA! and life has been more on an even keel this past 6 years or so. I is also sad that life has passed us by that quickly...we honestly cannot remember exactly what happened, good or bad for the most part?!! I got frightened but did not tell my husband. For me is it the Brain Fog, memory loss, too MUCH CRAP in life, too ill, getting older...what makes me forget what happened in the last 5 years, yet I can remember things from our first 5 years perfectly?? IT really hit me hard. Of course he was not remembering very well either, yet still it was an eye opener for me. So, I think I am fearful to "slow down.” I fear I may stop and never get up to go again...
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