Wednesday, June 10, 2015

Lots of thoughts and prayers needed now...

I can't really go into lots of details at the moment, but there are some really life changing things going on at this time for myself, and my family.

When you are chronically ill, and or in chronic pain... at the first you may never have the thought about HOW MUCH your life can change. Then as the doctors visits, medications, tests, surgeries, fatigue.... and so many things change, physically, emotionally, mentally... all aspects of what used to be "normal"... can be gone within a breath's space...

Then you have two people, one that has been "healthier" that could stand in for the other, when illness or flares hit... and all of a sudden that person is also either as ill as you, or even worse. So, that is when nothing is the same... you may think things will improve, we will find a "new normal".... and it just takes time, patience, tenacity... will power, respect, and love to finally find whatever can go on in the future. Yet, a "dam" appears... the river of life that you felt was so awesome, suddenly turns into a raging force, driving one in one direction, a fork you may say, and the other, suddenly winds up in the opposite direction.... and that is when "trying to piece back your life" can either be not really going to happen, might happen, or usually you finally KNOW, things must change... and change drastically, for both of your sakes...

As I said, I can't go into lots of details, and for now, I think those that do know me, and have an understanding of all of the drama, the illnesses, surgeries, doctors, and pain... from the physical, to the emotional, mental, and daily life - has all bundled up into a huge knot, and you just cannot manage to go on that way.


We are NEVER guaranteed anything but to "live" and then to "die".... in between things can be smooth, even, rocky, a landslide, and so often we are left wondering why the hell this happened? All of the questions, why am I being punished? Am I a "bad" person? Why can't I just have a break? Why can't something be "easy" for a change????

None of us know that answer. And throughout my entire life, most EVERYTHING has been a challenge. There are not many things for me, that have came "easy"... I worked, fought, crawled up the mountain, as the stones dug into my knees.... and slid back down again.... and I do know that only through FAITH and HOPE can I continue to one step at a time, moment by moment, then hour by hour, day by day.... week by week... and then months... years... and one day when I am no longer on this Earth... then all shall be revealed.


So, I WILL continue on with my 3rd book... and hope to finish it up on schedule by the end of the year. I WILL continue to be a voice, activist, advocate, and ambassador...
Lord willing, and my health continue to half way act right.... and hopefully the brain fog, pain and suffering may hopefully have something done about soon... either by surgery, by new medications... and so forth...

I shall give more information as the next days go along... so PLEASE continue to come and join in on my blog... and for those who have always been here to support, encourage, provide strength, faith, and prayers... I am so very grateful for all of you....

Sunday, June 7, 2015

Osteoporosis And My "Severe" Range Numbers...

I haven't been able to sit and write much. I was gone for a couple of days for a "girls get away" trip with my Mom. We went to OK, to the Winstar and just had an incredible time!

But, with the issues I've had with my very lower spine and hips, the sitting really did me in. I've spent the last two days trying to recuperate, and I am already having massive issues with severe pain, burning, even all the way down into my heels at times. A CT scan shows some issues at L-5/S-1 & 2. But, it is really not able to tell us just how badly it is. I suspect a probable compression fracture or maybe 2 due to the severity of my osteoporosis. It was something I never really thought much about until I had my first bone scan about 3 years ago. I was totally blown away by finding out I had not just the disease, but SEVERE osteoporosis.

I began doing research to find out, due to the RA, Lupus, Prednisone for the illnesses, my tiny bone structure, and several other things all contribute to my having this disease. My hips are totally with it, as well as my "femoral neck" and my lower lumber spine. Thus I feel that is where the compression fracture or fractures could be. Due to having a internal pain pump I can't have an MRI. But, we already know, I have had more than one time of having a "scan", then going on with surgery only to find out the surgery really showed the severity of my problems. My joints are just being destroyed.

Anyway, I had not wrote but a bit about it, so I decided to at least post this, along with this URL:

http://en.wikipedia.org/wiki/Osteoporosis

And I will continue later... ;)

Friday, May 29, 2015

Wondering If I "Offended" anyone? Living a Life of never knowing what is around the corner, one day to the next.

As of lately, between thunderstorms, rain that seems to be never ending, concerns for loved ones and others I know that could be caught in these rushing waters somewhere, and all of the things I've seemed to either "get behind" on, or feel as if I am moving again, too slowly.

I know, another very long, drawn out sentence to start a post. As usual. from brain fog, to wondering what comes next, I am not sure what to us. I've awakened a couple of nights in a row, feeling as if I was being suffocated. Some of it, I'm sure just upset over all of the tremendous amount of rain, thunderstorms, water, and problems that go along with all of it.

I've got to make a couple of decisions in regard to my own health, that are not easy to make. As I've said now for weeks, Mom and I have been so looking forward to going for a overnight stay, a girls day and night out, away from all of the drama that continues to surround my life.

After going for months, and not hearing from our lawyer, about three days ago, finally after I had made a step in their direction, we get an email from an "assistant attorney" at our lawyer's office. She had read my email, and saw that I was in a bit of a fluster, not hearing anything from them for months, she comes back with her own email about some paperwork they need. There are some things that need to be clarified from information that a gentleman came down here and got from Jim. I believe it was more of a testing, of just how badly his memory, and that had been still trying to piece that information together. They also want names of doctors and addresses of course of any doctors Jim has seen over the past several months, since he gave them everything from the hospital.

We tend to think that "maybe", and that is a huge maybe, something may try to move forward now. Since "our attorney" is asking for information they may have some idea about the possibility of this not going on to a "jury and trial". I would "assume" that the other party involved in all of this would not want to "air" all of the details out in the "Dallas" area. But, we of course don't have a clue, as to what type of "witnesses" that we have "been told" they gotten depositions from. I cannot fathom, many "witnesses" to this at all. Only those involved in the wreck, being that it was on I-45, a very busy portion at that coming into the Dallas City Limits. and was no real "houses" to amount to anything in that area, If they do or did have a "look" it couldn't have been very much. That entire area, is more or less not filled with any real residential areas, with the exception, of the possibility of some type of apartments, and they would be kind of difficult to get a very good look at something on that stretch of highway, that happened that rapidly, to be able to say one way or the other what you "may have seen".... plus there as far as we know were no people that "stopped" and asked to help. With the accident as bad as it was, if someone had really seen what took place, I can't imagine them not stopping at the very least to not try and get 911 there, and even possibly get Jim out of that car. Of course He thought there was, but later we found out, what he thought I believe was the actual fire crew that came in and had to literally cut him out of the car. As far as we know there was not anyone that stopped to help. So, "onlookers" (I was not there so I can't say with certainty) seems kind of doubtful at this point.

I've been through that area now on several occasions driving back and forth to doctors, and unless it is one particular "house" or more like an apartment building, there is nothing "facing" the highway enough to see what really went on..


None the less, we also don't know whom it telling what, and whom knows anything, and maybe there is "not" a "witness"... but the other parties of course are going to "stir" the soup of a mess in any way they can in order to make the situation a bit deeper into a pile of crap honestly.

I am going to "end" this here. It is already after 2:30 on Friday afternoon. I've been so busy these past several days, and still am having to deal with whether to attempt Dallas and go to the Casino Sunday.. OR wait until my doctors appointment that is Wednesday afternoon, and we would be about an hour and 20 minutes away from the Casino then. We could even stay Wed. night and Thursday night... if we did that... the weather "supposedly" is going to be out of the woods as far as thunderstorms and all that has been going on. I have not packed yet, and I should have went to town today, but I don't want to attempt to wash the car until tomorrow... when hopefully it won't be as "muddy" as today. I can tell I am tired... my eyes are seeing "double vision" even with my glasses on as I type. So, I know I am just exhausted.... anyway, I think I am off to the sofa for now and give thought to what I may want to do about all of this...