Tuesday, June 23, 2015

Chronically ill, chronic pain, and how LIFE can just be absolutely almost unbearable when you feel too bad to deal with it!

I don't care what anyone says, EVERYONE has those moments, days, weeks, and so forth... that things just DO NOT go RIGHT! Yet, when you are dealing with all too often Chronic Illness and Chronic Pain, some of life's bull, can be totally the reason some people just totally "lose it".... I know we wonder when someone "hurt's themselves", or they may just "go off the deep end" and rant and rave about something, or they "take off" for the day, or for a couple of days... or any number of things that we do to try and keep from going completely BONKERS, in life, in illness, and in pain... then add in the STRESS that complicates everything it seems, and it is a wonder that ALL of us are not in the "nut house"... thus this is one reason that I "rant and rave" in my blog and in my writing... some days you just have to PURGE all of that "ugly mess" out of your mind and heart. Everyone has their own ways... mine is to "write it" "say it" and then I am "free" what those "ties" of stress that bind...

AM SO BURNING MAD I could just about SCREAM to the MOON and Back!!! After THREE times of trying to get order for blood work over to my PCP from my Rheumatologist, I go this morning to have other blood work done for my PCP, and they tell me "they do not have the Rheumatologist's orders for the blood work!!!" SO, I go outside, call their office and gave the the fax number. They were going to fax it right then. I go in and for the 1st time he gets my blood the FIRST stick!!! BUT, they claim they still don't have the Rheumatologist orders. So, we get my Mom's done, and get my other finished and still they continue to tell me they didn't get it. So. NOW I've had to email my Rheumatologist again, and I KNOW they faxed that paperwork. My PCP and those girls in the office are idiots. It's probably been laying on someone's desk there now for a week!!!! So, NOW I have to make another trip, and no telling how my veins will act. One time they do great, the next they suck. I am supposed to go have the discography done Friday! So, I don't want all of my veins bruised too badly, then they have hell starting an IV!!! So, right now I am ready to blow more than one gasket. Then EARLY this morning, I get an email from "a person" that made me so mad I called them even though it was 2 HOURS earlier than me... so about 5 AM "they" get my call. After chewing "them" out via email, I was so HURT and felt so damned betrayed, after putting my heart, mind, body and soul, in a relationship for 13 years, and I GET BLAMED for it not "working"... I CAN'T fathom how someone who freaking did things that HURT ME, can so easily FORGET, ALL THEY DID OVER THE DAMNED YEARS... but I am THE ONE TO BLAME... OMG, I am so tired of being walked on and wiped on like a damned doormat... LIFE is NOT easy! PEOPLE disagree... that is PART OF A RELATIONSHIP... NOTHING goes COMPLETELY SMOOTHLY... not when illness, accidents, family... everything can't be PERFECT, but apparently, someone thinks YOU NEVER ARGUE, YOU NEVER HURT someone's feelings, that it is some FAIRY TALE!!! Lord why the hell I ever even tried I don't know... you would THINK I SHOULD HAVE LEARNED MY LESSON!!! But, I WILL NOT BE USED FOR A damned door mat anymore.

and continued....

PLUS I completely changed my entire bedroom around yesterday. I am "parying for it today" though... my lower back and hips are on fire they hurt so badly... then the blood work was "fasting", so Mom and I both went... so I had not eaten or had anything but water since last night... and then Mom has such a terrible hip problem, I finally got her to buy a cane today. She can't put any weight on that hip. I am calling my Orthopedic Surgeon who did my shoulder and neck and getting her an appointment. There is NOT ONE Ortho doctor in our town or any closer that takes our insurance anymore... so she has to go to Dallas anyway, she might as well see the best.... I fear if an injection does not work, she maybe facing hip surgery.... we may both be down with surgery by the same doctor ... if things don't get better... So, she wanted to go to Wally World and I took her. I needed some really very heavy plastic... I am trying to get the place fixed where my dogs are paper trained. My house is not as level anymore, it always moves around, that is TX soil for you. This house was built in 1950 and it STILL SETTLES, depending on the weather, and time of year. One day you can't open a door, the next it won't stay closed... it sucks... so I took her out there, and I knew her hip is bad by the way she was walking, and when she said she would buy a cane, I really knew it was bad.... so I am home, had to take my meds, give the dogs their meds, I still have not eaten, and am trying to get my "orders" for that damned blood work to me, so I can get them done. They won't pay for the Xeljanz (insurance) until I have the blood work done.. so between crappy weather, and a crappy life mess at the moment, and now hurting like hell, I am ready to just throw in the towel, wash cloth, kitchen sink, and the baby's bathtub with the water.... out the danged front door and say to hell with it all! LIFE SUCKS and PAIN SUCKS WORSE!!!!

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