ADHD New Clinical Trial sponsored by Cure Click

ADHD Research for #kids: Studies for #children with ADHD and angry behavior. No-cost active or inactive medications. Learn more today!

 http://curec.lk/2f2lBIY 

Catching Up, Letting You know what is going on in my neck of the woods, and telling you I am still here and will be working on my blog.., so don't give up on me....

 

 What's Going On with Me, Facing Surgery on my neck and lumbar spine, The RA getting worse, going to the "casino" hopefully & giving you a thumbs up I am STILL HERE!

 

 

 

https://www.winstarworldcasino.com/

 

http://www.medicinenet.com/script/main/art.asp?articlekey=17685

I've got my reservations to go to Winstar on Monday and stay overnight. Of course I've tried to go at least 3 times over the past couple of months., and something always either happens, or the Lupus Flares on me, so I have to postpone my trip. I DO have many things to attend to, and feel guilty even running off overnight. But, unless this "cold" or whatever the hell hit me a couple of days ago, I hope to be able to get away for a day and night. Lord knows I need it. Actually I need about a week's vacation away from everything. But, then I have the fur-kids, and they already give me enough grief when I leave for a few hours, even with the "sitter" coming in a couple of times a day, they would be a total mess, if I left for that long.

Ironically, now that I am just "me" and "them" (Bub's and Peanut) I spend more times "talking" to them, or talking to me, or singing if I am in the car, or I go into the stores, and I am constantly trying to "quietly" talk to myself. My way of making sure, I don't forget anything important when I go out and do errands.

I've got several decisions to make, some of them have got to be made SOON, like about my Humana insurance. Open enrollment will end on Dec. 7th or so, so I have to make up my mind whether to keep what I have or go to a different plan and so forth. Some things are probably going to change now as far as my insurance, etc. I feel my best thing is to stay with what I have now, even though a couple of my own doctors are not "preferred providers"... this plan allows to me go to a "non-network" provider, and the insurance will pay some after I meet the deductable. That seemed to be okay last year. The only real issue is that my special orthopedic surgeon, unless things change is NOT a preferred provider, so I have to pay his portion of surgery out of pocket, but I know last year that was not all that bad, and the hospital WILL get paid as a preferred provider, so, that makes it a great deal better. I've learned after my hernia surgery, when my doctor was NOT a preferred provider, but the surgery center was, he was kind enough to knock down the price on his end, so I didn't have to pay him a great deal, and in fact I think they sent me back a little bit of a refund.

But, of course, since I put off TWO surgeries last year, both of which this orthopedic surgeon is the ONLY one I trust to do anything to my neck or spine, I will have to encounter bills from him for that. By the time one surgery is done though, I should meet that deductible thus that way, I may not be out of pocket a great deal for the 2nd one. My neck is a must. Plus I don't know what we are going to do about the RA. My right hand, of course my "dominant" hand, is in such horrible shape now, that after trying to stir something, or cut a couple of small limbs, or paint on a wall for even a half hour, cannot open jars, and I can't carry much of anything with that hand and arm. The swelling had increased so much between my thumb, forefinger, and now I have developed a "lump" on my forefinger, which is probably from the RA, and that arm and hand, wrist, continue to grow weaker all the time. I FORCE myself to use it, so I can keep at least some strength in it, but it will almost "lock up" at times, with the RA, so bad. I had a follow up with my Rheumy about 6 weeks ago, and they put me back on the MTX, but it is not working at all. The dose is not as much as when I was on it before, but I don't think it will be the answer.

I also suspect that some of the pain, weakness, and so forth are from my neck, rather than just the RA. With one almost completely flattened disc, and another one probably almost as bad, those in themselves can cause the weakness, pain, stiffness, and some of the symptoms... plus now I find it harder to turn my head, my shoulder blade is beginning to have that "burning sensation" from the compressed nerves in my neck, and now even sitting here for a little while trying to type, that hand, arm, shoulder blade, and even down into my "side" are hurting and feel like muscle spasms, especially in my right side. Of course everyone with any type of joint, cartilage, and bone issues, know that when this weather changed, it did NOT help matters.

As I mentioned at first, I'm either fighting off a cold, or hopefully NOT some type of throat infection. I even almost felt as if I was losing my voice, late yesterday afternoon, and my throat has been kind of sore, along with my lymph nodes once again hard as marbles under my ears.

So, that is why I said I "hope" to be able to get to go to the Casino without having to postpone it again, since my body is trying to fight off "something"... here in town there are a growing number of strep throat issues, along with what they may call it scarlatina, It is a very red rash that goes along at times with strep throat, and there was an article last week in the paper here that our doctors are seeing many cases cropping up...

Out of everything I HAVE had, (I hope I don't jinx myself) I've never had "strep throat".... I had horrible tonsillitis & had those taken out when I was about 12 or so. But, I've never tested positive for strep throat, which is a good thing. You can be a "carrier" though and not have a case of it. Neither one of my kids had strep either, ear infections, they outgrew, but not strep.

Anyway, I am actually working on a "list" or in the process of, the things I need to get done (LIKE GET MY HUGE HOUSE PLANTS IN) before the weather gets too bad on them... and believe me, almost all of them, especially 3 of them are so huge, thank goodness I have this "roller type dolly" made for plants to try and get them in the house. My Palm tree now that has put on 3 or 4 new prawns over the summer, stands taller than my front door. And my fern, that started from a half dead 2.00 one I got at HEB is about 20 feet or so in diameter, and they take up a great deal of space, and are very heavy.... plus I have 4 HUGE Airplane plants, that are as large as I've ever seen so they also are extremely heavy and bulky... so again I am glad I bought that plant dolly a couple of years ago.

The BEES are about gone! He came back out last week and collected as much honey out of that bus as he could reach. It was between two of the heavy metal pieces inside the bus, and he had to cut into all of that to get to the main hive, found the queen, and he said there are now more than 40,000 bees, that came out of that bus!!!!

But NOW, getting someone who has the truck, trailer and wench to pull that piece of heavy bus up onto a flatbed, and haul it to Maverick or someone they can sell it to, will be a chore. I've tried to get the word out, because I am sure with all the heavy metal in it, it would bring some bucks, if you could get it hauled to somewhere like that, that buys scrap metal.

Anyway, there are always a billion and one things you can find that need to be done when you have a home.... I had almost forgotten I STILL HAVE THAT DAMNED BROKEN GLASS in my back bedroom... that I have almost solidly taped in with Duck Tape, and have cardboard over it, but I fear at anytime it could come crashing out of there. I could put a new piece in myself, but needing someone else to help hold it up while it is "pinned" in and then glazed or hell I've put some caulking in a couple of mine in that back room for now. It helps to sturdy that old glass pane stuff, for now, and really those 5 windows need the other "storm type windows" put over them like the rest of the house...So again another project... they just keep coming and coming...

I have got to get busy, so I close for now.... again still lots of stuff needing to be done, taken care of, and so forth... thus the reason I am not here very much. I am online some, looking things up and so on, but I don't have a great deal of time to post on FB. I do well to post on my blog, and do a couple of other things...

Hope all is well with each of you.... Me....

Lewy Bodies Dementia - Robin Williams Taken by the horrid illness and closer to "home" this took my Mom within 6 month and she passed away June 9th, 2016

http://curec.lk/2e1mP5t

#LewyBodyDementia #LewyBody #Dementia #LewyWho

 

 

On August 11th, 2014, the world lost a wonderful beloved man. Robin Williams was an amazing actor, comedian, and philanthropist, who touched the hearts of millions with his wit and humor. However, Williams suffered from a degenerative disease that, after his death, was identified as Lewy Body Dementia.

Although Lewy Body Dementia is not a rare disease, it is still widely under diagnosed and many doctors and other medical professionals are still not familiar with it. It is often confused with Parkinson’s or Alzheimer’s disease due to the similarities of the symptoms. Doctors thought Robin Williams had Parkinson’s before an autopsy revealed the massive proliferation of Lewy bodies throughout his brain, one of the worst LBD pathologies the medical professionals had seen.

In an effort to raise awareness of Lewy Body Dementia, Susan Schneider, Williams’ wife, wrote a letter addressing all doctors, medical professionals, and patient advocates to share her husband’s story. You can read it here: The Terrorist Inside My Husband's Brain.

There is no cure for Lewy Body Dementia yet but we are hopeful. CureClick has launched a new mission for a clinical trial for Dementia with Lewy Bodies to help find potential treatment for patients suffering from this degenerative disease. Please share this trial with everyone you know and help raise awareness.

This is a direct passage above from "Cure Click"

#OneLineOneDay - the Lupus Alliance Message so Crucial for ALL of us with Lupus

Today is the day. Join the Lupus Research Alliance and thousands in the lupus community today for One Line, One Day as we spread awareness with a simple message:

Join the Lupus Research Alliance in a unified effort to free the world from lupus through the power of science. #OneLineOneDay

The Lupus Research Alliance believes in the idea of collaboration as the way to find better treatments and ultimately a cure for lupus. Today we ask you to join us in sharing this message. By working together with the entire lupus community, we will accomplish our mission.

One Line One Day is your movement. Share this message with your friends and family through Twitter, Facebook, Instagram, email - any way you would like to encourage people to help us to spread the word. Through this simple action, we will increase lupus awareness today and beyond until we reach our mission of finding a cure.

New Clinical Trial by Cure Click for GERD

	Recruit for Gastroesophageal Reflux Disease (GERD)
	Gastroesophageal reflux disease (GERD) is a chronic digestive disease that occurs when stomach acid or, occasionally, stomach content, flows back into your food pipe (esophagus). The backwash (reflux) irritates the lining of your esophagus and causes GERD. Both acid reflux and heartburn are common digestive conditions that many people experience from time to time. When these signs and symptoms occur at least twice each week or interfere with your daily life, or when your doctor can see damage to your esophagus, you may be diagnosed with GERD.      http://curec.lk/2dw9oHn   #GERD #heartburn #AcidReflux #reflux

Cure Click Brings a Clinical Trial for Urinary Incontinance caused by Spinal Cord Injury, Multple Sclerosis

Approximately 80% of people with Multiple Sclerosis will experience some degree of bladder dysfunction. Symptoms include difficulty holding urine, difficulty starting a urine stream, feeling like the bladder won’t empty completely, having to go to the bathroom at night frequently, and having to urinate frequently. 

 

 

http://curec.lk/2dBya93