21st Century and the AF! Awesome News!!!

http://blog.arthritis.org/advocacy/21st-century-cures-passes-house-of-representatives/

Let The Water Come and Carry You Away....

I had posted a long post last night, and for some reason FB lost it! I know better, usually I make sure I copy them before I hit the "send" button.... but the jest of it was my thoughts yesterday about our lives, especially mine at this time, being like a "river".... we go through so many different aspects, changes, sometimes we feel they are not so great, and often we don't really grasp the "why's", when, how of life. I had really found comfort last night, in thinking about my life, and once again it evolving, revolving, and "flowing" forward... most rivers never flow backwards... thus once the water has flown under that bridge, it will never go back... such as life... once this moment is over, it is done... finished... just as by our "Higherpower" said about the "7th" day of Earth... "'tis finished"... and was also know ass when all happened as it did on the "Mountain" once his Son has passed away, again, Tis Finished.... I am not trying to "make" this about "religion" at all, but those events for my own personal self remind me, that I am in this place, at this time, for a specific purpose... why things have happened as they have I don't truly know... some I've had an "open heart to" and it seems I've found a "new vision"... I am seeing my own world, and all the world with new eyes, along with a new mind set.... no longer shall I "blame" myself for what I have no control over... we cannot control actions that we can't control.... we can't "make" or not make someone else do something, we cannot change the weather, or stop the rain from falling. We cannot stop Mother Nature" and even though we can gripe and moan about it, it is just as it is... and as is supposed to be...I really wished I had not "lost" my post from last night.... it was a "Revelation" for me... and the way I worded it was what came through my heart and mind so clearly... but again I also "can't" control Facebook either.... SO, what I will finish this with, as I go and get ready to attend church again this morning is - one of my very favorite songs.... the lyrics "fit" so well, and it was THE SONG I heard back when I was 21 years old... that on a fateful night CHANGED the direction of my "flow of life" forever. Had the events that happened that night, happened any differently, I may not even be here, or I could be "lost" in a sea of horrible demise... so the song.... the lyrics... - "so much time to make up everywhere you turn, time we have wasted on the way... so much water moving underneath the bridge... let eh water come and carry us away...."   We often "lose" so much of life, time, thought... by "wasting" it on the things we cannot control.... yet if you allow those waters to flow... underneath that bridge... it will certainly carry you exactly where you need to be... love you guys and gals that support me so much... Rhia


Wasted On The Way Lyrics

from Greatest Hits [ORIGINAL RECORDING REMASTERED]
"Wasted On The Way" is track #14 on the album Greatest Hits [

"Wasted On The Way"

[Intro. (Acoustic Guitar and Electric Piano)]

Look around me
I can see my life before me
Running rings around the way it used to be

I am older now
I have more than what I wanted
But I wish that I had started long before I did

And there's so much time to make up everywhere you turn
Time we have wasted on the way
So much water moving underneath the bridge
Let the water come and carry us away

[Instrumental (Fiddle)]

Oh, when you were young
Did you question all the answers
Did you envy all the dancers who had all the nerve

Look around you know
You must go for what you wanted
Look at all my friends who did and got what they deserved

So much time to make up everywhere you turn
Time we have wasted on the way
So much water moving underneath the bridge
Let the water come and carry us away

So much love to make up everywhere you turn
Love we have wasted on the way
So much water moving underneath the bridge
Let the water come and carry us away
Let the water come and carry us away



Read more: Crosby Stills Nash - Wasted On The Way Lyrics |

How MUCH MORE Can one person stand?! Chronic Illness, Dealing with Life's other issues, & not just losing your mind or collapsing in it all....

Honestly gals and guys... I am concerned that I am either getting "worse" when it comes to the RA,Lupus, and so forth... or I have something else really going on with me... I've just had all kinds of "new" symptoms... first of all, I am having moratl heck with my fingers, worse than ever before. My right hand has a couple of very swollen places between my middle finder and my "pointer" finger next to my thumb. Plus my thumbs are really bad again. Plus, I woke up in such severe pain in my lower back and down my legs this morning, I really thought I had a kidney stone again. It was almost like a "cramp" or what we used to refer to as a "stitch" in your side. But, rather than it kind of working itself out, it went on for a couple of hours, and even now it is not the best .... plus I have this worsening of the "weakness" type o feeling in my legs, almost like they are jello and feel as if they could just "collapse" when I am up walking. I've also had BOTH of my ankles again not so great, but my right one as always, is so swollen and hurts like I sprained it or something... and I still have that "odd" kind of pulling pain underneath my right arm and into my arm pit then kind of a bit around to my back.... my stomach is just a mess... as if I was having or trying to have "spastic" colon issues, but it has been 20 plus years since I had one of those attacks. I used to have them when I was younger and of course they always called it a "nervous stomach" back then. But, it is of course down into my lower intestines, like they are trying to cramp up... and then there is this almost too weird to try and explain, "severe" fog... brain fog, memory fog... and now it is just so bad... I walk around almost as if I am in a daze... and my memory is horrible the past couple of days... but I feel almost "detached" from myself... and I've had that happen a couple of times in the past 10 years or so... where you almost feel like even though "you are here"... you almost feel as if you are looking "down" upon what is going on... and really not "in" the situation,., I know there are terms for it... kind of one of those "fight or flight" responses, that our "mind" uses when we are way overly stressed... and when that "breaking point" begins to be felt... then we seem to "detach" from it all, and become a "quiet observer" because it is just ALL TOO MUCH to deal with... thus it is a mechanism to keep us from going completely bonkers... and my "LISTS of LISTS"   keep getting longer and longer, yet I am further behind more every day.... It seems EVERYTHING right NOW is "priority",.. yet none of us can do 100 things all at once, and really "survive" going nuts....plus the night terrors have been so bad, this place of feeling so totally like a "failure", feeling like I don't "fit in", that people "dislike" me, and they look down on me, because I am not "enough"... Just about every night terror I have has this same theme... either I am "not good enough" for family, or some job, or some group of people I am around, or my "spouse".... hahahaha ..... now you see where I am coming from... I feel that now my life is HALF over or MORE THAN half over and I'VE NOT ACCOMPLISHED  a damned thing I have wanted to... the list of things that my home needs is endless... now many of those that I would LOVE to be able to do... I know are not feasible for me to even give thought to....yet when I get so "bent" as I love Matchbox 20's song, "Bent"  - I feel exactly that way "bent"... I have always thought no matter whether my family, a friend, someone I worked with, associated with... or anyone for that matter, that I am just "not enough", "not worthy",,, I've NOT done, this, that or the other... and that I SHOULD be accomplishing so much more... and the more I try to do, the more BEHIND I feel as if I am..... BUT TWO GREAT THINGS!!!!!! NUMBER1 - I GOT MOM'S INTO PT! And it is here in Ennis AND THEY TAKE THE INSURANCE!!! whew!!!! NUMBER 2 - She is scheduled to go see the pain doctor next Thursday so they can schedule the injections... SO HOOOORRRRAAAAAYYYY!!!!! THAT were two of the things I was most concerned about... so those are good to go.... NOW I MUST being to decide WHAT TO DO ABOUT MY LUMBAR/SACRAL spine fusion!!! I "THOUGHT" I MAYBE able to put if off for a while... but, as badly as the pain has been even worse than before the test was done... I don't think putting it off is an option, well not for long... I think just as my pain doctor said, get it fixed NOW... for it will only get so much worse, and I do not want to wait until I am even worse... then my recovery time OR even (and this may happen anyway) I think when he does surgery, it will be a HUGE worse MESS than any test showed... it never fails for me... it always is like that.... anyway.... I am still knee deep in stuff to do... but it am just totally wiped.... more to come...

Does "RA" along with other "Chronic Illnesses" Harm Relationships?

I could go on and on about this ONE subject. The article itself touched on many aspects. But, the one thing it did not hone in on is all too often WITH RA, comes "other illnesses"... Lupus, Sjogren's, etc... and then it can effect your other bodies parts, your heart, your lungs, your brain... plus as he said it is like the "3rd" wheel of a relationship... then throw in that the OTHER PARTY, the one that was "well" suddenly is totally thrown for a loop physically. The person that "helped" through the flares, surgeries and so on, suddenly is NOT even able to care for themselves in so many ways. Then what? How can "any" person, much less a relationship withstand that kind of stress? I do realize there are many that do... and they get through it, and they are closer, than ever. I always thought that would be "my life".... way before RA, and illness... yet LIFE can turn on you within a breath's space... every plan, every dream, every idea, all of the things you have planned to do as you "grow old" together. are thrown out... NOT just the "bathwater"... but the tub, & yes I guess you could say the "baby"... but I use that at the moment for a lack of a better way to put it.... these illnesses "eat you alive".,. they do break up families, they do cause divorces and separations, they do cause harm to friendships, and they effect each and every aspect of life... they do make you angry, mad, pissed, upset, feel guilty... and feel more guilty and even MORE GUILTY!!!! Much of what will be my in 3rd book, if I ever get finished will probably be on this subject. Lord knows, I have no answers... I only have "the fires" of what life is bestowed upon me to walk through and some of them have freaking "burned" me in a 3rd degree type of way, leaving their scars for sure. I am going to post this on my blog, as well as go into more detail later in the day today or over the weekend. Plus I also have several other things I want to put on my blog that have happened... 


http://www.thebimblers.com/has-rheumatoid-arthritis-ruined-your-relationship/

WEGO - and How they have made OUR Voices Heard!

This is definitely worth watching!!! Way to go ALL and thank you WEGO HEALTH!

https://www.youtube.com/watch?v=zyaGZdsJaBI&feature=youtu.be

Incredible and AWESOME News for Patients with Lupus, RA, FM,Sjogren's, Heart disease, Cancer & so much more...

21st Century Cures, has stepped out to amaze and delight so many health activists, advocates and truly help to get our Federal Legislature involved in getting ALL of the research we need in order for so many of us to become "healthier" and hopefully gain some quality of life back.

Here is some information from the Arthritis Foundation about 21st Century Cures...

EnergyCommerceCures ‏@ECcures Jul 10

BREAKING: The House has approved the 21st Century Cures Act by a vote of 344-77 #Cures2015