Sunday, October 9, 2022

UPDATE... Could be I have developed "Lupus Colitis" since C. Diff ,Parasites, other Bacteria all negative...


 Had a visit with my PCP on Friday. I have developed probable "High "TSH" thus I may be having to add yet another medication for High Thyroid issues. My "Parathyroid" is still getting higher, which I am concerned about a possible "tumor" on the pituitary gland. He and I have not mentioned that, and he tends to think it is due to my Vitamin D  and Calcium being "off" now. they both had been normal for a long while, but after all of the colon issues, such weight loss, etc.. my body has really been through hell especially with minerals, vitamins and such loss through the severity of the probable Lupus Colitis. 

It comes and goes... and I have been having to keep a carful eye out for my diet, what I eat, what is in it, when I eat it etc. I have always been a sweet lover, but have used either Splenda or Stevia ever since they came out.. and quit any "man made sugar substitutes." 

But, I love cookies.. and MANY of the bought ones have "high fructose corn syrup, which is 1 thing that I to keep away from. I was not a big chocolate eater, but a couple of years ago, I began eating a bit of dark chocolate.. but I notice that tends to bring on the colitis symptoms, and as much as I used to LOVE peanut butter, now I think anything type of "nuts" even in peanut butter may also bring on the symptoms, even all natural with NO sugar etc. So, I have to really watch what type of "sweets" I either make or buy. Of course I had quit making homemade especially after the horrid HEAT we had this summer..plus it is hard to buy what I need and make something sweet for just ME... so I had been buying especially cookies... but many of them do contain high fructose corn syrup!!! or NUTS, or chocolate & chocolate chips. 


I wanted to post this much and will post more tomorrow. Had a really rough week, lots of errands, doctor appt, lab work, got my 2nd Shingrix vaccine, so I am exhausted, and ate something that really hit me hard with the darned Colitis again. In fact my Daughter came up unexpectedly last night.. but I had such bad symptoms with my colon I was not even able to see her & my son in law & grandsons... they leave in the morning so I felt badly missing to see them.  But, I could not even walk this morning or step out on my porch.. the colitis had me bound to the house since last night late...    


Friday, September 9, 2022

National Pain Awareness Month! #LifeWithPain


Support All of US and/or family members. friends, or Caretakers that are living in a "World of Hurt" due to Chronic Pain 



 

#LifeWithPain


Thursday, September 1, 2022

WICKED MEMORY (Memories)... (New song lyrics I am working on)

WICKED MEMORY


WICKED MEMORY(MEMORIES) NOT SURE WHICH YET...


 I've had a new "some lyrics" come to my mind since yesterday... but I only have the "chorus" started.... The name of the song will be "Wicked Memories"... and something like "You left me here, but left your Wicked Memories to fill days with burning pain, even buckets of tears I've cried for you could not put our those fires, only months of rain could put out those flames... and in the blood stained nights, with your rattling chains, that squeeze my heart and bruise my soul. you left me standing, with all the doubts and fears, and a bruised & tattered heart plus a love that's grown cold..." I have MORE floating lyrics around in my head, and can kind of hear the music but this is a hard one for sure...


I watched on that fated evening you walk out that door .. just like you did a dozen times before... this time when you slammed that heavy door...yet this time your tattered picture fell and shattered glass all over the floor... pricked my fingers and made them bleed.. that when I felt the 1st pain of your Wicked Memory... my heart bound by that ball and rattlin' chains.. my days filled with your evil face.. nights haunted by that ball & rattling chains, bruising my heart with their squeeze making my fractured heart bleed.. you took everything but forgot to take your Wicked Memory. I finally fell down upon my knees... broken and bent.. Unwell to everyone it seems... impaired by thoughts of what we used to be and all that you left - that Wicked Memory.. all those buckets of tears I cried could not douse those melting flames, begging and pleading for the fires to fearlessly go away.. it took months and months of cold pouring rain, to put out the fires & stop those licking fiery flames.. As I built a coffin to put in what you left behind, on top I found a place perfect it seems, that where I'll bury your Wicked Memory.. I nailed it shut, sealing it forevermore... Under that old oak tree I buried it 6 foot under the ground., and quickly the tree was dead limbs and withered leaves, cause you wretched it with your Wicked Memory.. Now when she leaves you and she slams that hardwood door, her tattered picture crashes to the floor...shattered glass cut your fingers & pierces your cold soul, when you start to bleed finally you'll know about a wretched feeling of a Wicked Memory.. but don't come around here knocking on my door.. I don't want to hear your voice or see your face anymore... nothing you could do would make me love you anymore.. you tore my heart into pieces for that last time, as you did before.. so go cry your own tears in buckets of pain, I'll bet even months of cold pouring rain, will never put out her fiery burning flames.. and someday when you fall down upon your knees, You'll be surrounded by Her Wicked Memory...

Wednesday, August 17, 2022

Shades that are awesome and AFFORDABLE!!!

KNOCKAROUNDS - BOTH AWESOME AND AFFORDABLE PLUS 10 OFF WITH THE LINK!!!

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Awesome Shades, Great Prices, & get 10.00 off with link on 1st order!


Just cannot get WELL, C.DIFF BACK AFTER ONLY 5 DAYS, broken collarbone and shoulder blade,, weeping Eczema spot after all almost well begins weeping again..am I hexed???

BETWEEN MY OWN ILLNESSES AND MY HOUSE DETERIORATING I feel CURSED, HEXED!!!


 I am sick and tired of getting "well" only to become ill again within a week! The (C.Diff or whatever) came back after 6 days of going away... I still cannot pinpoint what the hell is causing it. And the one tiny spot (after just about ALL of the weeping Eczema is gone) suddenly the top came off of it and it began slowly seEping AGAIN!!! As I said only son's pot, think honestly I am "cursed", hexed... or something that... I know that sounds almost insane not a usual "human issue" in health. 

But, to have SO MANY THINGS HAPPEN within a short time after Jim left in the wind back to Seattle, I have had nothing but grief and heartache... my Mom passed away, i lost my teeth and had to have dentures made, I fell and broke my hip and spent 5 weeks in inpatient rehab...lost both Tazzy and Bub's suddenly, got this C. Diff or WHATEVER THE HORRID STUFF IS, but it goes away and is back within weeks, broke my collarbone and shoulder blade, it seems it just continues on and on... I FEEL HE HAS SOME KIND OF HORRID GRIP ON ME EVEN FROM THE GRAVE! Hard to explain how MANY THING HAVE GONE WRONG WITH ME, AND THEN THE HOUSE... hot water leaks, then ruined laundry room with mold, toilet still need to be reseated, my lawn is horrible, and I can't get out and work on it as usual, too hot,, then all the illnesses etc, .... praying, praying praying yet iI feel hexed, cursed, punished for "something" and I have no clue what or why!🥲😢👎🔥💔☣️❓❓












Wednesday, August 3, 2022

Announcing the Inaugural Social Health Awards Finalists!!


Announcing the Inaugural Social Health Awards Finalists

AWESOME FOR THESE FINE FOLKS AND NEXT YEAR WILL BE MY 11TH YEAR TO PARTICIPATE!!!
 just need to KNOW I SHOULD PRESS MYSELF MORE TO GET OTHERS TO VOTE FOR ME! I have a difficult time putting myself out there in others faces....

Thursday, July 7, 2022

CLAVICLE IS BROKEN!!!

 Will explain more but broke my collarbone over the weekend.. took an accidental fall over my step that goes into my huge tub/sauna/jacuzzi




Sunday, July 3, 2022

In process of opening up (older blog for music, and other items) & do blogging HERE in the lines of staying with CHRONIC PAIN/AUTOIMMUNE ISSUES (NEW)



 In process of opening up (older blog for music, and other items) & do blogging HERE in the lines of staying with CHRONIC PAIN/AUTOIMMUNE ISSUES (NEW)


I have so much of "both" more personal things such as music, and the link, that really does not pertain to "Autoimmune & Chronic Pain Illnesses, or Advocacy such as WEGO Health (now also Social Media Awards & a part of the Social Media Network)... and all that goes along with illnesses, medical items, from new biologics to the latest in using your own body's immune system.

I have been hearing about a technique that uses your own immune cells that are injected into painful, arthritic joints which heals your own self so it is more of a "personalized medication plan". Rather than antibiotics, NSAIDS, or other items, even surgery to "fix" the problems; especially involving your larger joints this was already and is being used to fight COVID. 

Friday, July 1, 2022

Supreme Court Rules in Favor of Doctors Appealing Opioid Convictions — Pain News Network

Supreme Court Rules in Favor of Doctors Appealing Opioid Convictions — 


Pain News Network: By Pat Anson, PNN Editor 

In a precedent setting case, the U.S. Supreme Court has ruled in favor of two doctors who were convicted of prescribing high doses of opioid pain medication outside the usual standard of medical care. The ruling could potentially impact dozens of past and future cases in...