"Through my heart's work of writing, I share with you my complex journey a top the mountain, sliding down, crawling up, & living through the realms of Autoimmune Arthritic Illnesses. Taming "The Wolf" Thru each Day... One Step at a Time … Together We Are Learning to Survive. Please follow along, to New Beginnings - looking Thru the Window Pane of Pain in life where we shall find our journey leading us to - New Perspectives
Wednesday, October 28, 2015
UPDATE!!!! Pain pump stall, My Mom's health issues and finding out today about this breathing problem and hoping it is NOT her heart valve & dealing with LIFE and Autoimmune everything!!!!
Okay everyone, please PRAY for MOM and MYSELF! She sees the Cardiologist
this morning, and I PRAY her shortness of breath is NOT her HEART! She
has a very "leaky" valve and I think I explained before why the
shortness of breath... and our Cardiologist has had it under control
with medications, and her not taking in as much fluid daily... but she
has not been well at all over the past 2 months or so... and now her
Kidney functions are low, which they were a bit better earlier this
week but she still has to see a Nephrologist next week. I am praying
the shortness of breath is possibly allergy related, because she does
have allergies, like many of us, developed the late in life.... but if
it is her heart, it could mean open heart surgery.... AND as far as my
pain pump... I am NOT out of the woods yet.... it appears that it
"restarted" itself out of the stall on Sunday... which is weird, because
the Rep from Medtronic that saw me last Friday, had turned off the
alarms, so they would not drive me nuts, but I kept hearing it go off,
until Sunday.... but they had turned the medication basically to a
minimum so I could take oral pain meds until we do surgery to replace
the pump.... SO, yesterday my pain doc... did put my meds back going as
they were... and he told me, not to get too excited yet, because it
could do this again, and for the next 48 hours or so, I am having to
watch it very closely... BUT, he also made a mistake when he reset the
pump to send me the meds.... I have an "optional" Bolus every 8 hours...
I can give myself an extra amount of medication... well he sat it WAY
LOW rather than were it should be.... it was supposed to be 1.001 and he
missed the decimal and put it at .1001 which is a HUGE difference... so
now my bolus is really not doing a thing for me... that is just nothing
compared to what it should be... so I called yesterday and left a
message... but I guess I will here back today sometimes.... so between
all of that, Mom, and now it looks like this stupid other "lump" on my
right thigh is also in the process of going to "abscess"... it is now
turning red and appearing like it might... plus I had been running fever
off and on for a few days... which I thought was the pump issue causing
it, but now I thinking this stupid lump could be the problem... when it
rains it comes a flood on my life it seems.... lots of other things
also... so there is what I know for now.... I appreciate all of you that
are praying for us.... Rhia
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