LUPUS AWARENESS MONTH MAY 2020!!!

LUPUS AWARENESS MONTH

During this time of health crisis, we invite you to shine a little brighter. Congress has proclaimed May as Lupus Awareness Month. We ask you to consider turning purple on May 15, 2020 in observance of Put on Purple Day — a day when the global lupus community rallies to bring greater attention to this terrible disease.

https://worldlupusday.org/

I-Pain Send in your submission to possibly get an article in the iPain Living Magazine!

I-Pain Send in your submission

We are accepting submissions for iPain Living Magazine 2020 - Summer & Fall Eds. Submit articles for consideration to media@internationalpain.org 700-1000 words - Magazine Ads contact media@internationalpain.org #iPainLiving

(Open Letter) signed by over 300 pain specialists, other physicians and those in the medical profession to the CDC & how their "Guidelines" on Opioid Medication could drive Chronic Pain Patients to Suicide...

Are Federal Guidelines for Prescribing Opioids Hurting Patients with Chronic Pain?

(Open Letter) signed by over 300 pain specialists, other physicians and those in the medical profession to the CDC & how their "Guidelines" on Opioid Medication could drive Chronic Pain Patients to Suicide... (letter URL below)

https://docs.google.com/document/d/1RzQDSppUKhjiAsEmhW2WbTXlP5V8vJ4M_vBPQLKhK_8/edit

Information comes from the links here....
www.democracynow.org 
https://www.democracynow.org/2019/3/27/are_federal_guidelines_for_prescribing_opioids


For many years my Mom would ask me "How did I stand the severe pain of Migraines at first, then later, Lupus, RA, Joint issues that turned into replacements, and all of the severe chronic pain she watched me have to go through... she told me several times, that there was no way, she could endure what she watched me go through, that she would have possibly committed suicide rather than put up with all I had to go through so many years BEFORE I could get some "real help" after searching for a decade or more for physicians, diagnosis, medications and things to help me not have to live with such horrid pain in my life.... 

I always tried to reassure her that things would someday "get better"... and yet here we stand worse off than a decade ago when it comes to severe chronic pain... 

COLD COLD and REALLY COLD! Joints, Arthritic Illnesses & such DO NOT like the COLD! Holter monitors, endoscopies & run, run, run...

HOW THE BODY "FIGHTS BACK" WITH Chronic Illnesses, against cold weather, too many errands and on the go too much, feeling lousy, sinus infection, too many "doctor's appts" and life with RA, Lupus, Sjogren's and all the others that follow....


Too much this week again and it's only Wednesday! TWO doctor's appts yesterday, labs, market, the post office (by the way stamps are going up I don't recall when she said but I think to 57 cents a piece).... then to the pharmacy... found out I have a darned sinus infection... so I went to get other meds HOPING that after several hours antibiotics would be ready and they were NOT... so now I have to go out into the COLDER WEATHER TODAY, and pick those up.....

then my cardiologist thinks that since I am having issues over the past couple of months of feeling"blah"... just not wanting to do things and having to "force" myself to cook and clean etc... and it's not like me to not be LOOKING for something to do, BUT this COLD weather, I cannot handle it, it just makes me want to hibernate like our friendly friends Mr. and Mrs. Bear....

so after I "finish" with catch up on two more doctors appts then we will do the 24 holter monitor... my heart rate was 48 BPM in the morning and only 50BPM when I saw her at 4:00 yesterday, so she is now concerned that the lower heart rate "could be" contributing to me feeling just "lousy".... anyway, I have to now reschedule the appt to see the general surgeon to do the endoscopy and talk to him about trying the new "Colo Guard test" and see what it says.

And then I see my Rheumy on Feb 6th, which I think I posted yesterday.... and I was in a hurry so of course I did not recall and get a couple of things on my list... so I have to get out today and get those antibiotics anyway... so I may try to run by the market and pick up the couple of things I forgot... later in the day when it it a "balmy 48 degrees",,, LOL and I STILL am trying to decide about the shower partial clog... actually both were better yesterday, so if I keep on with the dish soap, baking soda and vinegar.. I "MAY" get 'er done myself!"

THIS WAS MY FORECAST YESTERDAY!!! I am giving my "weather forecast" for the next 5 days or so... COLD, RAINING, COLD, COLDER, RAINING AND MORE COLD!!!! OR at LEAST THAT IS WHAT MANY OF MY JOINTS, ESPECIALLY MY HIP THAT WAS FRACTURED IS TELLING ME!

Catching Up on Doctor Bills, talking about my surgeries, my hip "complications" with sudden pain in that thigh, my RA, Lupus, and all acting up due to the weather, and more...

Well, Peanut is much better. He is back to himself just about. I've been very, very careful as to what he eats, so he has been getting plain rice, potatoes, a bit of turkey and this morning he wanted "Cheerios" so I fed him a few at a time. I think it may have been some dog food I gave him early last week so it's going in the trash, and I am going to keep a close eye on him... fortunately he kept drinking water the entire time, so he didn't get dehydrated, but now is just hungry, so he is getting a little at a time.... gosh he had me so worried, we were going to the Vet Friday morning, but he had stopped being sick Thursday afternoon, and was kind of much better Friday morning, did not get sick, ate just a bit and was back to wanting to play some. 

So, I waited, and as the day went on he felt much much better, so I decided to give him the weekend, and so far, other than being tired, he didn't sleep much those couple of nights he was sick and neither did I... so both of us are warn out, then I had a horrible dream that I woke myself up, hollering and mad in the dream, but I was also actually loudly talking out loud, so I got up about 5AM and decided to just stay up and have coffee... I've been so damned "out of it" though ... I guess the weather being rainy and thunderstorms, then my body hurting all over., and almost was having an upset stomach also and feeling lousy, kind of like Peanut, but out Vet has posted that the dogs have also been coming down with the flu. Which is actually the same type of flu that humans can have. So, I was concerned that he may have had that, although he had not been anywhere to come in contact with it, but I could have came in contact with it, and possibly had it on me, and he got it. But, since he is well, and not showing any signs of being ill anymore, I think it was more something in one of the dog foods I gave him,.. bless his heart, he saw me crying and came up, got in my lap, and was licking the tears from my face... I was so scared... after losing Tazzy suddenly, then Bub's passing away while I was in the hospital with my broken hip, I was terrified I could lose him, and I would not survive I don't think if something happened to him.... the nurse from my insurance who comes every week once a week to check on me, her "weenie dog" will be having puppies in a couple of weeks. 

So, I am going to try possibly and get one of those. I think she would either let me have him, or won't charge me very much, and I will just take the puppy, get his or her shots and have it neutered or spayed myself.... Peanut needs his shots, but with my neck like it is, I can't really take him by myself, and get him in and out of the car etc... I've driven a couple of times, down the street to my grocery store, which is just about 5 blocks away, but I wear my soft collar driving, then put the hard collar on to go in, and I won't go alone if i need anything very heavy or if I need a larger amount.... if it is just a few items, then I go myself and just be extra cautious, and take a back route, where there is not a great deal of traffic....I've got to go this coming week and have my hip X-rayed... since my thigh and hip on that side where I fractured it has been hurting now for several weeks, my PCP gave me an order last week to go and get it X-rayed to rule out that one of the screws or something is out of place and causing the pain...

I can barely stand to walk on it some days... then it will get better, then get bad again.... I don't want to go over to my surgeon until I know whether something is wrong or not... he charges me a fortune, and the X-rays there are 5 times as expensive, so I can go even to Urgent Care to have the Xray done, much less expensive, and find out before going and spending a fortune when I am still paying for the surgeries. I thought I was about done paying his bill, then I get another one for the 2nd surgery with the hematoma... I thought it had already been in with my bill, and I've paid at least 700.00 or more to the surgeon alone, then find out i may owe another 240.00 or more dammit.... And the neck surgeon, I owe him 1,600.00!!!! and that is just the doctor, the hospital was less, 

I paid my outpatient co-payment, but my surgeon is "out of network" so I have to pay more for his bill, than if He was "in network"... but I don't trust anyone else, so I bite the bullet and pay more.... go figure... I dread to see what the hell the government does with Medicare...I hope leave it the hell alone.... I already pay more than I can afford for any type of surgery especially.....

That 5 days in the hospital in December for my fractured hip was over 1,600.00 and then another 325.00 for the outpatient hematoma surgery, which I should have not had to pay for, since it was a damned complication of the initial surgery, that should have been "caught" weeks before when I first said it was "developing" I noticed the lump getting larger on my leg, like 3 weeks BEFORE MY FOLLOW UP VISIT, and he still just asked the nurses to "take a photo" and email it to him.... well it only got worse over those two next weeks, and I kept complaining but he still did not see me until it was the size of a SOFTBALL!!! It should have been looked at and dealt with as soon as I began noticing it..... goes to prove sometimes our doctors "ignore" what is right in front of their faces....

Boron Borax Therpay for Arthritis, Osteo,RA, Osteoporosis, Joint Pain, Inflammation - A Natural Supplement we often Lack - been known since the 60s

I happened upon an article about Boron or Borax therapy, that proves to be extremely interesting. I know that Borax that I buy in the box and put in my laundry is an all natural type of supplement, and I had heard about studies on it back in the 60s and the health benefits it has on us.

We NEED an amount of Boron in our systems, to help keep us from having JOINT PROBLEMS, arthritis, stiffness, swelling, osteoporosis, even helping to keep you from having kidney stones, and so much more. I had forgotten about it until I read another article this morning, and I am doing some research on it, but I think I will take some Borax (i just used the rest of my box in with Arm and Hammer Washing Soda and mixed them, so I will have to buy another box, but basically it is the very same as going and buying Boron Tablets. 

You can mix like an 1/8 of a teaspoon in a liter of water, and drink it. There are several ways people do it, drinking it during the week, and then not on the weekends, or drinking it one week, and not the next, and alternating. BUT after reading several articles on this, I think I will buy a new box and give it a try. I looked up the pills, but that means another expensive and it is all the same. 

One in a box for laundry and cleaning and the other in a pill form, of the same thing. I think it is well worth the try when you read about the outcome from many people... and of course our doctors, and pharmaceutical companies do NOT want this information to become viral, because if what I am reading it true, it would put some out of a job, and do away with some of the horribly expensive medications we are given.... I am still reading on this but here are a few links....

http://www.health-science-spirit.com/borax.htm


http://cheflynda.com/…/the-inexpensive-arthritis-osteoporo…/


http://invalid.invalid/


And you can do a search and find all type of articles about it...

I am very impressed as to what I have read, and as I said above, I had heard about this several years back, and seen a new article about it, so I decided to do a bit of research on the subject.

I have to go to the market and get a new box, since I just emptied mine and mixed it with Washing Soda, I mix both of them and put it in my laundry, and use it around the house as a natural cleaner, with no toxic chemicals in it... 


Of course before you try it, I would make sure it does not interfere with any of your others medications, and you may want to ask your physician. Although for myself, since it is a substance in our bodies, that we probably lack due to all of the other junk and chemicals we put in it daily, I see it like a green tea pill, or other types of supplements. I already take B-12 in pills and monthly injections.

But, as I said I am NOT a doctor, so make sure you do what you need to do before trying this, or anything....