Tuesday, July 28, 2015

Not my "usual" type of Post but I feel I it's a very important one... When Government, Big Pharma,Medications for "Chronic" Illness/Pain play a hand in your treatments

As I've said in Facebook about this post I am putting up now, I almost NEVER talk about anything "political" or "religious" on FB nor here on my blog.

Not that both subjects are a very important portion in my life, but it is more about how "personal" and private those subjects are to many of us. Not that I don't share some things "religious"... in fact I just posted over the last two weeks, that I have decided I needed to step back into fellowship on Sundays with one of our local churches.

I had talked about being raised kind of "Catholic" and "Baptist". My Mom was Catholic and came from a Czech background. So, when I would visit my Grandparents or go stay over the weekend with some cousins, I usually went on Sunday's to church with them.

My Dad was Baptist. He in fact was one of the "founding" members of the church that is way less than a block from my parents home, and through the years, for the most part that was where he was on Sunday mornings. I went with him many Sundays, in fact probably any time I was at home on Sunday morning, I went with Dad to that church. So, I had "leaned" towards being "Baptist" most of my Adult life, although I don't like to judge anyone else's faith. Faith, Hope, Praise, Glory... all words we so need in the days we face ahead, as a country, as a nation, and as a World.

Anyway, to finish that piece, I went this past two Sundays to one of our Methodist Churches and really enjoyed it. I feel I maybe going back and am even thinking about getting involved in own of the Sunday School classes where I would "belong"....

And as far as "government" actually I speak OUT a GREAT DEAL about our Governmental bodies, both House and Senate. When it comes to anything to do with chronic illnesses, arthritis, RA, Sjogren's,


Since any of these chronic illnesses lead to disability, to losing relationships. to causing severe pain, from physical, mental and emotional... we do not have near enough "research", medications, treatments, and the list of the needs when it comes to these most complex and complicated often almost "invisible" diseases, it MUST be that our government helps to play a role in getting many more specialists, more INSURANCE that COVERS treatments, rather than "denies" every claim. It is NOT the patients fault we are ill. It is also NOT our fault that the medications for some of these are astronomical. We are not the ones who "dictate" these costs. Yet, every day you see yet another new "medication" on the market for Lupus, RA, Diabetes, and so on and so forth... with the costs so expensive there is no way a patient can afford to pay for some medication that is 2,000.00 and MUCH MORE for a MONTH"S worth. I was looking at my medications (that happen to be MANY) due to Lupus, RA, Sjogren's, chronic pain, heart problems, and so forth. If I had to PAY out of my pocket for any of them... I surely would NOT be able to do that at all. So, where do you turn? You need these medications to "give you your quality of Life"... yet there is no quality of life if YOU ARE GOING BROKE to pay for your treatments.

I plan on adding more to this, but for now I want to get it posted.... so more to come on this subject...

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