Tuesday, June 14, 2016

Thank you Extended Thoughts, Gratitude, Life, Lupus,RA, & All of the Health Issues In between...

First of all, I want to extend a very heartfelt Thank You, in behalf of myself, and my family for all of the support, thoughts, prayers, and the many that lifted myself, Mom and family UP, while she went on to be in a much better place last Thursday morning.


It was serene and surreal - both - me there with her, holding her tiny hand in mine, as I "knew" like I said I would that "time" was near, and she was ready to go "home" to be with my Dad, and all of the loved ones, that had passed away before her. As I sang several hymns to her, all of which were songs that she so loved to hear my Dad sing, and did here him sing, many, many times over, and I finished the last of the old hymn "Pearly White City", Mom drew one last breath, and that was it, and it goes "Tis' finished".

There was such a mixed emotion there just the two of us, so silent, yet the moment spoke in volumes that I knew she was at peace, no more pain, no more suffering, no more of laying there, having no quality of life... and I had lost not just my Mom, but someone I had grown very close to over the past 10 years in different ways, and the thoughts of all of our laughs, fears, talks, trips to the Winstar over the years, and all came flooding over me, like some of the floods we have experienced as of late, yet much in a good way.

I suddenly felt "peace" also. I suddenly in my heart of hearts knew, that all we had "endured" over the past at least 8 to 9 months and really much longer, now was over, and we could both rest in the fact, that she moved on to be "better" and my own "job" here on Earth is far from finished.

Not just "things" to do because of her passing, but LIFE to live, that I know now was waiting for this to happen. NOW, is when after things are settled that I shall finish my 3rd book, because "her story" shall be a part of that book.

I want to once again extend such a thank you to our Physician's Choice Home Health Care here in Ennis, as well as our Family First Hospice. All of them, especially that last week with the Hospice people would been so much more difficult had it not been for them. They look this horrible situation, and made it a bit easier to bear.


I am in gratitude of Keever's Funeral Home, Father John from the St. John's Catholic Church here in Ennis also, the Ennis Flower Shop who did such a beautiful job on the casket spray, and everyone else who sent their wishes, flowers, donations, and put their love and arms around my family, as we dealt with and continue to deal with a very sudden loss.

As the days move forward I will now be able to begin another realm and branch of my journey here, in my writing, and in my life. Of course there are still many things on the "list" of to do's, yet as I do those, I will now be able to get more back into my own writing, and pray that my "voice" shall once again speak to me in order for me to complete my 3rd book, and publish it.


I also have more advocacy work to do, since Alzheiemer's/Dementia, especially Lewey Bodies Dementia, will become a huge part of my advocacy work....

I wanted to catch each of you up, and let you know what is happening, give you some links also, and again tell you how much I so appreciate your reading my posts, and continuing to follow this journey we call life.....



http://www.jekeevermortuary.com/home/index.cfm/obituaries/view/fh_id/13137/id/3742850










   http://www.alz.org/








http://www.alzquilt.org/








World Blood Donor Day Today June 14th 2016!




Friday, June 10, 2016

My Mom has Passed Away - and some information about that..,

I am sharing this with each of you because I feel my daughter, Amanda is expressing ALL of our feelings emotions, and thoughts at this very, very difficult time in our lives. Life is so very fleeting, and I witnessed that within all scopes this past few months. Mom and I got to go to Winstar one last time in January. I knew about 3 weeks later, that would be our last ride while she slept and I drove to the Casino. :) She "cut up" her player card one day while I was there, and I kind of "scolded" her a bit, and then realized she more than anyone knew we would never make that trip together again, not in this world. Mom had a very peaceful passing at 10:20AM this morning.

 I sat beside her, and in my heart of hearts, I knew it was "time". I sat there, and sang 4 hymns, that she loved to hear my Dad sing.... and everyone loved Dad to sing in church, at weddings, and funerals. When I finished what pieces I could recall of "Pearly White City", she took another breath, and that was it.... Her hand in mine, just us two quietly, and me in "tune" as well as could be expected. That was my "time" to fall apart.... and I did, for a while I sat there holding her hand.... and then so happened the Hospice Nurse stopped by, honestly at the right time. 

Most of everything is arranged, Mom was a very simple person in life, she never wanted a "fuss" over much, so I knew her wishes were "simple" as far as after that. So, as I await for Amanda Batson- Matheny and her family to come from the Corpus Christi area, and to hear from Jason Harber - who I feel right now needs everyone to surround him with their love and support... He and "Granny Steele" had and will have a special bond always, and I know this is an extremely difficult thing for him to deal with.... yet all of us handle this things in our ways unique ways... so He will do the same.... We will have visitation and a Rosary on Sunday, from 4 to 6 and receive family and friends then. The funeral will be held at Keever's Chapel on Monday morning at 10AM with the Catholic Father residing over the service. There will be information on Keever's Website tomorrow about everything and the details. I will post that when I have a URL.

 I want to thank each and every one of you that have "held up me" through this... you are such a wonderful group of friends.... I also want to commend Physician's Choice Home Health here from the Ennis area, as well as First Choice Hospice, who took over last Thursday, and everyone were wonderful through all of this.... Words, I guess now, elude me, again but to say I appreciate and my family appreciates everything and all of the thoughts and prayers.....

From my daughter:

I would like everyone to please keep my family in your prayers, my grandmother passed away this morning. It is never easy to loose a loved one & this time is really tough!Granny was mine & my brothers last grandparent & my mom is her only child! She was the kids only great grandparent that they had left and it is not easy to explain to them that she is gone! ( I know the kids will always remember all the goodies she baked for them when they would go visit her!) I know she is in a better place now and her & papaw are back together again, so that helps ease the pain a little! We love you & will always miss you Granny


Mom's Obituary:


http://www.jekeevermortuary.com/home/index.cfm/obituaries/view/fh_id/13137/id/3742850  



Last photo of Mom, Dad and I in 2004. I was here from Seattle at the time, for my daughter's wedding, and I saw her and Dad then. This is the photo of all of us three, Dad passed away  March 27th, 2005.....
 

Thursday, June 9, 2016

"Dare To Dream" Sponored by Cure Click and About "Dreaming" and Clnical Trials



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Tuesday, June 7, 2016

Mom and Sharing a bit more.....

I was not sure about posting this here but it seems like the very best spot to let those who want to know about my Mom, Henrietta Steele. Of course this is Pam Steele, from the Class of 78, gosh a long time ago, LOL.... and many knew my Dad Minnis, that worked for Ennis Business Forms for 45 years, started at 16, and walked from Byrd/Rankin back and forth until he finally got his Dad's car (Model A) I think... anyway, back then it was still Ennis Tag. My Mom was having signs of "dementia" for a bit, but she is to be 81 in August, so "memory issues" are a part of that anyway. Yet, just this past January, she was still able to do much of her "daily stuff", cooking, cleaning, still in that little tiny house on Anthony Dr. - where I was raised, etc. 
But, within weeks, things went from "okay" to wait a minute something is very wrong. She was not able to "recall" how to put her car in drive, not able to turn on her oven, could not recall how to use the Microwave, and from there she quickly was stricken with what I feel is "Lewey Bodies" Dementia, it moves extremely fast, and her symptoms to be are definitely what I would say "fits".... both my Grandparents Rosie and Joe Svehlak, her parents, had Alzhemeir's/Dementia. So, it is not a huge shock, BUT theirs did not take them down this quickly. Which there could be some "mini TIA's" happening, mini strokes, and we would really not know that for the most part. 
Anyway, rather than drag this out, I know some of you have become "friends" on Facebook with me, and I am of course a friend on our Class of 78 Facebook page, so I also enjoy keeping up with everyone plus remembering "Ennis" and things we had and did as kids here, that are now just memories. Anyone, that may know of someone who would have known Dad and Mom, or myself, as I said I felt this maybe this best way to "inform" the few people we know and most of our relatives have already passed away.I am in Ennis and have been back almost 11 years from Seattle. I know a few did not even realize that. I will of course have something posted on the Keever's website once we reach that place, etc. But, mainly I wanted to get the word out, because this happened so quickly, and we don't have much family etc left, so I felt this would help to get the word out to those who wanted to know..... Pam Ravishing Rhiannon Steele
 
 
The last pic of the 3 of us in 2004, before my Dad passed away...