Showing posts with label Federal government. Show all posts
Showing posts with label Federal government. Show all posts

Sunday, October 26, 2025

Federal Government fails us, along with Big Pharma, FDA, CDC, DEA and more...

 I usually don't speak about "government" much. Everyone has the right to their own thoughts on Religion and Politics. However, when it comes to the health of our people, I will discuss my stance. This is a SERIOUS and VITAL issue from our Seniors to our Children!


We have spent all of our lives thinking doctors, Big Pharma, the CDC, HHS, the FDA, and ALL of our government were trying to help us fight so many crippling illnesses and deadly diseases.

Over twenty years ago, I KNEW SOMETHING WAS VERY WRONG WITH OUR WESTERN Medical system. I have fought my own health problems since I was 17 years old. When I was 35, I had had enough. I never knew exactly HOW TO SPEAK OUT about what I learned from my own experiences; along wth MANY others after I began to see social media and what a nightmare people have with our mainstream medical society.

We have been lied to, deceived, ignored, told we were insane, we were hypochondriacs, and DOCTORS were those TRAINED. It has taken all of my life so far for the TRUTH to finally begin to come out. The fight against deception began when people started to see it and had their eyes opened. We had non-profits formed that were staffed by PATIENTS, and those fed up with all we have had to put up with. We saw patients become leaders, to be volunteers, Ambassadors, to reach out and go to Washington D.C. to STAND UP AND TELL THEIR STORIES!

I was just ONE of the thousands who have stood in the offices and halls of Congress and told the government our stories. I literally watched my House of Representatives from my district CRY after I stood in front of them and told my journey through the pits of Hades when it came to disease illnesses, surgeries, medications, and ran the gamut OF TESTS, SPECIALISTS, AND TREATMENTS that didn't and continue to "POISON" US RATHER THAN keep us healthy. I had the misconception that doctors were educated to keep us healthy. They were not here to wait until we are critically ill, then throw medications, treatments, and pills that do not work. In fact, if you research most medications we are given for certain conditions, they make us more ill due to side effects that are often worse than the illness itself.

Three years ago, after voting every year since I was old enough to vote, I STOPPED! WHY? Because I knew my "vote" counted for nothing. Our "voting" system is archaic and worthless. It is NOT here to help the people; it's here to keep many lining their pockets with our hard-earned money.

My thoughts are my "voice" among many other voices through volunteering, non-profits, research, and speaking out; this is what may make a difference, rather than a worthless vote.

I wrote my first book, and I joined the voices of several NON-PROFITS TO USE THE KNOWLEDGE AND terrible experiences I HAD BEEN through to CONTINUE TO SPEAK OUT. My voice is present on social media networks, my own blog, in my writing, and even face-to-face with those I meet in my hometown.

MY HOPE is that others will have their head taken out of the sand, and stand UP for their own health, along with so many that suffer with often disabling, debilitating, AND EVEN DEADLY ILLNESSES.

I have learned to speak out if I am not in agreement with my health care providers. I have the opportunity to tell my story anywhere I can. I have found alternative health methods that can benefit us without side effects, hair loss, or exacerbating our existing health issues. YOU and your insurance, IF you have i,t and it helps YOU

I never settle for what my medical folks tell me. I research, I question, I tell them exactly how I feel. The older physicians may not like what we have to say. They want to blame "Google", social media, and the internet for our "often different ways of thinking." YES, that is true. We have to dissect the information we find. We need to research every place we come across. We ask questions. We read what our non-profits find. We do not fall for all the bogus information we come across. So, when a doctor says you can't believe everything you read on "DR. Google," I say I don't! I DO research every test, every medication, every surgery (unless a true emergency), and I can't at the moment."

IF I offend one of my doctors who should listen to us, then if they have a specific reason for not agreeing with us, they should EXPLAIN their reasoning. Your doctor should never "gaslight us." If you have not researched medical GASLIGHTING, I SUGGEST YOU DO. IT EXISTS. You may never realize what is happening. We were taught THE DOCTOR IS ALWAYS CORRECT. That is NOT true! They are human too. They make mistakes. They have also been given schooling, training, and listened to Big Pharma, our insurance companies, and the government.

I have witnessed medical gaslighting myself more than once. When a doctor dismisses your questions, tells you that you are a hypochondriac, YOU do not KNOW WHAT YOU are talking ABOUT, QUIT BELIEVING DR. GOOGLE, not calling in medications on time, doing procedures and treatments that are not what we need, and even surgeries that could have been avoided, and even uddenly "firing us" as a patient for no good reason... THAT IS A PART OF MEDICAL GASLIGHTING.

Doctors who overload schedules, keep you sitting in a tiny room for HOURS waiting on them, are often ridiculous! OUR TIME is just as crucial as a doctor's. Sometimes emergencies happen. I've learned that if I am waiting in the room for a physician for over 2 hours, I get up, reschedule, and leave. I have recently done it twice. Bless my PCP heart. He genuinely cares so much; he often doesn't overbook, but he believes in spending enough time with a patient. Fortunately, I can ask him questions through the patient portal or share new information with him via message. He then has the information he needs for my visit. Or I do not have to make a trip for an office visit. He can answer my question or, at times, call in a script or have the nurse give me an injection for the Lupus/RA flares without having to see him.

The last time I finally got up and rescheduled, I had been sitting in the exam room for 3 hours. It was late in the afternoon, and he was still tied up with a patient, and my chart takes time to go through before an appointment. He never gets upset and understands. Due to chronic pain, if I have to wait too long, their office is like a freezer. The chairs provided for patients are incredibly uncomfortable. When I start to feel pain, need to get up and move around, or am so cold that it worsens the pain, and it's been over 2 hours, I reschedule. It happened to me twice 2 months ago. I left both times. It worked out.
The visit was to review my lab work, discuss my health conditions, and address any new developments or answer questions. If it is urgent, he usually has one of his NPs to take. LOOK at me. He usually KNOWS, UNLESS IT IS SOMETHING DIFFERENT THAN BEFORE. THEY KNOW THEY CAN WRITE THE SCRIPT IF I NEED AN ANTIBIOTIC AND SO FORTH. I AM IN AND out quickly. I've been a patient of his for 2 months since he came here. He has diagnosed me with things that others told me I did not have. He has been my PCP for 18 years. I can sometimes call or send a message with my symptoms and what's going on, and he can send in a script or decide if I need to be seen. He knows me so well, and he knows I usually know exactly what is wrong, so it saves me having to get out, go to an office when I am really FEELING TOO LOUSY TO GET OUT. He knows if I feel I need to be seen, I'll go in if necessary.

Recently, I found out about RFK, Jr. since he was elected to the HHS. I started listening to what he has to say, how he feels about our antiquated, totally messed-up medical system. He has spoken out about the FDA, CDC, Big Pharma, and how MONEY is what they want. They do not wish to keep us well. They would lose their shirts. Their MONEY would dry up. In other words, GREED rules our Big Pharma, and the governmental bodies put in place to keep us well. If they were to keep us well, we would not need statins, blood pressure medications, cancer medications, and autoimmune medications, which are off the charts!

He had written several books. One of them concerns the "Wuhan lies" about COVID-19.

Of course, some of the others in the government want him out. They want to squelch his voice. After all, their funds would dwindle.

SO, THIS MORNING, I AM SPEAKING OUT! I am continuing to research HIS thoughts and THE BILLS he believes in. He certainly does not support our president's opinions.

Please don't give me grief about speaking out. My reasons are for each of you...

Wednesday, August 23, 2017

Letter from the Arthritis Foundation to Paul Ryan Speaker of the House and Congress!

 

 We all need to be TELLING OUR STORIES TO CONGRESS, THE PRESIDENT, SPEAKER OF THE HOUSE, AND OUR STATE GOVERNMENTAL BODIES ALSO!!!


FROM FUNDS FOR ARTHRITIC ILLNESSES, AUTOIMMUNE ILLNESSES, AND CHRONIC PAIN, THAT OFTEN FOLLOWS THESE ILLNESSES AND MANY MORE... WE MUST STAND UP AND TELL IT LIKE IT IS... NO LONGER CAN WE SIT ON THE BACK BURNER AND ALLOW THE GOVERNMENT TO NOT DO THEIR JOBS IN HELPING US, AMERICANS. WE ARE THE NATION, AND IT'S TIME THAT THIS GOVERNMENT PUT THE PEOPLE FIRST!!!!

 






http://www.arthritis.org/Documents/Sections/Advocate/Regulatory-Letters/AF-Letter-to-Congress-Leadership-on-Health-Reform-Fixes.pdf




Thursday, July 6, 2017

The CDC, and others in GOVERNMENT do not KNOW WHAT TRUE SEVERE DAILY CHRONIC PAIN IS LIKE FOR MANY OF US WHO ARE TRUE PATIENTS!!!!!

I am so INFURIATED at the NEWS as well as the CDC, government, and THOSE WHO SO STRONGLY OPPOSE ANYONE NEEDING PRESCRIPTION PAIN MEDICATIONS, that I HAD to get up and turn the channel a bit ago!!! I had turned my computer off earlier in the day due to severe "dry lightening and thunderstorms" BUT AFTER DINNER, I came to turn it back on and state my MIND ABOUT THIS BULL!!! I would LOVE to take ANY ONE of the people from the CDC, from the GOVERNMENT, FROM JUST PLAIN OLD OFF THE STREET folks, AND ALLOW THEM TO HAVE ALL OF MY OWN PAIN, PLUS MANY others PAIN for just ONE WEEK, WITHOUT MEDICATIONS!!!! I don't care how much you "punish" those who need the meds, and there is NOTHING ELSE that helps, THEY WILL FIND SOME WAY, SOME HOW TO GET "HIGH"... whether it is ALCOHOL, OFF THE STREET DRUGS, THAT LORD KNOWS WHAT IS IN THEM, INCLUDING HEROIN, Or anything else they can "use" to get what "WE" the NEED THE MEDS DO NOT GET AND THAT IS SOME KIND OF "HIGH" from them! Other than when I was in my teens and early 20's for sure, AND I COULD NOT GET RELIEF FROM ALMOST 2 OR 3 TIMES A WEEK SEVERE MIGRAINES, that SENT ME TO THE ER MORE TIMES THAN I CARE TO COUNT, and AT THAT TIME, for a while, I felt "something" that was kind of like giving someone an "I don't give a damned" drink, or medication that they may not take very often then YES, you may feel that "high" for a few moments, BUT those LIKE MYSELF, WHO HAVE MULTIPLE ILLNESSES, THAT CAUSE DAILY SOMETIMES SO SEVERE PAIN, THAT MEDICATIONS EVEN DO NOT GET RID OF IT ALL, WE DON'T OR I SHALL SAY I DON'T HAVE A "HIGH" FROM IT! I would GLADLY throw away ALL OF MY MEDS, If somewhere there was a "MIRACULOUS" CURE FOR lupus, RA, DDD, DJD, OSTEOPOROSIS CAUSED BY PREDNISONE, WHICH IS A NECESSARY EVIL, NOT AN OPIOIDS, BUT CAUSES MORE DAMAGE WHICH LED TO MY HIP FRACTURE.... If I could take NSAIDS, or anything else to relieve my pain, I would do it in a "New York minute"... BUT you TAKE AWAY PAIN MEDICATIONS FROM LEGITIMATE PATIENTS, and you will see MORE ALCOHOLISM, THOSE THAT CANNOT WORK, CANNOT TAKE CARE OF THEIR FAMILIES, ARE IN THE ER, HOSPITAL, AND TAKING ILLICIT MEDS THAT LORD KNOWS WHAT THEY CONTAIN... You will see a DRAMATIC RISE IN SUICIDES,, those that LIKE MYSELF, WITH A HEART PROBLEM, IF I WAS IN SO MUCH PAIN, WITHOUT MY MEDS, I WOULD PROBABLY NOT LIVE 6 MONTHS, THE REST OF MY BODY, INCLUDING MY HEART, would NOT be able to take the pain!!! It is a strain not just "where it hurts" but all over, and it effects you mind, the rest of your body and your soul, spirit and takes away all quality of life! One cannot raise their kids, work, or even there would be DAYS, WEEKS, MONTHS SOME WOULD BE COMPLETELY BEDRIDDEN, without RELIEF!!!!! I am SO SICK of BEING PUT IN A STEW POT, AND MIXED IN WITH THOSE WHO "CHOOSE TO ABUSE".... NOT ALL OF US ARE "ADDICTS... I don't take ANY of my medications, NONE FOR SOME KIND OF "ESCAPE OR HIGH" OR WHATEVER those that abuse get... IN FACT, I've NEVER HAD ILLICIT MEDICATIONS, other than at about the age of 23, I smoked a "bit of weed" and I HATED THE FEELING IT GAVE ME, same way with DRINKING ALCOHOL, I don't like the way I feel or that "loss of control" it causes... of course many of us as younger crowds years ago, may have drank too much, or experimented with "not legal things" yet most of my generation did not even know about "illegal drugs" in high school. It was not something MANY OF US HEARD ABOUT OR ESPECIALLY HAD ANYWAY WE WERE AROUND THAT TYPE OF THING".... I fully intend, on when I "SETTLE DOWN" TO GIVE THE CDC, THE GOVERNMENT, BOTH STATE AND FEDERAL, and ANYONE ELSE, a "PIECE OF MY MIND" ABOUT this bull.... you take a couple of states, with doctors who are NOT real doctors, or have "backwards" folks that use everything else also WITH prescriptions, and they with or without those meds would either wind up in the ER overdosed, or would find a way to get what they want, off the internet. or cross borders, IF THEY CHOOSE THAT LIFE, THEN NOTHING ANY ONE ELSE DOES WILL STOP THEM! I AGREE with 'regulation" somewhat, but most CREDIBLE DOCTORS, will NOT cause "harm" to their patients! By any type of medication, etc.... so yes kick out the "bad seeds" but leave those who truly are chronically in daily pain (HELL they were even stating some "SEVERE CANCER PATIENTS" MAY NOT NEED PAIN MEDICATIONS! ... WELL, some may NOT, but I would 'ASSUME" many would never go through chemo, radiation, and continue to want to live if their disease brought them intense, severe, and daily pain!!!!! I am sorry if I OFFEND ANYONE" But I am really perturbed on this subject!

Wednesday, January 13, 2016

TODAY IS THE FINAL DAY FOR COMMENTS ON CDC GUIDELINES FOR PAIN MEDICATIONS! PLEASE GET YOUR COMMENTS IN!!!!!

http://www.regulations.gov/#!docketBrowser;rpp=25;po=0;dct=PS;D=CDC-2015-0112


ABOVE IS THE LINK TO GO AND COMMENT ON THE CDC GUIDELINES THAT CAN EFFECT THOUSANDS OF PEOPLE, POSSIBLY MILLIONS OF CHRONIC PAIN PATIENTS AROUND THIS NATION! 

TODAY IS THE LAST DAY TO VOICE YOUR CONCERNS, COMMENTS AND SO FORTH! PLEASE TAKE A FEW MOMENTS AND DO THAT. YOU CAN REMAIN ANONYMOUS, AND DO NOT HAVE TO PUT YOUR NAME IN... 

THIS IS OUR TIME TO TRULY SPEAK UP FOR ALL OF US WITH HORRID PAIN ISSUES, AND KEEP THE GOVERNMENT FROM TELLING GOOD PHYSICIANS HOW AND HOW THEY CANNOT TREAT THEIR PATIENTS!


I GOT A NEW "PATIENT" INFORMATION PAGE LAST WEEK AT MY PAIN SPECIALIST! IT WAS A NEW WAY THAT I KNOW THE "GOVERNMENT" MADE THEM WORD, THAT YOU MUST KEEP YOUR MEDICATIONS IN A LOCK BOX, BUT YOU SHOULD TAKE A PHOTO OF YOU AND YOUR LOCK BOX TOGETHER AND TAKE IT INTO YOUR PHYSICIAN!!!

NOW I TOTALLY AGREE WITH LOCKING UP MEDICATIONS.... THAT IS AWESOME, AND I FEEL EVERYONE SHOULD, BUT FOR THE GOVERNMENT TO MAKE PATIENTS BUY A SAFE, AND THEN TO HAVE TAKE A PHOTO IN FRONT OF IT, AND GET IT TO YOUR PAIN DOCTORS, IS JUST GOING A BIT FAR. I HAVE NO PROBLEM AS FAR AS ME WITH IT, BUT I KNOW MANY OUT THERE, THAT CANNOT AFFORD A LOCK BOX OR SAFE....

SO PLEASE PUT IN YOUR THOUGHTS......

AS OF NOW THERE ARE 3,825 OR SO COMMENTS, WE REALLY NEEDED 3 OR 4 TIMES THAT MANY AT LEAST!!!!

Tuesday, July 28, 2015

Not my "usual" type of Post but I feel I it's a very important one... When Government, Big Pharma,Medications for "Chronic" Illness/Pain play a hand in your treatments

As I've said in Facebook about this post I am putting up now, I almost NEVER talk about anything "political" or "religious" on FB nor here on my blog.

Not that both subjects are a very important portion in my life, but it is more about how "personal" and private those subjects are to many of us. Not that I don't share some things "religious"... in fact I just posted over the last two weeks, that I have decided I needed to step back into fellowship on Sundays with one of our local churches.

I had talked about being raised kind of "Catholic" and "Baptist". My Mom was Catholic and came from a Czech background. So, when I would visit my Grandparents or go stay over the weekend with some cousins, I usually went on Sunday's to church with them.

My Dad was Baptist. He in fact was one of the "founding" members of the church that is way less than a block from my parents home, and through the years, for the most part that was where he was on Sunday mornings. I went with him many Sundays, in fact probably any time I was at home on Sunday morning, I went with Dad to that church. So, I had "leaned" towards being "Baptist" most of my Adult life, although I don't like to judge anyone else's faith. Faith, Hope, Praise, Glory... all words we so need in the days we face ahead, as a country, as a nation, and as a World.

Anyway, to finish that piece, I went this past two Sundays to one of our Methodist Churches and really enjoyed it. I feel I maybe going back and am even thinking about getting involved in own of the Sunday School classes where I would "belong"....

And as far as "government" actually I speak OUT a GREAT DEAL about our Governmental bodies, both House and Senate. When it comes to anything to do with chronic illnesses, arthritis, RA, Sjogren's,

https://www.youtube.com/watch?v=xLx8bLeDdJs&feature=youtu.be

Since any of these chronic illnesses lead to disability, to losing relationships. to causing severe pain, from physical, mental and emotional... we do not have near enough "research", medications, treatments, and the list of the needs when it comes to these most complex and complicated often almost "invisible" diseases, it MUST be that our government helps to play a role in getting many more specialists, more INSURANCE that COVERS treatments, rather than "denies" every claim. It is NOT the patients fault we are ill. It is also NOT our fault that the medications for some of these are astronomical. We are not the ones who "dictate" these costs. Yet, every day you see yet another new "medication" on the market for Lupus, RA, Diabetes, and so on and so forth... with the costs so expensive there is no way a patient can afford to pay for some medication that is 2,000.00 and MUCH MORE for a MONTH"S worth. I was looking at my medications (that happen to be MANY) due to Lupus, RA, Sjogren's, chronic pain, heart problems, and so forth. If I had to PAY out of my pocket for any of them... I surely would NOT be able to do that at all. So, where do you turn? You need these medications to "give you your quality of Life"... yet there is no quality of life if YOU ARE GOING BROKE to pay for your treatments.


I plan on adding more to this, but for now I want to get it posted.... so more to come on this subject...


Saturday, July 11, 2015

Incredible and AWESOME News for Patients with Lupus, RA, FM,Sjogren's, Heart disease, Cancer & so much more...

21st Century Cures, has stepped out to amaze and delight so many health activists, advocates and truly help to get our Federal Legislature involved in getting ALL of the research we need in order for so many of us to become "healthier" and hopefully gain some quality of life back.

Here is some information from the Arthritis Foundation about 21st Century Cures...



  • BREAKING: The House has approved the 21st Century Cures Act by a vote of 344-77